Rati smiles broadly

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Inspired by

Daisy and Rati

One Rb World group photo
A small group works together.

Thank you to all retinoblastoma specialists, researchers, parents and survivors who joined us at the 4th One Rb World meeting this October.

Find out more about how our community is working together to help build a bright future for all affected by childhood eye cancer across America and around the world, and what happened when we gathered in Washington D.C.

Welcome to World Eye Cancer Hope

Retinoblastoma is an aggressive eye cancer affecting babies and young children.  It kills over 7,000 youngsters each year, and blinds many more.

The most common early sign of childhood eye cancer is a white glow in the pupil of the affected eye.  The cancer is easy to diagnose and when found early, treatment is very effective.

Suffering and death is highest in developing countries, where most affected children live and timely access to specialist cancer care is limited.  In developed countries, survival is above 96%, but most children experience moderate to severe vision loss or complete blindness.  Globally, children, families and survivors experience significant emotional trauma.

Inspired by
Daisy & Rati

In Your Country

Canada
UK
USA
Kenya
Baby with one white pupil and one red pupil

WE C Hope for all children with eye cancer, their families and survivors.

Increasing access to specialist care will bring the promise of life and sight to every child, and improved life-long health to survivors. This is our mission. We:

  • Educate the public and medical community about retinoblastoma to achieve early diagnosis and rapid referral to specialist care
  • Empower medical teams to deliver sustainable high quality evidence-based care for affected children and adult survivors.
  • Enable family support programs that reduce practical and emotional burdens and improve access to essential care

WE C Hope Blog

Tree of Life - thr trunk of the tree is a DNA double helix

How DNA and Genetic Knowledge Changes Lives: the impact of genetic testing for five families affected by retinoblastoma

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Retinoblastoma survivor and WE C Hope co-founder / CEO, Abby White, considers the central importance of DNA and genetic knowledge in caring for the child and family. She introduces us to Alice, Jamie, Megan, Rachel, Peter and their families, to find out how genetic testing can influence treatment, screening and lifelong care.
“Grief is in two parts. The first is loss. The second is the remaking of life.” Anne Roiphe

Make Space for Grief: Honour the place you are in

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Linda Conyard MGestT explores the grief that can arise from retinoblastoma diagnosis, treatment, eye removal surgery, loss of innocence, and mutilated family life. She considers the potential harm of suppressing this grief, and offers both families/survivors and medical professionals ways to prevent prolonged suffering.

Photographers

A baby has one red pupil and one white pupul - the classic early sign of eye cancer in children.

Know the Glow!

Learn about the most common early sign of childhood eye cancer – a white reflection in the pupil, seen in dim light and flash photos when red-eye reduction is not used. Find out how to take photos to check for signs of serious eye disease in children.

Parents & Survivors

Find Hope

We offer the Retinoblastoma Resource to supplement information provided by your medical team, answer questions and concerns about all aspects of life with Rb, increase understanding and share hope.

About WE C Hope

Meet Daisy and Rati, and learn how the gift of hope from one to the other created light from the darkness cancer brought to their lives.

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Rb Resource

Extensive information about childhood eye cancer, from diagnosis and care to coping with treatment and the lifelong effects of this cancer.

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Our Programs

WE C Hope for all children through awareness, medical care, family support and research to improve evidence based care.

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Give Hope

There are so many ways you can help us bring hope of cure and better quality of life to children with eye cancer, families and survivors.

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