Below you will find details of our Organizing Committee and confirmed speakers for the 2024 program of One Rb World. The program is in active development, and this page will be updated as the program evolves.
Confirmed Speakers
Frances Argento, M.Sc. Candidate
Graduate Student, Institute of Medical Science, University of Toronto, Toronto, Canada.
Graduate Student, Department of Ophthalmology and Vision Sciences, The Hospital for Sick Children, Toronto, Canada.
Presentation: Development of a Patient Advocate Committee for a Rare Pediatric Eye Cancer Biobank.
Vice President and Founding Board Member, World Eye Cancer Hope USA, South Amana, Iowa.
Retinoblastoma Parent.
Panel: The Parent Perspective.
Certified Registered Nurse Anesthetist, Children’s Hospital Los Angeles, Los Angeles, California.
Clinical Instructor of Anesthesiology, Keck School of Medicine of USC, Los Angeles, California.
Presentation: Long Term Survivor Outcomes Following Multiple General Anesthesia Exposures.
Director of Ocular Oncology and Retinoblastoma Program, Children’s Hospital Los Angeles, Los Angeles, California.
One Retinoblastoma World Scientific Program Co-Chair.
Presentation: Liquid Gold: A New Era of Liquid Biopsy for Rb.
Panel: A Global Conversation: International Society of Pediatric Oncology, One Retinoblastoma World, World Child Cancer, and World Health Organization.
Andrew Blaikie, M.B.Ch.B., B.Sc.
Ophthalmology Consultant and Senior Lecturer, NHS Fife and University of St. Andrews, School of Medicine, St. Andrews, Scotland.
Honorary Associate Professor, London School of Hygiene and Tropical Medicine, London, UK.
Joint Presentation: TanZanEye and the Arclight Project: Strengthening Eye Care in Hard to Reach Places.
Director, Pediatric Oncology/Hematology at Logan Health Children’s, Kalispell, Montana.
Contractor, St. Jude Global Retinoblastoma Program, Memphis, Tennessee.
Presentation: St. Jude Global Retinoblastoma Program: Successful Strategies for Improving Early Diagnosis of Retinoblastoma.
Assistant Prosecutor, Monmouth County Prosecutor’s Office, Asbury Park, New Jersey.
Unilateral Retinoblastoma Survivor.
Panel: Adult Survivors.
Kathryn Champ, M.D.
Radiology Resident, University of California, Los Angeles, Los Angeles, California.
Unilateral Retinoblastoma Survivor.
Panel: Adult Survivors.
President, International Society of Pediatric Oncology, Switzerland.
Head of Outreach Program, Pediatric Cancer Center Barcelona, Hospital Sant Joan de Deu, Barcelona, Spain.
Scientific and Academic Director, Fundación Perez Scremini, Montevideo, Uruguay.
Wednesday Keynote Address: Can We Cure Retinoblastoma Worldwide?
Panel: A Global Conversation: International Society of Pediatric Oncology, One Retinoblastoma World, World Child Cancer, and World Health Organization.
Professor of Ophthalmology, All India Institute of Medical Sciences, New Delhi, New Delhi, India.
Presentation: Global Rb: The Burden of Orbital and Extraocular Disease and How the Rb Community Can Help.
Ifeoma Chigozie-Echieh, M.B.B.S.
Consultant Ophthalmologist, Department of Ophthalmology, University of Calabar Teaching Hospital, Calabar, Nigeria.
Presentation: The State of Retinoblastoma in Nigeria (Pre-Recorded Talk).
Secretary, World Eye Cancer Hope USA, Gaithersburg, Maryland.
Unilateral Retinoblastoma Survivor.
Panel: We Can’t Save Every Eye, But We Can Try to Save Every Life.
Anesthesiologist, Saint John’s Health Center, Santa Monica, California.
Retinoblastoma Parent.
Panel: The Parent Perspective.
Assistant Professor of Clinical Ophthalmology, Bascom Palmer Eye Institute, University of Miami, Miami, Florida.
One Retinoblastoma World Scientific Program Co-Chair.
Presentation: The Role of Artificial Intelligence in Patient Information.
Scientist and Director of Global Eye Health Research, The Hospital for Sick Children, Toronto, Canada.
Associate Professor, University of Toronto, Toronto, Canada.
Scientific Advisor, World Eye Cancer Hope Canada, Toronto, Canada.
Presentation One: How Social Variables Affect Retinoblastoma Outcomes.
Presentation Two: Engaging Families: Prioritizing Early Detection of Retinoblastoma.
Professor of Ophthalmology, College of Medicine, University of Nigeria, Ituku-Ozalla, Enugu, Nigeria.
Consultant Paediatric Ophthalmologist, University of Nigeria Teaching Hospital, Ituku-Ozalla, Enugu, Nigeria.
Presentation: The State of Retinoblastoma in Nigeria (Pre-Recorded Talk).
Associate Professor, London School of Hygiene and Tropical Medicine, London, England.
Ocular Oncologist and Director of Sheba Global Ophthalmology, Sheba Medical Center, Israel.
Presentation: A Recap of ISOO Africa (Pre-Recorded Talk).
Retinoblastoma Research Program Manager, Department of Ophthalmology and Vision Sciences, The Hospital for Sick Children, Toronto, Canada.
Secretary and Treasurer, International Retinoblastoma Consortium, Toronto, Canada.
Presentation: DEPICT HEALTH: Enhancing Retinoblastoma Circle of Care Communication Through Digital Health Technology.
Director, Survivorship and Supportive Care Program, Children’s Hospital Los Angeles, Los Angeles, California.
Professor of Clinical Pediatrics, Medicine, and Population & Public Health Sciences, Keck School of Medicine of USC, Los Angeles, California.
Panel: Survivorship.
Brenda Gallie, M.D., F.R.C.S.C.
Ophthalmologist, Retinoblastoma Program, Division of Ophthalmology and Vision Sciences, The Hospital for Sick Children, Toronto, Canada.
Medical Director, World Eye Cancer Hope Canada.
Member, International Retinoblastoma Consortium, Toronto, Canada.
Presentation One: Breakthrough: Chemoplaque for Intra-Ocular Retinoblastoma.
Presentation Two: A New Approach to Measuring Treatment Effectiveness.
President and Founding Board Member, World Eye Cancer Hope USA, Long Beach, California.
Bilateral Retinoblastoma and Melanoma Survivor.
One Retinoblastoma World Event Chair.
Pernille Axél Gregersen, M.D., Ph.D.
Chief Physician, Aarhus University Hospital, Aarhus, Denmark.
Panel: Genetics.
Presentation: Basic Genetics of Retinoblastoma.
Sarah Haddad, B.C.O., B.A.D.O.
Board Certified Ocularist, Ocular Prosthetics, Inc., Los Angeles, California.
Co-Director, Ocular Prosthetics, Inc., Los Angeles, California.
Panel: All About Prosthetic Eyes.
Stephen Haddad, B.C.O., B.A.D.O.
Board Certified Ocularist, Ocular Prosthetics, Inc., Los Angeles, California.
Co-Director, Ocular Prosthetics, Inc., Los Angeles, California.
Panel: All About Prosthetic Eyes.
Jayne Harrison
Clinical Nurse Consultant for Solid Tumors, Royal Children’s Hospital, Melbourne, Australia.
Nursing Chair, International Society of Pediatric Oncology.
Presentation: Retinoblastoma in Papua New Guinea – Building the Village.
Lisa Hester – In Loving Memory
Board of Directors, World Eye Cancer Hope USA, Ojai, California.
Retinoblastoma Parent.
The Child Life Panel on which Lisa was due to participate, and our entire Child Life Program will be dedicated to the memory of our much-loved WE C Hope USA Director, who died unexpectedly on July 31, 2024.
From our blog: A Day Well Spent – California Family Day
From our blog: Child Life in Retinoblastoma Care
Founder, Leia’s Kids, McKinney, Texas.
Unilateral Retinoblastoma Survivor.
Panel: Adult Survivors.
Retinoblastoma Parent, Addis Ababa, Ethiopia.
Presentation: Raising a Child with Retinoblastoma in Developing Countries (Pre-Recorded Talk).
Neurology Genetic Counselor, University of Florida Norman Fixel Institute for Neurological Diseases, Gainesville, Florida.
Presentation: Perspectives from Caregivers for Children with Retinoblastoma: Psychosocial Concerns and Genetic Counseling (Pre-Recorded Talk).
May Leng
Retinoblastoma Parent, Beijing, China.
Panel: The Parent Perspective.
Certified Child Life Specialist, Michael Garron Hospital, Toronto, Canada.
Certified Child Life Specialist, World Eye Cancer Hope Canada, Toronto, Canada.
One Retinoblastoma World Child Life Programming Director.
Ocularist, Loyer Artificial Eyes, Melbourne, Australia.
Panel: All About Prosthetic Eyes.
Ashwin Mallipatna, M.B.B.S., M.S.
Head of the Retinoblastoma Program, The Hospital for Sick Children, Toronto, Canada.
Assistant Professor, University of Toronto, Toronto, Canada.
Presentation: 3D Eye Models of Eyes with Retinoblastoma for Early Detection and Awareness.
Ophthalmologist, Ocular Oncologist, EyeCare, Santiago, Chile.
Chair of Membership Committee, and Secretary for Pan-American Ocular Oncology, International Society of Ocular Oncology.
Presentation: The Status of Retinoblastoma Care in Chile and South America, and the Development of a Leukocoria Detection App.
Chairperson, Victorious Children’s Cancer Support CBO, Petersburg, Virginia.
KnowTheGlow Kenya Ambassador.
Retinoblastoma Parent.
Presentation: A Parent’s Activism.
President, Canadian Retinoblastoma Society, Toronto, Canada.
Unilateral Retinoblastoma Survivor.
Panel: Adult Survivors.
Co-Founder, Kids Kicking Cancer, Crosby, Texas.
Retinoblastoma Parent.
Presentation: Spreading Rb Awareness and A Prosthetic Eye Partnership.
Molly McGuinness, M.S., C.G.C.
Genetic Counselor, Stanford Children’s Health, Palo Alto, California.
Panel: Genetics.
Presentation: Rb Genetic Testing: Take Home Messages.
Relief Genetic Counselor in Perinatal Genetics, Stanford Medicine Children’s Health, Palo Alto, California.
Board of Directors, World Eye Cancer Hope USA, Menlo Park, California.
Bilateral Retinoblastoma Survivor.
Panel: Genetics.
Presentation: Retinoblastoma and Pregnancy: A Brief Overview of Options Considered Ahead of Pregnancy.
Founder, See Life Different Media, Tulsa, Oklahoma.
Bilateral Retinoblastoa Survivor
Panel: Adult Survivors.
Anne Ampaire Musika, M.B.Ch.B., M.Med., M.Sc.
Lecturer, Makerere University, Kampala, Uganda.
Oculoplastic Surgeon & Ocular Oncologist, Mulago National Referral Hospital & Uganda Cancer Institute.
Presentation: Retinoblastoma in Uganda: Strides and Setbacks.
Director, Principal Counsellor & Education, Karibu Anawim, Victoria, Australia.
Presentation: Grief and Eye Loss: Finding a Way Forward.
Interfaith Clinical Care Chaplain and Certified Patient Advocate, Salem, Massachusetts.
Bilateral Retinoblastoma Survivor.
Presentation: Keynote Address – Tuesday, October 15.
Neuroscience Ph.D. Candidate, University of California, San Diego, San Diego, California.
Bilateral Retinoblastoma Survivor.
Panel: Adult Survivors.
Katherine Paton, M.D., F.R.C.S.C.
Clinical Professor, Faculty of Medicine, Department of Ophthalmology & Visual Sciences, University of British Columbia, Vancouver, Canada.
Ocular & Orbital Tumour Group Chair, BC Cancer.
Presentation: Is the Incidence of Rb Increasing?
Cathleen Paul
Retinoblastoma Parent, Fountain Valley, California.
Presentation: Our Family’s Experience Navigating Prosthetic Eyes.
Opinion Columnist for The New York Times, and former Editor of The Book Review, New York, New York.
Presentation: Keynote Address – Thursday, October 17.
Panel Moderator: A Global Conversation: International Society of Pediatric Oncology, One Retinoblastoma World, World Child Cancer, and World Health Organization.
NYT Opinion | It Takes a Lifetime to Survive Childhood Cancer
Ophthalmologist, St. Johannes Hospital, Bonn, Germany.
Initiator, Prevention of Avoidable Blindness Program (TanZanEye), Tanzania.
Joint Presentation: TanZanEye and the Arclight Project: Strengthening Eye Care in Hard to Reach Places (Pre-Recorded).
Susan Pultman, L.C.S.W., M.Ed.
Oncology Social Worker, Children’s Hospital of Philadelphia, Philadelphia, Pennsylvania.
Presentation Title: Psychosocial Aspects of Rb.
Pediatric Clinical Medical Assistant, Waianae Coast Comprehensive Health Center, Waianae, Hawaii.
Retinoblastoma Parent and KnowTheGlow USA Ambassador.
Panel: Rb in the Pacific Rim.
Lorna Renner, M.B.Ch.B., M.P.H.
Associate Professor with the Department of Child Health, University of Ghana Medical School, Accra, Ghana.
Head of Paediatric Oncology, Korle Bu Hospital, Accra, Ghana.
Presentation: The Journey Towards Improving Outcomes for Children with Retinoblastoma in Ghana.
Director of the Cancer and Blood Disease Institute Retinoblastoma Program, Children’s Hospital Los Angeles, Los Angeles, California.
Assistant Professor of Clinical Pediatrics, Keck School of Medicine of USC, Los Angeles, California.
Presentation: Updates on the Children’s Oncology Group (COG) Trial and Future COG Collaborations.
Staff Oncologist, Solid Tumor Program, Division of Hematology/Oncology, The Hospital for Sick Children, Toronto, Canada.
Presentation: A Review of High-Risk Pathology in Retinoblastoma and What it Means for Treatment Decision-Making.
Director, Ocular Oncology Service, Wills Eye Hospital, Philadelphia, Pennsylvania.
Professor of Ophthalmology, Thomas Jefferson University, Philadelphia, Pennsylvania.
Presentation Title: Adverse Reaction: Controversies in Ophthalmology (Pre-Recorded Talk).
Associate Professor and Division Director, Ocular Oncology, University of Washington, Seattle, Washington.
Associate Director of Medical Student Education for Research, Department of Ophthalmology, University of Washington, Seattle, Washington.
Presentation Title: Retinoblastoma in Africa: Past and Future.
Retinoblastoma Care Co-Coordinator (RCH), Research Fellow Centre for Eye Research Australia at University of Melbourne, Melbourne, Australia.
One Retinoblastoma World Scientific Program Co-Chair.
Presentation 1: A History of Retinoblastoma.
Presentation 2: The Burden of Treatment for Unilateral Rb.
Presentation 3: A Tale of Two Cities.
Executive Officer, MyASL TeacherROCKs LLC & ParentsROCK Readiness Project (501c3).
Retinoblastoma Parent, Salisbury, North Carolina.
Panel: The Parent Perspective.
Starlight Children’s Foundation
Australia.
Presentation: Captain Starlight: Bringing Light, Life, and Laughter to Retinoblastoma and Beyond.
Associate Doctor (Médecin Adjoint), Jules-Gonin Eye Hospital, Lausanne, Switzerland.
Head of the Pediatric Ocular Oncology Unit, Jules-Gonin Eye Hospital, Lausanne, Switzerland.
Presentation: Conservative Treatment of Intraocular Retinoblastoma.
Pediatric Oncologist, Royal Children’s Hospital, Melbourne, Australia.
Co-Director, International Society of Pediatric Oncology (SIOP) and St. Jude Global Adapted Resource and Implementation Application (ARIA) Guide.
Past President, SIOP Oceania.
Panel: A Global Conversation: International Society of Pediatric Oncology, One Retinoblastoma World, World Child Cancer, and World Health Organization.
Chief Executive Officer, World Child Cancer, London, England.
Panel: A Global Conversation: International Society of Pediatric Oncology, One Retinoblastoma World, World Child Cancer, and World Health Organization.
Co-Founder, KnowTheGlow, Los Angeles, California.
Coats Disease Parent.
Presentation: KnowTheGlow: Our Organization, Activism, and International Impact.
Co-Founder of World Eye Cancer Hope, and Chief Executive, WE C Hope UK, Oxford, England.
Bilateral Retinoblastoma Survivor.
Presentation: A History of World Eye Cancer Hope and One Retinoblastoma World (Pre-Recorded Talk).
Pediatric Ophthalmologist, Pediatric Ophthalmology Associates of Hawaii, Honolulu, Hawaii
Presentation: Retinoblastoma in Hawaii
More About One Rb World 2024
Hawaii 2024 | 2024 Program | Child Life | Conference Hotel | Registration | Partnerships | Travel Facts | Discover Hawaii – Stay Longer | Kuleana (Responsible Travel)
