2020 has been eventful and challenging for the whole world. Throughout, WE C Hope has continued to serve, unite and advance our global retinoblastoma community. WE C Hope USA President and retinoblastoma survivor, Marissa Gonzalez, reflects on the year’s highlights with thanks, and shares some plans for the coming year.
So many days I feel I am banging my head against a wall, watching children die who could have been saved with clear information, simple surgery and emotional support. But the knowledge of how life could be made better for each child, family and survivor is a strong motivational pull. The suffering that can be mitigated with relatively small resources. Somehow when I think I have no more energy, I mine a new seam from within, and from the encouragement and kindness of others, and I move forward, one step at a time.
A positive, open relationship between parents and the child’s medical team is vital throughout treatment and beyond. A therapeutic alliance requires good communication, mutual trust, respect and care, as well as knowledge and skills to provide high quality medical care.
Two children. The same affliction. Drastically different outcomes. Yet each story represents the most common reality for children with retinoblastoma in these respective parts of the world.
