Tag Archive for: signs and symptoms of childhood eye cancer

KnowTheGlow awareness poster. Text reads “See it once, be alert – see it twice, be active”. Know the glow logo is in the bottom left corner. On the right, a child smiles at the camera and a white glow is visible in their right eye.

Breaking Barriers to Early Diagnosis: Revisit a Year of Action

Early Diagnosis is the foundation of effective retinoblastoma and second cancer care. Yet, many families and survivors around the world face complex, delayed diagnostic journeys. WE C Hope CEO, Abby White, reflects on the 2024 #RbEarlyDiagnosis campaign, exploring key themes, family and medical perspectives, global collaborations, and the progress our One Rb World community is making toward faster access to life-saving care.

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Two young girls and a boy sit smiling in front of a Christmas tree, all wearing pyjamas. One of the girls holds a baby girl who has a white glow in her left eye.

Angels and Zebras: How Life-Saving Holiday Pics Reveal Children’s Rare Eye Cancer

Happy Holidays from World Eye Cancer Hope! We love a white Christmas and the season’s festive glow – angels, fairy lights, iced cakes, candles, and snow… But we do not like a white glow in children’s eyes. Rb Survivor and WE C Hope CEO Abby White explains how festive Holiday photos could save a child’s life, and even their sight.

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Close-up image of a young African child wearing a cartoon pattern t-shirt, looking directly at the camera. The child's left eye has a noticeable white glow. Over the softly focused background, white text reads What if their eye is telling you something? Below a horizontal golden line is the gold KNOW THE GLOW® logo and the text PREVENT CHILDHOOD BLINDNESS. In the bottom right corner are the Kenyan flag and crests of the government and Kenyatta National Hospital, Nairobi.

Gut Feelings Matter: How Parent Instinct and Intuition Detect Childhood Eye Cancer Early

Strong parent instinct and intuition often lead to a child’s eye cancer diagnosis. Rb Survivor and WE C Hope CEO, Abby White explores what they are and how they differ, why they are so important for retinoblastoma early detection, why primary care providers should take them seriously, and how they impacted the diagnosis journey of four children.

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Close-up of a young African boy smiling broadly. He has short hair and wears a blue tank top. The background is blurred with warm, earthy tones. Overlaying text reads: A photo can identify cancer in a child’s eye. Below a horizontal golden line is the gold KNOW THE GLOW® logo and the text PREVENT CHILDHOOD BLINDNESS. In the bottom right corner are the Kenyan flag and crests of the government and Kenyatta National Hospital, Nairobi.

Pearls of Light: The Pathway to Retinoblastoma Early Detection

Early diagnosis of retinoblastoma saves children’s lives, and offers the best opportunity for safe vision saving therapy. But worldwide, many children are diagnosed late. KnowTheGlow founder, Megan Webber, and WE C Hope USA President, Marissa D. Gonzalez discuss how our early detection partnership evolved, and update on the progress we’re making for children in Africa and Asia.

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A young African boy with short, curly black hair and a big, cheerful smile looks directly at the camera. He's wearing a cosy knitted blue sweater over a white collared shirt, and His right arm is flexed in a gesture of strength. The pupil of his right eye has a prominent pearly glow. Overlaying the wooden fence background, bold white text states "NO CHILD SHOULD DIE FROM UNDETECTED EYE CANCER." Below is a horizontal golden line. In the bottom left corner, the gold "KNOW THE GLOW®" logo is followed by the text "PREVENT CHILDHOOD BLINDNESS" in a smaller font. In the bottom right corner are the Kenyan flag and crests of the government and Kenyatta National Hospital, Nairobi.

Between Shadow and Light: Young Lives in Jeopardy from Retinoblastoma

Worldwide, children and their families grapple with life-threatening eye cancer due to delayed diagnosis and care. Unchecked, retinoblastoma has far-reaching consequences. Through two family stories, WE C Hope CEO Abby White explores the impacts of low awareness, slow referral, and delayed care, and the life-saving, sight-saving opportunities they reveal.

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Close up of a smiling, playful young African boy with a shaved head, who appears to be leaning against a tree. He has big, bright, happy eyes, one of which has a creamy glow in the pupil. He is wearing a light blue sweater. Across the blurred background, bold white text reads "HELP IDENTIFY CHILDHOOD EYE CANCER EARLY".

A Glint or a Squint Could Be Your Hint: Knowledge is Key to Retinoblastoma Early Diagnosis

Critical clues to a child’s eye cancer hide in plain sight. Parent and physician knowledge, and ability to spot these silent signs are vital to early detection, swift referral, and prompt diagnosis. Meet five children from around the world whose parents’ curiosity, nagging concern, and action were pivotal to their diagnosis and life-saving, sight-saving care.

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Close-up of a toddler with blue eyes, one of which has a creamy glow in the pupil. The child’s mouth is slightly open, with a curious or surprised expression. The child wears a pastel lilac jacket. The background is blurred and indistinct, putting the focus on the child's face. Overlaying the background, bold white text states "PREVENT CHILDHOOD BLINDNESS." Below is a thin yellow horizontal line.

Illuminating a Child’s Health: The Power of Glow Awareness and Innovation in Detecting Retinoblastoma

Worldwide, many children with eye cancer are diagnosed late.  Early diagnosis saves lives, and offers the best opportunity for safe vision saving therapy.  Leukocoria awareness advocate, Megan Webber, explores why glow awareness and community eye screening are vital to early detection and referral, and how KnowTheGlow and WE C Hope are helping to ensure children receive timely, effective care.

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Text reads “Know the glow | prevent childhood blindness”. KnowTheGlow logo is in the bottom left corner. A latino girl sits in a grassy field. She is wearing denim dungarees and a white shirt, and has two bows in her curly hair. She is smiling ho at the camera and has a white glow in her left eye.

“Have We Spoken Before?” Same Retinoblastoma Diagnosis Story, Different Parents…

Many families tell of delayed pathways to care when their child is diagnosed with eye cancer. Orthoptist and retinoblastoma care coordinator, Sandra Staffieri, and leukocoria awareness advocate, Megan Webber, are frustrated by the repeated stories and their negative patient impacts. They explore why these delays continue, some efforts to overcome the challenges, and where they find hope for the future.

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A baby has a white pupil glow in the left eye, and healthy red reflex in the right eye.

If In Doubt, Check It Out: Common and Not-So-Common Signs and Symptoms of Retinoblastoma

Prompt investigation of signs and symptoms is vital to diagnose retinoblastoma early. Timely diagnosis provides the best opportunity to save a child’s life and sight.  For Retinoblastoma Awareness Week 2022, Rb Care Coordinator Sandra Staffieri explores the signs and symptoms that may lead to a diagnosis of childhood eye cancer.

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