Below you will find details of our Organizing Committee and confirmed speakers for the 2026 program of One Rb World. The program is in active development, and this page will be updated as the program evolves.
Confirmed Speakers
Professor and Consultant Ophthalmologist, University of Ilorin & University of Ilorin Teaching Hospital, Ilorin, Nigeria.
Pre-Recorded Talk: Retinoblastoma in Nigeria: Moving Ahead.
Professor of Ophthalmology, Tecnológico de Monterrey, Mexico City, Mexico.
Presentation: How We Implemented the Only Intra-Arterial Chemotherapy (IAC) Program in Northern Mexico.
Unilateral Retinoblastoma Survivor, Saskatchewan, Canada.
Board Chair, Canadian Retinoblastoma Society.
Panel: Rb Supports.
Philip Banks, M.B.A.
Unilateral Rb Parent, Richmond, Virginia.
Principal Financial Analyst, Capital One.
Panel: The Parent Perspective.
Head, Ocular Oncology, Jules-Gonin Eye Hospital, Lausanne, Switzerland.
President, Academia Ophthalmologica Belgica.
Presentation: Genetic Newborn Screening for Retinoblastoma.
Chief of Ophthalmology, Children’s Hospital Los Angeles.
Director of Ocular Oncology, USC Roski Eye Institute, Keck School of Medicine, Los Angeles, California.
One Retinoblastoma World 2026 Scientific Program Committee.
Presentation: Liquid Biopsy for Retinoblastoma.
Director, Pediatric Oncology/Hematology, Logan Health Children’s, Kalispell, Montana.
Contractor, St. Jude Global Retinoblastoma Program, Memphis, Tennessee.
Presentation: One Team, One Child: Collaborative and Global Care in Retinoblastoma.
Assistant Prosecutor, Monmouth County Prosecutor’s Office, Asbury Park, New Jersey.
Unilateral Retinoblastoma Survivor.
Panel: Adult Survivors.
Head of Outreach Program, Pediatric Cancer Center Barcelona, Hospital Sant Joan de Déu, Barcelona, Spain.
Scientific and Academic Director, Fundación Pérez Scremini, Montevideo, Uruguay.
Pre-Recorded Talk: Non-Chemotherapy Treatment for Retinoblastoma.
Professor of Ophthalmology, All India Institute of Medical Sciences, New Delhi, India.
Presentation: Management of Extra-ocular Retinoblastoma: Experience from India.
Director of Ophthalmic, Pathology Residency Program, Houston Methodist Hospital, Houston, Texas.
Professor of Pathology and Genomic Medicine, Houston Methodist Hospital, Houston, Texas.
One Retinoblastoma World 2026 Scientific Program Committee.
Presentation: Practical Pathology Findings That Correlate with Molecular Outcomes.
Two-Time Paralympian, Team U.S.A.
Bilateral Retinoblastoma Survivor, Colorado Springs, Colorado.
Presentation: Keynote Address Day 2.
Francisco Alfredo Santos Dacarett, M.D.
General Ophthalmologist, Clinical and Surgical Retinologist, Hospital y Clinica Santa Lucia, Tegucigalpa, Honduras.
Clinical and Surgical Retina, Retinoblastoma Program Head, Santa Lucia Foundation, Tegucigalpa, Honduras.
Presentation: Hope in Honduras.
Secretary, World Eye Cancer Hope USA, Gaithersburg, Maryland.
Unilateral Retinoblastoma Survivor.
Panel: Adult Survivors.
Concetta DiDomenico, C.R.N.P., P.N.P.-P.C.
Neuro-Oncology Nurse Practitioner, Children’s Hospital of Philadelphia, Pennsylvania.
Presentation: After the EUA: Navigating What Comes Next.
Scientist and Director of Global Eye Health Research, The Hospital for Sick Children, Toronto, Canada.
Associate Professor, University of Toronto.
Scientific Advisor, World Eye Cancer Hope Canada.
Presentation: Building the Foundations for Earlier Retinoblastoma Detection: Biobanks, Images, and Patient Partnership.
Assistant Professor of Clinical Ophthalmology, Bascom Palmer Eye Institute, Miami, Florida.
One Retinoblastoma World 2026 Scientific Program Committee.
Presentation: The Burden of Treatment on Medical Professionals.
Pediatric Hematologist-Oncologist, Fundación Ayúdame A Vivir, San Salvador, El Salvador.
Pre-Recorded Talk: The State of Rb in El Salvador.
Associate Professor, London School of Hygiene and Tropical Medicine, England.
Ocular Oncologist and Director of Sheba Global Ophthalmology, Sheba Medical Center, Israel.
Pre-Recorded Talk: Global Retinoblastoma 2024 Study.
Brenda Gallie, M.D., F.R.C.S.C.
Ophthalmologist, Retinoblastoma Program, Division of Ophthalmology and Vision Sciences, The Hospital for Sick Children, Toronto, Canada.
Medical Director, World Eye Cancer Hope Canada.
Keynote Address Day 1: Rare Retinoblastoma: Key to Cancer Discoveries.
Second Presentation: DEPICT Health: Real-World Advocate—Informed Data for National Rb Guidelines.
Ruth Greenslade, M.P.P., Public Health Supervisor, Goodhue County Health and Human Services, Red Wing, Minnesota.
Bilateral Retinoblastoma Survivor and Retinoblastoma Parent, Minnesota.
Panel: Adult Survivors.
Professor, Department of Head and Neck Surgery, Division of Surgery, University of Texas MD Anderson Cancer Center, Houston, Texas.
Clinical Co-Director, Retinoblastoma Center of Houston.
One Retinoblastoma World 2026 Scientific Program Committee.
Pre-Recorded Talk: COG Trials and USA National Strategy.
Ph.D. Candidate, Keck School of Medicine of USC, Los Angeles, California.
Unilateral Retinoblastoma Survivor.
Panel: Adult Survivor Panel.
President and Founding Board Member, World Eye Cancer Hope USA, Long Beach, California.
Bilateral Retinoblastoma and Melanoma Survivor.
One Retinoblastoma World Event Chair.
Cassi-Jo Groshek, P.A.-C., M.P.A.S.
Physician Assistant, St. Jude Children’s Research Hospital, Memphis, Tennessee.
Presentation: Putting it All Together: Role of the Ophthalmology PA at St. Jude.
Director, World Eye Cancer Hope USA, Eagle Mountain, Utah.
Bilateral Retinoblastoma Parent.
Panel: The Parent Perspective.
Founder, Leia’s Kids, McKinney, Texas.
Unilateral Retinoblastoma Survivor.
Presentation: Navigating Survivorship as a Young Adult.
Neuroradiologist, Children’s Hospital Los Angeles, Los Angeles, California.
Assistant Professor of Clinical Neurological Surgery, Keck School of Medicine of USC, Los Angeles, California.
Presentation: All About IAC: An Overview.
Consultant Ophthalmologist, Department of Ophthalmology, University of Nairobi, Kenya.
Presentation: Rb Advancements in Kenya.
Executive Director, International Children’s Wellness, Issaquah, Washington.
Undergraduate Student, University of California Los Angeles, Los Angeles, California.
Co-Presentation: International Children’s Wellness: Student-Led Cancer Advocacy.
Kayla Lashinger, M.S., L.C.G.C.
Neurology Genetic Counselor, University of Florida Norman Fixel Institute for Neurological Diseases, Gainesville, Florida.
Presentation: Caregiver Perspectives on Psychosocial Challenges and Genetic Counseling.
Unilateral Retinoblastoma Survivor.
Optometrist, West Palm Beach, Florida.
Presentation: The Optometrist’s Role in an Rb Survivor’s Life.
Child Life Director, World Eye Cancer Hope, Toronto, Canada.
Coordinator of Children’s Programs and Certified Child Life Specialist, Emily’s House Paediatric Hospice.
Panel: What is Child Life?
Ocularist, Loyer Artificial Eyes, Melbourne, Australia.
Pre-Recorded Talk: Friends First: Ocularistry After a Retinoblastoma Diagnosis.
Mark Lubash, Co-Founder and Managing Partner, Glidepath Capital Partners, Calabasas, California.
Bilateral Retinoblastoma Survivor.
Panel: Adult Survivors.
Ashwin Mallipatna, M.B.B.S., M.S.
Head of the Retinoblastoma Program, The Hospital for Sick Children, Toronto, Canada.
Assistant Professor, University of Toronto, Canada.
Presentation: Update of Outcomes of the STEP – Rb Clinical Trial in Toronto.
Pre-Recorded Talk: The Brazilian Experience in Rb.
Graduate Student, Human Genetics and Genetic Counseling, Stanford University School of Medicine, Palo Alto, California.
Presentation: The Future of Newborn Screening for RB1: Evidence, Ethics, and Implementation in the USA.
Genetic Counselor in Perinatal Genetics, Stanford Medicine Children’s Health, Palo Alto, California.
Director, World Eye Cancer Hope USA.
Bilateral Retinoblastoma Survivor.
Presentation: Retinoblastoma and Pregnancy: A Brief Overview of Options to Consider Ahead of Pregnancy.
Associate Professor, Department of Ophthalmology, University of Washington, Seattle, Washington.
Pediatric Vitreoretinal Specialist, Seattle Children’s Hospital, Seattle, Washington.
Pre-Recorded Co-Presentation: Decoding the Epigenetic Drivers that Shape Risk of Retinoblastoma.
Daniel Ortiz-Morales, M.D., M.Sc.
Pediatric Oncologist, Hospital General de México, Mexico City, Mexico.
Presentation: Mexico’s Resources, Challenges, and Opportunities for Rb.
Katherine Paton, M.D., F.R.C.S.C.
Clinical Professor, Faculty of Medicine, Department of Ophthalmology & Visual Sciences, University of British Columbia, Vancouver, Canada.
Ocular & Orbital Tumour Group Chair, BC Cancer.
Pre-Recorded Talk: Cancer in Canada: How are RB patients being served in 2026?
Ocularist, Ocular Prosthetics, Los Angeles, California.
Presentation: Behind the Prosthetic Eye: Understanding Orbital Implants.
CEO, International Children’s Wellness, Issaquah, Washington.
Student, Issaquah High School, Issaquah, Washington.
Co-Presentation: International Children’s Wellness: Student-Led Cancer Advocacy.
Susan Pultman, L.C.S.W., M.Ed.
Oncology Social Worker, Children’s Hospital of Philadelphia, Philadelphia, Pennsylvania.
Presentation: Pediatric Oncology Camps: Powerful Support for Patients, Survivors, and Siblings.
Ophthalmologist, Wisconsin Children’s, Wauwatosa, Wisconsin.
Division Chief of Pediatric Ophthalmology and Director of Ocular Oncology, Children’s Wisconsin, Milwaukee, Wisconsin.
Presentation: Sustained-Release Topotecan Episcleral Chemo Plaque for Retinoblastoma.
Ocular Oncologist and Associate Professor, University of Nebraska Medical Center, Omaha, Nebraska.
Presentation: Setting Up a New Rb Service in the American Midwest.
Nikola Ristevski
Patient Advocate, Nashville, Tennessee.
Bilateral Retinoblastoma Survivor.
Presentation: Sharing and Caring: How Patients Help Build a Biobank for Rare Eye Cancers.
Chief Executive Officer, St. Baldrick’s Foundation, Monrovia, California.
Presentation: St. Baldrick’s Foundation: Grant Opportunities in Rb.
Co-Director, Cancer Genetics and Genomics Program, Texas Children’s Hospital, Houston, Texas.
Assistant Professor, Department of Pediatrics, Division of Hematology-Oncology, Baylor College of Medicine, Houston, Texas.
Presentation: Hereditary Retinoblastoma Across the Lifespan.
Director, Ocular Oncology Service, Wills Eye Hospital, Philadelphia, Pennsylvania.
Professor of Ophthalmology, Thomas Jefferson University, Philadelphia, Pennsylvania.
Virtual Presentation: Behind the Scenes of an EUA Day.
Director of the Department of Ophthalmic Oncology, Cole Eye Institute, Cleveland Clinic, Cleveland, Ohio.
Presentation: Innovations in Drug Delivery for Retinoblastoma.
Founder, Collab in Learning, Glendale, California.
Presentation: IEPs vs. 504s: Advocacy and Support for Parents and Providers
Courtney Smith, M.D., F.A.A.P.
Pediatrician, Christus Trinity Clinic, San Antonio, Texas.
Unilateral Retinoblastoma Parent.
Panel: The Parent Panel.
Owner and Director of Prosthetics and Clinical Services, Soper Brothers & Associates, Houston, Texas.
Presentation: What is an Ocularist and What Do We Do?
Associate Professor and Division Director, Ocular Oncology, University of Washington, Seattle, Washington.
Associate Director of Medical Student Education for Research, Department of Ophthalmology, University of Washington, Seattle, Washington.
Pre-Recorded Co-Presentation: Decoding the Epigenetic Drivers that Shape Risk of Retinoblastoma.
Sandra E. Staffieri, B.App.Sc., Ph.D.
Manager of the Retinoblastoma Service, Royal Children’s Hospital, Melbourne, Australia.
Senior Research Fellow, Centre for Eye Research Australia, University of Melbourne.
Presentation: Retinoblastoma in Oceania: Challenges and Successes.
Unilateral Rb Parent, Houston, Texas.
KnowTheGlow USA Ambassador.
Presentation: Eyes on the Future: Turning a Retinoblastoma Diagnosis into Global Advocacy.
Nurse Practitioner, Children’s Hospital Los Angeles.
Presentation: Role of a Nurse in the OR.
Bilateral Retinoblastoma Parent, Newbury Park, California.
Panel: The Parent Perspective.
Co-Founder, KnowTheGlow, Los Angeles, California.
Coats Disease Parent.
Presentation: KnowTheGlow Awareness Campaigns Around the World.
Mamiki Chise, M.M.ed, FC Paed(SA)
Pediatric Oncologist, Princess Marina Hospital, Gaborone, Botswana
Pre-Recorded Talk: Retinoblastoma in Botswana.
More About One Rb World 2026
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