Welcome to our Retinoblastoma Resource.
You may be trying to process the shock of your child’s diagnosis while learning about the planned treatment. Perhaps you are still adjusting to life as a new first-time parent, as well as coping with your child’s treatment.
Maybe your child has finished treatment, or you were treated yourself as a child. Possibly you are a concerned friend, or a clinician looking for resources to help you care for a child.
Whatever your circumstances or experience, we hope the Resource will be helpful and encouraging. We created this section of our website to supplement the information doctors provide, answer questions and concerns, increase understanding and share hope. Bookmark pages and visit whenever you need to.
The content of this Resource is written, reviewed and edited by professionals experienced in the care of children with retinoblastoma and / or the conduct of retinoblastoma research. This content is intended for information purposes only and should not be used as the sole guide to diagnosis or treatment of retinoblastoma. Always discuss any health concerns you may have about your child or yourself with the primary care doctor or appropriate medical professional familiar with the individual case.
A simple overview of childhood eye cancer.
Know the Glow – White Eye (leukocoria)
Describes this common early sign, answers your FAQ and offers practical “next steps” advice.
Explains all aspects of the treatment process to help you navigate the difficult road ahead.
Practical advice to help you support your child with cancer and other children through this experience.
Practical advice to help you live well, emotionally and physically, despite retinoblastoma.
Guidance for relatives and friends to help you give encouragement and practical support to families battling childhood cancer.
Inspiring stories from children, parents and survivors around the world whose lives have been touched by retinoblastoma.
Links to organizations around the world providing support or other activities to improve the welfare of individuals and families affected by childhood cancer. Resources are grouped by theme, and include Rb communities on social media, emotional support financial support, transport and hospital housing providers, wish granters, camps and retreats, disability, bereavement and survivorship resources.