REGISTER NOW for the following events!
One Retinoblastoma World 2026
Date: Saturday September 12 – Monday September 14, 2026.
Location: San Antonio, Texas, USA.
The 8th One Rb World conference welcomes retinoblastoma patients, survivors, family members, medical professionals, and scientists to share three full days of programming, community and collaboration in the Lone Star State.
As well as valuable presentations and panel discussions, join us in-person for discussions, networking, and social activities at this unique global Rb event. There will be a full program of child life activities for Rb patients, young survivors, their siblings, and the children of survivors and speakers.
One Rb World 2026 will take place before the 58th International Society of Paediatric Oncology (SIOP) World Congress, which will be held in San Antonio on September 15-18, 2026.
We recognize our 2026 conference falls during Rosh Hashanah, and we apologize for any conflicts this may create. We hope many in our community will still be able to participate, and we remain committed to making the conference as accessible and inclusive as possible
Canadian Retinoblastoma Research Symposium
Date: Saturday April 18 – Sunday April 19, 2026.
Location: Toronto and Vancouver, Canada.
Registration for the 2026 Retinoblastoma (RB) Research Symposium is open!
This hybrid event will bring together patients, survivors, families, health professionals and researchers to learn, share, connect and help shape the future of RB research. The symposium is hosted by the Canadian Retinoblastoma Research Advisory Board.
You will have the option to attend in-person in Toronto (at the Peter Gilgan Centre for Research and Learning), Vancouver (at BC Children’s Hospital), or virtually.
SAVE THE DATE for the following events!
One Retinoblastoma World 2027
Date: Saturday 4 – Monday 6 September, 2027.
Location: Sydney, Australia.
The 9th One Rb World Conference will take place before the 59th International Society of Paediatric Oncology (SIOP) World Congress, which will be held in Sydney, Australia, 8-11 September 2027.
Save the date for another fabulous opportunity to connect, collaborate, and build community with families, survivors, Rb professionals, and scientists from around the world.
More details to come!
Find out more about the One Rb World conference.
Support Rb Family Events
This event is supported by generous contributions from families, foundations and sponsors. If you would like to help fund this Family Day, other retinoblastoma family events, or One Rb World Family Day, please consider making a tax-deductible financial contribution to WE C Hope USA.
The Espinosa family have been attending Southern California Family Day since its inception in 2018, with their Rb survivor, Angel. In 2023, they surrounded our entire Rb community with support, and supplied us all with the best fried chicken in town.
During our 2024 Denver Family Weekend, current patients, survivors, family members, and WE C Hope USA hosts had an awesome adventure at the Wings Over the Rockies Air and Space Museum.
Our Recent Events
Our most recent family events are documented on our blog – see the Recent Events below for more details.
October Sibling Support Webinar
Date: Tuesday, October 14, 2025
Time: 4 pm PDT / 7 pm EDT
WE C Hope Canada Board Member and Certified Child Life Specialist (CCLS), Morgan Livingstone, Resource Navigator at the Alex’s Lemonade Stand Foundation and CCLS, Amanda Van Wagner, and WE C Hope USA Board Member and Rb mom, Elana Kirby, held a powerful, sibling-focused webinar.
They explored how the siblings of Rb patients are impacted by diagnosis and offer practical ways to support their emotional wellbeing.
7th Southern California Rb Family Day
Date: Saturday, September 27, 2025
Time: 1:30 – 4:30 pm
Location: Children’s Hospital Los Angeles (CHLA), 4650 W Sunset Blvd., Los Angeles, CA 90027
“Read-Aloud for a Cause” Instagram Giveaway!
In September 2025, we celebrated diversity and representation for Childhood Cancer Awareness Month (CCAM) with KnowTheGlow, and author Paty Montesinos! Our “Read-Aloud for a Cause” Instagram Giveaway highlighted the marvelous magic of inclusive literature! In Paty’s two bilingual English and Spanish children’s books, I Love My Magical Eye Patch! and The Pirate and his Magical Eye Patch, children are encouraged to embrace wearing an eye patch and be mindful and positive about their differences.
Eye patches have a healing role in the care of retinoblastoma and other eye conditions. Kids may wear them after treatment to strengthen a weaker eye, between enucleation surgery and receiving a prosthetic eye, or when a prosthetic can’t be worn due to infection, cost, or availability. Paty’s Magical Eye Patch books help children feel confident, celebrated, and seen through these tough moments.
People Participated By:
- Recording a 10–30 second video sharing why representation in children’s books matters to them.
- Posting as a public post on Instagram between Sept 2 and Sept 26, 2025 at 11:59 pm PDT.
- Tagging: @worldeyecancerhope, @know_the_glow, and @paty.millan.montesinos_author
- Using the hashtags #MagicalEyePatch & #ChildhoodCancerAwarenessMonth in your caption
- Following all 3 accounts
Two winners received: a signed set of Paty’s books and a swag bundle from WE C Hope and KnowTheGlow.
First Northern California Rb Family Day
Date: Saturday, May 3, 2025
Time: 11:30 am to 2:30 pm
Location: San Francisco’s LightHouse for the Blind and Visually Impaired, 1155 Market Street, 10th Floor, San Francisco, California 94103
Event Description
On May 3rd, we hosted our first Northern California Family Day at the San Francisco Lighthouse for the Blind – and what a joyful gathering it was! Forty patients, survivors, and family members came together from across central and northern California to celebrate the power of community. Heartfelt connections, shared stories, and laughter filled the day as children played, parents bonded, and new friendships bloomed.
Read more from our blog: Our Retinoblastoma Community Shines in the Golden City
One Retinoblastoma World 2024
Date: Tuesday 15 – Thursday 17 October, 2024.
Location: Honolulu, Hawaii, USA.
Event: 175 patients, survivors, their family members, medical professionals and scientists gathered in Hawaii for the 7th global meeting, with many more joining online. We shared three fabulous days of community, conversation, and collaboration, advancing patient-centred Rb care and research together. The program included presentations, panel discussion, relaxed networking, and child life activities for all ages.
Read more on our blog in our 3-part review: Hawaii Says “ALOHA” to the 7th One Rb World Conference and Global Retinoblastoma Community
Find out more about the One Rb World conference.
2024 Denver Retinoblastoma Family Weekend
Date: Friday 16 – Sunday 18 February, 2024
Location: Hilton Garden Inn at Cherry Creek – all activities and meals will originate at the hotel.
Event: 50 young patients, survivors of all ages, and their families from the Rockies and beyond joined WE C Hope USA for a fun-filled weekend in the Mile High City! The event included a relaxed Friday social at our hotel, a soaring adventure at Wings Over the Rockies Air and Space Museum, a joyful evening Rockin’ the Rockies at Swallow Hill Music, and a walk on the wild side behind the scenes at Denver Zoo.
Read more from our blog: Mile High Moments at the Denver Retinoblastoma Family Weekend
2023 California Retinoblastoma Family Day
Date: Saturday November 4, 2023
Time: 11.30am – 2.30pm
Location: Little Cottonwood Park, Los Alamitos, California.
Event: 95 parents, survivors of all ages, patients still in treatment, their siblings and other relatives and supporters gathered together for another brilliant picnic party full of fun, friendship, and support. Look out for our blog report of the event, coming up in early December.
Read more from our blog: Fun in the So Cal Sun: 6th Annual Southern California Retinoblastoma Family Day
Mid-Atlantic Retinoblastoma Family Weekend
Date: Friday 10 – Sunday 12 March, 2023
Time: 4pm, Friday – 2pm, Sunday.
Location: Crystal City Marriott at Reagan National Airport, Arlington, Virginia.
Event: Three days of fun, friendship, support, and relaxation for children affected by retinoblastoma, survivors, and their families. .
Read more from our blog (this is a 2-part post): Retinoblastoma in D.C.: A Capital Weekend of Friendship, Community and Fun
Texas Retinoblastoma Family Weekend
Date: Friday 2 – Sunday 4 December, 2022
Time: 4pm, Friday – 2pm, Sunday.
Location: La Quinta Inn and Suites near The Domain, Austin, Texas.
Event: Three days of fun, friendship, support, and relaxation for children affected by retinoblastoma, survivors, and their families.
Read more from our blog: Laughter, Life Lessons and Love Take Root at the Texas Rb Family Weekend
2022 California Retinoblastoma Family Day
Date: Saturday November 5, 2022
Time: 11.30am – 2.30pm
Location: Little Cottonwood Park, Los Alamitos, California.
Event: 80 children, adult survivors, parents, and their relatives and supporters enjoyed a day of fun, friendship, support, and relaxation in glorious fall sunshine. We reserved a shaded picnic area in a lovely family-friendly park, with plenty of play opportunities for all ages. Kids loved the Disney-themed Moon Bounce, and the giant Jenga and Connect 4 games were popular with everyone. There was plenty of time to mingle chat over delicious picnic lunch and happy play.
Read more from our blog: Sun and Smiles Shine at the 5th Annual Southern California Retinoblastoma Family Day
Back to School Virtual Q&A Event
Date: Wednesday September 7, 2022
Time: 6pm – 8pm CDT
Location: Zoom Virtual Event
Event: The new school year is approaching! Whether your child with #retinoblastoma is newborn, just starting pre-school, or graduating from college, our free Back to School Zoom event is the perfect place to ask questions and share experiences about their education.
We will be joined by experts in teaching visually impaired children, and there will be plenty of time to share your own experiences.
While anyone is welcome to join us, the focus will be on the US school system.
Midwest Retinoblastoma Family Weekend
Date: Friday 8 – Sunday 10 July, 2022
Time: 4pm, Friday – Noon, Sunday.
Location: Holiday Inn Chicago Schaumburg.
Event: Three days of fun, friendship, support, and relaxation for children affected by retinoblastoma, survivors, and their families.
- We enjoyed mingling and getitng to know one another over a relaxed dinner of Chicago-style deep pan pizza.
- Adults and children alike took a walk on the wild side with hands-on animal experiences at the Brookfield Zoo.
- We proudly wore our crowns, and banqueted with knights and princesses at the Medieval Times.
- We shared experiences of living with prosthetic eyes and treatment side effects, and how to help kids with visual impairment thrive in school from their earliest days.
Read from our blog: Midwest Retinoblastoma Family Weekend: Friendships Formed in the Windy City
One Retinoblastoma World 2021 and 2020
Due to the global COVID-19 pandemic, the 5th and 6th One Rb World events were held virtually, with a diverse roster of speakers and topics addressed at both meetings.
Read more about One Rb World 2021, and watch session videsos.
Read more about One Rb World 2020, and watch session videsos.
