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Welcome to World Eye Cancer Hope

Retinoblastoma is an aggressive eye cancer affecting babies and young children.  It kills 7,000 youngsters each year, and blinds many more.

The most common early sign of childhood eye cancer is a white glow in the pupil of the affected eye.  The cancer is easy to diagnose and when treated early, is very curable.

Suffering and death is highest in developing countries, where most affected children live and timely access to specialist cancer care is limited.  In developed countries, cure is above 96%, but most children experience moderate, severe or complete vision loss.  Globally, children, families and survivors experience significant emotional trauma.

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In Your Country

Join Us at One Rb World in Hawaii, October 15-17, 2024!

A pink banner with the words “save the date” spans the top of the image. Diamond Head in Honolulu is bathed in light, under a slightly cloudy blue sky. The One Rb World logo includes a pink flower for Hawaii. Text reads: One Retinoblastoma World, Honolulu, Hawaii | October 15-17, 2024

WE C Hope USA is hosting the 7th One Retinoblastoma World meeting, October 15-17 in Honolulu, Hawaii, right before the 56th World Congress of the International Society of Paediatric Oncology.  Please join us!

Uniting parents, survivors, medical professionals and scientists from around the wortd, we share knowledge and experience,  build community, and collaborate to advance acute and lifelong care, and access to care, for all.  Kids have their own One Rb World Child Life program of activities too!

Read more and register for this unique event!

WE C Hope for all children with eye cancer, families & survivors.

Baby with one white pupil and one red pupilIncreasing access to specialist care will bring the promise of life and sight to every child, and improved life-long health to survivors. This is our mission. We:

  • Educate the public and medical community about retinoblastoma to achieve early diagnosis and rapid referral to specialist care
  • Empower medical teams to deliver sustainable high quality evidence-based care for affected children and adult survivors.
  • Enable family support programs that reduce practical and emotional burdens and improve access to essential care

A Glint or a Squint Could Be Your Hint of Eye Cancer!!

A baby boy looks at the camera. his right eye shows a white reflex while his left eye is turned in towards his nose.

Strabismus (turned eye) and leukocoria (white pupil), the most common signs of retinoblastoma, can also occur in healthy eyes.  Being aware of these signs and seeking medical care early saves children’s lives and sight.

Prompt investigation of all signs and symptoms is vital to diagnose childhood eye cancer early. Timely diagnosis provides the best opportunity to save a child’s life and sight.  Find out more about the signs and symptoms.

Buy WE C Hope Merch and More at our TeePublic Store

Nine panels feature eight different items available on World Eye Cancer Hope‘s TeePublic store, including a spiral bound notebook, a black running vest, a white tote bag, a red T-shirt, a mobile phone case, a green T-shirt, a white coffee mug, and a white long sleeve T-shirt with grey sleeves. In the centre panel, text reeds: “World Eye Cancer Hope merchandise now available at TeePublic. Along the bottom, text reeds use our unique link and a percentage of your purchase is donated to WE C Hope.

Wear your care for our retinoblastoma community with branded apparel, caps, bags, mugs, and much more.  Use our unique link, and a portion of your entire side-wide purchase benefits WE C Hope –  including thousands of unique designs.

Find out how you can help expand our range of designs, and sport your support for awareness, medical care and support for all, for life! Learn more and visit our TeePublic store today.

 

Support Kids During Needle Related Procedures

Kenyan Child Life Specialist, Jayne Kamau, distracts a young patient with a meteor shower toy while a nurse inserts an IV in her hand.

Only 5% of children have support for immunization needle pain. Seriously ill children experience many needle related procedures, rarely with adequate pain support. But pain and distress can be managed and reduced.

Visit our Needle Related Procedures guide to find supports for children of all ages.  Parents, ask how to manage your child’s pain. Healthcare providers, please give parents options. Learn how to make needles easier and safer for everyone.

WE C Hope Blog

A fuzzy cloud shows recurrence of a previously treated tumour.

Visualizing Cancer Treatment

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Have you ever wondered what happens in a child’s eye during retinoblastoma treatment? We explore four of the most common eye-saving treatments here. Below each, you will find a link to further information that includes advantages, disadvantages, side effects and questions to ask the doctor.
This image has two sections. The top portion is a pictorial description of the TNM Staging, and comparison with the IIRC (comparison in brackets). Six images show progression of cancer through the different TNM stages, from small tumours confined to the retina in T1a (A) and T1b (B) to large tumours and seeds in T2a (C/C) and T2b (C/D). These first four images are grouped as “intraocular”. T3a-e (E) shows distress to tissue surrounding the eye. This image is indicated as high risk for extraocular spread. T4 (no IIRC comparison) shows an eye that has ruptured completely. This last image is described as extraocular. The lower section of the image shows average age at diagnosis in developed and developing countries, and the timeline to extraocular spread. The smiling child on the left is pictured with white pupil. The caption below reads: “North America: Unilateral Dx mean 27 mo | Bilateral Dx mean 15 mo”. The child on the right has a completely ruptured eye. The caption below reads “Kenya: Unilateral Dx mean 36 mo | Bilateral Dx mean 26 mo”. An arrow points from the left to right photo and reads “6 to 11 mo DELAY dx”.

Staging Intraocular Retinoblastoma

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Retinoblastoma is staged to help doctors describe the degree of cancer in a child’s body, define potential for cure / eye salvage, determine best treatments, and compare impact of different therapies. Each eye is staged separately to define potential for safely saving the eye and vision.
Poster showing a child with one eye glowing white and the other, red. Caption above reads "a white glow in a child's eye could be a sign of cancer". Instructions below describe the PhotoRED technique.

How Do We Achieve Early Diagnosis of Retinoblastoma?

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Retinoblastoma specialists agree that early diagnosis of eye cancer is a child’s best hope of survival, retaining some vision or their eye. Yet around the world, thousands of children die, and more than half of children who are cured lose at least one eye. We consider the potential and limitations of six solutions to improve early diagnosis.
The Lincoln Memorial, lit up in gold against a deep blue sky.

Revisit One Rb World and SIOP 2016 (Dublin)

We are looking forward to One Rb World and SIOP 2017 in Washington D.C. this October. Read about the 2016 One Rb World meeting and International Society of Paediatric Oncology World Congress in this blog mini series, originally shared later last year.

Photographers

A baby has one red pupil and one white pupul - the classic early sign of eye cancer in children.

Know The Glow!

Learn about the most common early sign of childhood eye cancer – a white reflection in the pupil, seen in dim light and flash photos. Find out how to take photos to check for signs of serious eye disease in children.

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Parents & Survivors

Sera holds up a model eye.

Find Hope

We offer the Retinoblastoma Resource to supplement information provided by your medical team, answer questions and concerns about all aspects of life with Rb, increase understanding and share hope.

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Family & Friends

How You Can Help

Forget “let me know if I can do anything to help”! Carefully considered and offered support will be truly valued.  We have many suggestions from parents that have brought families relief, joy and hope.

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Give Hope

Sun reflects gold on Daisy's hair as she smiles and laughs while clutching a big bunch of daisies.

Help Change Lives!

There are so many ways you can help us bring hope of cure and better quality of life to children with eye cancer, families and survivors.  Donate online now, or become a fundraising angel. Together, WE C Hope!

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Help us bring hope of life and sight to every child with eye cancer

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