Most children with retinoblastoma and survivors have some degree of sight loss, and many experience awkward healthcare encounters arising from their sight loss. Rb survivor and WE C Hope CEO, Abby White, shares survivor and parent tips for medical professionals caring for and working with people who are blind or vision impaired.
https://wechope.org/wp-content/uploads/2020/07/Group-Video-Capture2.jpg490885Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-09-27 22:44:232020-09-28 00:06:06How to Communicate with People Who are Blind or Vision Impaired - Part 1
Most children with retinoblastoma experience some degree of vision loss that requires accommodations and support to reach their potential in school. Four vision professionals, who have experience of retinoblastoma, review the supports children may need, and what parents can do to help secure them.
https://wechope.org/wp-content/uploads/2020/07/First-Day-at-Pre-School.jpg11151575Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-09-14 09:53:202020-09-14 09:53:20How to Support Learning For Children With Vision Loss
Parents of children with retinoblastoma ask how often their child’s eyes should be examined under anaesthetic, and if schedules vary depending on type of eye salvage treatment. Abby White, in collaboration with a specialist from one leading US treatment center, helps to answer these important questions.
https://wechope.org/wp-content/uploads/2020/07/IMG_2281.jpg6831024Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-08-31 20:58:312020-08-31 22:52:04EUA Frequency During and After Retinoblastoma Treatment
Our first virtual family event was a great success, with added sparkle from Kendra Scott jewelry. Please help us support more families by shopping at KendraScott.com on Sat 12 – Sun 13 September. They’ll donate to WE C Hope 20% of sales made using code GIVEBACK8400. Shine gold this September Childhood Cancer Month.
https://wechope.org/wp-content/uploads/2020/07/Marissa-Wearing-Kendra-Scott-Necklace.jpg600800Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-08-17 09:08:532020-08-17 10:39:49Give Back This September with Kendra Scott
When eye cancer is diagnosed early, it may be possible to save a child’s eye or even sight. But tumours and treatments themselves affect vision. Sandra Staffieri, orthoptist and Rb Care Co-ordinator at the Royal Children’s Hospital, Melbourne, reviews how different retinoblastoma therapies can impact the eye, and how parents can support their child.
https://wechope.org/wp-content/uploads/2020/07/Eye-Parch-and-Glasses.jpg828957Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-08-03 13:17:032020-08-03 13:20:24Retinoblastoma Treatment and Vision – The Double-Edged Sword
COVID-19 continues to impact life and medical care. WE C Hope CEO Abby White reviews the facts of COVID-19, how we can protect ourselves and others, COVID testing, retinoblastoma care during the pandemic, safe travel to medical care, and how to support ourselves and our children.
https://wechope.org/wp-content/uploads/2020/07/COVID-19.jpg12001800Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-08-01 01:09:152020-08-17 15:58:45Retinoblastoma Care During the COVID-19 Pandemic
Despite advances in eye saving therapy for retinoblastoma, removing a child’s eye remains the most common treatment worldwide. Rb survivor and WE C Hope CEO, Abby White, shares her perspective of life after enucleation, and experiences from seven fellow survivors, offering hope to parents facing the reality of enucleation.
When a child has retinoblastoma, removing the affected eye remains the most common treatment worldwide to save life. Support is vital throughout treatment and long after. Lori and Grace Padilla share the perspective of a parent and a young adult survivor, their thoughts on enucleation, and the benefits of in-person support groups.
https://wechope.org/wp-content/uploads/2020/07/Grace-and-Bailey-Cover.jpg620885Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-07-06 09:26:442020-07-06 09:46:36Enucleation, Life and Support: A Parent and Survivor Perspective
Caring for a child with retinoblastoma and healthy siblings is a complex journey for parents, from before diagnosis, through treatment, and beyond. Rb Mom and WE C Hope USA director, Lori Banos, shares 10 key messages parents have for health care professionals, fellow parents and the wider community.
https://wechope.org/wp-content/uploads/2020/06/Cover.jpg12002200Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-06-22 09:46:162020-07-28 19:34:3710 Things Parents Want You to Know About Retinoblastoma
Retinoblastoma is highly curable. But for many survivors, it has lifelong impacts. In 2019, our Alphabet of Hope shared survivor insights of #LifeBeyondRb. Rb Survivor and 2019 alphabet curator, Abby White, highlights 10 important messages from survivors about life beyond treatment and cure of childhood eye cancer.
https://wechope.org/wp-content/uploads/2020/06/Ffion-JST.jpg12241632Abbyhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby2020-06-08 08:38:002020-06-08 08:38:0010 Things Retinoblastoma Survivors Want You To Know
How to Communicate with People Who are Blind or Vision Impaired – Part 1
/0 Comments/in Hope, Living With Rb, Medical Care, One Rb World, Our Stories, Resources, Retinoblastoma, Support, Survivorship, WE C Hope /by AbbyMost children with retinoblastoma and survivors have some degree of sight loss, and many experience awkward healthcare encounters arising from their sight loss. Rb survivor and WE C Hope CEO, Abby White, shares survivor and parent tips for medical professionals caring for and working with people who are blind or vision impaired.
How to Support Learning For Children With Vision Loss
/0 Comments/in Child Life, Hope, Living With Rb, Medical Care, Resources, Retinoblastoma, Support, Survivorship, USA /by AbbyMost children with retinoblastoma experience some degree of vision loss that requires accommodations and support to reach their potential in school. Four vision professionals, who have experience of retinoblastoma, review the supports children may need, and what parents can do to help secure them.
EUA Frequency During and After Retinoblastoma Treatment
/0 Comments/in Child Life, Medical Care, One Rb World, Resources, Retinoblastoma, USA, WE C Hope /by AbbyParents of children with retinoblastoma ask how often their child’s eyes should be examined under anaesthetic, and if schedules vary depending on type of eye salvage treatment. Abby White, in collaboration with a specialist from one leading US treatment center, helps to answer these important questions.
Give Back This September with Kendra Scott
/0 Comments/in Art For Eyes, Child Life, Fundraising, Hope, One Rb World, Support, USA, WE C Hope /by AbbyOur first virtual family event was a great success, with added sparkle from Kendra Scott jewelry. Please help us support more families by shopping at KendraScott.com on Sat 12 – Sun 13 September. They’ll donate to WE C Hope 20% of sales made using code GIVEBACK8400. Shine gold this September Childhood Cancer Month.
Retinoblastoma Treatment and Vision – The Double-Edged Sword
/0 Comments/in Medical Care, One Rb World, Research, Resources, Retinoblastoma, WE C Hope /by AbbyWhen eye cancer is diagnosed early, it may be possible to save a child’s eye or even sight. But tumours and treatments themselves affect vision. Sandra Staffieri, orthoptist and Rb Care Co-ordinator at the Royal Children’s Hospital, Melbourne, reviews how different retinoblastoma therapies can impact the eye, and how parents can support their child.
Retinoblastoma Care During the COVID-19 Pandemic
/0 Comments/in Child Life, Hope, Living With Rb, Medical Care, Resources, Retinoblastoma, Support, Survivorship, WE C Hope /by AbbyCOVID-19 continues to impact life and medical care. WE C Hope CEO Abby White reviews the facts of COVID-19, how we can protect ourselves and others, COVID testing, retinoblastoma care during the pandemic, safe travel to medical care, and how to support ourselves and our children.
Life After Enucleation: 8 Retinoblastoma Survivors Share Hope
/0 Comments/in Hope, Living With Rb, Medical Care, One Rb World, Our Stories, Resources, Retinoblastoma, Support, Survivorship, UK, USA, WE C Hope /by AbbyDespite advances in eye saving therapy for retinoblastoma, removing a child’s eye remains the most common treatment worldwide. Rb survivor and WE C Hope CEO, Abby White, shares her perspective of life after enucleation, and experiences from seven fellow survivors, offering hope to parents facing the reality of enucleation.
Enucleation, Life and Support: A Parent and Survivor Perspective
/0 Comments/in Child Life, Genetics, Hope, Living With Rb, Medical Care, Our Stories, Retinoblastoma, Support, Survivorship, WE C Hope /by AbbyWhen a child has retinoblastoma, removing the affected eye remains the most common treatment worldwide to save life. Support is vital throughout treatment and long after. Lori and Grace Padilla share the perspective of a parent and a young adult survivor, their thoughts on enucleation, and the benefits of in-person support groups.
10 Things Parents Want You to Know About Retinoblastoma
/0 Comments/in Awareness, Child Life, Genetics, Hope, Living With Rb, Medical Care, One Rb World, Our Stories, Research, Retinoblastoma, Support, Survivorship, WE C Hope /by AbbyCaring for a child with retinoblastoma and healthy siblings is a complex journey for parents, from before diagnosis, through treatment, and beyond. Rb Mom and WE C Hope USA director, Lori Banos, shares 10 key messages parents have for health care professionals, fellow parents and the wider community.
10 Things Retinoblastoma Survivors Want You To Know
/0 Comments/in Child Life, Genetics, Hope, Living With Rb, Medical Care, One Rb World, Our Stories, Research, Retinoblastoma, Support, Survivorship, WE C Hope /by AbbyRetinoblastoma is highly curable. But for many survivors, it has lifelong impacts. In 2019, our Alphabet of Hope shared survivor insights of #LifeBeyondRb. Rb Survivor and 2019 alphabet curator, Abby White, highlights 10 important messages from survivors about life beyond treatment and cure of childhood eye cancer.