Tag Archive for: cancer survivorship

The words “Thank You” are written in script on a dark red background infused with light, surrounded by glowing red, gold and white love hearts.

Happy Holidays from World Eye Cancer Hope!

2020 has been eventful and challenging for the whole world.  Throughout, WE C Hope has continued to serve, unite and advance our global retinoblastoma community. WE C Hope USA President and retinoblastoma survivor, Marissa Gonzalez, reflects on the year’s highlights with thanks, and shares some plans for the coming year.

One Rb World 2020 Banner. Background shows the Ottawa skyline at sunset. Above the One Rb World logo, text reads: October 3-4, 2020, Ottawa, Canada (struckthrough text) | Virtual Conference. At the bottom of the image, text reads “Hosted By” followed by four logos of World Eye Cancer Hope, the Canadian Rb Society, Canadian Rb Research Advisory Board, and International Rb Consortium.

One Retinoblastoma World 2020: Inspiring Global Support, Research and Action.

In October, a diverse community of survivors, families and medical professionals came together at One Retinoblastoma World for two days of inspiring panels, research and calls to action.  WE C Hope USA President Marissa D. Gonzalez shares a recap of the fifth global conference, and her vision for next year’s event in Hawaii.

A young lady reclines in a hospital chair, holding a cute grey elephant with big eyes, while a nurse takes a blood sample from her arm.

How to Communicate with People Who are Blind or Vision Impaired – Part 3: Medical Care and Support

Most children with retinoblastoma and survivors have some degree of sight loss, and many experience awkward healthcare interactions as a result. This 3-part series shares survivor and parent tips for medical professionals working with people who are blind or vision impaired, Part 3 focuses on medical care and support.

A man wearing dark glasses walks with a woman along a road, guided by his cane and his hand at her elbow.

How to Communicate with People Who are Blind or Vision Impaired – Part 2: Assistance, Access and Technology

Most children with retinoblastoma and survivors have some degree of sight loss, and many experience awkward healthcare interactions as a result. This 3-part series shares survivor and parent tips for medical professionals working with people who are blind or vision impaired, Part 2 focuses on assistance, access and technology.

Two small group discussions are taking place around separate tables.

How to Communicate with People Who are Blind or Vision Impaired – Part 1: General Meeting and Interaction

Most children with retinoblastoma and survivors have some degree of sight loss, and many experience awkward healthcare interactions as a result. This 3-part series shares survivor and parent tips for medical professionals caring for and working with people who are blind or vision impaired. Part 1 focuses on general meeting and interaction.

The gold pin on a compass points to the word "survivorship"

7 Survivorship Tips and Tricks: navigating the adult post-retinoblastoma world

Diagnosis and treatment of eye cancer in early childhood is only the start of a lifelong story for many individuals affected by retinoblastoma. Marissa Gonzalez, Rb survivor and President of World Eye Cancer Hope USA, shares seven tips for being an active participant in your retinoblastoma survivorship journey.