• Subscribe to Our Email Newsletter – Visions of Hope
  • Home
  • Contact Us
WE C Hope
  • Link to Facebook
  • Link to Instagram
  • Link to LinkedIn
  • Link to Youtube
  • Link to Mail
  • About WE C Hope
    • Our Mission, Values, and Goals
    • Our History
    • Daisy and Rati
    • Daisy’s Story
    • Rati’s Story
    • Meet Our Team
    • Chapters and Partners
    • Contact Us
  • Find Hope
    • Rb Overview
      • How the Eye Works
      • Rb Biology
      • Unilateral Rb
      • Bilateral Rb
      • Extraocular Rb
      • Trilateral Rb
      • Genetics
      • Signs & Symptoms
      • Referral & Diagnosis
      • Treatments
      • Care After Treatment
      • Prognosis
      • Glossary
    • Know the Glow
      • Fundal (Red Eye) Reflex and Red-Eye Reduction
      • White Eye Reflex
      • Photo Challenge
      • White Eye and Rb
      • White Eye and Adults
      • PhotoRED Technique
      • Next Steps
      • Examining the Fundal / Red Reflex
    • Medical Care
      • Diagnosis and Staging
      • Genetics
      • A Therapeutic Alliance
      • Medical Procedures
      • Treatment
        • Enucleation
        • Focal Therapy
        • Chemotherapy
        • Radiation Therapy
        • Transplant
        • Side Effects
      • Clinical Research
      • Surviving Hospital
      • International Care
      • End of Treatment
      • End of Life Care
    • Child Life
      • More Than Play
      • Procedure Support
      • Pain Management
      • Special Eyes
      • Psychological Support
    • Living With Rb
      • Children
      • Parents
      • Grandparents
      • School Life
      • Eye Care
      • Bereavement
      • Focus on Hope
    • Family and Friends
    • Through Our Eyes
    • Other Organizations
  • Programs
    • Awareness Campaigns
      • Alphabet of Hope
        • 2025-26 Alphabet – #RbChildLife
        • Previous Alphabets of Hope
      • World Rb Week
      • Gold Ribbon Month
      • International Childhood Cancer Day
    • Rati’s Challenge
      • Retinoblastoma in LMICs
      • Kenya National Rb Strategy
      • Early Detection
      • Child Life & Family Support
      • In Memory of Jayne and Bella
    • One Rb World
      • Best Practice Guidelines
      • One Rb World Map
      • Global Research Community
      • One Rb World Conference
    • Supporting Families
      • Retinoblastoma Information
      • Help for Individual Families
      • Social Media Groups
      • Virtual Events
      • USA Family Days
      • Family Focus at One Rb World
  • Events
    • Fundraising Events
    • Rb Family Days & Weekends
    • One Rb World Conference
    • Save The Date
    • Recent Events
  • One Rb World
    • About the Conference
    • View Past Sessions
    • One Rb World 2026
    • One Rb World 2024
    • One Rb World 2021
    • One Rb World 2020
    • One Rb World 2017
  • Give Hope
    • How Your Money Helps
    • My Story
    • Donate
      • Donate Online Now
      • Donate by Post
      • In Kind Gifts
      • Leave a Legacy
    • Fundraise
      • Create a Fundraising Page
      • WE C Hope Merch
      • Hold Your Own Event
      • WE C Hope Events
      • Sporting Challenges
      • Overseas Challenges
      • Corporate Partnerships
    • Volunteer
      • Volunteer Opportunities
  • News & Media
    • WE C Hope Blog
    • Visions of Hope eNews
    • Media Resources
  • Chapters & Partners
    • Canada
    • UK
    • USA
    • Kenya – Partner
  • Donate
  • Click to open the search input field Click to open the search input field Search
  • Menu Menu
You are here: Home1 / Retinoblastoma Resource2 / Medical Care3 / Medical Procedures4 / Vision Testing – Support Your Child
A child life specialist uses a toy cat with removable eye to help a young girl receiving chemotherapy cope with eye removal and artificial eyes.

Give hope - DONATE NOW!

Vision Testing – Support Your Child

Read Part 1 - How Vision Testing Works

What Makes Testing Children’s Vision So Challenging When a Child Has Retinoblastoma?

Firstly, the infant or child needs to be happy. Not hungry, thirsty, bored, or frightened.  If a vision test takes place before an EUA, the child will be hungry due to pre-surgery fasting.  An older child is probably already thinking about the eye drops that are yet to come as part of the eye exam.

A young boy wears special glasses with different lenses to assess his vision.

Realistically though, in experienced hands, testing vision in a child under that age of 2 years is relatively straightforward. An examiner will always be able to get some sense of the vision regardless of whether a formal test like the Cardiff Acuity Cards is used, or simply observing the child’s visual behaviour.

Once children reach 2 years, things can become a little tricky as their personalities start to emerge. They may be too shy to speak or engage with the examiner, who can then only observe their visual behaviour.

Being fearful of a new environment or new people, or knowing they will have eye drops soon can also make it difficult to obtain a reliable result. The child may not like either eye being covered, so the examiner can only assess the vision with both eyes open. In this case, they cannot be certain whether each eye would achieve that level of vision separately.  However, this observation can confirm what the better-seeing eye can see, which is an important start.

How Can I Help My Child Prepare For A Vision Test?

There are several ways you can prepare your child in the comfort of your home.

Playing games where either eye is covered in turn is a very useful way to help them not be overwhelmed when this happens during their vision test. ”Peek-a-boo” can be a great way to introduce this.

The examiner may be able to provide you with a sheet of the pictures or shapes that will be used at the next vision test. There are no extra points for knowing the alphabet letters. In fact, when children “kind of know the letters” then give an incorrect letter name during the vision test, it can be difficult to know whether they can’t see the letter, or they got the name wrong.

Talk to your child about their vision test as being a game, rather than a test. Young children like to please. They don’t want to disappoint or get things wrong. If they realize their letter or picture responses are incorrect, they will very quickly stop wanting to play. Encouraging your child during the testing process is the best thing you can do.

Finally, the visual behaviour you observe at home can be very helpful to the examiner. Especially when your child does not enjoy having their vision examined or is not having a good test day. Use your smartphones to take a video of your child doing everyday activities that illustrate what they can see, such as picking up small objects, or pointing out small pictures in a book. You might also like to have someone video their reaction when you cover either eye with your hand while they are trying to look at a book or pick up a small toy. Try to take any video without your child being aware of the camera.

What If My Child Does Not Co-Operate With The Testing?

The examiner will be used to this – and it is a perfectly appropriate and normal behaviour. Seeing the same examiner each time helps, as this builds rapport, and the concept of ‘playing’ is reinforced. Sometimes it will take a few visits to gain a child’s confidence and obtain all the information needed – and that is ok.

Supporting children to play and practice at home can make a big difference to their coping and confidence. Part 3 of this guide is written directly to children and includes a video following a young boy throgh his vision test and eye exam. We recommend reading and watching together with your child to support their preparation.

Read Part 3 - Vision Testing Guide For Kids

Give life and sight to a child with eye cancer today

DONATE
Share this page
  • Share on Facebook
  • Share on X
  • Share on WhatsApp
  • Share on Pinterest
  • Share on LinkedIn
  • Share on Tumblr
  • Share by Mail
  • Link to Instagram
  • Retinoblastoma Overview
    • How the Eye Works
    • Retinoblastoma Biology
    • Unilateral Retinoblastoma
    • Bilateral Retinoblastoma
    • Extraocular Retinoblastoma
    • Trilateral Retinoblastoma
    • Genetics of Retinoblastoma
    • Global Incidence
    • Signs and Symptoms
    • Referral and Diagnosis
    • Treatments
    • Care After Treatment
    • Prognosis
    • Retinoblastoma Glossary
  • Know the Glow
    • Fundal (Red Eye) Reflex and Red-Eye Reduction
    • White Eye Reflex
    • Photo Challenge
    • White Eye and Rb
    • White Eye after Rb Diagnosis
    • White Eye and Adults
    • PhotoRED Technique
    • Next Steps
    • Examining the Fundal / Red Reflex
  • Medical Care
    • Questions to Ask the Medical Team and Yourself
    • Diagnosis and Staging
      • Staging Systems
      • Multidisciplinary Team and Tumour Board
      • Treatment Plan and Care Pathway
      • Hospital Packing Tips
    • Retinoblastoma Genetics
      • Rb Genetics Explained
      • Mosaic Mutations
      • MYCNA Retinoblastoma
      • Genetic Counseling
      • Genetic Testing
      • Genetic Test Results
      • Pre-implantation Genetic Diagnosis (PGD)
      • Genetics Glossary
    • A Therapeutic Alliance
      • Your Child’s Doctors
      • Good Communication
      • Resolving Conflict
      • Second Opinions
      • Changing Doctors
      • Medical Staff
    • Medical Procedures
      • Informed Consent
      • Procedure Pain
      • Blood Draw
      • Bone Marrow Aspiration
      • Bone Scan
      • Chest X-ray
      • CT Scan
      • Echocardiogram
      • EUA
      • Eye Pressure Test
      • General Anaesthetic
      • Hearing Tests
      • Inserting an IV
      • Intrathecal Injection
      • Lumbar Puncture
      • MRI Scan
      • Radionuclide GFR
      • Subcutaneous Injection
      • Taking a Temperature
      • Transfusion
      • Ultrasound of the Eye
      • Vision Testing
      • Vision Testing – Support Your Child
      • Vision Testing – Just For Kids!
    • Treatment
      • Risk of Under-Treatment and Over-Treatment
        • Reduce Risk of Under-Treatment and Over-Treatment
      • Treatment Decision Making Guide
        • Step 1 – Acknowledge Your Thoughts and Feelings
        • Step 2 – Understand Your Decision-Making Style
        • Step 3 – Find Your Expert Team
        • Step 4 – Understand Shared Decision Making and Informed Consent
        • Step 5 – Set an Intention to Make Balanced Decisions
        • Step 6 – Learn About Retinoblastoma
        • Step 7 – Evaluate Your Options
        • Step 8 – Consider Your Values and Goals
        • Step 9 – Manage Disagreement and Conflict
        • Step 10 – Make Your Decision
        • Step 11 – Review Your Decision
        • Step 12 – Support Your Child and Yourself
        • Review the 12 Decision Making Steps
      • Enucleation
        • Making the Decision
        • Eye Removal Surgery
        • Orbital Implants
        • Types of Orbital Implant
        • Side Effects
        • Pathology
        • After Surgery
        • Coping with Other People
        • Artificial Eyes
        • Artificial Eye Care
      • Focal Therapy
        • Laser
        • Cryotherapy
        • Periocular Chemotherapy
        • Intravitreal Chemotherapy
      • Chemotherapy
        • Chemotherapy for Rb
        • Intra-Arterial Chemotherapy
        • Regimens and Protocols
        • During Treatment
        • Central Venous Catheter
        • CVC Care and Risks
        • Blood Test Results
        • When to Call the Doctor
      • Radiation Therapy
        • Radioactive Plaque
        • Coping With Isolation
        • Radiotherapy
        • Radiotherapy Planning
        • Treatment Process
        • EBRT Side Effects
        • Ask the Doctor
      • Transplant
        • Types of Transplant
        • Transplant Process
        • Coping With Transplant
        • Complications
        • Long-term side effects
        • Ask the Doctor
      • Side Effects
        • Low Blood Counts
        • Pneumonia and Chickenpox
        • Protect Your Neutropaenic Child
        • Pets and Infection Risk
        • Fatigue
        • Pain
        • Hair Loss
        • Nausea and Vomiting
        • Taste Changes
        • Oral Care
        • Skin and Nails
        • Diarrhoea
        • Constipation
        • Bed Wetting
        • When to Call the Doctor
      • Occlusion Therapy (Eye Patching)
        • Introduction to Eye Patching
        • Preparing to Patch
        • Support Your Patching Child
        • Eye Patching – Just For Kids!
    • Clinical Research
      • Clinical Research Introduction
      • Clinical Research Phases
      • Protocol Document
      • Monitoring and Safety
      • Rb Clinical Research
      • Informed Consent
      • Ask the Investigator
      • Ethnography Research
      • Patient-Led Research – A New Approach
      • Patient-Led Research – Challenges and Development
    • Surviving Hospital
      • Advocate for Your Child
      • Packing for Hospital
      • Hospital Life
      • Your Child’s Space
      • Record Keeping
      • Recreation
    • International Care
      • Contacting Doctors
      • Finances and Fundraising
      • Travel and Housing
      • Questions to Ask
    • End of Treatment
      • Celebration
      • Follow Up Care
      • Follow Up Schedule
      • Life-Long Follow Up
      • Removing the Central Line
      • A New Normal
      • Relapse
      • Second Primary Cancers
      • Symptoms of Second Primary Cancers
      • Ask the Doctors
    • End of Life Care
      • Changing Treatment Goals
      • Palliative Care
  • Child Life
    • Child Life is More Than Play
      • The Art of Child Life
    • Procedure Support
      • Stay Calm
      • Make a Plan
      • Medical Play
      • Distraction Play
      • Comfort Positions
      • Giving Eye Drops
      • Support for Needle Procedures
      • Anaesthetic Induction
      • Preparing for Surgery
      • Preparing for Enucleation
      • Imaging Scans
      • HandWashing for Kids
      • Reduce Face Touching
    • Pain Management
      • Know the Signs of Pain
      • Manage Pain
      • Mind-Body Strategies
    • Living With a Special Eye
      • Before Enucleation
      • Going to the Ocularist
      • Making an Artificial Eye
      • Handling the Special Eye
      • Keeping the Eye in Place
      • The Young Child Living With a Special Eye
      • The Older Child Living With a Special Eye
      • When There Is No Eye
    • Psychological Support
      • Reduce Your Stress
      • Infant Massage Training
      • Talking With Kids About Vision Loss
      • Talking About Vision Loss – For Kids!
      • Support and Encourage
      • Coping With Difference
      • Worry Eaters Guide
      • Personal Story Books
      • Youth Retinoblastoma Support at Upopolis
      • Camp Sunshine Rb Week
      • Activities for Isolating With Children
      • Post-Traumatic Stress Disorder in Childhood Cancer
  • Living With Retinoblastoma
    • Children
      • Children Learn From You
      • Sibling Responses
      • Support Siblings
      • Communicate
      • Reduce Stress
      • Tantrums
      • Discipline
    • Parents
      • Emotional Responses
      • Manage Anger
      • Depression and PTSD
      • Look After Yourself
      • Relationships
      • Sharing the News
      • Update People
      • Seek and Accept Help
    • Grandparents
      • Genetic Implications
      • How You Can Help
      • Look After Yourself
    • School Life
      • Effects of Treatment
      • Preparing For School
      • School Activities
      • Artificial Eye Care
      • Infection Control
      • Older Children
      • Advice for Teachers
    • Eye Care
      • Prevent Eye Injury
      • First Aid for the Eyes
      • Nutrition for the Eyes
    • Bereavement
      • End Of Life Care
      • Before the Funeral
      • Acts of Remembrance
      • Parental Grief
      • Sibling Grief
      • Carrying the Torch
    • Focus on Hope
      • False Hope
      • Encourage Hope
      • The First Alphabet of Hope
      • Alphabet of Hope 2018
      • Alphabet of Hope 2019 – #LifeBeyondRb
      • Alphabet of Hope 2020 – #FamilyInSight
      • Alphabet of Hope 2021 – #MindAndBody
      • Alphabet of Hope 2022 – #RbCare
      • Alphabet of Hope 2023 – #RbResearch
      • Alphabet of Hope 2024 – #RbEarlyDiagnosis
      • Alphabet of Hope 2025-2026 – #RbChildLife
  • Family and Friends
    • Practical Support
    • Emotional Support
    • Financial Support
    • Giving Gifts
    • Help From Young Friends
    • Words That Help
    • Words That Harm
    • Help During the Holidays
  • Through Our Eyes
    • RAE of Hope
    • Unilateral Rb
      • John (Kenya)
      • Rati (Botswana)
      • Connor (Canada)
      • Ewan (England)
      • Rowan (USA)
      • Bisrat S (Ethiopia)
      • Alexa (Ireland)
      • Linda (Kenya)
      • Lele (China)
      • Katelyn (USA)
      • Jordan (USA)
      • Danielle (Canada)
      • Bright (Cameroon)
    • Bilateral Rb
      • Daisy (UK)
      • Aidan (Canada)
      • Libby and Ella (USA)
      • Angie, Kieran and Cameron (UK)
      • Bisrat E (Ethiopia)
      • Abby (USA)
      • Brady (USA)
      • Sera (Fiji)
      • Katy and Harry (UK)
      • Hope (South Africa)
      • Ross Richard (USA)
      • Bella (Philippines)
      • Peter (Kenya)
      • Jaymee (Australia)
      • Ella Nina (Burundi)
      • Ernest (Kenya)
    • Extraocular Rb
      • Rati (Botswana)
      • Ross Richard (USA)
      • Bella (Philippines)
      • Sera (Fiji)
      • Ella Nina (Burundi)
      • Ernest (Kenya)
      • Bright (Cameroon)
    • Trilateral Rb
      • Libby and Ella (USA)
  • Other Organizations
    • Rb Communities on Social Media
    • Retinoblastoma Organizations
    • Childhood Cancer
    • General Cancer Support
    • Emotional Support
    • Financial Support
    • Transport Providers
    • Hospital Housing
    • Support for Children
    • Support for Siblings
    • Support for Survivors
    • Cancer Camps
    • Wish Granting
    • Disability Support
    • Bereavement Support
Give Hope - Donate Now text in white on a sunny orange gold button background that fades into red, colours reflecting the WE C Hope logo.
Subscribe to Visions of Hope - text in white on a vibran yellow button background that fades into sunny orange gold, colours reflecting the WE C Hope logo.

Retinoblastoma

  • Retinoblastoma Overview
  • Know the Glow
  • Medical Care
  • Child Life Support
  • Living With Retinoblastoma
  • Through Our Eyes

Canada

Special fund at the University Health Network

Who We Are

  • Our Mission, Values, and Goals
  • Our History
  • Daisy and Rati
  • Meet Our Team
  • Contact Us

UK

Registered Charity #: 111-11-33

What We Do

  • One Rb World
  • Rati’s Challenge
  • Awareness Campaigns
  • World Rb Week
  • Supporting Families
  • WE C Hope Blog

USA

501(c)(3) National Non Profit - EIN: 45-4886827

Get Involved

  • Subscribe to Visions of Hope eNews
  • How Your Money Helps
  • Donate Now
  • Fundraise
  • Corporate Partnerships
  • Volunteer

Kenya Partner

Kenya Childhood Cancer Trust
  • FaceBook
  • instagram
  • linkedin
  • youtube
© Copyright 2023 - WE C Hope | Disclaimer | Terms & Conditions | Privacy Policy
Scroll to top Scroll to top Scroll to top
Translate »