Two small group discussions are taking place around separate tables.

How to Communicate with People Who are Blind or Vision Impaired – Part 1: General Meeting and Interaction

Most children with retinoblastoma and survivors have some degree of sight loss, and many experience awkward healthcare interactions as a result. This 3-part series shares survivor and parent tips for medical professionals caring for and working with people who are blind or vision impaired. Part 1 focuses on general meeting and interaction.

A young smiling girl holds a certificate that states "First Day of Pre-School 2018-2019".

How to Support Learning For Children With Vision Loss

Most children with retinoblastoma experience some degree of vision loss that requires accommodations and support to reach their potential in school. Four vision professionals, who have experience of retinoblastoma, review the supports children may need, and what parents can do to help secure them.

A female doctor wearing scrubs and a brightly coloured surgical cap sits at the head of a surgical table on which a baby is lying with a tube inserted in her mouth to control her breathing. In one hand, the doctor holds a device that shines a bright light onto the eye, and in the other, a small probe held over the eye. Cables from both are draped around her neck. Two doctors stand behind her, observing.

EUA Frequency During and After Retinoblastoma Treatment

Parents of children with retinoblastoma ask how often their child’s eyes should be examined under anaesthetic, and if schedules vary depending on type of eye salvage treatment. Abby White, in collaboration with a specialist from one leading US treatment center, helps to answer these important questions.

Microscope image of coronavirus

Retinoblastoma Care During the COVID-19 Pandemic

COVID-19 continues to impact life and medical care. WE C Hope CEO Abby White reviews the facts of COVID-19, how we can protect ourselves and others, COVID testing, retinoblastoma care during the pandemic, safe travel to medical care, and how to support ourselves and our children.

Eleni stands on a waterside path. A little distance behid her, a fountain shoots a tall jet of water high into the air.

Life After Enucleation: 8 Retinoblastoma Survivors Share Hope

Despite advances in eye saving therapy for retinoblastoma, removing a child’s eye remains the most common treatment worldwide. Rb survivor and WE C Hope CEO, Abby White, shares her perspective of life after enucleation, and experiences from seven fellow survivors, offering hope to parents facing the reality of enucleation.

The gold pin on a compass points to the word "survivorship"

7 Survivorship Tips and Tricks: navigating the adult post-retinoblastoma world

Diagnosis and treatment of eye cancer in early childhood is only the start of a lifelong story for many individuals affected by retinoblastoma. Marissa Gonzalez, Rb survivor and President of World Eye Cancer Hope USA, shares seven tips for being an active participant in your retinoblastoma survivorship journey.

A young girl with blond hair and wearing a Minnie mouse dress is standing on a small round trampoline, holding on to the arched handle. She has a white pupil glow in one eye, and her other eye is turned outwards.

If You Tell Them, They Will Know: raising awareness of retinoblastoma signs can save lives, eyes and sight.

Strabismus (turned eye) and leukocoria (white pupil) are the most common early signs of retinoblastoma.  Sandra Staffieri, Rb Care Co-ordinator at the Royal Children’s Hospital, Melbourne, explores why parent and healthcare provider awareness of these signs is vital to early diagnosis of childhood eye cancer.

A mother and young child face one another oon couch while talking.

How To Support Siblings of Children With Retinoblastoma

Siblings of children with retinoblastoma often experience big fears, worries and emotions when their brother or sister is first diagnosed, during treatment, and beyond. Early Years Educator and Child Life Intern Keanna Gordon explores childhood eye cancer from the sibling’s perspective, and how parents can best support their wellbeing.

A woman sits alone on a couch at home.

Coronavirus: How to Protect Your Mental Health During Home Isolation

The coronavirus pandemic and social distancing measures are a high stress experience that may increase the risk of PTSD in an individual already susceptible due to childhood cancer trauma. Abby White explores 11 ways we can protect our mental health through the crisis, and reduce the risk of long-term negative effects.

A bald female toddler sits on her mother’s lap during a port access procedure. Her back rests against her mother’s chest, and her head is turned up and back towards her mother, who is leaning down in conversation. Both mother and child are white. The nurse accessing the port is seen from behind and has fair hair.

Questions About COVID-19 and Retinoblastoma

People around the world are feeling anxious about the coronavirus pandemic. We understand the concern is especially acute for parents of children with retinoblastoma, and survivors who have chronic health conditions and second cancer diagnosis. Here we answer questions we have received about the virus.