Retinoblastoma Support Organizations
Many wonderful organizations around the world bring help and hope to children affected by cancer, their families and adult survivors.
The following is a selection of resources that we think may be valuable to you. We hope this directory will grow in time to include resources in many countries.
If you know of a good resource not listed within these pages, please email firstname.lastname@example.org with the information so we can look into listing it.
Founded in October 2016 with the goal of advocating quality comprehensive retinoblastoma care, Supports families through research, family support, information and awareness raising.
Supports families across Italy through treatment and beyond. Supports collaborative research nationally and internationally, and promotes progress towards evidence-based guidelines and common standards of care for all children.
Supports families receiving care in Sienna, Italy’s main retinoblastoma referral centre. Supports research to advance care and raises public awareness to increase early diagnosis and understanding of childhood eye cancer.
Supports Canadian families and survivors through gatherings and link-ups and providing information. Funds research, advocates early diagnosis through awareness campaigns, and monitors implementation of national guidelines for retinoblastoma care.
Provides information, emotional and practical support to children, survivors and their families who receive care in the UK. Promotes early diagnosis through awareness campaigns and advocacy. Funds research primarily in the UK.
Provides emotional, informational and practical support to families of all faiths (or none) who receive retinoblastoma care in Israel. Advocates for early diagnosis and supports research taking place in Israel.
Iksha Foundation (India)
Raises awareness for early diagnosis. Funds research and provides financial assistance for families in compelling need to access treatment at Narayana Nethralaya in Bangalore.
Advocates early diagnosis through awareness campaigns among primary health workers and the general public.
Provides emotional and practical support to families, including family gatherings and Elli – a soft toy with a removable eye. Advocates early diagnosis through awareness campaigns and funds research taking place in Germany.
Raises awareness for early diagnosis, funds research taking place in New York, and supports children, survivors and their families.
Provides emotional and practical support to families of children affected by retinoblastoma who live in Arizona or who receive care in the state.
Dutch language information and support.
Supports families through social and educational meetings and print resources, advocates early detection, funds research and essential equipment at French retinoblastoma treatment facilities.
Raises awareness among the public and health workers. Advocates regular eye exams for children. Helps American families defray costs incurred in seeking medical care. Funds research