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Inspired by

Daisy and Rati

Welcome to World Eye Cancer Hope

Retinoblastoma is an aggressive eye cancer affecting babies and young children. It kills 7,000 youngsters each year, and blinds many more.

The most common early sign of childhood eye cancer is a white glow in the pupil of the affected eye. The cancer is easy to diagnose and when treated early, is very curable.

Suffering and death is highest in developing countries, where most affected children live and timely access to specialist cancer care is limited. In developed countries, cure is above 96%, but most children experience moderate, severe or complete vision loss. Globally, children, families and survivors experience significant emotional trauma.

Inspired by
Daisy & Rati

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In Your Country

Join Us at One Rb World in Hawaii, October 15-17, 2024!

WE C Hope USA is hosting the 7th One Retinoblastoma World meeting, October 15-17 in Honolulu, Hawaii, right before the 56th World Congress of the International Society of Paediatric Oncology. Please join us!

Uniting parents, survivors, medical professionals and scientists from around the wortd, we share knowledge and experience, build community, and collaborate to advance acute and lifelong care, and access to care, for all. Kids have their own One Rb World Child Life program of activities too!

WE C Hope for all children with eye cancer, families & survivors.

Increasing access to specialist care will bring the promise of life and sight to every child, and improved life-long health to survivors. This is our mission. We:

Educate the public and medical community about retinoblastoma to achieve early diagnosis and rapid referral to specialist care

Empower medical teams to deliver sustainable high quality evidence-based care for affected children and adult survivors.

Enable family support programs that reduce practical and emotional burdens and improve access to essential care

A Glint or a Squint Could Be Your Hint of Eye Cancer!!

A baby boy looks at the camera. his right eye shows a white reflex while his left eye is turned in towards his nose.

Strabismus (turned eye) and leukocoria (white pupil), the most common signs of retinoblastoma, can also occur in healthy eyes. Being aware of these signs and seeking medical care early saves children’s lives and sight.

Prompt investigation of all signs and symptoms is vital to diagnose childhood eye cancer early. Timely diagnosis provides the best opportunity to save a child’s life and sight. Find out more about the signs and symptoms.

Buy WE C Hope Merch and More at our TeePublic Store

Nine panels feature eight different items available on World Eye Cancer Hope‘s TeePublic store, including a spiral bound notebook, a black running vest, a white tote bag, a red T-shirt, a mobile phone case, a green T-shirt, a white coffee mug, and a white long sleeve T-shirt with grey sleeves. In the centre panel, text reeds: “World Eye Cancer Hope merchandise now available at TeePublic. Along the bottom, text reeds use our unique link and a percentage of your purchase is donated to WE C Hope.

Wear your care for our retinoblastoma community with branded apparel, caps, bags, mugs, and much more. Use our unique link, and a portion of your entire side-wide purchase benefits WE C Hope – including thousands of unique designs.

Find out how you can help expand our range of designs, and sport your support for awareness, medical care and support for all, for life! Learn more and visit our TeePublic store today.

Support Kids During Needle Related Procedures

Kenyan Child Life Specialist, Jayne Kamau, distracts a young patient with a meteor shower toy while a nurse inserts an IV in her hand.

Only 5% of children have support for immunization needle pain. Seriously ill children experience many needle related procedures, rarely with adequate pain support. But pain and distress can be managed and reduced.

Visit our Needle Related Procedures guide to find supports for children of all ages. Parents, ask how to manage your child’s pain. Healthcare providers, please give parents options. Learn how to make needles easier and safer for everyone.

WE C Hope Blog

The Informed Parent: 6 Tips for Staying Up to Date in a Social Media World

March 10, 2018

Google and social media play an increasingly significant role in the lives of families affected by retinoblastoma, but without careful use, they can complicate a child’s medical care and even put life at risk. Dr. Jesse Berry shares her recommendations for being a safely informed parent advocate in the modern hyper-connected age.

A diagram showing DePict in the midlle, next to the patient, and all members of the care team who can interact with the system to enhance the child's care. All care is underpinned by child life support.

DePICT the Cancer Care Journey: Overcome Rarity Through Collaborative Research

February 25, 2018

Brenda Gallie, global leader in retinoblastoma clinical care, research and innovation, discusses an exciting technology promising to improve care during treatment and beyond. DePICTRB supports collaboration among the child’s entire circle of care, gives parents open access to their child’s record, and empowers clinical research.

“Some journeys don't have endings, they lead to new beginnings. These are the journeys that lead to great adventures!” Alex Haditaghi from ‘Softly, As I leave her’ 2016. Quote set against background of sunrise painting a golden pathway over blue ocean, into a slightly clouded blue sky.

One Retinoblastoma World, A New Realm of Discovery

February 10, 2018

When Sandra Staffieri left Australia in August 2012 for a conference in Italy and a tour of retinoblastoma centres in North America, she had no idea how radically the journey would change her life and care at the Royal Children’s Hospital, Melbourne. Yet as she departed, the key destination was not even on her itinerary…

Wrapped up against the cold, Jim and Liza Valavanis and their three children are pictured together in a snowy winter wonderland.

Life Through Sam’s Eyes: How Our Blind Son Helped Us See

January 27, 2018

What does it mean to be told your 12 week old baby has a rare eye cancer? Jim Valavanis shares his experience of first-time parenting, nearly five years of childhood cancer treatment, and Life Through Sam's Eyes - the hope-filled book that emerged from his healing journey.

Photographers

A baby has one red pupil and one white pupul - the classic early sign of eye cancer in children.

Know The Glow!

Learn about the most common early sign of childhood eye cancer – a white reflection in the pupil, seen in dim light and flash photos. Find out how to take photos to check for signs of serious eye disease in children.

FIND OUT MORE

Parents & Survivors

Find Hope

We offer the Retinoblastoma Resource to supplement information provided by your medical team, answer questions and concerns about all aspects of life with Rb, increase understanding and share hope.

How You Can Help

Forget “let me know if I can do anything to help”! Carefully considered and offered support will be truly valued. We have many suggestions from parents that have brought families relief, joy and hope.

Sun reflects gold on Daisy's hair as she smiles and laughs while clutching a big bunch of daisies.

Help Change Lives!

There are so many ways you can help us bring hope of cure and better quality of life to children with eye cancer, families and survivors. Donate online now, or become a fundraising angel. Together, WE C Hope!