Tag Archive for: paediatric oncology

A table is covered with a large sheet of white paper featuring hand-drawn, decorative letters spelling out the words: One Retinoblastoma World 2024. The words are outlined in various colours and patterns, and the letters are intricately designed with stripes, flowers, polka dots, and googly eyes. On the table, a container holds colorful markers; sheets of stickers featuring tropical and fun designs, such as flowers, palm trees, animals, and beach items; large, playful googly eyes; hand-drawn outlines of children’s hands.

One Rb World 2024 Says “Mahalo” to the Retinoblastoma Community – Day Three | Page 4

The final moments of the 7th One Rb World Conference in Honolulu, Hawaii, were dedicated to patients, families, and survivors, showcasing how empowering them can transform their individual experience and collective progress. Marissa D. Gonzalez, President of World Eye Cancer Hope USA, and Conference Event Chair, tells of the inspiring child life programming, and groundbreaking patient engaged-research building bridges of hope and healing for our retinoblastoma community worldwide.

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Pamela Paul stands at a light wooden podium against a black background. She wears a blue dress patterned with yellow, pink, and orange flowers.

Storytelling for Life: Global Solutions and Lifelong Care at One Rb World 2024 Day Three | Page 3

As the 7th One Rb World Conference in Honolulu, Hawaii, reached its final hours, personal insights and global initiatives took center stage. Marissa D. Gonzalez, President of World Eye Cancer Hope USA, and Conference Event Chair, reflects on the collective mission to save lives, including The New York Times Opinion feature, “It Takes a Lifetime to Survive Childhood Cancer,” – and the story behind the article.

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Mark sits at a round table covered in a white tablecloth, He wears a black t-shirt and black glasses, and holds baby Lennox on his lap. Lennox wears a white t-shirt with green sleeves. A woman seated close by is smiling as she watches them together.

From Treatment to Triumph: Seeking Cure for All at One Rb World 2024 Day Three | Page 2

Day Three of the 7th One Rb World Conference in Honolulu, Hawaii, continued to inspire with an in-depth exploration of treatment pathways, survivor resilience, and global efforts to save lives. Marissa D. Gonzalez, President of World Eye Cancer Hope USA, and Conference Event Chair, shares highlights from the vital discussions and profound personal stories shaping a hopeful future for all affected by retinoblastoma.

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10 adults smile together in front of a sign reading “Mahalo! One Retinoblastoma World”. Peggy and Michael are wearing black long-sleeve tops with dark wash jeans. Kirsten Ramos wears a blue shirt with light wash jeans. Jesse Berry wears a green dress with ruffles around the collar. Cat Paul and Joe Cox are wearing aqua-blue One Retinoblastoma World 2024 t-shirts featuring the conference logo and a design with palm trees, hibiscus, and waves. Victoria Danhakl wears a yellow and brown floral dress. And Roselle and Josh Castanon wear shirts with the slogan: I wear gold to support my daughter.

A Global Call to Action: Early Detection and Advocacy at One Rb World 2024 Day Three | Page 1

Day Three of the 7th One Rb World Conference in Honolulu, Hawaii, was a powerful culmination of global community, collaboration, and hope. From early detection in rural communities to life-saving care, from child life to patient-led research, and more. Marissa D. Gonzalez, Conference Event Chair, shares highlights from the inspiring presentations, life-changing progress, and extraordinary stories that closed this remarkable event.

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Grace stands in front of a Hawaiian-themed backdrop of lush green foliage, flowers, fairy lights, and the word Aloha written in a glittery gold cursive font. She wears a beautiful floral dress in shades of pale pink, orange, and white. Her conference lanyard clearly shows her name badge, reading Grace Mbugua. She smiles broadly and holds a sign in each hand – one says: World Eye Cancer Hope - life and sight for every child. The other says: One Retinoblastoma World, Honolulu, Hawaii, October 15-17, 2024.

One Rb World 2024 Shines the Light on Life-Saving Care: Highlights from Hawaii Day Two | Page 2

Continuing our review of Day Two at the 7th One Rb World Conference in Honolulu, Hawaii, we explore critical life-saving advancements in global retinoblastoma care. Marissa D. Gonzalez, President of World Eye Cancer Hope USA, and Conference Event Chair, delves deeper into the research developments, technological breakthroughs, collaborations, joyful child life, and uplifting survivor stories shaping a brighter future for all.

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Two young girls stand side-by-side in front of a colorful Hawaiian backdrop of gold grass skirt and verdant green leaves adorned with pineapples and vibrant hibiscus flowers. Both girls wear leis, smile broadly, and hold signs displaying bright logos. On the left, Nicole is wearing a black baseball cap backwards, a yellow t-shirt, and white joggers, and holds a white sign that reads: One Retinoblastoma World, Honolulu, Hawaii, October 15-17, 2024. On the right, Natalie sports her pink glasses, pink t-shirt, and light blue jeans, and holds a white sign that says: World Eye Cancer Hope, life and sight for every child.

One Rb World 2024 Shines the Light on Life-Saving Care: Highlights from Hawaii Day Two | Page 1

The 7th One Retinoblastoma World conference took place in Honolulu, Hawaii over three days in October 2024. Day Two brought perspectives from around the globe as our scientific programming took center stage. Marissa D. Gonzalez, President of World Eye Cancer Hope USA, and Conference Event Chair, shares highlights from discussions on life-saving care and technological advances in the second installment of this three-part conference review.

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A long roads winds through rough country of valleys and hills.

Retinoblastoma Follow Up Care: the Long and Winding Road

Retinoblastoma follow up care is vital for all children after treatment, and for many survivors throughout life. The end of cancer therapy brings both celebration and uncertainty. Knowing what to expect can help calm worries and empower strong advocates. Child Life Specialist Morgan Livingstone reviews what follow up care may involve, and tips to help families and adult survivors navigate this stage of medical care.

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A female doctor wearing green scrubs, surgical mask, and a brightly coloured scrub cap, sits on a play area with a child patient. She has placed her stethoscope on the child’s doll. The child is facing the doctor, mostly out of frame, and is using a toy stethoscope to mirror the doctor’s actions.

10 Child Life Tips for Clinicians

Medical appointments, procedures, and treatments are potentially stressful for children and their families, at all stages of their retinoblastoma experience. Child life specialist Morgan Livingstone shares 10 simple ways all medical professionals can ease stress and anxiety, support healthy coping, and help children and families thrive throughout simple interactions and complex cancer care.

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