Though small and far-flung, our global retinoblastoma family stands strong together. Members of WE C Hope USA’s Board of Directors and past One Rb World participants explain how this conference unites us and strengthens ohana. In trial, grief, hope, and triumph, we share and learn from our collective experience, support one another, and strive to care for all.
https://wechope.org/wp-content/uploads/2020/07/Group-Video-Capture2.jpg490885Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2024-07-22 02:00:292024-07-22 02:02:52Ohana: The Beating Heart of One Retinoblastoma World 2024
Strong parent instinct and intuition often lead to a child’s eye cancer diagnosis. Rb Survivor and WE C Hope CEO, Abby White explores what they are and how they differ, why they are so important for retinoblastoma early detection, why primary care providers should take them seriously, and how they impacted the diagnosis journey of four children.
https://wechope.org/wp-content/uploads/2024/05/KTG-What-If-Kenya-English.png10801080Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2024-07-08 08:00:372024-06-13 23:10:25Gut Feelings Matter: How Parent Instinct and Intuition Detect Childhood Eye Cancer Early
Early diagnosis of retinoblastoma saves children’s lives, and offers the best opportunity for safe vision saving therapy. But worldwide, many children are diagnosed late. KnowTheGlow founder, Megan Webber, and WE C Hope USA President, Marissa D. Gonzalez discuss how our early detection partnership evolved, and update on the progress we’re making for children in Africa and Asia.
https://wechope.org/wp-content/uploads/2024/06/KTG-A-Photo-Can-Kenya-English.png10801080Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2024-06-24 05:00:532024-07-08 09:20:54Pearls of Light: The Pathway to Retinoblastoma Early Detection
Laulima signifies the power of cooperation, teamwork and collective effort. This Hawaiian concept of many hands striving together drives the One Rb World conference, taking place in Honolulu this October. Members of our 2024 conference team explain how laulima inspires their work for this global community, united to advance retinoblastoma care for all.
https://wechope.org/wp-content/uploads/2020/05/Group-Pic-Tuesday1.jpg400640Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2024-06-10 07:30:152024-06-28 11:41:04Laulima: Many Hands, One Retinoblastoma World
Being the parent of a child with retinoblastoma, or living with the effects of this cancer every day, can be a frustrating experience. With an emphasis on our year-long theme of early diagnosis, we look at some of the challenges facing our retinoblastoma world, and for each, three ways we can work together to advance care for everyone.
https://wechope.org/wp-content/uploads/2017/07/Daisy-Sisters-Slide-May-2010.jpg18372996Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2024-05-27 08:00:282024-05-31 18:27:53Bridging the Gaps: How Community and Shared Responsibility Create the Best Retinoblastoma Care
Worldwide, children and their families grapple with life-threatening eye cancer due to delayed diagnosis and care. Unchecked, retinoblastoma has far-reaching consequences. Through two family stories, WE C Hope CEO Abby White explores the impacts of low awareness, slow referral, and delayed care, and the life-saving, sight-saving opportunities they reveal.
https://wechope.org/wp-content/uploads/2024/03/KTG-No-Child-Should-Die.png10801080Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2024-05-13 08:00:592024-05-31 18:22:26Between Shadow and Light: Young Lives in Jeopardy from Retinoblastoma
Critical clues to a child’s eye cancer hide in plain sight. Parent and physician knowledge, and ability to spot these silent signs are vital to early detection, swift referral, and prompt diagnosis. Meet five children from around the world whose parents’ curiosity, nagging concern, and action were pivotal to their diagnosis and life-saving, sight-saving care.
https://wechope.org/wp-content/uploads/2024/03/KTG1.jpg7131063Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2024-04-29 08:00:502024-06-01 16:11:18A Glint or a Squint Could Be Your Hint: Knowledge is Key to Retinoblastoma Early Diagnosis
Fifty retinoblastoma patients, survivors, and their family members joined World Eye Cancer Hope USA in February for three days of connection and fun in Colorado’s capital. Marissa D. Gonzalez, President and Founding Board Member or WE C Hope USA, shares highlights from the weekend, and why these gatherings are so important to our community.
https://wechope.org/wp-content/uploads/2024/04/Wings-Museum-Group.jpeg18752500Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2024-04-15 08:00:152024-06-05 07:16:07Mile High Moments at the Denver Retinoblastoma Family Weekend
The gold ribbon is the unifying symbol of childhood cancer. Worldwide, it celebrates the victory of each life saved, honours the memory of every precious child lost, and shines with hope of cure for all children. WE C Hope CEO, Abby White, explains four key reasons we support the gold ribbon campaign, and shares new gold ribbon merch designs you can buy to support our retinoblastoma community.
https://wechope.org/wp-content/uploads/2024/03/WE-C-Hope-Gold-Ribbon-Blue.png20565000Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2024-04-01 08:00:362024-03-27 15:38:46Solidarity, Strength, and Synergy: The Gold Ribbon and the Global Fight Against Childhood Cancer
At seventeen months old, Marissa Gonzalez was diagnosed with bilateral retinoblastoma – the first turning point in her lifelong journey with this cancer syndrome. Today, as President of WE C Hope USA, she celebrates 32 years free from eye cancer, and shares the latest chapter of her cancer survivorship story, with two appeals to all in our community.
https://wechope.org/wp-content/uploads/2024/03/Marissa-edit-for-blog-scaled.jpg15742560Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2024-03-28 14:19:082024-03-28 22:14:55Beyond Retinoblastoma: Celebrating Cancer Survivorship; Advocating Lifelong Care
Ohana: The Beating Heart of One Retinoblastoma World 2024
Though small and far-flung, our global retinoblastoma family stands strong together. Members of WE C Hope USA’s Board of Directors and past One Rb World participants explain how this conference unites us and strengthens ohana. In trial, grief, hope, and triumph, we share and learn from our collective experience, support one another, and strive to care for all.
Gut Feelings Matter: How Parent Instinct and Intuition Detect Childhood Eye Cancer Early
Strong parent instinct and intuition often lead to a child’s eye cancer diagnosis. Rb Survivor and WE C Hope CEO, Abby White explores what they are and how they differ, why they are so important for retinoblastoma early detection, why primary care providers should take them seriously, and how they impacted the diagnosis journey of four children.
Pearls of Light: The Pathway to Retinoblastoma Early Detection
Early diagnosis of retinoblastoma saves children’s lives, and offers the best opportunity for safe vision saving therapy. But worldwide, many children are diagnosed late. KnowTheGlow founder, Megan Webber, and WE C Hope USA President, Marissa D. Gonzalez discuss how our early detection partnership evolved, and update on the progress we’re making for children in Africa and Asia.
Laulima: Many Hands, One Retinoblastoma World
Laulima signifies the power of cooperation, teamwork and collective effort. This Hawaiian concept of many hands striving together drives the One Rb World conference, taking place in Honolulu this October. Members of our 2024 conference team explain how laulima inspires their work for this global community, united to advance retinoblastoma care for all.
Bridging the Gaps: How Community and Shared Responsibility Create the Best Retinoblastoma Care
Being the parent of a child with retinoblastoma, or living with the effects of this cancer every day, can be a frustrating experience. With an emphasis on our year-long theme of early diagnosis, we look at some of the challenges facing our retinoblastoma world, and for each, three ways we can work together to advance care for everyone.
Between Shadow and Light: Young Lives in Jeopardy from Retinoblastoma
Worldwide, children and their families grapple with life-threatening eye cancer due to delayed diagnosis and care. Unchecked, retinoblastoma has far-reaching consequences. Through two family stories, WE C Hope CEO Abby White explores the impacts of low awareness, slow referral, and delayed care, and the life-saving, sight-saving opportunities they reveal.
A Glint or a Squint Could Be Your Hint: Knowledge is Key to Retinoblastoma Early Diagnosis
Critical clues to a child’s eye cancer hide in plain sight. Parent and physician knowledge, and ability to spot these silent signs are vital to early detection, swift referral, and prompt diagnosis. Meet five children from around the world whose parents’ curiosity, nagging concern, and action were pivotal to their diagnosis and life-saving, sight-saving care.
Mile High Moments at the Denver Retinoblastoma Family Weekend
Fifty retinoblastoma patients, survivors, and their family members joined World Eye Cancer Hope USA in February for three days of connection and fun in Colorado’s capital. Marissa D. Gonzalez, President and Founding Board Member or WE C Hope USA, shares highlights from the weekend, and why these gatherings are so important to our community.
Solidarity, Strength, and Synergy: The Gold Ribbon and the Global Fight Against Childhood Cancer
The gold ribbon is the unifying symbol of childhood cancer. Worldwide, it celebrates the victory of each life saved, honours the memory of every precious child lost, and shines with hope of cure for all children. WE C Hope CEO, Abby White, explains four key reasons we support the gold ribbon campaign, and shares new gold ribbon merch designs you can buy to support our retinoblastoma community.
Beyond Retinoblastoma: Celebrating Cancer Survivorship; Advocating Lifelong Care
At seventeen months old, Marissa Gonzalez was diagnosed with bilateral retinoblastoma – the first turning point in her lifelong journey with this cancer syndrome. Today, as President of WE C Hope USA, she celebrates 32 years free from eye cancer, and shares the latest chapter of her cancer survivorship story, with two appeals to all in our community.