Survivors of retinoblastoma, parents, grandparents, extended family, and friends the world over are connecting via social media, Together, we are weaving a global web of support, knowledge, experience and hope.
The following are private, moderated communities that may be valuable to you if your or a family member is affected by retinoblasoma. We hope this directory will grow in time to include resources specifically relevant to many countries and regions around the world.
If you know of a good resource not listed here, please email firstname.lastname@example.org with the information so we can look into listing it.
We bring life and sight saving opportunities to children worldwide by educating about retinoblastoma; empowering evidence-based care; and enabling effective family support. This group welcomes all in the global retinoblastoma community who wish to join us on this journey, to ensure best possible care for every child, survivor and their family.
You are welcome to join any of the following treatment center specific groups, only if your family has received care there.