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You are here: Home1 / Retinoblastoma Resource2 / Living With Retinoblastoma3 / Bereavement4 / Acts of Remembrance
A child life specialist uses a toy cat with removable eye to help a young girl receiving chemotherapy cope with eye removal and artificial eyes.

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Acts of Remembrance

The funeral ceremony provides a very important opportunity to say goodbye to your child.

The service, wake and other acts of remembrance provide a chance to celebrate your child’s life and pay tribute to the indelible mark that life has left on the world.

This is a time for family and friends to come together in grief, share memories and show their support in a tangible demonstration of love.

A golden-yellow origami crane floats in clear water, a verdant landscape reflected in the background.

Involve Family and Friends

Many families involve relatives, friends, teachers or other people of significance to their child.  For example by giving readings or sharing their memories.  You may also ask such people to carry the casket or be ushers.

Involve guests in an act of honour during the service.

Examples include

  • wearing your child’s favourite colour
  • sprinkling seeds in a memorial garden
  • placing a flower on the casket or in the grave
  • writing a memory on a helium balloon and releasing it
  • placing a photograph, drawing or written memory on a special board

Service cards can be printed and kept by guests.  You can include your child’s photographs, pictures of artwork or a message that you wrote together before your child died.

Ask the funeral director to provide cards on which guests can write their name and a message.  Ask the person leading the service to remind guests to place these cards in a specific location before leaving.  The cards will enable you to know and remember who attended the service.

Involve Children

Children of all ages should be allowed to attend the funeral if they wish.  They will need some preparation beforehand so they know what to expect.  They must be given plenty of opportunity to ask questions, and should be given simple, honest answers.

Things children need to know include:

  • the type of service and what it means
  • if the casket will be there and if it will be open
  • what type of building and room they are going to
  • who will be there and how they may act (such as crying or giving lots of hugs)
  • who will stay with them
  • how long they will be there
  • what they will be expected to say during the service, if anything

This will help children grieve, both now and later on.  Even young children can be involved.  Talk to your other children and the friends of your child who has died about whether they want to be present or not.  Ask whether they would like to be actively involved in the service and what they would feel comfortable doing (e.g. reading a poem or sharing a memory).

The Wake

A wake is a social gathering after a funeral, and can be whatever you want it to be.  You may wish to hold it at your home or in a hall, club, hotel or other private establishment.

Consider whether you wish to ask friends to prepare food, hire caterers or simply make a booking at a hotel, pub or club.  Also consider whether you would like everyone to attend, or just family and close friends.

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  • Retinoblastoma Overview
    • How the Eye Works
    • Retinoblastoma Biology
    • Unilateral Retinoblastoma
    • Bilateral Retinoblastoma
    • Extraocular Retinoblastoma
    • Trilateral Retinoblastoma
    • Genetics of Retinoblastoma
    • Global Incidence
    • Signs and Symptoms
    • Referral and Diagnosis
    • Treatments
    • Care After Treatment
    • Prognosis
    • Retinoblastoma Glossary
  • Know the Glow
    • Fundal (Red Eye) Reflex and Red-Eye Reduction
    • White Eye Reflex
    • Photo Challenge
    • White Eye and Rb
    • White Eye after Rb Diagnosis
    • White Eye and Adults
    • PhotoRED Technique
    • Next Steps
    • Examining the Fundal / Red Reflex
  • Medical Care
    • Questions to Ask the Medical Team and Yourself
    • Diagnosis and Staging
      • Staging Systems
      • Multidisciplinary Team and Tumour Board
      • Treatment Plan and Care Pathway
      • Hospital Packing Tips
    • Retinoblastoma Genetics
      • Rb Genetics Explained
      • Mosaic Mutations
      • MYCNA Retinoblastoma
      • Genetic Counseling
      • Genetic Testing
      • Genetic Test Results
      • Pre-implantation Genetic Diagnosis (PGD)
      • Genetics Glossary
    • A Therapeutic Alliance
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      • Treatment Decision Making Guide
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        • Step 4 – Understand Shared Decision Making and Informed Consent
        • Step 5 – Set an Intention to Make Balanced Decisions
        • Step 6 – Learn About Retinoblastoma
        • Step 7 – Evaluate Your Options
        • Step 8 – Consider Your Values and Goals
        • Step 9 – Manage Disagreement and Conflict
        • Step 10 – Make Your Decision
        • Step 11 – Review Your Decision
        • Step 12 – Support Your Child and Yourself
        • Review the 12 Decision Making Steps
      • Enucleation
        • Making the Decision
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    • Bereavement
      • End Of Life Care
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      • Acts of Remembrance
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