Tag Archive for: rare cancer

KnowTheGlow awareness poster. Text reads “See it once, be alert – see it twice, be active”. Know the glow logo is in the bottom left corner. On the right, a child smiles at the camera and a white glow is visible in their right eye.

Breaking Barriers to Early Diagnosis: Revisit a Year of Action

Early Diagnosis is the foundation of effective retinoblastoma and second cancer care. Yet, many families and survivors around the world face complex, delayed diagnostic journeys. WE C Hope CEO, Abby White, reflects on the 2024 #RbEarlyDiagnosis campaign, exploring key themes, family and medical perspectives, global collaborations, and the progress our One Rb World community is making toward faster access to life-saving care.

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Two young girls and a boy sit smiling in front of a Christmas tree, all wearing pyjamas. One of the girls holds a baby girl who has a white glow in her left eye.

Angels and Zebras: How Life-Saving Holiday Pics Reveal Children’s Rare Eye Cancer

Happy Holidays from World Eye Cancer Hope! We love a white Christmas and the season’s festive glow – angels, fairy lights, iced cakes, candles, and snow… But we do not like a white glow in children’s eyes. Rb Survivor and WE C Hope CEO Abby White explains how festive Holiday photos could save a child’s life, and even their sight.

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Close-up image of a young African child wearing a cartoon pattern t-shirt, looking directly at the camera. The child's left eye has a noticeable white glow. Over the softly focused background, white text reads What if their eye is telling you something? Below a horizontal golden line is the gold KNOW THE GLOW® logo and the text PREVENT CHILDHOOD BLINDNESS. In the bottom right corner are the Kenyan flag and crests of the government and Kenyatta National Hospital, Nairobi.

Gut Feelings Matter: How Parent Instinct and Intuition Detect Childhood Eye Cancer Early

Strong parent instinct and intuition often lead to a child’s eye cancer diagnosis. Rb Survivor and WE C Hope CEO, Abby White explores what they are and how they differ, why they are so important for retinoblastoma early detection, why primary care providers should take them seriously, and how they impacted the diagnosis journey of four children.

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Three young girls sit one behind the other as they enjoy riding together down a slide. The girl at the back has curly brown hair and wears a light pink sweater. The middle girl has blonde hair and wears a light purple shirt. The girl in front has light brown hair, wears a pink top, and holds a plaid cushion. They are surrounded by green foliage and trees in the background. The sun creates halos around their hair as it blows with their movement down the slide, and blue sky is seen in the top right corner, beyond the trees..

Bridging the Gaps: How Community and Shared Responsibility Create the Best Retinoblastoma Care

Being the parent of a child with retinoblastoma, or living with the effects of this cancer every day, can be a frustrating experience. With an emphasis on our year-long theme of early diagnosis, we look at some of the challenges facing our retinoblastoma world, and for each, three ways we can work together to advance care for everyone.

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A young African boy with short, curly black hair and a big, cheerful smile looks directly at the camera. He's wearing a cosy knitted blue sweater over a white collared shirt, and His right arm is flexed in a gesture of strength. The pupil of his right eye has a prominent pearly glow. Overlaying the wooden fence background, bold white text states "NO CHILD SHOULD DIE FROM UNDETECTED EYE CANCER." Below is a horizontal golden line. In the bottom left corner, the gold "KNOW THE GLOW®" logo is followed by the text "PREVENT CHILDHOOD BLINDNESS" in a smaller font. In the bottom right corner are the Kenyan flag and crests of the government and Kenyatta National Hospital, Nairobi.

Between Shadow and Light: Young Lives in Jeopardy from Retinoblastoma

Worldwide, children and their families grapple with life-threatening eye cancer due to delayed diagnosis and care. Unchecked, retinoblastoma has far-reaching consequences. Through two family stories, WE C Hope CEO Abby White explores the impacts of low awareness, slow referral, and delayed care, and the life-saving, sight-saving opportunities they reveal.

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On a marine-blue background, large bold yellow-gold text reads "WE C Hope". The letter “P” in the word “hope” is formed by a bright gold ribbon – this is the central feature of the entire image. Below, smaller text reads "For every child, survivor, and family living with childhood eye cancer". The website wechope.org is included at the bottom in the smallest text.

Solidarity, Strength, and Synergy: The Gold Ribbon and the Global Fight Against Childhood Cancer

The gold ribbon is the unifying symbol of childhood cancer. Worldwide, it celebrates the victory of each life saved, honours the memory of every precious child lost, and shines with hope of cure for all children. WE C Hope CEO, Abby White, explains four key reasons we support the gold ribbon campaign, and shares new gold ribbon merch designs you can buy to support our retinoblastoma community.

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Side-by-side photos of two young girls with a text overlay. On the left, a smiling Caucasian girl with wispy light brown hair, wearing a floral dress, holds a bouquet of daisies. She is outdoors, bathed in sunlight. On the right, a smiling African girl with short black hair relaxes on a colourful plaid sofa. She is wearing a pink top with a ruffled neckline, and rests her cheek on her hand. Across the top, in cursive script, text reads "Daisy Gave Rati Hope".

From One Child to One Rb World: Our Foundation Story

Daisy’s Eye Cancer Fund (now World Eye Cancer Hope) evolved from the generosity of one family sharing hope with another at opposite ends of the earth, creating light within the darkness that retinoblastoma brought to their lives. Rb Survivor and Daisy Fund co-founder, Abby White, shares Rati’s story, and how her experience led to our hope-building work today.

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A large group of people gather together for a group photo. Some are wearing beaded t-shirts showing the Daisy Fund logo.

From One Child to One Rb World: WE C Hope for Retinoblastoma Care

In the first half of this article, we met Rati and Daisy, two young children with retinoblastoma who inspired the foundation of Daisy’s Eye Cancer Fund in 2004. In part 2, Rb Survivor and Daisy Fund co-founder, Abby White, reflects on what happened after Rati died – our journey to World Eye Cancer Hope (WE C Hope), One Rb World, and advocacy for all children, survivors and families.

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A collage of 8 small photos, showing buildings and people doing various activities, all bathed in green, pink, blue or purple light. Along the bottom, a banner reads "RARE DISEASE DAY GLOBAL CHAIN OF LIGHTS" and “hashtag LIGHT UP FOR RARE", written in blue, green and pink. The event logo features handprints in the three colours, overlapping to form a fan around a white silhouette of a person from waist-up, and additional colours where they overlap.

Light Up for Rare and Share Your Retinoblastoma Colours on February 29!

Retinoblastoma is a rare cancer, affecting around 1 in 16,000 live births.  Rarity poses challenges from pre-diagnosis through treatment and lifelong care – Rare Disease Day matters to our community!  Discover how you can glow bright on the evening of February 29 to help form a Global Chain of Light for everyone living with rare childhood eye cancer and its effects.

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