Retinoblastoma
Canada
Special fund at the University Health Network
About WE C Hope
UK
Registered Charity #: 111-11-33
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USA
501(c)(3) National Non Profit - EIN: 45-4886827
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Kenya Partner
Kenya Childhood Cancer Trust
Challenging the Global Retinoblastoma Burden on World Population Day
/in Awareness, Canada, Hope, Medical Care, One Rb World, Rati’s Challenge, Research, Resources, Retinoblastoma, WE C Hope /by AbbyJuly 11, World Population Day, focuses attention on the urgency and importance of population issues. Helen Dimaras Ph.D considers the effect of our expanding global population on the expected numbers of children who will develop eye cancer each year, and the provision of effective care to meet their needs.
How to Support Sensory Development and Engagement In Babies and Young Children
/in Child Life, Hope, Living With Rb, Resources, Retinoblastoma, Support, Survivorship, WE C Hope /by AbbyBabies and young children rely on all their senses for learning and development, communication, comfort and coping. Jocelyn Leworthy, RECE, CIMI explores the role our senses play in daily life and development from our earliest days, and how we can encourage fun sensory stimulation to nourish young lives.
7 Ways Caregivers Can Support Infant Mental Health during Cancer Care.
/in Child Life, Hope, Living With Rb, Medical Care, One Rb World, Research, Resources, Retinoblastoma, Support, Survivorship, WE C Hope /by AbbyInfants experience a wide range of emotions, the depths of which are just beginning to be understood. Morgan Livingstone CCLS discusses how the external environment influences infant mental health, and the varied ways parents and medical professionals can help babies cope and thrive through medical interventions.
Sleep, Photosensitivity and Retinoblastoma
/0 Comments/in Hope, Living With Rb, Medical Care, Research, Resources, Retinoblastoma, Support, Survivorship, WE C Hope /by AbbyThe body’s sensitive biological clock regulates sleep, which is vital to our physical and mental health. Dr. Iona Alexander explores how some effects of retinoblastoma treatment may disrupt this highly tuned system, and invites survivors to help researchers understand the relationship between these effects and sleep.
Life as a Registered Mom
/0 Comments/in Awareness, Hope, Living With Rb, Medical Care, Our Stories, Retinoblastoma, Survivorship, USA, WE C Hope /by AbbyOn Saturday 12 May, International Nurses Day celebrates the incredible life-saving, life-changing work of nurses around the world. Janine Patterson shares the uncommon experience, benefit and burden of being a nurse when your child is diagnosed with cancer, and important things she has learned along the way.
How DNA and Genetic Knowledge Changes Lives: the impact of genetic testing for five families affected by retinoblastoma
/0 Comments/in Awareness, Genetics, Hope, Living With Rb, Medical Care, Our Stories, Research, Resources, Retinoblastoma, Survivorship, WE C Hope /by AbbyRetinoblastoma survivor and WE C Hope co-founder / CEO, Abby White, considers the central importance of DNA and genetic knowledge in caring for the child and family. She introduces us to Alice, Jamie, Megan, Rachel, Peter and their families, to find out how genetic testing can influence treatment, screening and lifelong care.
Make Space for Grief: Honour the place you are in
/0 Comments/in Awareness, Hope, Living With Rb, Medical Care, Our Stories, Retinoblastoma, Support, Survivorship, WE C Hope /by AbbyLinda Conyard MGestT explores the grief that can arise from retinoblastoma diagnosis, treatment, eye removal surgery, loss of innocence, and mutilated family life. She considers the potential harm of suppressing this grief, and offers both families/survivors and medical professionals ways to prevent prolonged suffering.
Happy Doctors Day – Celebrating physician collaborations that change lives.
/0 Comments/in Awareness, Hope, Living With Rb, Medical Care, One Rb World, Our Stories, Retinoblastoma, Support, Survivorship, USA, WE C Hope /by AbbySince the 1930s, Doctors Day (March 30) has recognized the contributions of physicians to the individual lives and communities they serve. Retinoblastoma survivor and WE C Hope USA President, Marissa Gonzalez, shares her experience of collaborating with doctors and medical staff to treat, cure and recover from cancer.
The Informed Parent – 6 Tips for Staying Up to Date in a Social Media World
/in Awareness, Hope, Living With Rb, Medical Care, One Rb World, Resources, Retinoblastoma, Support, USA, WE C Hope /by Kristen SmallGoogle and social media play an increasingly significant role in the lives of families affected by retinoblastoma, but without careful use, they can complicate a child’s medical care and even put life at risk. Dr. Jesse Berry shares her recommendations for being a safely informed parent advocate in the modern hyper-connected age.
DePICT the Cancer Care Journey, Overcome Rarity Through Collaborative Research
/in Canada, Child Life, Genetics, Hope, Medical Care, One Rb World, Research, Retinoblastoma, Survivorship, WE C Hope /by AbbyBrenda Gallie, global leader in retinoblastoma clinical care, research and innovation, discusses an exciting technology promising to improve care during treatment and beyond. DePICTRB supports collaboration among the child’s entire circle of care, gives parents open access to their child’s record, and empowers clinical research.