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13

Solidarity, Strength, and Synergy: The Gold Ribbon and the Global Fight Against Childhood Cancer

The gold ribbon is the unifying symbol of childhood cancer. Worldwide, it celebrates the victory of each life saved, honours the memory of every precious child lost, and shines with hope of cure for all children. WE C Hope CEO, Abby White, explains four key reasons we support the gold ribbon campaign, and shares new gold ribbon merch designs you can buy to support our retinoblastoma community.

14

Beyond Retinoblastoma: Celebrating Cancer Survivorship; Advocating Lifelong Care

At seventeen months old, Marissa Gonzalez was diagnosed with bilateral retinoblastoma – the first turning point in her lifelong journey with this cancer syndrome.  Today, as President of WE C Hope USA, she celebrates 32 years free from eye cancer, and shares the latest chapter of her cancer survivorship story, with two appeals to all in our community.

16

The Arclight and Fundal Reflex Test: Shining the Light on Retinoblastoma

Screening children’s eyes with the Fundal “Red” Reflex is key to early detection of retinoblastoma, but until recently, it was difficult to deliver in many countries. Dr Andrew Blaikie, ophthalmologist and clinical lead for the Arclight Project at the University of St Andrews, describes the importance of this simple exam, and how the Arclight improves eye health access and outcomes for children with eye cancer around the world.

17

From One Child to One Rb World: Our Foundation Story

Daisy’s Eye Cancer Fund (now World Eye Cancer Hope) evolved from the generosity of one family sharing hope with another at opposite ends of the earth, creating light within the darkness that retinoblastoma brought to their lives. Rb Survivor and Daisy Fund co-founder, Abby White, shares Rati’s story, and how her experience led to our hope-building work today.

18

From One Child to One Rb World: WE C Hope for Retinoblastoma Care

In the first half of this article, we met Rati and Daisy, two young children with retinoblastoma who inspired the foundation of Daisy’s Eye Cancer Fund in 2004. In part 2, Rb Survivor and Daisy Fund co-founder, Abby White, reflects on what happened after Rati died – our journey to World Eye Cancer Hope (WE C Hope), One Rb World, and advocacy for all children, survivors and families.

19

Light Up for Rare and Share Your Retinoblastoma Colours on February 29!

Retinoblastoma is a rare cancer, affecting around 1 in 16,000 live births.  Rarity poses challenges from pre-diagnosis through treatment and lifelong care – Rare Disease Day matters to our community!  Discover how you can glow bright on the evening of February 29 to help form a Global Chain of Light for everyone living with rare childhood eye cancer and its effects.

20

Capture the Moment at One Retinoblastoma World 2024 in Hawaii

One Retinoblastoma World is community, conversation and collaboration for the best lifelong Rb care and support.  Previous participants share why the event is so valuable.  Rb survivor and WE C Hope CEO, Abby White, considers the many benefits of participating in person compared to attending online, and some ways we can travel “kuleana” to the conference.