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Inspired by

Daisy and Rati

Welcome to World Eye Cancer Hope

Retinoblastoma is an aggressive eye cancer affecting babies and young children.  It kills over 7,000 youngsters each year, and blinds many more.

The most common early sign of childhood eye cancer is a white glow in the pupil of the affected eye.  The cancer is easy to diagnose and when found early, treatment is very effective.

Suffering and death is highest in developing countries, where most affected children live and timely access to specialist cancer care is limited.  In developed countries, survival is above 96%, but most children experience moderate to severe vision loss or complete blindness.  Globally, children, families and survivors experience significant emotional trauma.

Inspired by
Daisy & Rati

In Your Country

WE C Hope for all children with eye cancer, their families and survivors.

Baby with one white pupil and one red pupilIncreasing access to specialist care will bring the promise of life and sight to every child, and improved life-long health to survivors. This is our mission. We:

  • Educate the public and medical community about retinoblastoma to achieve early diagnosis and rapid referral to specialist care
  • Empower medical teams to deliver sustainable high quality evidence-based care for affected children and adult survivors.
  • Enable family support programs that reduce practical and emotional burdens and improve access to essential care

Support Kids During Needle Related Procedures


Kenyan Child Life Specialist, Jayne Kamau, distracts a child with a meteor shower toy during a needle procedure.

Only 5% of children have support for immunization needle pain. Seriously ill children experience many needle related procedures, rarely with adequate pain support. But pain and distress can be managed and reduced.

Visit our guide to find appropriate supports for children of all ages.  Parents, ask how to manage your child’s pain. Healthcare providers, please give parents options. Learn how to make needles easier and safer for everyone.

One Rb World: Support our Giving Tuesday Campaign


Giving Tuesday campaign image, shows the world Eye Cancer Hope logo above a collage of pictures from the child life program of One Retinoblastoma World – children of different ages, from infancy to late teens are participating in a range of medical play and self-expression activities. Below the collage, the Giving Tuesday logo and December 1, 2020 date are seen, along with the words: “help us bring life, sight and hope to all affected by childhood eye cancer.”

The 5th One Rb World event took place 3-4 October 2020, virtually due to COVID-19.  270 specialists, parents, and survivors from 38 countries gathered to share knowledge, support and hope to advance care, for children and throughoug life.

Our virtual program enabled unprecedented global collaboration and networking. All affected by retinoblastoma, involved in patient care or research should be able to engage in One Rb World.  Please help us make this a reality in 2021.

Remembering Jayne, Bella and Grace, Lost on Flight ET302


On March 10, 2019, our wonderful Child Life Specialist, Jayne Kamau, and child life advocate Bella Jaboma were killed on board Ethiopian Airlines flight ET302, with Grace Kariuki, a dedicated doctor working to advance childhood cancer care.

They were all returning home to Kenya from the International Society of Paediatric Oncology Africa Congress in Cairo. Read more about our dear friends and their vital work.

WE C Hope Blog

An overwhelmed mother comforts her child in hospital.

Two Children – Two Very Different Journeys.

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Two children. The same affliction. Drastically different outcomes. Yet each story represents the most common reality for children with retinoblastoma in these respective parts of the world.
Maycie's Very Special Bag

A Special Vision About Special Eyes

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The challenges surrounding eye removal stigma are complex, but our passion to overcome them is stronger. I feel honoured to have a special eye and to be able to use it to help spread the message and save lives.

Photographers

A baby has one red pupil and one white pupul - the classic early sign of eye cancer in children.

Know The Glow!

Learn about the most common early sign of childhood eye cancer – a white reflection in the pupil, seen in dim light and flash photos. Find out how to take photos to check for signs of serious eye disease in children.

Parents & Survivors

Find Hope

We offer the Retinoblastoma Resource to supplement information provided by your medical team, answer questions and concerns about all aspects of life with Rb, increase understanding and share hope.

Family & Friends

How You Can Help

Forget “let me know if I can do anything to help”! Carefully considered and offered support will be truly valued.  We have many suggestions from parents that have brought families relief, joy and hope.

Give Hope

Sun reflects gold on Daisy's hair as she smiles and laughs while clutching a big bunch of daisies.

Help Change Lives!

There are so many ways you can help us bring hope of cure and better quality of life to children with eye cancer, families and survivors.  Donate online now, or become a fundraising angel. Together, WE C Hope!

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