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You are here: Home1 / Retinoblastoma Resource2 / Child Life3 / Psychological Support4 / Support and Encourage
A child life specialist uses a toy cat with removable eye to help a young girl receiving chemotherapy cope with eye removal and artificial eyes.

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Support and Encourage Your Child

Be aware of the psychological outcome eye removal and other cancer therapies can have on young children.

Psychological adaptation to eye removal surgery in early childhood is generally considered good. Still, many children have concerns about their appearance, or about handling the eye.

Many children have chemotherapy to save sight, or because pathology of their removed eye showed a high risk for recurrence. They may have a concern about hair oss, and dealing with peers’ responses to this.

A young girl running.

Children may struggle with the side effects of treatment, isolation from friends and familiarity, the emotional trauma of repeated procedures and hospitalizations. These experiences may impact their interaction with the regular world, during treatment and for many years after therapy ends.

You can do much to support and encourage your child through treatment and beyond.

Encourage Your Child

Throughout your child’s life, provide positive, supportive and encouraging words of praise about all of his abilities, interests and experiences. This will help build his self-esteem, give him confidence about himself and confidence to try new things.

Let him know how proud you are of all his little successes, and how proud you are when he copes with negative experiences too. Talking to your child about his strengths and abilities is important all the time, not just when he is facing other people’s comments or insensitive actions.

When your child is unsuccessful at something, or has a negative experience, be there to support him. Help him to cope, grow and learn from that experience. Protecting your child from all negative experiences does not give him a chance to learn resilience.

Know Your Child’s Feelings

Talk to your child. Listen, and hear what he has to say about his experiences. Be compassionate and understanding with him.  If he is upset or uncomfortable about something, ask him what he thinks he needs to help him feel better.

Seek Extra Help

Some children experience great distress and even depression about how others perceive them and their differences. If you are concerned, or you don’t feel comfortable or capable supporting your child yourself, please seek help.

You can ask for assistance from a child life specialist, social worker, your family doctor, a psychologist or psychiatrist. Even if the person you ask is unable to help you directly, they will be able to refer you to a professional who can help your child cope better.

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  • Retinoblastoma Overview
    • How the Eye Works
    • Retinoblastoma Biology
    • Unilateral Retinoblastoma
    • Bilateral Retinoblastoma
    • Extraocular Retinoblastoma
    • Trilateral Retinoblastoma
    • Genetics of Retinoblastoma
    • Global Incidence
    • Signs and Symptoms
    • Referral and Diagnosis
    • Treatments
    • Care After Treatment
    • Prognosis
    • Retinoblastoma Glossary
  • Know the Glow
    • Fundal (Red Eye) Reflex and Red-Eye Reduction
    • White Eye Reflex
    • Photo Challenge
    • White Eye and Rb
    • White Eye after Rb Diagnosis
    • White Eye and Adults
    • PhotoRED Technique
    • Next Steps
    • Examining the Fundal / Red Reflex
  • Medical Care
    • Questions to Ask the Medical Team and Yourself
    • Diagnosis and Staging
      • Staging Systems
      • Multidisciplinary Team and Tumour Board
      • Treatment Plan and Care Pathway
      • Hospital Packing Tips
    • Retinoblastoma Genetics
      • Rb Genetics Explained
      • Mosaic Mutations
      • MYCNA Retinoblastoma
      • Genetic Counseling
      • Genetic Testing
      • Genetic Test Results
      • Pre-implantation Genetic Diagnosis (PGD)
      • Genetics Glossary
    • A Therapeutic Alliance
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      • Good Communication
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      • Changing Doctors
      • Medical Staff
    • Medical Procedures
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      • Procedure Pain
      • Blood Draw
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      • Bone Scan
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      • EUA
      • Eye Pressure Test
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      • Inserting an IV
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      • MRI Scan
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      • Taking a Temperature
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      • Vision Testing
      • Vision Testing – Support Your Child
      • Vision Testing – Just For Kids!
    • Treatment
      • Risk of Under-Treatment and Over-Treatment
        • Reduce Risk of Under-Treatment and Over-Treatment
      • Treatment Decision Making Guide
        • Step 1 – Acknowledge Your Thoughts and Feelings
        • Step 2 – Understand Your Decision-Making Style
        • Step 3 – Find Your Expert Team
        • Step 4 – Understand Shared Decision Making and Informed Consent
        • Step 5 – Set an Intention to Make Balanced Decisions
        • Step 6 – Learn About Retinoblastoma
        • Step 7 – Evaluate Your Options
        • Step 8 – Consider Your Values and Goals
        • Step 9 – Manage Disagreement and Conflict
        • Step 10 – Make Your Decision
        • Step 11 – Review Your Decision
        • Step 12 – Support Your Child and Yourself
        • Review the 12 Decision Making Steps
      • Enucleation
        • Making the Decision
        • Eye Removal Surgery
        • Orbital Implants
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        • Side Effects
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      • Reduce Your Stress
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      • Support and Encourage
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  • Living With Retinoblastoma
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    • School Life
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      • The First Alphabet of Hope
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