When a child has retinoblastoma, removing the affected eye remains the most common treatment worldwide to save life. Support is vital throughout treatment and long after. Lori and Grace Padilla share the perspective of a parent and a young adult survivor, their thoughts on enucleation, and the benefits of in-person support groups.
https://wechope.org/wp-content/uploads/2020/07/Grace-and-Bailey-Cover.jpg620885Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-07-06 09:26:442020-07-06 09:46:36Enucleation, Life and Support: A Parent and Survivor Perspective
Caring for a child with retinoblastoma and healthy siblings is a complex journey for parents, from before diagnosis, through treatment, and beyond. Rb Mom and WE C Hope USA director, Lori Banos, shares 10 key messages parents have for health care professionals, fellow parents and the wider community.
https://wechope.org/wp-content/uploads/2020/06/Cover.jpg12002200Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-06-22 09:46:162020-06-22 10:08:5710 Things Parents Want You to Know About Retinoblastoma
Retinoblastoma is highly curable. But for many survivors, it has lifelong impacts. In 2019, our Alphabet of Hope shared survivor insights of #LifeBeyondRb. Rb Survivor and 2019 alphabet curator, Abby White, highlights 10 important messages from survivors about life beyond treatment and cure of childhood eye cancer.
https://wechope.org/wp-content/uploads/2020/06/Ffion-JST.jpg12241632Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-06-08 08:38:002020-06-08 08:38:0010 Things Retinoblastoma Survivors Want You To Know
Diagnosis and treatment of eye cancer in early childhood is only the start of a lifelong story for many individuals affected by retinoblastoma. Marissa Gonzalez, Rb survivor and President of World Eye Cancer Hope USA, shares seven tips for being an active participant in your retinoblastoma survivorship journey.
https://wechope.org/wp-content/uploads/2020/05/Survivorship-Compass.png35007321Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-05-25 09:54:472020-05-25 09:56:367 Survivorship Tips and Tricks: navigating the adult post-retinoblastoma world
Strabismus (turned eye) and leukocoria (white pupil) are the most common early signs of retinoblastoma. Sandra Staffieri, Rb Care Co-ordinator at the Royal Children’s Hospital, Melbourne, explores why parent and healthcare provider awareness of these signs is vital to early diagnosis of childhood eye cancer.
https://wechope.org/wp-content/uploads/2020/05/Leukocoria-Cover.jpg475650Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-05-10 23:17:352020-05-11 08:55:13If You Tell Them, They Will Know: raising awareness of retinoblastoma signs can save lives, eyes and sight.
Siblings of children with retinoblastoma often experience big fears, worries and emotions when their brother or sister is first diagnosed, during treatment, and beyond. Early Years Educator and Child Life Intern Keanna Gordon explores childhood eye cancer from the sibling’s perspective, and how parents can best support their wellbeing.
https://wechope.org/wp-content/uploads/2020/04/Mother-and-Child.jpg10002000Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-04-27 09:21:572020-04-27 09:21:57How To Support Siblings of Children With Retinoblastoma
The coronavirus pandemic and social distancing measures are a high stress experience that may increase the risk of PTSD in an individual already susceptible due to childhood cancer trauma. Abby White explores 11 ways we can protect our mental health through the crisis, and reduce the risk of long-term negative effects.
https://wechope.org/wp-content/uploads/2020/04/Sofa.jpeg314628Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-04-13 09:46:212020-04-27 09:29:09Coronavirus: How to Protect Your Mental Health During Home Isolation
Child life can profoundly impact a child’s experience of retinoblastoma, and their quality of life. However, many children treated at specialist retinoblastoma centres lack child life support, and their parents feel unsupported, compared with other cancer patients. Abby White explores the challenges and ways to overcome them.
https://wechope.org/wp-content/uploads/2020/03/CLS-blowing-bubbles-through-anesthesia-mask-toward-a-little-girl.png466960Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-03-30 09:59:472020-04-27 09:31:54Child Life in Retinoblastoma Care
People around the world are feeling anxious about the coronavirus pandemic. We understand the concern is especially acute for parents of children with retinoblastoma, and survivors who have chronic health conditions and second cancer diagnosis. Here we answer questions we have received about the virus.
https://wechope.org/wp-content/uploads/2020/03/IMG_2046.jpg6831024Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-03-21 04:59:592020-06-08 17:44:49Questions About COVID-19 and Retinoblastoma
Eye cancer is a potentially overwhelming experience for young children, whether patient or sibling. Child life can radically improve care and life for the entire family, but too many children lack access to this specialist support. Abby White shares how WE C Hope supported Child Life programs are helping to change that.
https://wechope.org/wp-content/uploads/2020/02/Medical-Play-Sarah-Hughes-Calgary-2019-1-scaled.jpg20442560Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-03-02 02:29:522020-04-27 09:35:49Child Life Programs: Play With Purpose at Retinoblastoma Gatherings
Enucleation, Life and Support: A Parent and Survivor Perspective
/0 Comments/in Child Life, Genetics, Hope, Living With Rb, Medical Care, Our Stories, Retinoblastoma, Support, Survivorship, WE C Hope /by AbbyWhen a child has retinoblastoma, removing the affected eye remains the most common treatment worldwide to save life. Support is vital throughout treatment and long after. Lori and Grace Padilla share the perspective of a parent and a young adult survivor, their thoughts on enucleation, and the benefits of in-person support groups.
10 Things Parents Want You to Know About Retinoblastoma
/0 Comments/in Awareness, Child Life, Genetics, Hope, Living With Rb, Medical Care, One Rb World, Our Stories, Research, Retinoblastoma, Support, Survivorship, WE C Hope /by AbbyCaring for a child with retinoblastoma and healthy siblings is a complex journey for parents, from before diagnosis, through treatment, and beyond. Rb Mom and WE C Hope USA director, Lori Banos, shares 10 key messages parents have for health care professionals, fellow parents and the wider community.
10 Things Retinoblastoma Survivors Want You To Know
/0 Comments/in Child Life, Genetics, Hope, Living With Rb, Medical Care, One Rb World, Our Stories, Research, Retinoblastoma, Support, Survivorship, WE C Hope /by AbbyRetinoblastoma is highly curable. But for many survivors, it has lifelong impacts. In 2019, our Alphabet of Hope shared survivor insights of #LifeBeyondRb. Rb Survivor and 2019 alphabet curator, Abby White, highlights 10 important messages from survivors about life beyond treatment and cure of childhood eye cancer.
7 Survivorship Tips and Tricks: navigating the adult post-retinoblastoma world
/0 Comments/in Genetics, Hope, Living With Rb, Medical Care, One Rb World, Our Stories, Resources, Retinoblastoma, Survivorship, USA, WE C Hope /by AbbyDiagnosis and treatment of eye cancer in early childhood is only the start of a lifelong story for many individuals affected by retinoblastoma. Marissa Gonzalez, Rb survivor and President of World Eye Cancer Hope USA, shares seven tips for being an active participant in your retinoblastoma survivorship journey.
If You Tell Them, They Will Know: raising awareness of retinoblastoma signs can save lives, eyes and sight.
/0 Comments/in Awareness, Genetics, Hope, Medical Care, One Rb World, Our Stories, Rati’s Challenge, Research, Resources, Retinoblastoma, USA, WE C Hope /by AbbyStrabismus (turned eye) and leukocoria (white pupil) are the most common early signs of retinoblastoma. Sandra Staffieri, Rb Care Co-ordinator at the Royal Children’s Hospital, Melbourne, explores why parent and healthcare provider awareness of these signs is vital to early diagnosis of childhood eye cancer.
How To Support Siblings of Children With Retinoblastoma
/0 Comments/in Child Life, Hope, Living With Rb, Resources, Retinoblastoma, Support /by AbbySiblings of children with retinoblastoma often experience big fears, worries and emotions when their brother or sister is first diagnosed, during treatment, and beyond. Early Years Educator and Child Life Intern Keanna Gordon explores childhood eye cancer from the sibling’s perspective, and how parents can best support their wellbeing.
Coronavirus: How to Protect Your Mental Health During Home Isolation
/0 Comments/in Child Life, Hope, Living With Rb, Resources, Support /by AbbyThe coronavirus pandemic and social distancing measures are a high stress experience that may increase the risk of PTSD in an individual already susceptible due to childhood cancer trauma. Abby White explores 11 ways we can protect our mental health through the crisis, and reduce the risk of long-term negative effects.
Child Life in Retinoblastoma Care
/0 Comments/in Child Life, Fundraising, Hope, Kenya, Living With Rb, Medical Care, One Rb World, Our Stories, Rati’s Challenge, Research, Retinoblastoma, Support, Survivorship, WE C Hope /by AbbyChild life can profoundly impact a child’s experience of retinoblastoma, and their quality of life. However, many children treated at specialist retinoblastoma centres lack child life support, and their parents feel unsupported, compared with other cancer patients. Abby White explores the challenges and ways to overcome them.
Questions About COVID-19 and Retinoblastoma
/0 Comments/in Awareness, Child Life, Hope, Living With Rb, Medical Care, Our Stories, Resources, Retinoblastoma, Support, Survivorship /by AbbyPeople around the world are feeling anxious about the coronavirus pandemic. We understand the concern is especially acute for parents of children with retinoblastoma, and survivors who have chronic health conditions and second cancer diagnosis. Here we answer questions we have received about the virus.
Child Life Programs: Play With Purpose at Retinoblastoma Gatherings
/0 Comments/in Art For Eyes, Canada, Child Life, Fundraising, Hope, Kenya, Living With Rb, Medical Care, One Rb World, Resources, Retinoblastoma, Support, Survivorship, UK, USA, WE C Hope /by AbbyEye cancer is a potentially overwhelming experience for young children, whether patient or sibling. Child life can radically improve care and life for the entire family, but too many children lack access to this specialist support. Abby White shares how WE C Hope supported Child Life programs are helping to change that.