One Retinoblastoma World is a global network with the bold idea that all children with retinoblastoma and survivors can have equal opportunity to access optimal care. When diagnosed early and treated effectively, childhood eye cancer is curable. No child should die, or suffer avoidable blindness because of it.
Many challenges impede scientific research needed to develop evidence based care, but One Retinoblastoma World is breaking down those obstacles.
The One Rb World Conference gathers together eye and cancer specialists, researchers, parents, and survivors from around the world to pursue the best possible retinoblastoma care for all children and throughout life. Collaborative research, clinical care and family support benefitting the majority of children and survivors can only be developed through inclusive meetings with a real-world focus.
One Rb World usually precedes the International Society of Paediatric Oncology (SIOP) World congress which in 2020 was due to be held October 14-17 in Ottawa, Canada. However, due to the COVID-19 pandemic, World Eye Cancer Hope, with local co-hosts the International Retinoblastoma Consortium, the Canadian Retinoblastoma Research Advisory Board and the Canadian Retinoblastoma Society, decided to hold One Rb World 2020 virtually.
We were motivated by the success of our 2017 live stream, which expanded access to many professionals, parents, and survivors who could not travel to Washington D.C. This novel structure allowed for global collaboration and networking while prioritizing attendee health and safety.
Patient partnerships were a guiding principle for the 2020 conference, drawing inspiration from the Canadian Retinoblastoma Patient Engagement Strategy. Panel sessions led by international experts covered diverse topics, including early detection, new Rb treatments, genetics, child life, psychosocial care, second cancer risks, survivorship and patient engagement.
This 2020 event brought together patients, survivors, families, medical professionals and scientists, in a unique collaborative forum to share knowledge, best practices, cutting edge research and the everyday trials of cancer survivorship. We will add more content from One Rb World 2020 here very soon.
We look forward very much to welcoming our global community back to the One Rb World conversation in October 2021, in Honolulu. Save The Date, and we hope to see you in Hawaii! We will share more information as soon as it becomes available.
To learn more about One Rb World and onr previous meeting in Washington D.C., please visit the following pages.