One Retinoblastoma World is a global network with the bold idea that all children with retinoblastoma and survivors can have equal opportunity to access optimal care. When diagnosed early and treated effectively, childhood eye cancer is curable. No child should die, or suffer avoidable blindness because of it.
Many challenges impede scientific research needed to develop evidence based care, but One Retinoblastoma World is breaking down those obstacles.
The One Rb World Conference gathers together eye and cancer specialists, researchers, parents, and survivors from around the world to pursue the best possible retinoblastoma care for all children and throughout life. Collaborative research, clinical care and family support benefitting the majority of children and survivors can only be developed through inclusive meetings with a real-world focus.
One Rb World usually precedes the International Society of Paediatric Oncology (SIOP) World congress which this year is due to be held October 14-17 in Ottawa, Canada. However, due to uncertainty created by the COVID-19 pandemic, World Eye Cancer Hope, with local co-hosts the International Retinoblastoma Consortium, the Canadian Retinoblastoma Research Advisory Board and the Canadian Retinoblastoma Society, have decided to hold One Rb World 2020 virtually.
We are motivated by the success of our 2017 live stream, which expanded access to many professionals, parents, and survivors who could not travel to Washington D.C. This novel structure will allow for global collaboration and networking while prioritizing attendee health and safety.
A guiding principle for the 2020 conference will be patient partnerships, drawing inspiration from the Canadian Retinoblastoma Patient Engagement Strategy. Panel sessions led by international experts will cover diverse topics, including early detection, new Rb treatments, genetics, child life, psychosocial care, second cancer risks, survivorship and patient engagement.
This 2020 event will bring patients, survivors, families, medical professionals and scientists together in a unique collaborative forum to share knowledge, best practices, cutting edge research and the everyday trials of cancer survivorship. We look forward very much to welcoming our community from around the world to the conversation in October.
To learn more about One Rb World and the most recent meeting in Washington D.C., please visit the following pages.