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Inspired by

Daisy and Rati

Welcome to World Eye Cancer Hope

Retinoblastoma is an aggressive eye cancer affecting babies and young children.  It kills over 7,000 youngsters each year, and blinds many more.

The most common early sign of childhood eye cancer is a white glow in the pupil of the affected eye.  The cancer is easy to diagnose and when found early, treatment is very effective.

Suffering and death is highest in developing countries, where most affected children live and timely access to specialist cancer care is limited.  In developed countries, survival is above 96%, but most children experience moderate to severe vision loss or complete blindness.  Globally, children, families and survivors experience significant emotional trauma.

Inspired by
Daisy & Rati

In Your Country

WE C Hope for all children with eye cancer, their families and survivors.

Baby with one white pupil and one red pupilIncreasing access to specialist care will bring the promise of life and sight to every child, and improved life-long health to survivors. This is our mission. We:

  • Educate the public and medical community about retinoblastoma to achieve early diagnosis and rapid referral to specialist care
  • Empower medical teams to deliver sustainable high quality evidence-based care for affected children and adult survivors.
  • Enable family support programs that reduce practical and emotional burdens and improve access to essential care

Support Kids During Needle Related Procedures


Kenyan Child Life Specialist, Jayne Kamau, distracts a child with a meteor shower toy during a needle procedure.

Only 5% of children have support for immunization needle pain. Seriously ill children experience many needle related procedures, rarely with adequate pain support. But pain and distress can be managed and reduced.

Visit our Needle Related Procedures guide to find supports for children of all ages.  Parents, ask how to manage your child’s pain. Healthcare providers, please give parents options. Learn how to make needles easier and safer for everyone.

Thank You for Joining the 6th One Rb World Meeting on 1-3 October 2021!


A slide from Sarah’s presentation, titled “Thank You”, with a single photo and the One Rb World 2021 Logo below. In the photo, Sarah sits on a rock structure at the top of a mountain. Her body is facing to the left, her legs outstretched, and her feet resting on a different rock. She is leaning against the rock she is seated on, looking away from the camera at the view. Slivers of blue sky peak through the blanket of clouds, and in the distance, many trees, farms, fields and national parkland can be seen from this high vantage point.

We were delighted to host the 6th One Rb World event on 1-3 October, 2021. Being 100% virtual due to the pandemic, we welcomed Rb specialists, researchers, survivors and families from around the world to a hope-filled rogram.

Planning and hosting is always an adventure, especially with a team working in lockdown conditions across an 18 hour time differnce!  Read on for some behind-the-scenes insight and conference highlights.

Families, Survivors, Specialists: Join an Rb Community Event


7 children co-create a group board game, supported by an adult. One of the children is adding to the board game with a marker

WE C Hope hosts events for our global Rb community, from virtual child life activity sessions and relaxing family days, to major collaboratve meetings that unite us all to share knowledge and move care forward together.

Read about our upcoming events, find programs and event preparation resources, and register. Please join us to connect with others who share your experience and desire that all children, survivors and families have the best care possible.

WE C Hope Blog

Six soft jute cloth bags in colours of earthy red, green, and gold sit in a row. They showcase two displaying kinds of tactile embellishment. On 3 bags, carved wooden tags shaped like a gingerbread man, Christmas tree and star clearly display the dates as raised tactile numbers. On the other three, foam stickers shaped like a tree, love heart and stocking, the numbers are large tactile cut-outs.

12 Ways to Inclusive Festive Fun: How to Celebrate the Holidays with Your Child Who Is Blind or Visually Impaired – Part 1

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When a child has vision loss from retinoblastoma, highly visual aspects of this Holiday Season can be challenging, exclusionary and isolating. But a little thought and creative adaptation can completely change the experience. In part 1 of this 2-part blog, bilateral Rb Survivor, Abby White, shares 12 ways to include blind and visually impaired children in traditional Holiday activities.
A school-age girl looks towards the camera with wide eyes and a sad expression. She has long black hair and wears a pink top. In the background, slightly out of focus, two children sitting next to one another look towards the girl, their heads bent towards one another in conversation.

“But You’re My Friend……”: How to Spot and Deal With a Bullying Friend.

Friendships are a huge part of our lives; they bring us so much joy, comfort, motivation, and hope. But our friends can also hurt us and make us feel sad – friends can even be bullies.  What exactly is “Friendship Bullying”?  How do you identify it, stop it, and heal from the pain?  Morgan Livingstone CCLS has written this blog for our young friends who may be experiencing bullying behavior from a friend or group of friends.
A slide from Sarah’s presentation, titled “Thank You”, with a single photo and the One Rb World 2021 Logo below. In the photo, Sarah sits on a rock structure at the top of a mountain. Her body is facing to the left, her legs outstretched, and her feet resting on a different rock. She is leaning against the rock she is seated on, looking away from the camera at the view. Slivers of blue sky peak through the blanket of clouds, and in the distance, many trees, farms, fields and national parkland can be seen from this high vantage point.

One Rb World 2021: Planning, Creating, Sharing and Raising Hope Together

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On 1-3 October, we hosted a hope-filled One Rb World 2021 meeting. Planning and hosting is always an adventure, and the 6th One Rb World was especially so! Co-Chairs, Dr. Sandra Staffieri PhD, Rb Care Co-Ordinator, Royal Children’s Hospital, Melbourne, Australia, and Marissa Gonzalez, Bilateral Rb Survivor and President, World Eye Cancer Hope USA, share behind-the-scenes insight and conference highlights.
Close-up of a brown eye.

10 Ways to Love Your Eyes

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Thursday October 14 is World Sight Day, and this year’s global campaign is “Love Your Eyes”. The International Association for the Prevention of Blindness encourages us to prevent eye disease with a healthy lifestyle, protect our eyes with small daily actions, preserve vision with regular eye exams, and prioritize eye health. Bilateral Rb Survivor. Abby White, shares 10 ways you can love your eyes every day.

Photographers

A baby has one red pupil and one white pupul - the classic early sign of eye cancer in children.

Know The Glow!

Learn about the most common early sign of childhood eye cancer – a white reflection in the pupil, seen in dim light and flash photos. Find out how to take photos to check for signs of serious eye disease in children.

Parents & Survivors

Find Hope

We offer the Retinoblastoma Resource to supplement information provided by your medical team, answer questions and concerns about all aspects of life with Rb, increase understanding and share hope.

Family & Friends

How You Can Help

Forget “let me know if I can do anything to help”! Carefully considered and offered support will be truly valued.  We have many suggestions from parents that have brought families relief, joy and hope.

Give Hope

Sun reflects gold on Daisy's hair as she smiles and laughs while clutching a big bunch of daisies.

Help Change Lives!

There are so many ways you can help us bring hope of cure and better quality of life to children with eye cancer, families and survivors.  Donate online now, or become a fundraising angel. Together, WE C Hope!

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