The 6th One Retinoblastoma World Conference took place over the first weekend of October 2021. We were delighted to welcome 170 medical professionals, retinoblastoma survivors, young patients and family members for three days of programming, community and collaboration.
One Rb World 2021 was hosted by World Eye Cancer Hope USA, and organized together with Dr. Sandra Staffieri, retinoblastoma care co-ordinator at the Royal Children’s Hospital Melbourne, Australia.
This year’s conference was to be held in Honolulu, Hawaii, immediately preceding the International Society of Pediatric Oncology (SIOP) world congress. We hoped to host a hybrid event, with some participation in person, and some virtual to ensure global access.
However, due to the ongoing pandemic, international travel restrictions, global disparities in vaccination access, and safety concerns, we found that staying 100% virtual was the only way to plan effectively and prioritize everyone’s safety.
The program took place over three days, with varied start times to be as welcoming as possible to our global community. While we are very sad COVID-19 kept us physically apart for a second year, we were delighted to come together online again, to share expertise and lived experience, to learn from one another, and to advance care for all affected by retinoblastoma throughout life.
We are proud to have brought One Rb World to the Pacific region, and the wider world, despite the ongoing global challenges of the pandemic. And we look forward to the day when we can be together again in the same location.
We will update this page as soon as possible with videos of sessions from the conference.
One Retinoblastoma World
One Retinoblastoma World is a global network with the bold idea that all children with retinoblastoma and survivors can have equal opportunity to access optimal care. When diagnosed early and treated effectively, childhood eye cancer is curable. No child should die, or suffer avoidable blindness because of it.
Many challenges impede scientific research needed to develop evidence based care, but One Retinoblastoma World is breaking down those obstacles.
The One Rb World Conference gathers together eye and cancer specialists, researchers, parents, and survivors from around the world to pursue the best possible retinoblastoma care for all children and throughout life. Collaborative research, clinical care and family support benefitting the majority of children and survivors can only be developed through inclusive meetings with a real-world focus.
The 2021 conference took place virtually due to the ongoing pandemic, building on the momentum from Canada’s virtual event and our successful 2017 live stream. In early 2021 we surveyed our community about topics, ideas and suggestions for program content, as well as reviewing post-conference surveys submitted by 2020 attendees.
The 2021 Program
This year’s program included sessions co-led by clinicians, researchers, survivors and parents on a range of topics, including:
Retinoblastoma around the world
Early detection methods and awareness campaigns
Child life and psychosocial supports
Ethnography in retinoblastoma
New treatments and research
Mental health and wellness
Child Life Programs ran concurrently on all three days, providing fun, wellbeing and learning activities for youngsters diagnosed with eye cancer and their siblings. Activities addressed general coping techniques, and supports for specific medical experiences.