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Inspired by

Daisy and Rati

Welcome to World Eye Cancer Hope

Retinoblastoma is an aggressive eye cancer affecting babies and young children. It kills 7,000 youngsters each year, and blinds many more.

The most common early sign of childhood eye cancer is a white glow in the pupil of the affected eye. The cancer is easy to diagnose and when treated early, is very curable.

Suffering and death is highest in developing countries, where most affected children live and timely access to specialist cancer care is limited. In developed countries, cure is above 96%, but most children experience moderate, severe or complete vision loss. Globally, children, families and survivors experience significant emotional trauma.

Inspired by
Daisy & Rati

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In Your Country

WE C Hope for all children with eye cancer, families & survivors.

Increasing access to specialist care will bring the promise of life and sight to every child, and improved life-long health to survivors. This is our mission. We:

Educate the public and medical community about retinoblastoma to achieve early diagnosis and rapid referral to specialist care

Empower medical teams to deliver sustainable high quality evidence-based care for affected children and adult survivors.

Enable family support programs that reduce practical and emotional burdens and improve access to essential care

Families, Survivors, Specialists: Join an Rb Community Event

Two children wearing t-shirts that read "eye wear gold" are pictured alongside text information about upcoming events. Info repeated in website text.

WE C Hope hosts events for our global Rb community, from virtual child life activity sessions and relaxing family days, to major collaboratve meetings that unite us all to share knowledge and move care forward together.

Read about our upcoming events in California, Texas, and the Washington D.C. metro area. Find programs and event preparation resources, and register. Please join us to connect with others who share your experience and desire that all children, survivors and families have the best care possible.

Read our Comprehensive 12 Step Guide to Making Treatment Decisions

Text reads “Retinoblastoma Treatment Decisions 12 Step Guide”. The background is a blue painted wood table. To the right of the text, a pen rests on the blank open page of a notebook. Around the notebook sits a pair of glasses, a cup of coffee, and a small plant with green leaves.

Parents face many decisions about their child’s retinoblastoma treatment. Recognizing the complexity of this highly emotive and stressful experience, we’ve created a comprehensive guide to making treatment decisions.

This 12 step tool will help parents navigate the decision making process, and make the best choices at every stage of their child’s eye cancer journey.Read the Treatment Decision Making Guide.

Support Kids During Needle Related Procedures

Kenyan Child Life Specialist, Jayne Kamau, distracts a young patient with a meteor shower toy while a nurse inserts an IV in her hand.

Only 5% of children have support for immunization needle pain. Seriously ill children experience many needle related procedures, rarely with adequate pain support. But pain and distress can be managed and reduced.

Visit our Needle Related Procedures guide to find supports for children of all ages. Parents, ask how to manage your child’s pain. Healthcare providers, please give parents options. Learn how to make needles easier and safer for everyone.

WE C Hope Blog

Celebrating a successful week of training in Eldoret.

Child Life: Training for Best Care

October 20, 2011

Our child life leaders are excited to be bringing child life skills to the children they care for. Their knowledge, vision and dedication will enrich paediatric health care and children’s lives beyond measure.

Any child can be a princess (or prince) even after their eye is removed.

Why Refuse Eye Removal Surgery?

October 14, 2011

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People often ask me incredulously “why would parents refuse eye removed surgery if it’s the only way to save their child’s life?” This is a very important question. Understanding the complex answers helps us care for families to ensure children have the best chance of cure.

An overwhelmed mother comforts her child in hospital.

Two Children – Two Very Different Journeys.

May 12, 2011

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Two children. The same affliction. Drastically different outcomes. Yet each story represents the most common reality for children with retinoblastoma in these respective parts of the world.

A Special Vision About Special Eyes

May 12, 2011

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The challenges surrounding eye removal stigma are complex, but our passion to overcome them is stronger. I feel honoured to have a special eye and to be able to use it to help spread the message and save lives.

Photographers

A baby has one red pupil and one white pupul - the classic early sign of eye cancer in children.

Know The Glow!

Learn about the most common early sign of childhood eye cancer – a white reflection in the pupil, seen in dim light and flash photos. Find out how to take photos to check for signs of serious eye disease in children.

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Parents & Survivors

Find Hope

We offer the Retinoblastoma Resource to supplement information provided by your medical team, answer questions and concerns about all aspects of life with Rb, increase understanding and share hope.

How You Can Help

Forget “let me know if I can do anything to help”! Carefully considered and offered support will be truly valued. We have many suggestions from parents that have brought families relief, joy and hope.

Sun reflects gold on Daisy's hair as she smiles and laughs while clutching a big bunch of daisies.

Help Change Lives!

There are so many ways you can help us bring hope of cure and better quality of life to children with eye cancer, families and survivors. Donate online now, or become a fundraising angel. Together, WE C Hope!

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