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Inspired by

Daisy and Rati

Welcome to World Eye Cancer Hope

Retinoblastoma is an aggressive eye cancer affecting babies and young children. It kills over 7,000 youngsters each year, and blinds many more.

The most common early sign of childhood eye cancer is a white glow in the pupil of the affected eye. The cancer is easy to diagnose and when found early, treatment is very effective.

Suffering and death is highest in developing countries, where most affected children live and timely access to specialist cancer care is limited. In developed countries, survival is above 96%, but most children experience moderate to severe vision loss or complete blindness. Globally, children, families and survivors experience significant emotional trauma.

Inspired by
Daisy & Rati

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In Your Country

WE C Hope for all children with eye cancer, their families and survivors.

Increasing access to specialist care will bring the promise of life and sight to every child, and improved life-long health to survivors. This is our mission. We:

Educate the public and medical community about retinoblastoma to achieve early diagnosis and rapid referral to specialist care

Empower medical teams to deliver sustainable high quality evidence-based care for affected children and adult survivors.

Enable family support programs that reduce practical and emotional burdens and improve access to essential care

Support Kids During Needle Related Procedures

Kenyan Child Life Specialist, Jayne Kamau, distracts a child with a meteor shower toy during a needle procedure.

Only 5% of children have support for immunization needle pain. Seriously ill children experience many needle related procedures, rarely with adequate pain support. But pain and distress can be managed and reduced.

Visit our Needle Related Procedures guide to find supports for children of all ages. Parents, ask how to manage your child’s pain. Healthcare providers, please give parents options. Learn how to make needles easier and safer for everyone.

Thank You for Joining the 6th One Rb World Meeting on 1-3 October 2021!

We were delighted to host the 6th One Rb World event on 1-3 October, 2021. Being 100% virtual due to the pandemic, we welcomed Rb specialists, researchers, survivors and families from around the world to a hope-filled rogram.

Planning and hosting is always an adventure, especially with a team working in lockdown conditions across an 18 hour time differnce! Read on for some behind-the-scenes insight and conference highlights.

Families, Survivors, Specialists: Join an Rb Community Event

7 children co-create a group board game, supported by an adult. One of the children is adding to the board game with a marker

WE C Hope hosts events for our global Rb community, from virtual child life activity sessions and relaxing family days, to major collaboratve meetings that unite us all to share knowledge and move care forward together.

Read about our upcoming events, find programs and event preparation resources, and register. Please join us to connect with others who share your experience and desire that all children, survivors and families have the best care possible.

WE C Hope Blog

26 Ways to Nurture Mind and Body: revisit the 2021 Alphabet of Hope

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January 17, 2022

Throughout 2021, our fourth Alphabet of Hope shared top tips for practical action to reduce stress and nurture mind and body. Bilateral Rb Survivor and WE C Hope Volunteer CEO, Abby White, introduces our complete 2021 alphabet, and offers suggestions for creating your own Self-Care Action Plan to help ease stress through difficult moments and tough days.

A young girl sucking a pacifier rests with her head on a pillow. Her eye is swollen from recent treatment.

Trauma-Informed Sleep Supports: How to Help Your Child When Traditional Sleep Supports Are Not Enough

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January 3, 2022

Sleep is vital to a child’s healthy development, and there are many simple, practical ways parents and caregivers can support healthful sleep. But what happens when stress and traumatic experiences affect a child’s sleep? Paediatric nurse and child life specialist, Cindy Pilchuk, offers practical trauma-informed sleep supports to aid children’s coping and restorative sleep.

A young girl sleeps with a teddy bear wrapped in her arms. She has a peaceful smile on her face and she is of African ethnicity.

14 Ways to Improve Your Child’s Sleep

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December 20, 2021

Sleep is our superpower – consistent, quality sleep helps both mind and body function at their best. But many children struggle to sleep well, with potentially significant negative effects. Paediatric nurse and child life specialist, Cindy Pilchuk, explores simple, practical ways parents and caregivers can help children fall asleep more easily and have a restful night.

$A high doorway is framed by two Christmas trees, each standing about 10ft tall. They are exquisitely decorated with hundreds of gold lights, pink glass roses, and other ornaments that reflect and refract the light. A large banqueting table is set up in the centre, surrounded by high back red velvet chairs that contrast beautifully against the glittering gold candelabras. Gold crackers and sparkling goblets at each place setting hint at the anticipated party. Along the centre of the table, intricate models in cream, glitter and gold show scenes from the story of Cinderella. On the left of frame is the glittering expanse of a fairy-tale castle. To the right, two ladies gesture and watch the pumpkin carriage racing away over a bridge. Further right, Prince Charming stands below a clock tower as the hands point to midnight, and Cinderella races away down a flight of stairs, a single glittering slipper lost behind her. Almost off-frame, a chair is pictured, in which someone is sitting to try on a shoe. The overall setup is glittering splendour. The high doorway, significantly higher ceiling, very large, tall trees, and several statues between them, give the impression of a grand, spacious room out-of-frame.$

12 Ways to Inclusive Festive Fun: How to Celebrate the Holidays with Your Child Who Is Blind or Visually Impaired – Part 2

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December 5, 2021

The glorious visual spectacle of this Holiday Season can exclude and isolate a child with vision loss from retinoblastoma, but we can experience these traditions with all our senses. In part 2 of this festive blog, bilateral Rb Survivor, Abby White, shares six more ways to include blind and visually impaired children in Holiday traditions, creating delight for the whole family.

Photographers

A baby has one red pupil and one white pupul - the classic early sign of eye cancer in children.

Know The Glow!

Learn about the most common early sign of childhood eye cancer – a white reflection in the pupil, seen in dim light and flash photos. Find out how to take photos to check for signs of serious eye disease in children.

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Parents & Survivors

Find Hope

We offer the Retinoblastoma Resource to supplement information provided by your medical team, answer questions and concerns about all aspects of life with Rb, increase understanding and share hope.

How You Can Help

Forget “let me know if I can do anything to help”! Carefully considered and offered support will be truly valued. We have many suggestions from parents that have brought families relief, joy and hope.

Sun reflects gold on Daisy's hair as she smiles and laughs while clutching a big bunch of daisies.

Help Change Lives!

There are so many ways you can help us bring hope of cure and better quality of life to children with eye cancer, families and survivors. Donate online now, or become a fundraising angel. Together, WE C Hope!

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