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You are here: Home1 / Retinoblastoma Resource2 / Child Life3 / Procedure Support
A child life specialist uses a toy cat with removable eye to help a young girl receiving chemotherapy cope with eye removal and artificial eyes.

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Procedure Support

Children endure many procedures during cancer diagnosis, treatment and follow up care.

These are an essential part of medical care, but can be extremely distressing for both the child and parent if not handled with sensitivity and understanding.

Procedures range from painless hearing tests to potentially very painful lumbar punctures, from quick eye drops to MRI scans of more than an hour.

A young girl plays doctor with her doll during her own transplant.

Lack of planning and support can lead to loss of trust, poor cooperation, delayed development and long-lasting negative effects.

However, simple compassionate, honest preparation can help your child effectively cope with, and be actively involved in his care.  The goal of child life is maximum time spent on preparation, minimum time spent on the actual procedure, and minimal distress for parent and child.

Many procedures will become frequent experiences throughout treatment. Developing a routine for each will help your child stay calm and cooperative, dramatically reducing stress for all of you.


Stay Calm

Children take their cues from the words, actions and emotions of parents and other significant people. If you are calm, your child will also be calm.


Make A Plan

When you have a coping plan, you and your child will be less apprehensive and feel a greater sense of control over the experience.


Medical Play for Procedure Preparation

Play helps young children process experiences, learn what will happen to them and master new skills that enable them to cope with procedures.


Distraction Play for Procedure Support

Distraction activities and toys reduce stress, increase cooperation and create fun for children undergoing procedures or coping with pain.


Positions of Comfort

Comfort positions help your child feel more in control and give choices, creating a more positive experience and a routine for stressful events.


Specific Procedures

Click on the procedures below for specific suggestions of how to help your child complete it with minimal distress and maximum cooperation.

  • Giving Eye Drops
  • Needle Related Procedures
  • Anaesthetuc Induction
  • Surgery Preparation
  • Enucleation Surgery
  • Imaging Scans (MRI / CT / GFR / Bone Scan)

Kids Hygeine to Support Medical Care

Hand Hygiene for Kids

Invisible microbes cause some of the most dangerous diseases in children, especially kids with cancer. Handwashing is the best defence, and a vital skill for all children to learn.


Reduce Face Touching

Less face touching helps reduce Infection risk, but this can be hard to achieve with young children. We hope these tips will help parents!

Give life and sight to a child with eye cancer today

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  • Retinoblastoma Overview
    • How the Eye Works
    • Retinoblastoma Biology
    • Unilateral Retinoblastoma
    • Bilateral Retinoblastoma
    • Extraocular Retinoblastoma
    • Trilateral Retinoblastoma
    • Genetics of Retinoblastoma
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    • Retinoblastoma Glossary
  • Know the Glow
    • Fundal (Red Eye) Reflex and Red-Eye Reduction
    • White Eye Reflex
    • Photo Challenge
    • White Eye and Rb
    • White Eye after Rb Diagnosis
    • White Eye and Adults
    • PhotoRED Technique
    • Next Steps
    • Examining the Fundal / Red Reflex
  • Medical Care
    • Questions to Ask the Medical Team and Yourself
    • Diagnosis and Staging
      • Staging Systems
      • Multidisciplinary Team and Tumour Board
      • Treatment Plan and Care Pathway
      • Hospital Packing Tips
    • Retinoblastoma Genetics
      • Rb Genetics Explained
      • Mosaic Mutations
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      • Genetic Counseling
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    • A Therapeutic Alliance
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    • Medical Procedures
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      • Inserting an IV
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      • MRI Scan
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      • Taking a Temperature
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      • Vision Testing – Support Your Child
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    • Treatment
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      • Treatment Decision Making Guide
        • Step 1 – Acknowledge Your Thoughts and Feelings
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        • Step 4 – Understand Shared Decision Making and Informed Consent
        • Step 5 – Set an Intention to Make Balanced Decisions
        • Step 6 – Learn About Retinoblastoma
        • Step 7 – Evaluate Your Options
        • Step 8 – Consider Your Values and Goals
        • Step 9 – Manage Disagreement and Conflict
        • Step 10 – Make Your Decision
        • Step 11 – Review Your Decision
        • Step 12 – Support Your Child and Yourself
        • Review the 12 Decision Making Steps
      • Enucleation
        • Making the Decision
        • Eye Removal Surgery
        • Orbital Implants
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        • Ask the Doctor
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        • Pets and Infection Risk
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        • When to Call the Doctor
      • Occlusion Therapy (Eye Patching)
        • Introduction to Eye Patching
        • Preparing to Patch
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        • Eye Patching – Just For Kids!
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    • End of Life Care
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  • Child Life
    • Child Life is More Than Play
      • The Art of Child Life
    • Procedure Support
      • Stay Calm
      • Make a Plan
      • Medical Play
      • Distraction Play
      • Comfort Positions
      • Giving Eye Drops
      • Support for Needle Procedures
      • Anaesthetic Induction
      • Preparing for Surgery
      • Preparing for Enucleation
      • Imaging Scans
      • HandWashing for Kids
      • Reduce Face Touching
    • Pain Management
      • Know the Signs of Pain
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      • Mind-Body Strategies
    • Living With a Special Eye
      • Before Enucleation
      • Going to the Ocularist
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      • Handling the Special Eye
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      • The Young Child Living With a Special Eye
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      • When There Is No Eye
    • Psychological Support
      • Reduce Your Stress
      • Infant Massage Training
      • Talking With Kids About Vision Loss
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      • Support and Encourage
      • Coping With Difference
      • Worry Eaters Guide
      • Personal Story Books
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  • Living With Retinoblastoma
    • Children
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      • Genetic Implications
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    • School Life
      • Effects of Treatment
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      • Prevent Eye Injury
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    • Bereavement
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