Below you will find details of our Organizing Committee and confirmed speakers for the 2026 program of One Rb World. The program is in active development, and this page will be updated as the program evolves.
Confirmed Speakers
Incoming Head of Ocular Oncology, Jules-Gonin Eye Hospital, Lausanne, Switzerland.
President, Academia Ophthalmologica Belgica.
Presentation: Genetic Newborn Screening for Retinoblastoma.
Chief of Ophthalmology, Children’s Hospital Los Angeles.
Director of Ocular Oncology, USC Roski Eye Institute, Keck School of Medicine, Los Angeles, California.
One Retinoblastoma World 2026 Scientific Program Committee.
Presentation: Liquid Biopsy for Retinoblastoma.
Assistant Prosecutor, Monmouth County Prosecutor’s Office, Asbury Park, New Jersey.
Unilateral Retinoblastoma Survivor.
Panel: Adult Survivors.
Head of Outreach Program, Pediatric Cancer Center Barcelona, Hospital Sant Joan de Deu, Barcelona, Spain.
Scientific and Academic Director, Fundación Perez Scremini, Montevideo, Uruguay.
Presentation: Non-Chemotherapy Treatment for Retinoblastoma (Pre-Recorded Talk).
Director of Ophthalmic, Pathology Residency Program, Houston Methodist Hospital, Houston, Texas.
Professor of Pathology and Genomic Medicine, Houston Methodist Hospital, Houston, Texas.
One Retinoblastoma World 2026 Scientific Program Committee.
Presentation: Practical Pathology Findings That Correlate with Molecular and Outcomes.
Two-Time Paralympian, Team U.S.A.
Bilateral Retinoblastoma Survivor, Colorado Springs, Colorado.
Presentation: Keynote Address Day 2.
Director of Global Outreach, KnowTheGlow, Los Angeles, California.
Secretary, World Eye Cancer Hope USA, Gaithersburg, Maryland.
Unilateral Retinoblastoma Survivor.
Panel: Adult Survivors.
Concetta DiDomenico, C.R.N.P., P.N.P.-P.C.
Neuro-Oncology Nurse Practitioner, Children’s Hospital of Philadelphia, Pennsylvania.
Panel: It Takes a Village: The Patient Support Team.
Scientist and Director of Global Eye Health Research, The Hospital for Sick Children, Toronto, Canada.
Associate Professor, University of Toronto.
Scientific Advisor, World Eye Cancer Hope Canada.
Presentation: Building the Foundations for Earlier Retinoblastoma Detection: Biobanks, Images, and Patient Partnership.
Assistant Professor of Clinical Ophthalmology, Bascom Palmer Eye Institute, Miami, Florida.
One Retinoblastoma World 2026 Scientific Program Committee.
Presentation: The Burden of Treatment on Medical Professionals.
Pediatric Hematologist-Oncologist, Fundación Ayúdame A Vivir, San Salvador, El Salvador.
Presentation: The State of Rb in El Salvador.
Associate Professor, London School of Hygiene and Tropical Medicine, England.
Ocular Oncologist and Director of Sheba Global Ophthalmology, Sheba Medical Center, Israel.
Presentation: Global Retinoblastoma 2024 Study (Pre-Recorded Talk).
Brenda Gallie, M.D., F.R.C.S.C.
Ophthalmologist, Retinoblastoma Program, Division of Ophthalmology and Vision Sciences, The Hospital for Sick Children, Toronto, Canada.
Medical Director, World Eye Cancer Hope Canada.
Member, International Retinoblastoma Consortium, Toronto, Canada.
Presentation: Keynote Address Day 1: Rare Retinoblastoma: Key to Cancer Discoveries.
Professor, Department of Head and Neck Surgery, Division of Surgery, University of Texas MD Anderson Cancer Center, Houston, Texas.
Clinical Co-Director, Retinoblastoma Center of Houston.
One Retinoblastoma World 2026 Scientific Program Committee.
Presentation: COG Trials and USA National Strategy (Pre-Recorded Talk).
Ph.D. Candidate, Keck School of Medicine of USC, Los Angeles, California.
Unilateral Retinoblastoma Survivor.
Panel: Adult Survivor Panel.
President and Founding Board Member, World Eye Cancer Hope USA, Long Beach, California.
Bilateral Retinoblastoma and Melanoma Survivor.
One Retinoblastoma World Event Chair.
Cassi-Jo Groshek, P.A.-C., M.P.A.S.
Physician Assistant, St. Jude Children’s Research Hospital, Memphis, Tennessee.
Panel: It Takes a Village: The Patient Support Team.
Director, World Eye Cancer Hope USA, Eagle Mountain, Utah.
Bilateral Retinoblastoma Parent.
Panel: The Parent Perspective.
Founder, Leia’s Kids, McKinney, Texas.
Unilateral Retinoblastoma Survivor.
Panel: Survivorship and Psychological Impact.
Neuroradiologist, Children’s Hospital Los Angeles, Los Angeles, California.
Assistant Professor of Clinical Neurological Surgery, Keck School of Medicine of USC, Los Angeles, California.
Presentation: All About IAC: An Overview.
Consultant Ophthalmologist, Department of Ophthalmology, University of Nairobi, Kenya.
Presentation: Rb Advancements in Kenya
Kayla Lashinger, M.S., L.C.G.C.
Neurology Genetic Counselor, University of Florida Norman Fixel Institute for Neurological Diseases, Gainesville, Florida.
Presentation: Caregiver Perspectives on Psychosocial Challenges and Genetic Counseling.
Child Life Director, World Eye Cancer Hope, Toronto, Canada.
Certified Child Life Specialist, Michael Garron Hospital.
Panel: What is Child Life?
Unilateral Retinoblastoma Survivor.
Optometrist, West Palm Beach, Florida.
Panel: Rb Supports.
Ocularist, Loyer Artificial Eyes, Melbourne, Australia.
Panel: All About Prosthetic Eyes.
Ashwin Mallipatna, M.B.B.S., M.S.
Head of the Retinoblastoma Program, The Hospital for Sick Children, Toronto, Canada.
Assistant Professor, University of Toronto, Canada.
Presentation: Update of Outcomes of the STEP – Rb Clinical Trial in Toronto.
Graduate Student, Human Genetics and Genetic Counseling, Stanford University School of Medicine, Palo Alto, California.
Presentation: The Future of Newborn Screening for RB1: Evidence, Ethics, and Implementation in the USA.
Genetic Counselor in Perinatal Genetics, Stanford Medicine Children’s Health, Palo Alto, California.
Director, World Eye Cancer Hope USA.
Bilateral Retinoblastoma Survivor.
Presentation: Retinoblastoma and Pregnancy: A Brief Overview of Options to Consider Ahead of Pregnancy.
Associate Professor, Department of Ophthalmology, University of Washington, Seattle, Washington.
Pediatric Vitreoretinal Specialist, Seattle Children’s Hospital, Seattle, Washington.
Co-Presentation: Decoding the Epigenetic Drivers that Shape Risk of Retinoblastoma (Pre-Recorded Talk).
Daniel Ortiz-Morales, M.D., M.Sc.
Pediatric Oncologist, Hospital General de México, Mexico City, Mexico.
Katherine Paton, M.D., F.R.C.S.C.
Clinical Professor, Faculty of Medicine, Department of Ophthalmology & Visual Sciences, University of British Columbia, Vancouver, Canada.
Ocular & Orbital Tumour Group Chair, BC Cancer.
Presentation: Cancer in Canada: How are RB patients being served in 2026?
Ocularist, Ocular Prosthetics, Los Angeles, California.
Panel: All About Prosthetic Eyes.
Susan Pultman, L.C.S.W., M.Ed.
Oncology Social Worker, Children’s Hospital of Philadelphia, Philadelphia, Pennsylvania.
Presentation: Family Cancer Camps.
Ophthalmologist, Wisconsin Children’s, Wauwatosa, Wisconsin.
Division Chief of Pediatric Ophthalmology and Director of Ocular Oncology, Children’s Wisconsin, Milwaukee, Wisconsin.
Presentation: Sustained-Release Topotecan Episcleral Chemo Plaque for Retinoblastoma.
Ocular Oncologist and Associate Professor, University of Nebraska Medical Center, Omaha, Nebraska.
Presentation: Setting Up a New Rb Service in the American Midwest.
Nikola Ristevski
Patient Advocate, Nashville, Tennessee.
Bilateral Retinoblastoma Survivor
Presentation: Sharing and Caring: How Patients Help Build a Biobank for Rare Eye Cancers.
Chief Executive Officer, St. Baldrick’s Foundation, Monrovia, California.
Presentation: St. Baldrick’s Foundation: Grant Opportunities in Rb.
Co-Director, Cancer Genetics and Genomics Program, Texas Children’s Hospital, Houston, Texas.
Assistant Professor, Department of Pediatrics, Division of Hematology-Oncology, Baylor College of Medicine, Houston, Texas.
Presentation: Hereditary Retinoblastoma Across the Lifespan.
Director, Ocular Oncology Service, Wills Eye Hospital, Philadelphia, Pennsylvania.
Professor of Ophthalmology, Thomas Jefferson University, Philadelphia, Pennsylvania.
Presentation: Behind the Scenes of an EUA Day (Pre-Recorded Talk).
Director of the Department of Ophthalmic Oncology, Cole Eye Institute, Cleveland Clinic, Cleveland, Ohio.
Presentation: Innovations in Drug Delivery for Retinoblastoma.
Founder, Collab in Learning, Glendale, California.
Presentation: IEPs, 504s, and More: Supporting Blind and Low Vision Children Through Their Education Journey.
Courtney Smith, M.D., F.A.A.P.
Pediatrician, Christus Trinity Clinic, San Antonio, Texas.
Unilateral Retinoblastoma Parent.
Panel: The Parent Panel.
Owner and Director of Prosthetics and Clinical Services, Soper Brothers & Associates, Houston, Texas.
Panel: All About Prosthetic Eyes.
Associate Professor and Division Director, Ocular Oncology, University of Washington, Seattle, Washington.
Associate Director of Medical Student Education for Research, Department of Ophthalmology, University of Washington, Seattle, Washington.
Co-Presentation: Decoding the Epigenetic Drivers that Shape Risk of Retinoblastoma (Pre-Recorded Talk).
Sandra E. Staffieri, B.App.Sc., Ph.D.
Manager of the Retinoblastoma Service, Royal Children’s Hospital, Melbourne, Australia.
Senior Research Fellow, Centre for Eye Research Australia, University of Melbourne.
Presentation: Retinoblastoma in Oceania: Challenges and Successes.
Four-Time Paralympian, Team Canada.
Bilateral Retinoblastoma Survivor, Victoria, Canada.
Presentation: Keynote Address Day 2.
Nurse Practitioner, Children’s Hospital Los Angeles.
Panel: It Takes a Village: The Patient Support Team.
Bilateral Retinoblastoma Parent, Newbury Park, California.
Panel: The Parent Perspective.
Co-Founder, KnowTheGlow, Los Angeles, California.
Coats Disease Parent.
Presentation: KnowTheGlow Awareness Campaigns Around the World.
More About One Rb World 2026
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