One Retinoblastoma World 2021
100% Virtual |
1 – 3 October, 2021
The 6th One Retinoblastoma World Conference took place over the first weekend of October 2021. We were delighted to welcome 170 medical professionals, retinoblastoma survivors, young patients and family members for three days of programming, community and collaboration.
One Rb World 2021 was hosted by World Eye Cancer Hope USA, and organized together with Dr. Sandra Staffieri, retinoblastoma care co-ordinator at the Royal Children’s Hospital Melbourne, Australia.
This year’s conference was to be held in Honolulu, Hawaii, immediately preceding the International Society of Pediatric Oncology (SIOP) world congress. We hoped to host a hybrid event, with some participation in person, and some virtual to ensure global access.
However, due to the ongoing pandemic, international travel restrictions, global disparities in vaccination access, and safety concerns, we found that staying 100% virtual was the only way to plan effectively and prioritize everyone’s safety.
The program took place over three days, with varied start times to be as welcoming as possible to our global community. While we are very sad COVID-19 kept us physically apart for a second year, we were delighted to come together online again, to share expertise and lived experience, to learn from one another, and to advance care for all affected by retinoblastoma throughout life.
We are proud to have brought One Rb World to the Pacific region, and the wider world, despite the ongoing global challenges of the pandemic. And we look forward to the day when we can be together again in the same location.
From Our Blog – October 25, 2021
View the complete playlist of sessions from the event.
One Retinoblastoma World
One Retinoblastoma World is a global network with the bold idea that all children with retinoblastoma and survivors can have equal opportunity to access optimal care. When diagnosed early and treated effectively, childhood eye cancer is curable. No child should die, or suffer avoidable blindness because of it.
Many challenges impede scientific research needed to develop evidence based care, but One Retinoblastoma World is breaking down those obstacles.
The One Rb World Conference gathers together eye and cancer specialists, researchers, parents, and survivors from around the world to pursue the best possible retinoblastoma care for all children and throughout life. Collaborative research, clinical care and family support benefitting the majority of children and survivors can only be developed through inclusive meetings with a real-world focus.
The 2021 conference took place virtually due to the ongoing pandemic, building on the momentum from Canada’s virtual event and our successful 2017 live stream. In early 2021 we surveyed our community about topics, ideas and suggestions for program content, as well as reviewing post-conference surveys submitted by 2020 attendees.
The 2021 Program
This year’s program included sessions co-led by clinicians, researchers, survivors and parents on a range of topics, including:
- Prosthetic eyes
- Retinoblastoma around the world
- Early detection methods and awareness campaigns
- Child life and psychosocial supports
- Ethnography in retinoblastoma
- New treatments and research
- Mental health and wellness
Child Life Programs ran concurrently on all three days, providing fun, wellbeing and learning activities for youngsters diagnosed with eye cancer and their siblings. Activities addressed general coping techniques, and supports for specific medical experiences.
Read our September 13 blog from conference co-convenor Sandra Staffieri, in which she gave an overview of the program, highlighting some of the sessions and goals: One Retinoblastoma World 2021 – Sharing Ideas, Opportunities and Friendship.
Daily Start Times Around the World
DAY 1: Friday, October 1st, 2021
- 10pm UTC/GMT
- 3pm PDT (Los Angeles)
- 6pm EDT (New York)
- 12pm HST (Hawaii)
- 11pm BST (London)
Saturday, October 2nd, 2021
- 12am CEST (Paris)
- 3.30am IST (Delhi)
- 5am PHST (Manila)
- 8am AEST (Melbourne)
DAY 2: Saturday, October 2nd, 2021
- 9pm UTC/GMT
- 2pm PDT
- 5pm EDT
- 11am HST
- 10pm BST
- 1pm CEST
Sunday October 3rd, 2021
- 2.30am IST
- 6am PHST
- 8am AEST
DAY 3: Sunday October 3rd, 2021
- 4pm UTC/GMT
- 9am PDT
- 12pm EDT
- 6am HST
- 5pm BST
- 6pm CEST
- 9.30pm IST
Monday, October 4th, 2021
- Midnight PHST
- 3am AEDT
Day 1 Schedule Summary
- 3:00-3:10pm PDT: Welcome
- 3:10-3:25pm PDT: Keynote remarks
- 3:25-3:30pm PDT: Childlife overview
- 3:30-4:00pm PDT: Childlife Session (running simultaneously)
- 3:30-4:20pm PDT: Survivor Panel
- 4:30-5:20pm PDT: Survivorship and Second Primary Cancers
- 5:30-6:20pm PDT: Genetics
- 6:30-7:20pm PDT: All About Prosthetic Eyes!
- 7:30-8:00pm PDT: Breakout Networking Sessions
Day 2 Schedule Summary
- 2:00-2:05pm PDT: Welcome
- 2:05-2:30pm PDT: Keynote remarks
- 2:30-3:20pm PDT: Psychosocial Aspects/Mental Health
- 3:30-4:30pm PDT: Eyedrop Session
- 4:30-5:00pm PDT: Childlife Session (running simultaneously)
- 4:30-5:00pm PDT: Breakout Networking Session
- 5:00-6:50pm PDT: Impact of Early Detection
- 6:50-7:00pm PDT: Closing Remarks
Day 3 Schedule Summary
- 9:00-9:05am PDT: Welcome
- 9:05-9:20am PDT: Keynote remarks
- 9:20-9:50am PDT: Child Life Session (running simultaneously)
- 9:20-10:10am PDT: Retinoblastoma Around the World
- 10:15-11:05am PDT: Awareness Campaign
- 11:05-11:30am PDT: Breakout Networking Session
- 11:30am-12:20pm PDT: Ethnography in Retinoblastoma
- 12:20-2:20pm PDT: New Treatments and Research
- 2:20-2:30pm PDT: Closing Remarks
Learn More About One Retinoblastoma World
To learn more about One Rb World, please visit the following pages.