Thursday October 14 is World Sight Day, and this year’s global campaign is “Love Your Eyes”. The International Association for the Prevention of Blindness encourages us to prevent eye disease with a healthy lifestyle, protect our eyes with small daily actions, preserve vision with regular eye exams, and prioritize eye health. Bilateral Rb Survivor. Abby White, shares 10 ways you can love your eyes every day.
https://wechope.org/wp-content/uploads/2021/10/Closeup-of-boy-brown-eye.jpg12602140Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2021-10-11 03:35:032021-10-11 17:19:3010 Ways to Love Your Eyes
Young children are often overwhelmed by big emotions in the natural process of their development. When they face ongoing stressors like cancer or a pandemic, giving them support, tools and skills to learn about and work through their emotions is critical. Child life specialist Rebekah Reimer provides some practical guidance to help.
https://wechope.org/wp-content/uploads/2021/09/When-Sadness-is-at-Your-Door-Book-scaled.jpg19472560Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2021-09-27 10:14:332021-09-27 11:10:39How to Help Your Child Work Through BIG Emotions
As the 6th One Retinoblastoma World Conference fast approaches, this year’s organizers Sandra Staffieri and Marissa Gonzalez, together with Megan Webber, are excited to share an update. They give an overview of the program, highlighting some of the sessions and goals, and the need for global discussion and collaboration involving all stakeholders.
https://wechope.org/wp-content/uploads/2021/09/Register-Today.png6751200Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2021-09-13 10:00:492021-09-13 21:16:34Register Now for One Retinoblastoma World 2021 – Sharing Ideas, Opportunities and Friendship
When children may inherit retinoblastoma, deciding how to start a family awakens new feelings in survivors. Every possible option comes with complex questions and emotional costs, and survivors and their partners may experience feelings of isolation as they navigate their decisions. Rb survivor Ruth Greenslade shares her reasons for deciding to have children, and her personal perspective of factors to consider when conceiving with heritable Rb.
https://wechope.org/wp-content/uploads/2021/08/Family-Love-Silhouette.jpg15642400Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2021-08-30 10:05:172021-08-30 12:44:44Deciding to Conceive with Heritable Retinoblastoma
How would you access the information in an image if you can’t see it? How would you enjoy it and feel part of the community talking about it? Making images accessible to blind and partially sighted people is vital. Bilateral Rb Survivor. Abby White, explains what alt-text is, how to provide inclusive image description, and why this matters in our retinoblastoma community.
https://wechope.org/wp-content/uploads/2021/08/Bagpuss1.jpg17852380Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2021-08-16 10:37:122021-08-17 09:47:23Alt Text and Image Description: What It Is, How to Write It, and Why It Matters to Our Retinoblastoma Community
Join World Eye Cancer Hope and local organizers from Australia for the sixth One Retinoblastoma World Conference, taking place virtually from October 1 – 3, 2021. Marissa Gonzalez, WE C Hope USA President, and this year’s Hosting Chair, introduces the conference and what’s in store for this unique collaborative program uniting professionals, families and survivors.
https://wechope.org/wp-content/uploads/2021/08/One-Rb-World-2021-Hawaii-Fb-Cover-Register-Now.png8561640Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2021-08-02 10:34:312021-09-11 14:41:40Register Now for One Retinoblastoma World 2021 Virtual Conference!
Nearly all children with retinoblastoma have some degree of sight loss arising from the cancer and its treatment. Identifying outdoor activities they can fully engage with may be hard for families. Bilateral Rb Survivor, Abby White, shares 20 classic and creative activities that include blind and visually impaired children and help connect them with the natural world.
https://wechope.org/wp-content/uploads/2021/07/Smiling-Child-Yellow-Flowers-scaled.jpg17062560Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2021-07-19 10:09:222021-08-17 09:49:0420 Outdoor Activities for Blind and Visually Impaired Children
Hot weather and changing holiday routines – summer can be unsettling for babies and young children. Add retinoblastoma to the mix, and achieving good sleep at this time of year can be very hard for affected children and siblings. Morgan Livingstone CCLS explains how infant massage can help, offering specific practical ways to improve sleep during sultry summer months, whether or not a child is receiving cancer care.
For individuals living with the retinoblastoma cancer syndrome, childhood eye cancer is only the start of the story. Sharing personal experience and insight from fellow Rb survivors, Abby White explores key challenges encountered along the way, from working with doctors who do not understand the risk to psychological impacts, and the need for more effective care.
https://wechope.org/wp-content/uploads/2021/06/hallway3-scaled.jpg14402560Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2021-06-21 09:57:062021-06-21 11:32:03Living with the Retinoblastoma Cancer Syndrome Part 2: Risks, Impacts, Challenges and Opportunities
For individuals living with the retinoblastoma cancer syndrome, childhood eye cancer is only the start of the story. In the first of this two-part series, Rb survivor Abby White explores what the risk is and who it affects, the challenge of establishing personal risk, provision of lifelong follow up care, and early detection of second cancers. With contributions from fellow survivors.
https://wechope.org/wp-content/uploads/2021/06/IMG_1385-scaled.jpg15922560Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2021-06-07 10:12:482021-06-21 10:10:46Living with the Retinoblastoma Cancer Syndrome Part 1: Understanding the Risks and Lifelong Care
10 Ways to Love Your Eyes
/0 Comments/in Awareness, Hope, Medical Care, Resources, Support /by AbbyThursday October 14 is World Sight Day, and this year’s global campaign is “Love Your Eyes”. The International Association for the Prevention of Blindness encourages us to prevent eye disease with a healthy lifestyle, protect our eyes with small daily actions, preserve vision with regular eye exams, and prioritize eye health. Bilateral Rb Survivor. Abby White, shares 10 ways you can love your eyes every day.
How to Help Your Child Work Through BIG Emotions
/0 Comments/in Art For Eyes, Canada, Child Life, Hope, Living With Rb, Resources, Retinoblastoma, Support, Survivorship, WE C Hope /by AbbyYoung children are often overwhelmed by big emotions in the natural process of their development. When they face ongoing stressors like cancer or a pandemic, giving them support, tools and skills to learn about and work through their emotions is critical. Child life specialist Rebekah Reimer provides some practical guidance to help.
Register Now for One Retinoblastoma World 2021 – Sharing Ideas, Opportunities and Friendship
/0 Comments/in Awareness, Canada, Child Life, Genetics, Hope, Kenya, Living With Rb, Medical Care, One Rb World, Our Stories, Research, Resources, Retinoblastoma, Support, Survivorship, UK, USA, WE C Hope /by AbbyAs the 6th One Retinoblastoma World Conference fast approaches, this year’s organizers Sandra Staffieri and Marissa Gonzalez, together with Megan Webber, are excited to share an update. They give an overview of the program, highlighting some of the sessions and goals, and the need for global discussion and collaboration involving all stakeholders.
Deciding to Conceive with Heritable Retinoblastoma
/0 Comments/in Awareness, Genetics, Hope, Living With Rb, Medical Care, Our Stories, Resources, Retinoblastoma, Support, Survivorship /by AbbyWhen children may inherit retinoblastoma, deciding how to start a family awakens new feelings in survivors. Every possible option comes with complex questions and emotional costs, and survivors and their partners may experience feelings of isolation as they navigate their decisions. Rb survivor Ruth Greenslade shares her reasons for deciding to have children, and her personal perspective of factors to consider when conceiving with heritable Rb.
Alt Text and Image Description: What It Is, How to Write It, and Why It Matters to Our Retinoblastoma Community
/0 Comments/in Awareness, Hope, Living With Rb, Resources, Retinoblastoma, Support, Survivorship /by AbbyHow would you access the information in an image if you can’t see it? How would you enjoy it and feel part of the community talking about it? Making images accessible to blind and partially sighted people is vital. Bilateral Rb Survivor. Abby White, explains what alt-text is, how to provide inclusive image description, and why this matters in our retinoblastoma community.
Register Now for One Retinoblastoma World 2021 Virtual Conference!
/0 Comments/in Awareness, Canada, Child Life, Genetics, Hope, Kenya, Living With Rb, Medical Care, One Rb World, Our Stories, Research, Resources, Retinoblastoma, Support, Survivorship, USA, WE C Hope /by AbbyJoin World Eye Cancer Hope and local organizers from Australia for the sixth One Retinoblastoma World Conference, taking place virtually from October 1 – 3, 2021. Marissa Gonzalez, WE C Hope USA President, and this year’s Hosting Chair, introduces the conference and what’s in store for this unique collaborative program uniting professionals, families and survivors.
20 Outdoor Activities for Blind and Visually Impaired Children
/0 Comments/in Child Life, Hope, Living With Rb, Resources, Retinoblastoma, Support, Survivorship /by AbbyNearly all children with retinoblastoma have some degree of sight loss arising from the cancer and its treatment. Identifying outdoor activities they can fully engage with may be hard for families. Bilateral Rb Survivor, Abby White, shares 20 classic and creative activities that include blind and visually impaired children and help connect them with the natural world.
7 Infant Massage Tips for Improved Summer Sleep
/0 Comments/in Child Life, Hope, Living With Rb, Resources, Retinoblastoma, Support /by AbbyHot weather and changing holiday routines – summer can be unsettling for babies and young children. Add retinoblastoma to the mix, and achieving good sleep at this time of year can be very hard for affected children and siblings. Morgan Livingstone CCLS explains how infant massage can help, offering specific practical ways to improve sleep during sultry summer months, whether or not a child is receiving cancer care.
Living with the Retinoblastoma Cancer Syndrome Part 2: Risks, Impacts, Challenges and Opportunities
/0 Comments/in Awareness, Genetics, Hope, Living With Rb, Medical Care, Our Stories, Resources, Retinoblastoma, Support, Survivorship /by AbbyFor individuals living with the retinoblastoma cancer syndrome, childhood eye cancer is only the start of the story. Sharing personal experience and insight from fellow Rb survivors, Abby White explores key challenges encountered along the way, from working with doctors who do not understand the risk to psychological impacts, and the need for more effective care.
Living with the Retinoblastoma Cancer Syndrome Part 1: Understanding the Risks and Lifelong Care
/0 Comments/in Awareness, Genetics, Hope, Living With Rb, Medical Care, Our Stories, Resources, Retinoblastoma, Support, Survivorship /by AbbyFor individuals living with the retinoblastoma cancer syndrome, childhood eye cancer is only the start of the story. In the first of this two-part series, Rb survivor Abby White explores what the risk is and who it affects, the challenge of establishing personal risk, provision of lifelong follow up care, and early detection of second cancers. With contributions from fellow survivors.