After a year of publishing the #FamilyInSight Alphabet of Hope, we bring you the complete collection of 2020 Entries. This is the third #AlphabetOfHope. WE C Hope CEO, Abby White looks back at the alphabet’s genesis, and the insight, wisdom and motivation this literary project brings to the retinoblastoma community.
https://wechope.org/wp-content/uploads/2021/01/Flood.png6751200Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2021-01-04 18:26:452021-01-04 18:58:14Alphabet of Hope: Rewriting the Future of Retinoblastoma Care
2020 has been eventful and challenging for the whole world. Throughout, WE C Hope has continued to serve, unite and advance our global retinoblastoma community. WE C Hope USA President and retinoblastoma survivor, Marissa Gonzalez, reflects on the year’s highlights with thanks, and shares some plans for the coming year.
https://wechope.org/wp-content/uploads/2020/12/Red-White-Hearts-Thanks2.jpg450700Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-12-21 08:58:002020-12-21 09:16:30Happy Holidays from World Eye Cancer Hope!
The end of year Holidays are more important than ever when a child has cancer, but they can also bring extra burdens on top of intensive treatment. Child Life Specialist, Morgan Livingstone, offers advice on how to create a magical Holiday for the whole family when a child is in treatment, with self-care at the heart of thoughtful planning.
https://wechope.org/wp-content/uploads/2020/12/Chua-Family.jpg552828Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-12-07 10:05:432020-12-07 12:13:22Celebrating the Holidays with a Child in Treatment
In October, a diverse community of survivors, families and medical professionals came together at One Retinoblastoma World for two days of inspiring panels, research and calls to action. WE C Hope USA President Marissa D. Gonzalez shares a recap of the fifth global conference, and her vision for next year’s event in Hawaii.
https://wechope.org/wp-content/uploads/2020/11/One-Rb-World-Image.png9001200Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-11-23 11:50:572020-11-23 14:54:09One Retinoblastoma World 2020: Inspiring Global Support, Research and Action.
Cyberbullying is becoming increasingly common, as we spend more time online, beginning at younger ages. Child Life intern, Shane Smith, explores the defining features of cyberbullies, what we can do to limit the risk of unwanted attention and protect our security online, and how we can handle cyberbullying and support affected children.
https://wechope.org/wp-content/uploads/2020/11/CyberBullying.jpg630878Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-11-09 01:09:412020-11-11 18:21:45Cyberbullying: What Is It? How Can We Handle It and Reduce the Risk?
Most children with retinoblastoma and survivors have some degree of sight loss, and many experience awkward healthcare interactions as a result. This 3-part series shares survivor and parent tips for medical professionals working with people who are blind or vision impaired, Part 3 focuses on medical care and support.
https://wechope.org/wp-content/uploads/2019/05/Elli-Comfort.jpg355477Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-10-26 10:24:542020-10-26 11:00:11How to Communicate with People Who are Blind or Vision Impaired - Part 3: Medical Care and Support
Most children with retinoblastoma and survivors have some degree of sight loss, and many experience awkward healthcare interactions as a result. This 3-part series shares survivor and parent tips for medical professionals working with people who are blind or vision impaired, Part 2 focuses on assistance, access and technology.
https://wechope.org/wp-content/uploads/2018/10/blind-etiquette.jpg374519Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-10-12 09:01:592020-10-26 10:28:47How to Communicate with People Who are Blind or Vision Impaired - Part 2: Assistance, Access and Technology
Most children with retinoblastoma and survivors have some degree of sight loss, and many experience awkward healthcare interactions as a result. This 3-part series shares survivor and parent tips for medical professionals caring for and working with people who are blind or vision impaired. Part 1 focuses on general meeting and interaction.
https://wechope.org/wp-content/uploads/2020/07/Group-Video-Capture2.jpg490885Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-09-27 22:44:232020-10-26 10:29:51How to Communicate with People Who are Blind or Vision Impaired - Part 1: General Meeting and Interaction
Most children with retinoblastoma experience some degree of vision loss that requires accommodations and support to reach their potential in school. Four vision professionals, who have experience of retinoblastoma, review the supports children may need, and what parents can do to help secure them.
https://wechope.org/wp-content/uploads/2020/07/First-Day-at-Pre-School.jpg11151575Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-09-14 09:53:202020-09-14 09:53:20How to Support Learning For Children With Vision Loss
Parents of children with retinoblastoma ask how often their child’s eyes should be examined under anaesthetic, and if schedules vary depending on type of eye salvage treatment. Abby White, in collaboration with a specialist from one leading US treatment center, helps to answer these important questions.
https://wechope.org/wp-content/uploads/2020/07/IMG_2281.jpg6831024Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-08-31 20:58:312020-08-31 22:52:04EUA Frequency During and After Retinoblastoma Treatment
Alphabet of Hope: Rewriting the Future of Retinoblastoma Care
/0 Comments/in Awareness, Child Life, Genetics, Hope, Living With Rb, Medical Care, One Rb World, Our Stories, Rati’s Challenge, Research, Resources, Retinoblastoma, Support, Survivorship, WE C Hope /by AbbyAfter a year of publishing the #FamilyInSight Alphabet of Hope, we bring you the complete collection of 2020 Entries. This is the third #AlphabetOfHope. WE C Hope CEO, Abby White looks back at the alphabet’s genesis, and the insight, wisdom and motivation this literary project brings to the retinoblastoma community.
Celebrating the Holidays with a Child in Treatment
/0 Comments/in Child Life, Hope, Living With Rb, Resources, Retinoblastoma, Support, Survivorship /by AbbyThe end of year Holidays are more important than ever when a child has cancer, but they can also bring extra burdens on top of intensive treatment. Child Life Specialist, Morgan Livingstone, offers advice on how to create a magical Holiday for the whole family when a child is in treatment, with self-care at the heart of thoughtful planning.
One Retinoblastoma World 2020: Inspiring Global Support, Research and Action.
/0 Comments/in Awareness, Canada, Child Life, Genetics, Hope, Kenya, Living With Rb, Medical Care, One Rb World, Our Stories, Research, Resources, Retinoblastoma, Support, Survivorship, USA, WE C Hope /by AbbyIn October, a diverse community of survivors, families and medical professionals came together at One Retinoblastoma World for two days of inspiring panels, research and calls to action. WE C Hope USA President Marissa D. Gonzalez shares a recap of the fifth global conference, and her vision for next year’s event in Hawaii.
Cyberbullying: What Is It? How Can We Handle It and Reduce the Risk?
/0 Comments/in Child Life, Hope, Living With Rb, Resources, Retinoblastoma, Support, Survivorship /by AbbyCyberbullying is becoming increasingly common, as we spend more time online, beginning at younger ages. Child Life intern, Shane Smith, explores the defining features of cyberbullies, what we can do to limit the risk of unwanted attention and protect our security online, and how we can handle cyberbullying and support affected children.
How to Communicate with People Who are Blind or Vision Impaired – Part 3: Medical Care and Support
/1 Comment/in Hope, Living With Rb, Medical Care, One Rb World, Our Stories, Resources, Retinoblastoma, Support, Survivorship, WE C Hope /by AbbyMost children with retinoblastoma and survivors have some degree of sight loss, and many experience awkward healthcare interactions as a result. This 3-part series shares survivor and parent tips for medical professionals working with people who are blind or vision impaired, Part 3 focuses on medical care and support.
How to Communicate with People Who are Blind or Vision Impaired – Part 2: Assistance, Access and Technology
/0 Comments/in Hope, Living With Rb, Medical Care, One Rb World, Our Stories, Resources, Retinoblastoma, Support, Survivorship, WE C Hope /by AbbyMost children with retinoblastoma and survivors have some degree of sight loss, and many experience awkward healthcare interactions as a result. This 3-part series shares survivor and parent tips for medical professionals working with people who are blind or vision impaired, Part 2 focuses on assistance, access and technology.
How to Communicate with People Who are Blind or Vision Impaired – Part 1: General Meeting and Interaction
/0 Comments/in Hope, Living With Rb, Medical Care, One Rb World, Our Stories, Resources, Retinoblastoma, Support, Survivorship, WE C Hope /by AbbyMost children with retinoblastoma and survivors have some degree of sight loss, and many experience awkward healthcare interactions as a result. This 3-part series shares survivor and parent tips for medical professionals caring for and working with people who are blind or vision impaired. Part 1 focuses on general meeting and interaction.
How to Support Learning For Children With Vision Loss
/0 Comments/in Child Life, Hope, Living With Rb, Medical Care, Resources, Retinoblastoma, Support, Survivorship, USA /by AbbyMost children with retinoblastoma experience some degree of vision loss that requires accommodations and support to reach their potential in school. Four vision professionals, who have experience of retinoblastoma, review the supports children may need, and what parents can do to help secure them.
EUA Frequency During and After Retinoblastoma Treatment
/0 Comments/in Child Life, Medical Care, One Rb World, Resources, Retinoblastoma, USA, WE C Hope /by AbbyParents of children with retinoblastoma ask how often their child’s eyes should be examined under anaesthetic, and if schedules vary depending on type of eye salvage treatment. Abby White, in collaboration with a specialist from one leading US treatment center, helps to answer these important questions.