Continuing our review of Day Two at the 7th One Rb World Conference in Honolulu, Hawaii, we explore critical life-saving advancements in global retinoblastoma care. Marissa D. Gonzalez, President of World Eye Cancer Hope USA, and Conference Event Chair, delves deeper into the research developments, technological breakthroughs, collaborations, joyful child life, and uplifting survivor stories shaping a brighter future for all.
https://wechope.org/wp-content/uploads/2024/11/Grace-Mbugua.jpg24001800Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2024-11-25 08:01:512024-11-23 21:04:21One Rb World 2024 Shines the Light on Life-Saving Care: Highlights from Hawaii Day Two | Page 2
The 7th One Retinoblastoma World conference took place in Honolulu, Hawaii over three days in October 2024. Day Two brought perspectives from around the globe as our scientific programming took center stage. Marissa D. Gonzalez, President of World Eye Cancer Hope USA, and Conference Event Chair, shares highlights from discussions on life-saving care and technological advances in the second installment of this three-part conference review.
https://wechope.org/wp-content/uploads/2024/11/Nicole-and-Natalie-scaled.jpg17072560Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2024-11-25 08:00:372024-11-26 19:35:55One Rb World 2024 Shines the Light on Life-Saving Care: Highlights from Hawaii Day Two | Page 1
The Hawaiian word “wiki wiki” meaning fast, and the global wiki culture embodies the urgent collaborative action needed for children with possible retinoblastoma, and survivors with second cancer risk. Timely diagnosis is the best cure, but referral delays are common worldwide. WE C Hope CEO Abby White explores common causes, how to avoid them, and speed up referral for optimal care.
https://wechope.org/wp-content/uploads/2023/08/Doctor-with-stethoscope-and-question-mark.jpg16672500Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2024-11-11 08:00:142024-11-23 16:52:20Wiki Wiki!: Accelerating Referral for Retinoblastoma and Second Cancers
The shores of Waikiki Beach welcomed 175 guests to the 7th One Rb World conference this month, and more online, as Honolulu played host to this incredible meeting of retinoblastoma patients, survivors, families and medical professionals. Marissa D. Gonzalez, President of World Eye Cancer Hope USA, and Conference Event Chair, reflects on the social gathering and Day One of the program in the first installment of this three-part conference review.
https://wechope.org/wp-content/uploads/2024/10/Survivorship-Panel-scaled.jpeg7672560Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2024-10-28 08:00:232024-11-23 03:12:01Hawaii Says “ALOHA” to the 7th One Rb World Conference and Global Retinoblastoma Community
Living and working with retinoblastoma and its far-reaching impacts can be immensely challenging for families, survivors, and professionals. Finding effective ways to manage the stress is vital for our physical and mental health. Margaret Fletcher, Mindfulness instructor at East Coast Mindfulness, and founding member of The Anticancer Lifestyle Program, shares valuable techniques to help reduce stress and promote well-being.
https://wechope.org/wp-content/uploads/2019/05/2.png12602240Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2024-10-14 08:00:122024-10-09 20:24:37Conquer Stress and Cultivate Calm with These Mindfulness Techniques
Evalynn, Gabriel, Abby and John all developed strabismus (squint or turned eye), one of the most common signs of retinoblastoma. This can also occur in healthy eyes or affect multiple family members without eye cancer. Sandra Staffieri, Retinoblastoma Care Co-ordinator at the Royal Children’s Hospital, Melbourne, explains, and answers the key question – when should parents and doctors be concerned?
https://wechope.org/wp-content/uploads/2024/09/Strabismus-Challenge.jpg6301050Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2024-09-30 08:00:432024-09-16 18:19:41The Life-Saving Power of a Squint: When to Investigate a Child’s Turned Eye
Familial retinoblastoma affects more than one person in a family, and individuals with a heritable RB1 gene mutation have increased cancer risk throughout life. Finding cancer early is vital for the best treatment and outcomes. Revisiting blogs from ocular oncologist Alison Skalet M.D. PhD, and WE C Hope CEO / Rb Survivor, Abby White, we explore screening for high-risk individuals at all stages of life.
https://wechope.org/wp-content/uploads/2024/03/Gold-Ribbon-Tree-Landscape-1.jpg10241792Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2024-09-16 08:00:542024-11-26 12:19:29Screening for Familial Retinoblastoma and Related Second Primary Cancers
Many parents and survivors report signs and symptoms of retinoblastoma and related second cancers to primary care providers. Prompt referral is vital for timely diagnosis and optimal treatment. WE C Hope CEO Abby White explores who needs referral and when, and the key elements of an effective referral process – for children with possible eye cancer, and survivors throughout life.
https://wechope.org/wp-content/uploads/2022/10/Compass-scaled.jpg15572560Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2024-09-02 08:00:532024-09-01 23:54:14Referral for Possible Retinoblastoma or Second Primary Cancer
When Retinoblastoma Care Co-ordinator Sandra Staffieri left Australia in August 2012 for a conference in Italy and a tour of Rb centres in North America, she had no idea how radically the journey would change her life and care at the Royal Children’s Hospital, Melbourne. Yet as she departed, One Rb World, the key destination on her trip, was not even on her itinerary. 12 years later, the impact of that trip continues…
https://wechope.org/wp-content/uploads/2018/02/Great-Adventures.jpg10801920Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2024-08-19 08:00:082024-09-02 00:08:11One Retinoblastoma World: A New Realm of Discovery
Primary care providers are pivotal in the timely diagnosis of retinoblastoma and related second cancers. They are usually the first contact for parents and survivors concerned about signs and symptoms. WE C Hope CEO Abby White explores their key role, the challenges they face in recognizing signs and securing a swift referral, and the need for education targeting primary care providers.
https://wechope.org/wp-content/uploads/2024/08/Fundal-Reflex-Exam-1.jpg15002500Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2024-08-05 08:00:462024-07-31 14:24:37Early Detection Saves Lives: Primary Care, Retinoblastoma, and Second Cancers
One Rb World 2024 Shines the Light on Life-Saving Care: Highlights from Hawaii Day Two | Page 2
Continuing our review of Day Two at the 7th One Rb World Conference in Honolulu, Hawaii, we explore critical life-saving advancements in global retinoblastoma care. Marissa D. Gonzalez, President of World Eye Cancer Hope USA, and Conference Event Chair, delves deeper into the research developments, technological breakthroughs, collaborations, joyful child life, and uplifting survivor stories shaping a brighter future for all.
One Rb World 2024 Shines the Light on Life-Saving Care: Highlights from Hawaii Day Two | Page 1
The 7th One Retinoblastoma World conference took place in Honolulu, Hawaii over three days in October 2024. Day Two brought perspectives from around the globe as our scientific programming took center stage. Marissa D. Gonzalez, President of World Eye Cancer Hope USA, and Conference Event Chair, shares highlights from discussions on life-saving care and technological advances in the second installment of this three-part conference review.
Wiki Wiki!: Accelerating Referral for Retinoblastoma and Second Cancers
The Hawaiian word “wiki wiki” meaning fast, and the global wiki culture embodies the urgent collaborative action needed for children with possible retinoblastoma, and survivors with second cancer risk. Timely diagnosis is the best cure, but referral delays are common worldwide. WE C Hope CEO Abby White explores common causes, how to avoid them, and speed up referral for optimal care.
Hawaii Says “ALOHA” to the 7th One Rb World Conference and Global Retinoblastoma Community
The shores of Waikiki Beach welcomed 175 guests to the 7th One Rb World conference this month, and more online, as Honolulu played host to this incredible meeting of retinoblastoma patients, survivors, families and medical professionals. Marissa D. Gonzalez, President of World Eye Cancer Hope USA, and Conference Event Chair, reflects on the social gathering and Day One of the program in the first installment of this three-part conference review.
Conquer Stress and Cultivate Calm with These Mindfulness Techniques
Living and working with retinoblastoma and its far-reaching impacts can be immensely challenging for families, survivors, and professionals. Finding effective ways to manage the stress is vital for our physical and mental health. Margaret Fletcher, Mindfulness instructor at East Coast Mindfulness, and founding member of The Anticancer Lifestyle Program, shares valuable techniques to help reduce stress and promote well-being.
The Life-Saving Power of a Squint: When to Investigate a Child’s Turned Eye
Evalynn, Gabriel, Abby and John all developed strabismus (squint or turned eye), one of the most common signs of retinoblastoma. This can also occur in healthy eyes or affect multiple family members without eye cancer. Sandra Staffieri, Retinoblastoma Care Co-ordinator at the Royal Children’s Hospital, Melbourne, explains, and answers the key question – when should parents and doctors be concerned?
Screening for Familial Retinoblastoma and Related Second Primary Cancers
Familial retinoblastoma affects more than one person in a family, and individuals with a heritable RB1 gene mutation have increased cancer risk throughout life. Finding cancer early is vital for the best treatment and outcomes. Revisiting blogs from ocular oncologist Alison Skalet M.D. PhD, and WE C Hope CEO / Rb Survivor, Abby White, we explore screening for high-risk individuals at all stages of life.
Referral for Possible Retinoblastoma or Second Primary Cancer
Many parents and survivors report signs and symptoms of retinoblastoma and related second cancers to primary care providers. Prompt referral is vital for timely diagnosis and optimal treatment. WE C Hope CEO Abby White explores who needs referral and when, and the key elements of an effective referral process – for children with possible eye cancer, and survivors throughout life.
One Retinoblastoma World: A New Realm of Discovery
When Retinoblastoma Care Co-ordinator Sandra Staffieri left Australia in August 2012 for a conference in Italy and a tour of Rb centres in North America, she had no idea how radically the journey would change her life and care at the Royal Children’s Hospital, Melbourne. Yet as she departed, One Rb World, the key destination on her trip, was not even on her itinerary. 12 years later, the impact of that trip continues…
Early Detection Saves Lives: Primary Care, Retinoblastoma, and Second Cancers
Primary care providers are pivotal in the timely diagnosis of retinoblastoma and related second cancers. They are usually the first contact for parents and survivors concerned about signs and symptoms. WE C Hope CEO Abby White explores their key role, the challenges they face in recognizing signs and securing a swift referral, and the need for education targeting primary care providers.