“Some journeys don't have endings, they lead to new beginnings. These are the journeys that lead to great adventures!” Alex Haditaghi from ‘Softly, As I leave her’ 2016. Quote set against background of sunrise painting a golden pathway over blue ocean, into a slightly clouded blue sky.

One Retinoblastoma World, A New Realm of Discovery

When Sandra Staffieri left Australia in August 2012 for a conference in Italy and a tour of retinoblastoma centres in North America, she had no idea how radically the journey would change her life and care at the Royal Children’s Hospital, Melbourne. Yet as she departed, the key destination was not even on her itinerary…

Through Our Eyes at One Retinoblastoma World 2017

Parents and survivors shared their thoughts on the “Through Our Eyes” wall at the One Rb World meeting in Washington D.C., 9-11 October 2017. These powerful insights were gathered anonymously via this website during September 2017, and highlight wide-ranging concerns.

Group photo outside the Jefferson Memorial.

Reflecting on One Retinoblastoma World 2017

Focused on best care for all, One Rb World 2017 included the first ever US national Family & Survivor Day. The collaborative program covered awareness, treatment, parent advocacy, life-long care, research, child life and the pathway to progress for our global community.

One Rb World group photo

One Retinoblastoma World 2017, Washington D.C.

Focused on best care for all, One Rb World 2017 included the first ever US national Family & Survivor Day. The collaborative program covered awareness, treatment, parent advocacy, life-long care, research, child life and the pathway to progress for our global community.

A young boy is wrapped up in a hug from an Elmo character.

I Am a Child, Not a Case!

Children with retinoblastoma are much more than a medical specimen. To achieve complete cure, we must consider them as a whole person, not just an eye or a body to be treated. A single word can completely change our focus.

A child's hand grasps a gold ribbon. The child's hand rests in the palm of an adult hand.

Are You Childhood Cancer Aware?

Childhood cancer is the leading disease killer of children in developed countries; second most common among children aged 1 to 15 in developing countries. With statistics and insights from parents and survivors, we explore the realities around the world.

Stronger Together: Patient Engagement in Retinoblastoma Research

The Canadian Retinoblastoma Research Advisory Board is working with patient families to guide future research priorities. Engaging parents and survivors can lead to improved health outcomes. Read on and sign up today.

Pathology slide showing advanced retinoblastoma

The Anatomy of Retinoblastoma Pathology

Expert retinoblastoma pathology identifies cancer spread to outer layers of the eye or the optic nerve, guiding post-operative care. Accurate, timely pathology is key to long-term survival when a child has advanced cancer.

Three young girls enjoy riding down a slide together on a sunny day.

Parents and Survivors Can Help Doctors Create Great Retinoblastoma Care

Being the parent of a child with retinoblastoma, or living with the effects of this cancer, can be frustrating. We look at a few challenges and ways we can help the medical community advance care.

A fuzzy cloud shows recurrence of a previously treated tumour.

Visualizing Cancer Treatment

Have you ever wondered what happens in a child’s eye during retinoblastoma treatment? We explore four of the most common eye-saving treatments here. Below each, you will find a link to further information that includes advantages, disadvantages, side effects and questions to ask the doctor.