Entries by Abby

Visualizing Cancer Treatment

Have you ever wondered what happens in a child’s eye during retinoblastoma treatment? We explore four of the most common eye-saving treatments here. Below each, you will find a link to further information that includes advantages, disadvantages, side effects and questions to ask the doctor.

Staging Intraocular Retinoblastoma

Retinoblastoma is staged to help doctors describe the degree of cancer in a child’s body, define potential for cure / eye salvage, determine best treatments, and compare impact of different therapies. Each eye is staged separately to define potential for safely saving the eye and vision.

How Do We Achieve Early Diagnosis of Retinoblastoma?

Retinoblastoma specialists agree that early diagnosis of eye cancer is a child’s best hope of survival, retaining some vision or their eye. Yet around the world, thousands of children die, and more than half of children who are cured lose at least one eye. We consider the potential and limitations of six solutions to improve early diagnosis.

Revisit One Rb World and SIOP 2016 (Dublin)

We are looking forward to One Rb World and SIOP 2017 in Washington D.C. this October. Read about the 2016 One Rb World meeting and International Society of Paediatric Oncology World Congress in this blog mini series, originally shared later last year.

Share the Gift of Healing Christmas Love

The real spirit of the Holiday Season is not to be found in a festive dinner or brightly wrapped presents under a tree, but in our dedication to helping those around us, in the sharing of hope, peace and friendship. Our CEO, Abby White, shares her mother’s memory of healing Christmas love when Abby was an infant being treated for eye cancer, and some helpful hints to support families in need this year.

Alfred Knudson Memorial Session

A special session at the 2016 World Congress of Paediatric Oncology was hosted in memoriam of Alfred G. Knudson, Jr., MD, PhD, who died in July. Knudson developed his “two-hit hypothesis” after years of observing children with retinoblastoma, and this now forms the backbone of cancer genetics. The session focused on most effective staging for retinoblastoma, identifying and treating high risk children.

SIOP World Congress 2016

The International Society of Paediatric Oncology World Congress promotes a holistic approach to care. Through a unique collaboration of multiple diverse organizations, the program embraces almost every element of childhood cancer care and survivorship. Dublin hosted an inspired SIOP 2016 congress, October 19-22, a global village with a united voice and energy for all children and their families.

One Retinoblastoma World, Dublin 2016 – Part 2

Dublin, Day 2 of One Retinoblastoma World 2016, a global meeting of highly committed retinoblastoma advocates. Focused on best care for everyone, we discussed common sense primary treatment and the pros and cons of eye salvage for child and eye, building effective care in developing countries, innovations for global care, and the pathway to progress for our global community.

One Retinoblastoma World, Dublin 2016 – Part 1

The land of 100,000 welcomes warmly greeted our global childhood eye cancer community in October. Dublin enthusiastically hosted One Retinoblastoma World 2016, before the world congress of the International Society of Paediatric Oncology. A meeting of highly committed doctors, parents, survivors, researchers and advocates from six continents, focused on best care for everyone affected by retinoblastoma.

RAE of Hope – Raising Awareness & Empowerment

There’s a new RAE of Hope in the retinoblastoma world this September as we shine the light on childhood eye cancer. Thomas Reid is a survivor, father of a survivor and a Director of WE C Hope USA. The entire Reid Family dedicates Childhood Cancer Awareness Month to Raising Awareness and Empowerment as they help children, adult survivors and their families share their experience of retinoblastoma and how it has shaped their lives. Watch the RAE of Hope videos and be inspired.