Retinoblastoma and living to your fullest potential
Empowering yourself and others
Creating a clear and balanced plan for your future
10:00 – 10:50 am: BREAKOUT SESSIONS
Refreshments will be available during breakout sessions
Breakout Session One: Ask a Survivor
Session Leaders: Len Burns and Katherine Derganc-Billings, Retinoblastoma Survivors
Session Topics: An open Q&A for parents and caregivers with adult survivors – a safe place to seek guidance on any topic relating to retinoblastoma, from treatment to survivorship.
Breakout Session Two: Ask a Survivor: The Younger Generation
Session Leaders: Marissa Gonzalez, World Eye Cancer Hope USA; and Melissa Mills, Stanford Children’s Health
Session Topics: An open Q&A for teenagers with adult survivors – a safe place to ask any question: driving, dating, self-esteem… – no topic is off limits!
11:00 – 11:50 am: Parent panel
Session Leaders: Thomas Reid, World Eye Cancer Hope USA; Mark Billings; World Eye Cancer Hope USA and Marty Gonzalez
Caring for a child with retinoblastoma
Family systems – Maintaining healthy relationships during treatment
Parental and family self-care
Financial planning for a child with cancer and beyond
12:00 – 1:15pm: LUNCH
Lunch will be served from 12pm. The lunchtime session will begin at 12:15pm.
12:15 – 1:15 pm: Lunch Session – Survivorship and Self Care for Rb Survivors and Parents
Sandra Staffieri, Research Orthoptist & Retinoblastoma Program Coordinator, Royal Children’s Hospital, Melbourne, Australia.
David Freyer, Co-Medical Director, Adolescent and Young Adult Program, Norris Comprehensive Cancer Center, University of Southern California, USA.
Morgan Livingstone CCLS, WE C Hope Canada.
What is survivorship?
Taking control of your healthcare needs
Balancing emotional and physical stress
Comforting your child during treatment
1:30 – 2:25pm: Genetics and Retinoblastoma
Session Leader: Dr. Helen Dimaras, Director of Global Eye Health Research, Department of Ophthalmology & Vision Sciences, The Hospital for Sick Children, Toronto, Canada; and Melissa Mills, Rb Survivor, Genetic Counselor at Stanford Children’s Health
Second primary cancer risks
Family planning – what do I need to know before starting a family?
Genetic counseling services
2:45pm: Washington D.C. Sightseeing Bus Tour
Join us for a FUN and interactive private bus tour through the nation’s capital. This one-of-a-kind Family and Survivor Day Tour will include stops and photo ops at various points of interest, ending with a celebratory dinner at a local restaurant. You’ll be sure to leave with a smile on your face, new friendships and connections with people from all over the world through the common bond of retinoblastoma.
The bus tour is at capacity as of 9/29/17. We apologize for the inconvenience to guests registering after this date.