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Daisy and Rati

Welcome to World Eye Cancer Hope

Retinoblastoma is an aggressive eye cancer affecting babies and young children.  It kills 7,000 youngsters each year, and blinds many more.

The most common early sign of childhood eye cancer is a white glow in the pupil of the affected eye.  The cancer is easy to diagnose and when treated early, is very curable.

Suffering and death is highest in developing countries, where most affected children live and timely access to specialist cancer care is limited.  In developed countries, cure is above 96%, but most children experience moderate, severe or complete vision loss.  Globally, children, families and survivors experience significant emotional trauma.

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Daisy & Rati

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In Your Country

WE C Hope for all children with eye cancer, families & survivors.

Baby with one white pupil and one red pupilIncreasing access to specialist care will bring the promise of life and sight to every child, and improved life-long health to survivors. This is our mission. We:

  • Educate the public and medical community about retinoblastoma to achieve early diagnosis and rapid referral to specialist care
  • Empower medical teams to deliver sustainable high quality evidence-based care for affected children and adult survivors.
  • Enable family support programs that reduce practical and emotional burdens and improve access to essential care

Families, Survivors, Specialists: Join an Rb Community Event

Promo card with California family day info as in event details. 3 photos show Marissa smiling with painted flowers decorating her face, a large group of adults and children at our 2019 Family Day, and a young smiling girl wearing fairy wings. The background is a view of Long Beach skyline from the ocean, with high blue sky and warm

WE C Hope hosts events for our global Rb community, from virtual child life activity sessions and relaxing family days, to major collaboratve meetings that unite us all to share knowledge and move care forward together.

Read about our upcoming events, find programs and event preparation resources, and register. Please join us to connect with others who share your experience and desire that all children, survivors and families have the best care possible.

Read our Comprehensive 12 Step Guide to Making Treatment Decisions

Text reads “Retinoblastoma Treatment Decisions 12 Step Guide”. The background is a blue painted wood table. To the right of the text, a pen rests on the blank open page of a notebook. Around the notebook sits a pair of glasses, a cup of coffee, and a small plant with green leaves.

Parents face many decisions about their child’s retinoblastoma treatment. Recognizing the complexity of this highly emotive and stressful experience, we’ve created a comprehensive guide to making treatment decisions.

This 12 step tool will help parents navigate the decision making process, and make the best choices at every stage of their child’s eye cancer journey.Read the Treatment Decision Making Guide.

Support Kids During Needle Related Procedures

Kenyan Child Life Specialist, Jayne Kamau, distracts a young patient with a meteor shower toy while a nurse inserts an IV in her hand.

Only 5% of children have support for immunization needle pain. Seriously ill children experience many needle related procedures, rarely with adequate pain support. But pain and distress can be managed and reduced.

Visit our Needle Related Procedures guide to find supports for children of all ages.  Parents, ask how to manage your child’s pain. Healthcare providers, please give parents options. Learn how to make needles easier and safer for everyone.

WE C Hope Blog

A mother breastfeeds her baby while sitting on couch at home.

Breastfeeding When Your Child Has Retinoblastoma

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Breastfeeding is one of the many decisions parents navigate when their baby or toddler has retinoblastoma. Paediatric nurse and child life specialist, Cindy Pilchuk, explores the benefits and challenges of breastfeeding through treatment, with practical tips for continuing or re-starting breastfeeding, weaning after diagnosis, maintaining milk supply, and comfort supports for both mother and child.
Fire Poppies – vibrant golden petals and green leaves brighten a scorched landscape.

8 Ways to Heal Survivor Guilt

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Anyone affected by retinoblastoma can experience survivor guilt – child and adult survivors, siblings, parents, grandparents, and others. WE C Hope CEO and Rb Survivor Abby White concludes this four-part series on Survivor Guilt with 8 practical suggestions to help acknowledge, move through, and heal from the destructive emotions that fuel survivor guilt.

Understanding Survivor Guilt

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Survivor guilt of some kind is an almost universal experience for individuals affected by retinoblastoma – survivors and siblings of all ages, parents, grandparents, and others. Continuing our four-part series on Survivor Guilt, WE C Hope CEO and Rb Survivor Abby White explores the causes, risk factors, and underlying emotions.
an anchor tethers a bright red hot air balloon floating in a grey sky.

7 Ways Retinoblastoma Families and Survivors Experience Survivor Guilt – part 2

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Anyone affected by retinoblastoma can experience survivor guilt – survivors and siblings of all ages, parents, grandparents, partners, and others.  WE C Hope CEO and Rb Survivor Abby White continues to explore the many ways in which family members experience survivor guilt, and the potential impacts during treatment and throughout life.

Photographers

A baby has one red pupil and one white pupul - the classic early sign of eye cancer in children.

Know The Glow!

Learn about the most common early sign of childhood eye cancer – a white reflection in the pupil, seen in dim light and flash photos. Find out how to take photos to check for signs of serious eye disease in children.

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Parents & Survivors

Find Hope

We offer the Retinoblastoma Resource to supplement information provided by your medical team, answer questions and concerns about all aspects of life with Rb, increase understanding and share hope.

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Family & Friends

How You Can Help

Forget “let me know if I can do anything to help”! Carefully considered and offered support will be truly valued.  We have many suggestions from parents that have brought families relief, joy and hope.

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Give Hope

Sun reflects gold on Daisy's hair as she smiles and laughs while clutching a big bunch of daisies.

Help Change Lives!

There are so many ways you can help us bring hope of cure and better quality of life to children with eye cancer, families and survivors.  Donate online now, or become a fundraising angel. Together, WE C Hope!

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Help us bring hope of life and sight to every child with eye cancer

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