Retinoblastoma
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About WE C Hope
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Registered Charity #: 111-11-33
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501(c)(3) National Non Profit - EIN: 45-4886827
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Kenya Childhood Cancer Trust
Life as a Registered Mom
/0 Comments/in Awareness, Hope, Living With Rb, Medical Care, Our Stories, Retinoblastoma, Survivorship, USA, WE C Hope /by AbbyOn Saturday 12 May, International Nurses Day celebrates the incredible life-saving, life-changing work of nurses around the world. How does the role change when serious illness comes home?
Janine Patterson explains the complex job of a Registered Mom. She shares the uncommon experience, benefit and burden of working in the medical profession when your child is diagnosed with cancer, and important things she has learned along the way]
How DNA and Genetic Knowledge Changes Lives: the impact of genetic testing for five families affected by retinoblastoma
/0 Comments/in Awareness, Genetics, Hope, Living With Rb, Medical Care, Our Stories, Research, Resources, Retinoblastoma, Survivorship, WE C Hope /by AbbyRetinoblastoma survivor and WE C Hope co-founder / CEO, Abby White, considers the central importance of DNA and genetic knowledge in caring for the child and family. She introduces us to Alice, Jamie, Megan, Rachel, Peter and their families, to find out how genetic testing can influence treatment, screening and lifelong care.
Make Space for Grief: Honour the place you are in
/0 Comments/in Awareness, Hope, Living With Rb, Medical Care, Our Stories, Retinoblastoma, Support, Survivorship, WE C Hope /by AbbyLinda Conyard MGestT explores the grief that can arise from retinoblastoma diagnosis, treatment, eye removal surgery, loss of innocence, and mutilated family life. She considers the potential harm of suppressing this grief, and offers both families/survivors and medical professionals ways to prevent prolonged suffering.
Happy Doctors Day – Celebrating physician collaborations that change lives.
/0 Comments/in Awareness, Hope, Living With Rb, Medical Care, One Rb World, Our Stories, Retinoblastoma, Support, Survivorship, USA, WE C Hope /by AbbySince the 1930s, Doctors Day (March 30) has recognized the contributions of physicians to the individual lives and communities they serve. Retinoblastoma survivor and WE C Hope USA President, Marissa Gonzalez, shares her experience of collaborating with doctors and medical staff to treat, cure and recover from cancer.
The Informed Parent – 6 Tips for Staying Up to Date in a Social Media World
/in Awareness, Hope, Living With Rb, Medical Care, One Rb World, Resources, Retinoblastoma, Support, USA, WE C Hope /by Kristen SmallGoogle and social media play an increasingly significant role in the lives of families affected by retinoblastoma, but without careful use, they can complicate a child’s medical care and even put life at risk. Dr. Jesse Berry shares her recommendations for being a safely informed parent advocate in the modern hyper-connected age.
DePICT the Cancer Care Journey, Overcome Rarity Through Collaborative Research
/in Canada, Child Life, Genetics, Hope, Medical Care, One Rb World, Research, Retinoblastoma, Survivorship, WE C Hope /by AbbyBrenda Gallie, global leader in retinoblastoma clinical care, research and innovation, discusses an exciting technology promising to improve care during treatment and beyond. DePICTRB supports collaboration among the child’s entire circle of care, gives parents open access to their child’s record, and empowers clinical research.
One Retinoblastoma World, A New Realm of Discovery
/in Awareness, Hope, Living With Rb, Medical Care, One Rb World, Research, Retinoblastoma, Support, WE C Hope /by AbbyWhen Sandra Staffieri left Australia in August 2012 for a conference in Italy and a tour of retinoblastoma centres in North America, she had no idea how radically the journey would change her life and care at the Royal Children’s Hospital, Melbourne. Yet as she departed, the key destination was not even on her itinerary…
Life Through Sam’s Eyes – How Our Blind Son Helped Us See
/in Awareness, Hope, Living With Rb, Our Stories, Retinoblastoma, Survivorship /by AbbyWhat does it mean to be told your 12 week old baby has a rare eye cancer? Jim Valavanis shares his experience of first-time parenting, nearly five years of childhood cancer treatment, and Life Through Sam’s Eyes – the hope-filled book that emerged from his healing journey.
12 Ways to be Happier in the New Year
/0 Comments/in Child Life, Hope, Living With Rb, Resources, Support, WE C Hope /by AbbyNew beginnings, hopes, dreams, possibilities, resolutions. January is an ideal time to explore how we can make our daily lives happier. Our volunteer CEO, Abby White, shares New Year greetings, tips for a happier 2018, and a personal message of change as the New Year begins.
Season’s Greetings from WE C Hope
/0 Comments/in Child Life, Hope, Living With Rb, Resources, Support, WE C Hope /by AbbySeason’s Greetings. Bright lights adorn trees, festive music cheers the soul, and gifts the world over bring joy to those we love. This is a special time for celebration and reflection, for coming together as a community, and sharing hope. Especially when a child has cancer…