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You are here: Home1 / Retinoblastoma Resource2 / Child Life3 / Psychological Support4 / Camp Sunshine Rb Week
A child life specialist uses a toy cat with removable eye to help a young girl receiving chemotherapy cope with eye removal and artificial eyes.

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Retinoblastoma Week at Camp Sunshine

Located in Maine, USA, Camp Sunshine offers therapeutic breaks to families affected by childhood cancer.

Week-long events focus on specific conditions, enabling families with shared experiences to meet and celebrate life.

Retinoblastoma Week was initiated in 2007, guided into existence by the commitment of Colleen Crowley, founder of Retinoblastoma of Arizona. This has become an annual weeklong activity program for the entire family affected by childhood eye cancer.

Children enjoy lake activities at Camp Sunshine

Help Us Send More Families to Rb Week

WE C Hope is delighted to have sponsored families to attend Camp Sunshine Rb Week. With your support, we aim to increase our financial support for Rb Week, and the wonderful therapeutic support it offers to the entire family. Each family sponsorship costs $2,500, including all accommodation in private family suites on the beautiful campus, meals, activities, and transport from/to Portland.

There are several ways you can support our campaign.


Create a Fundraiser

Visit our online Fundraising hub create your own fundraiser for Rb Week.  Be sure to select Camp Sunshine Rb Week as your designation.

Regular Donation

Donate via our regular giving partner, Mighty Cause, and be sure to select Camp Sunshine Rb Week as your designation.

Thank you very much!  Please read on to learn more about Camp Sunshine!

The Healing Therapy of Camp Sunshine

Camp Activities

Camp Sunshine focuses on taking care of the whole family.  The week is filled with fun activities for children AND parents.

Children enjoy arts & crafts, lake activities, swimming, games and much more.  Activities are provided in designated age groups, supported by superb volunteer camp counsellors. Even tiny babies have a special activity program, including daily stroller walks, baby gym and music time.

Parents also form groups, each competing for the camp trophy. Participating in laughter-filled activities during the week wins team points – the team with most points winning the trophy.

Every day, parents meet together with great facilitators to share and discuss the Rb journey.. There is plenty of opportunity for fun and physical activity as well, including a climbing wall, high ropes course, walking trails, swimming and lake activities.

Accommodation is en suite two bedroom cabins on the delightful lakeside campus. The main activity buildings are beautifully decorated, and walking to the beach across Wish Pond Bridge feels like stepping into a new land.

Meals are taken in the lively dining room. Evenings are busy with campfire activities, a costume party, talent show and camp celebration. Midweek, children have their own evening events, while parents enjoy a special meal and entertainment.

During the week, children make special candle-holder wish boats. On the last full day, families gather at the wish pond for their grand launch. This is a magical and moving time as gentle flames reflect on the water in the fading light.

A Therapeutic Experience

Many families find this week to be a life changing experience.  Parents often meet other Rb parents in a social setting for the first time, and life-long friendships are quickly rooted.

Children relish the experience of meeting and playing with other children “just like me”. The experience helps retinoblastoma survivors come to terms with low vision, blindness and living with a special eye. Siblings quickly form deep friendships with others who have struggled to be identified as individuals, rather than the sibling of a child with cancer.

The journey to Maine is long for many families. However, parents, siblings and diagnosed children all describe it as “like coming home” because of the opportunity to spend time with others who truly understand their experience of retinoblastoma.

Free of Charge

There is no cost to families, except transport to the campus or to Portland Jetport. All meals, activities and lodging are provided free of charge.

Retinoblastoma Week is open to families outside the USA. The only requirement to attend is having a child affected by retinoblastoma. Boston is a 3hr drive. Flying into Portland ME Jetport through a connecting hub is best. Free pick-up can be arranged by camp staff from the jetport.

Camp Sunshine in a Mother’s Words

This is much more than a week at summer camp.  It is time for a family to forget about the everyday worries and enjoy each other.  It is a week of being “normal,” surrounded by families just like us who’ve experienced the challenges we’ve been through, who understand our concerns and fears for the future. 

It is fun opportunities and laughter-filled days.   Most notably, it gives our “baby” the rare occasion to meet other children with Rb and with prosthetic eyes. It gives her the sense of truly belonging, understanding that for just this week, she really is just like everyone else, and she is not alone in her struggles.

Find Out More and Join Camp Sunshine Rb Week

Reflections of Camp Sunshine by Rb Moms

In our July 2019 blog, five mothers reflect on the healing power of Camp Sunshine for the diagnosed child and their entire family when retinoblastoma strikes.


Find out more about Camp Sunshine and uture programs, and download an application pack.

Help Us Send More Families to Rb Week

WE C Hope is delighted to have sponsored families to attend Camp Sunshine Rb Week. With your support, we aim to increase our financial support for Rb Week, and the wonderful therapeutic support it offers to the entire family. Each family sponsorship costs $2,500, including all accommodation in private family suites on the beautiful campus, meals, activities, and transport from/to Portland.

There are several ways you can support our campaign.


Create a Fundraiser

Visit our online Fundraising hub create your own fundraiser for Rb Week.  Be sure to select Camp Sunshine Rb Week as your designation.

Create a Fundraiser

Regular Donation

Donate via our regular giving partner, Mighty Cause, and be sure to select Camp Sunshine Rb Week as your designation.
Donate Now (IMPORTANT: please select CAMP SUNSHINE as your designation)

Please give generously – thank you so much for your support!

Give life and sight to a child with eye cancer today

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  • Retinoblastoma Overview
    • How the Eye Works
    • Retinoblastoma Biology
    • Unilateral Retinoblastoma
    • Bilateral Retinoblastoma
    • Extraocular Retinoblastoma
    • Trilateral Retinoblastoma
    • Genetics of Retinoblastoma
    • Global Incidence
    • Signs and Symptoms
    • Referral and Diagnosis
    • Treatments
    • Care After Treatment
    • Prognosis
    • Retinoblastoma Glossary
  • Know the Glow
    • Fundal (Red Eye) Reflex and Red-Eye Reduction
    • White Eye Reflex
    • Photo Challenge
    • White Eye and Rb
    • White Eye after Rb Diagnosis
    • White Eye and Adults
    • PhotoRED Technique
    • Next Steps
    • Examining the Fundal / Red Reflex
  • Medical Care
    • Questions to Ask the Medical Team and Yourself
    • Diagnosis and Staging
      • Staging Systems
      • Multidisciplinary Team and Tumour Board
      • Treatment Plan and Care Pathway
      • Hospital Packing Tips
    • Retinoblastoma Genetics
      • Rb Genetics Explained
      • Mosaic Mutations
      • MYCNA Retinoblastoma
      • Genetic Counseling
      • Genetic Testing
      • Genetic Test Results
      • Pre-implantation Genetic Diagnosis (PGD)
      • Genetics Glossary
    • A Therapeutic Alliance
      • Your Child’s Doctors
      • Good Communication
      • Resolving Conflict
      • Second Opinions
      • Changing Doctors
      • Medical Staff
    • Medical Procedures
      • Informed Consent
      • Procedure Pain
      • Blood Draw
      • Bone Marrow Aspiration
      • Bone Scan
      • Chest X-ray
      • CT Scan
      • Echocardiogram
      • EUA
      • Eye Pressure Test
      • General Anaesthetic
      • Hearing Tests
      • Inserting an IV
      • Intrathecal Injection
      • Lumbar Puncture
      • MRI Scan
      • Radionuclide GFR
      • Subcutaneous Injection
      • Taking a Temperature
      • Transfusion
      • Ultrasound of the Eye
      • Vision Testing
      • Vision Testing – Support Your Child
      • Vision Testing – Just For Kids!
    • Treatment
      • Risk of Under-Treatment and Over-Treatment
        • Reduce Risk of Under-Treatment and Over-Treatment
      • Treatment Decision Making Guide
        • Step 1 – Acknowledge Your Thoughts and Feelings
        • Step 2 – Understand Your Decision-Making Style
        • Step 3 – Find Your Expert Team
        • Step 4 – Understand Shared Decision Making and Informed Consent
        • Step 5 – Set an Intention to Make Balanced Decisions
        • Step 6 – Learn About Retinoblastoma
        • Step 7 – Evaluate Your Options
        • Step 8 – Consider Your Values and Goals
        • Step 9 – Manage Disagreement and Conflict
        • Step 10 – Make Your Decision
        • Step 11 – Review Your Decision
        • Step 12 – Support Your Child and Yourself
        • Review the 12 Decision Making Steps
      • Enucleation
        • Making the Decision
        • Eye Removal Surgery
        • Orbital Implants
        • Types of Orbital Implant
        • Side Effects
        • Pathology
        • After Surgery
        • Coping with Other People
        • Artificial Eyes
        • Artificial Eye Care
      • Focal Therapy
        • Laser
        • Cryotherapy
        • Periocular Chemotherapy
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      • Chemotherapy
        • Chemotherapy for Rb
        • Intra-Arterial Chemotherapy
        • Regimens and Protocols
        • During Treatment
        • Central Venous Catheter
        • CVC Care and Risks
        • Blood Test Results
        • When to Call the Doctor
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        • Radioactive Plaque
        • Coping With Isolation
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        • Treatment Process
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        • Ask the Doctor
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        • Low Blood Counts
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        • Pets and Infection Risk
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        • Skin and Nails
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        • When to Call the Doctor
      • Occlusion Therapy (Eye Patching)
        • Introduction to Eye Patching
        • Preparing to Patch
        • Support Your Patching Child
        • Eye Patching – Just For Kids!
    • Clinical Research
      • Clinical Research Introduction
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      • Protocol Document
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      • Rb Clinical Research
      • Informed Consent
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      • Ethnography Research
      • Patient-Led Research – A New Approach
      • Patient-Led Research – Challenges and Development
    • Surviving Hospital
      • Advocate for Your Child
      • Packing for Hospital
      • Hospital Life
      • Your Child’s Space
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      • Recreation
    • International Care
      • Contacting Doctors
      • Finances and Fundraising
      • Travel and Housing
      • Questions to Ask
    • End of Treatment
      • Celebration
      • Follow Up Care
      • Follow Up Schedule
      • Life-Long Follow Up
      • Removing the Central Line
      • A New Normal
      • Relapse
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      • Symptoms of Second Primary Cancers
      • Ask the Doctors
    • End of Life Care
      • Changing Treatment Goals
      • Palliative Care
  • Child Life
    • Child Life is More Than Play
      • The Art of Child Life
    • Procedure Support
      • Stay Calm
      • Make a Plan
      • Medical Play
      • Distraction Play
      • Comfort Positions
      • Giving Eye Drops
      • Support for Needle Procedures
      • Anaesthetic Induction
      • Preparing for Surgery
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      • Imaging Scans
      • HandWashing for Kids
      • Reduce Face Touching
    • Pain Management
      • Know the Signs of Pain
      • Manage Pain
      • Mind-Body Strategies
    • Living With a Special Eye
      • Before Enucleation
      • Going to the Ocularist
      • Making an Artificial Eye
      • Handling the Special Eye
      • Keeping the Eye in Place
      • The Young Child Living With a Special Eye
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      • When There Is No Eye
    • Psychological Support
      • Reduce Your Stress
      • Infant Massage Training
      • Talking With Kids About Vision Loss
      • Talking About Vision Loss – For Kids!
      • Support and Encourage
      • Coping With Difference
      • Worry Eaters Guide
      • Personal Story Books
      • Youth Retinoblastoma Support at Upopolis
      • Camp Sunshine Rb Week
      • Activities for Isolating With Children
      • Post-Traumatic Stress Disorder in Childhood Cancer
  • Living With Retinoblastoma
    • Children
      • Children Learn From You
      • Sibling Responses
      • Support Siblings
      • Communicate
      • Reduce Stress
      • Tantrums
      • Discipline
    • Parents
      • Emotional Responses
      • Manage Anger
      • Depression and PTSD
      • Look After Yourself
      • Relationships
      • Sharing the News
      • Update People
      • Seek and Accept Help
    • Grandparents
      • Genetic Implications
      • How You Can Help
      • Look After Yourself
    • School Life
      • Effects of Treatment
      • Preparing For School
      • School Activities
      • Artificial Eye Care
      • Infection Control
      • Older Children
      • Advice for Teachers
    • Eye Care
      • Prevent Eye Injury
      • First Aid for the Eyes
      • Nutrition for the Eyes
    • Bereavement
      • End Of Life Care
      • Before the Funeral
      • Acts of Remembrance
      • Parental Grief
      • Sibling Grief
      • Carrying the Torch
    • Focus on Hope
      • False Hope
      • Encourage Hope
      • The First Alphabet of Hope
      • Alphabet of Hope 2018
      • Alphabet of Hope 2019 – #LifeBeyondRb
      • Alphabet of Hope 2020 – #FamilyInSight
      • Alphabet of Hope 2021 – #MindAndBody
      • Alphabet of Hope 2022 – #RbCare
      • Alphabet of Hope 2023 – #RbResearch
      • Alphabet of Hope 2024 – #RbEarlyDiagnosis
      • Alphabet of Hope 2025-2026 – #RbChildLife
  • Family and Friends
    • Practical Support
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    • Giving Gifts
    • Help From Young Friends
    • Words That Help
    • Words That Harm
    • Help During the Holidays
  • Through Our Eyes
    • RAE of Hope
    • Unilateral Rb
      • John (Kenya)
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      • Connor (Canada)
      • Ewan (England)
      • Rowan (USA)
      • Bisrat S (Ethiopia)
      • Alexa (Ireland)
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      • Lele (China)
      • Katelyn (USA)
      • Jordan (USA)
      • Danielle (Canada)
      • Bright (Cameroon)
    • Bilateral Rb
      • Daisy (UK)
      • Aidan (Canada)
      • Libby and Ella (USA)
      • Angie, Kieran and Cameron (UK)
      • Bisrat E (Ethiopia)
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      • Brady (USA)
      • Sera (Fiji)
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      • Hope (South Africa)
      • Ross Richard (USA)
      • Bella (Philippines)
      • Peter (Kenya)
      • Jaymee (Australia)
      • Ella Nina (Burundi)
      • Ernest (Kenya)
    • Extraocular Rb
      • Rati (Botswana)
      • Ross Richard (USA)
      • Bella (Philippines)
      • Sera (Fiji)
      • Ella Nina (Burundi)
      • Ernest (Kenya)
      • Bright (Cameroon)
    • Trilateral Rb
      • Libby and Ella (USA)
  • Other Organizations
    • Rb Communities on Social Media
    • Retinoblastoma Organizations
    • Childhood Cancer
    • General Cancer Support
    • Emotional Support
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    • Transport Providers
    • Hospital Housing
    • Support for Children
    • Support for Siblings
    • Support for Survivors
    • Cancer Camps
    • Wish Granting
    • Disability Support
    • Bereavement Support
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