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Inspired by

Daisy and Rati

Welcome to World Eye Cancer Hope

Retinoblastoma is an aggressive eye cancer affecting babies and young children. It kills over 7,000 youngsters each year, and blinds many more.

The most common early sign of childhood eye cancer is a white glow in the pupil of the affected eye. The cancer is easy to diagnose and when found early, treatment is very effective.

Suffering and death is highest in developing countries, where most affected children live and timely access to specialist cancer care is limited. In developed countries, survival is above 96%, but most children experience moderate to severe vision loss or complete blindness. Globally, children, families and survivors experience significant emotional trauma.

Inspired by
Daisy & Rati

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In Your Country

WE C Hope for all children with eye cancer, their families and survivors.

Increasing access to specialist care will bring the promise of life and sight to every child, and improved life-long health to survivors. This is our mission. We:

Educate the public and medical community about retinoblastoma to achieve early diagnosis and rapid referral to specialist care

Empower medical teams to deliver sustainable high quality evidence-based care for affected children and adult survivors.

Enable family support programs that reduce practical and emotional burdens and improve access to essential care

Support Kids During Needle Related Procedures

Kenyan Child Life Specialist, Jayne Kamau, distracts a child with a meteor shower toy during a needle procedure.

Only 5% of children have support for immunization needle pain. Seriously ill children experience many needle related procedures, rarely with adequate pain support. But pain and distress can be managed and reduced.

Visit our guide to find appropriate supports for children of all ages. Parents, ask how to manage your child’s pain. Healthcare providers, please give parents options. Learn how to make needles easier and safer for everyone.

One Retinoblastoma World: We Are Stronger Together

Join us on October 3-4, 2020 for the 5th One Rb World event, a virtual meeting this year due to COVID19. Join Rb specialists, parents, and survivors for sessions ranging from treatment and genetics to psychosocial supports and lifelong care.

Find out more about how our community is working together to help build a bright future for all affected by childhood eye cancer, explore the 2020 program and Register for the Virtual meeting to secure your place.

Remembering Jayne, Bella and Grace, Lost on Flight ET302

On March 10, 2019, our wonderful Child Life Specialist, Jayne Kamau, and child life advocate Bella Jaboma were killed on board Ethiopian Airlines flight ET302, with Grace Kariuki, a dedicated doctor working to advance childhood cancer care.

They were all returning home to Kenya from the International Society of Paediatric Oncology Africa Congress in Cairo. Read more about our dear friends and their vital work.

WE C Hope Blog

Two small group discussions are taking place around separate tables.

How to Communicate with People Who are Blind or Vision Impaired - Part 1

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September 27, 2020

Most children with retinoblastoma and survivors have some degree of sight loss, and many experience awkward healthcare encounters arising from their sight loss. Rb survivor and WE C Hope CEO, Abby White, shares survivor and parent tips for medical professionals caring for and working with people who are blind or vision impaired.

A young smiling girl holds a certificate that states "First Day of Pre-School 2018-2019".

How to Support Learning For Children With Vision Loss

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September 14, 2020

Most children with retinoblastoma experience some degree of vision loss that requires accommodations and support to reach their potential in school. Four vision professionals, who have experience of retinoblastoma, review the supports children may need, and what parents can do to help secure them.

A female doctor wearing scrubs and a brightly coloured surgical cap sits at the head of a surgical table on which a baby is lying with a tube inserted in her mouth to control her breathing. In one hand, the doctor holds a device that shines a bright light onto the eye, and in the other, a small probe held over the eye. Cables from both are draped around her neck. Two doctors stand behind her, observing.

EUA Frequency During and After Retinoblastoma Treatment

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August 31, 2020

Parents of children with retinoblastoma ask how often their child’s eyes should be examined under anaesthetic, and if schedules vary depending on type of eye salvage treatment. Abby White, in collaboration with a specialist from one leading US treatment center, helps to answer these important questions.

Marissa smiles as she holds a gold Kendra Scott jewelry box in her left hand and a One Retinoblastoma World 2017 program in her right hand. She is wearing a grey top and the Elisa Gold Triple Strand Necklace in Ivory Mother-of-Pearl. The necklace combines three chains with unique personalities and Kendra Scott’s iconic oval shape to create a layered look. The photo is taken outside, where a Stars and stripes flag is visible in the top right background.

Give Back This September with Kendra Scott

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August 17, 2020

Our first virtual family event was a great success, with added sparkle from Kendra Scott jewelry. Please help us support more families by shopping at KendraScott.com on Sat 12 – Sun 13 September. They’ll donate to WE C Hope 20% of sales made using code GIVEBACK8400. Shine gold this September Childhood Cancer Month.

Photographers

A baby has one red pupil and one white pupul - the classic early sign of eye cancer in children.

Know The Glow!

Learn about the most common early sign of childhood eye cancer – a white reflection in the pupil, seen in dim light and flash photos. Find out how to take photos to check for signs of serious eye disease in children.

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Parents & Survivors

Find Hope

We offer the Retinoblastoma Resource to supplement information provided by your medical team, answer questions and concerns about all aspects of life with Rb, increase understanding and share hope.

How You Can Help

Forget “let me know if I can do anything to help”! Carefully considered and offered support will be truly valued. We have many suggestions from parents that have brought families relief, joy and hope.

Sun reflects gold on Daisy's hair as she smiles and laughs while clutching a big bunch of daisies.

Help Change Lives!

There are so many ways you can help us bring hope of cure and better quality of life to children with eye cancer, families and survivors. Donate online now, or become a fundraising angel. Together, WE C Hope!

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