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Inspired by

Daisy and Rati

Thank you to all retinoblastoma specialists, researchers, parents and survivors who joined us at the 4th One Rb World event in Washington D.C.

Find out more about how our community is working together to help build a bright future for all affected by childhood eye cancer across America and around the world, and what happened when we gathered in Washington D.C.

Welcome to World Eye Cancer Hope

Retinoblastoma is an aggressive eye cancer affecting babies and young children. It kills over 7,000 youngsters each year, and blinds many more.

The most common early sign of childhood eye cancer is a white glow in the pupil of the affected eye. The cancer is easy to diagnose and when found early, treatment is very effective.

Suffering and death is highest in developing countries, where most affected children live and timely access to specialist cancer care is limited. In developed countries, survival is above 96%, but most children experience moderate to severe vision loss or complete blindness. Globally, children, families and survivors experience significant emotional trauma.

Inspired by
Daisy & Rati

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In Your Country

Baby with one white pupil and one red pupil

WE C Hope for all children with eye cancer, their families and survivors.

Increasing access to specialist care will bring the promise of life and sight to every child, and improved life-long health to survivors. This is our mission. We:

Educate the public and medical community about retinoblastoma to achieve early diagnosis and rapid referral to specialist care

Empower medical teams to deliver sustainable high quality evidence-based care for affected children and adult survivors.

Enable family support programs that reduce practical and emotional burdens and improve access to essential care

WE C Hope Blog

2 people side by side at a wooden table, one working on a laptop the other writing in a notebook. Only their hands are visible.

4 Reasons Survivors and Families May Not Participate in Retinoblastoma Research, and Ways to Improve Engagement.

February 18, 2019

Survivor participation in retinoblastoma research is key to understanding long-term impacts of the cancer, and improving care. But many barriers to participation exist Len Burns, a blind bilateral Rb survivor and licensed family therapist, considers four major barriers, and opportunities to overcome them.

This image features two pieces of text, above and below an image of a stick family, ranged in order of height from the tall father through mother and various children to the family dog. Above: “When a child is diagnosed with cancer, the whole family is affected.” A gold ribbon sits behind the word “diagnosed”. Below the family: “Please support a local family in your community who has a child battling for their life. Bold for gold! Childhood cancer awareness and hope.”

Talking About Your Child’s Cancer Diagnosis With Family and Friends

February 4, 2019

Talking about a child’s cancer with family and friends can be deeply cathartic for parents one day, and utterly exhausting the next. Asking for and receiving help can be a minefield too. Morgan Livingstone CCLS explores why this is so, and offers tips and tools to reduce stress, improve coping and boost effective practical support.

Photographers

A baby has one red pupil and one white pupul - the classic early sign of eye cancer in children.

Know the Glow!

Learn about the most common early sign of childhood eye cancer – a white reflection in the pupil, seen in dim light and flash photos when red-eye reduction is not used. Find out how to take photos to check for signs of serious eye disease in children.

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Parents & Survivors