Rati smiles broadly

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Inspired by

Daisy and Rati

Welcome to World Eye Cancer Hope

Retinoblastoma is an aggressive eye cancer affecting babies and young children.  It kills over 7,000 youngsters each year, and blinds many more.

The most common early sign of childhood eye cancer is a white glow in the pupil of the affected eye.  The cancer is easy to diagnose and when found early, treatment is very effective.

Suffering and death is highest in developing countries, where most affected children live and timely access to specialist cancer care is limited.  In developed countries, survival is above 96%, but most children experience moderate to severe vision loss or complete blindness.  Globally, children, families and survivors experience significant emotional trauma.

Inspired by
Daisy & Rati

In Your Country

WE C Hope for all children with eye cancer, their families and survivors.

Baby with one white pupil and one red pupilIncreasing access to specialist care will bring the promise of life and sight to every child, and improved life-long health to survivors. This is our mission. We:

  • Educate the public and medical community about retinoblastoma to achieve early diagnosis and rapid referral to specialist care
  • Empower medical teams to deliver sustainable high quality evidence-based care for affected children and adult survivors.
  • Enable family support programs that reduce practical and emotional burdens and improve access to essential care

Families, Survivors, Specialists: Join an Rb Community Event


7 children co-create a group board game, supported by an adult. One of the children is adding to the board game with a marker

WE C Hope hosts events for our global Rb community, from virtual child life activity sessions and relaxing family days, to major collaboratve meetings that unite us all to share knowledge and move care forward together.

Read about our upcoming events, find programs and event preparation resources, and register. Please join us to connect with others who share your experience and desire that all children, survivors and families have the best care possible.

One Rb World: Support our Giving Tuesday Campaign


Giving Tuesday campaign image, shows the world Eye Cancer Hope logo above a collage of pictures from the child life program of One Retinoblastoma World – children of different ages, from infancy to late teens are participating in a range of medical play and self-expression activities. Below the collage, the Giving Tuesday logo and December 1, 2020 date are seen, along with the words: “help us bring life, sight and hope to all affected by childhood eye cancer.”

One Rb World 2021 takes place 19-21 October. Specialists, survivors and families unite to share knowledge, support and collaboration for best care. We hope to host both in-person and virtual participation in October.

Our 2020 virtual program enabled unprecedented global collaboration and networking. All affected by retinoblastoma, involved in patient care or research should be able to engage in One Rb World.  Please help us make this a reality in 2021.

Support Kids During Needle Related Procedures


Kenyan Child Life Specialist, Jayne Kamau, distracts a child with a meteor shower toy during a needle procedure.

Only 5% of children have support for immunization needle pain. Seriously ill children experience many needle related procedures, rarely with adequate pain support. But pain and distress can be managed and reduced.

Visit our Needle Related Procedures guide to find supports for children of all ages.  Parents, ask how to manage your child’s pain. Healthcare providers, please give parents options. Learn how to make needles easier and safer for everyone.

WE C Hope Blog

An abstract image of a child sitting on the floor, head on knees. The child sits in a shaft of blue light emanating from their laptop. Outlined hands emerge from the computer screen, pointing at the child.

Cyberbullying: What Is It? How Can We Handle It and Reduce the Risk?

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Cyberbullying is becoming increasingly common, as we spend more time online, beginning at younger ages. Child Life intern, Shane Smith, explores the defining features of cyberbullies, what we can do to limit the risk of unwanted attention and protect our security online, and how we can handle cyberbullying and support affected children.
A young lady reclines in a hospital chair, holding a cute grey elephant with big eyes, while a nurse takes a blood sample from her arm.

How to Communicate with People Who are Blind or Vision Impaired - Part 3: Medical Care and Support

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Most children with retinoblastoma and survivors have some degree of sight loss, and many experience awkward healthcare interactions as a result. This 3-part series shares survivor and parent tips for medical professionals working with people who are blind or vision impaired, Part 3 focuses on medical care and support.
A man wearing dark glasses walks with a woman along a road, guided by his cane and his hand at her elbow.

How to Communicate with People Who are Blind or Vision Impaired - Part 2: Assistance, Access and Technology

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Most children with retinoblastoma and survivors have some degree of sight loss, and many experience awkward healthcare interactions as a result. This 3-part series shares survivor and parent tips for medical professionals working with people who are blind or vision impaired, Part 2 focuses on assistance, access and technology.
Two small group discussions are taking place around separate tables.

How to Communicate with People Who are Blind or Vision Impaired - Part 1: General Meeting and Interaction

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Most children with retinoblastoma and survivors have some degree of sight loss, and many experience awkward healthcare interactions as a result. This 3-part series shares survivor and parent tips for medical professionals caring for and working with people who are blind or vision impaired. Part 1 focuses on general meeting and interaction.

Photographers

A baby has one red pupil and one white pupul - the classic early sign of eye cancer in children.

Know The Glow!

Learn about the most common early sign of childhood eye cancer – a white reflection in the pupil, seen in dim light and flash photos. Find out how to take photos to check for signs of serious eye disease in children.

Parents & Survivors

Find Hope

We offer the Retinoblastoma Resource to supplement information provided by your medical team, answer questions and concerns about all aspects of life with Rb, increase understanding and share hope.

Family & Friends

How You Can Help

Forget “let me know if I can do anything to help”! Carefully considered and offered support will be truly valued.  We have many suggestions from parents that have brought families relief, joy and hope.

Give Hope

Sun reflects gold on Daisy's hair as she smiles and laughs while clutching a big bunch of daisies.

Help Change Lives!

There are so many ways you can help us bring hope of cure and better quality of life to children with eye cancer, families and survivors.  Donate online now, or become a fundraising angel. Together, WE C Hope!

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