As a survivor of bilateral retinoblastoma, I am challenged to be supportive of dear friends facing their own second cancer journey, without being swamped by fear for my own future. I imagine this is a similar balancing act for parents whose children are in treatment now, as social media increasingly brings us into contact with families struggling to access appropriate care for their child.
Recently, a number of people have asked why we promote the childhood cancer gold ribbon and not a ribbon uniquely for retinoblastoma. This is a good question – here are our three key reasons…
Children with retinoblastoma are much more than a medical specimen. To achieve complete cure, we must consider them as a whole person, not just an eye or a body to be treated. A single word can completely change our focus.
Our Global Rb Scientist, Dr. Helen Dimaras, is leading a major initiative to advance digital pathology consultations at our pathology Lab in Nairobi, thanks to a $100,000 grant from Grand Challenges Canada. The digital RbCoLab will significantly improve care for each child by rapidly identifying their true risk and need for further treatment after their eye has been removed.
Last Sunday, January 22nd, the world lost a wonderful man, and Daisy Fund lost a special friend.