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You are here: Home1 / Retinoblastoma Resource2 / Other Organizations3 / Childhood Cancer
A child life specialist uses a toy cat with removable eye to help a young girl receiving chemotherapy cope with eye removal and artificial eyes.

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Childhood Cancer Support

Many wonderful organizations around the world bring help and hope to children affected by cancer, their families and adult survivors.

The following is a selection of resources that we think may be valuable to you. We hope this directory will grow in time to include resources in many countries.

If you know of a good resource not listed within these pages, please email web@wechope.org with the information so we can look into listing it.


Alex’s Lemonade Stand (USA)

Funds childhood cancer research. Also provides small grants to defray costs of transport and lodging associated with treatment and follow-up, to families in need who do not qualify for help from the National Children’s Cancer Society.


American Childhood Cancer Organization (US)

Provides advocacy, information and support for families coping with childhood cancer. Includes sibling specific support and BaseCamp in Florida for children with cancer.


Childhood Cancer International

A network of over 160 organizations and support groups in more than 90 countries, led by parents and supporting parents of children with cancer and their families. Find a full list of members on their website. Formerly called the International Confederation of Childhood Cancer Parent Organizations (ICCCPO).


Childhood Brain Tumour foundation (US)

Funds research, provides information and referrals related to education, rehabilitation, and employment discrimination of childhood cancer survivors. Also supports a free second opinion scheme.


Childhood Cancer Canada

Provides emotional and practical support to families, offers financial grants and free holidays. Advocates for early diagnosis, effective care and legislative change to improve outcomes.


Childhood Cancer Parents Alliance (UK)

A network of over 40 organizations and support groups across the country that support parents of children and young people with cancer and their families. Advocates for early diagnosis and improved health care. Find a full list of members on their website.


CLICSargent (UK)

Provides emotional and practical support, offers small grants and free holidays at its own retreat centres. Provides housing, social workers and play specialists for paediatric oncology centres. Advocates for early diagnosis, effective care and legislative change to improve outcomes.


CureSearch (US)

Funds research to advance treatment and cure of all childhood cancers. Advocates the cause of childhood cancer at national policy-making level. Publishes “Childhood Cancerline”, a magazine detailing new treatments and advances in research.


Children’s Oncology Group (US)

Conducts collaborative research to advance care and cure of all children with cancer. Advocates the cause of childhood cancer at national policy-making level. Provides a free ePub Family Handbook with information about treatment, support, and follow-up care for children and young people with cancer.


Children With Cancer (UK)

Provides emotional and practical support to families across the country. Advocates for earlier diagnosis and improved care, and funds research.


International Society of Paediatric Oncology

Primary global organization dedicated to increasing knowledge about all aspects of childhood cancer. Aims to optimize treatments, quality of life and outcomes for all children with cancer throughout the world. Hosts annual global and regional congresses, facilitates research and sharing of research findings.


Kenya Childhood Cancer Trust (Kenya)

Advocates better outcomes for children and families through awareness and education campaigns and legislative development, supports medical advances in care through equipping of treatment facilities and research funding, provides emotional and practical support to families before, during and after treatment.


Kids Cancer Charity (UK)

Offers practical and emotional support to families of children with cancer. Provides play therapy, financial aid and family retreats.


National Children’s Cancer Society (US)

Advocates the cause of children’s cancer through financial assistance, family link up, education and awareness campaigning. Distributes Nikki’s BearTM and produces two books (free to US persons affected by cancer) entitled “The Mountain You Have Climbed” (for teen survivors) and “Sammie’s New Mask” colouring book (for young friends of children with cancer).


TeamConnor (US)

Raises awareness of childhood cancer and funds research, focusing primarily on clinical trials to improve treatment and patient outcomes.


World Child Cancer

Facilitates twinning programs between well-established childhood cancer centres (primarily in the developed world) and under-resourced centres in developing countries to advance training, treatment and outcomes.

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  • Retinoblastoma Overview
    • How the Eye Works
    • Retinoblastoma Biology
    • Unilateral Retinoblastoma
    • Bilateral Retinoblastoma
    • Extraocular Retinoblastoma
    • Trilateral Retinoblastoma
    • Genetics of Retinoblastoma
    • Global Incidence
    • Signs and Symptoms
    • Referral and Diagnosis
    • Treatments
    • Care After Treatment
    • Prognosis
    • Retinoblastoma Glossary
  • Know the Glow
    • Fundal (Red Eye) Reflex and Red-Eye Reduction
    • White Eye Reflex
    • Photo Challenge
    • White Eye and Rb
    • White Eye after Rb Diagnosis
    • White Eye and Adults
    • PhotoRED Technique
    • Next Steps
    • Examining the Fundal / Red Reflex
  • Medical Care
    • Questions to Ask the Medical Team and Yourself
    • Diagnosis and Staging
      • Staging Systems
      • Multidisciplinary Team and Tumour Board
      • Treatment Plan and Care Pathway
      • Hospital Packing Tips
    • Retinoblastoma Genetics
      • Rb Genetics Explained
      • Mosaic Mutations
      • MYCNA Retinoblastoma
      • Genetic Counseling
      • Genetic Testing
      • Genetic Test Results
      • Pre-implantation Genetic Diagnosis (PGD)
      • Genetics Glossary
    • A Therapeutic Alliance
      • Your Child’s Doctors
      • Good Communication
      • Resolving Conflict
      • Second Opinions
      • Changing Doctors
      • Medical Staff
    • Medical Procedures
      • Informed Consent
      • Procedure Pain
      • Blood Draw
      • Bone Marrow Aspiration
      • Bone Scan
      • Chest X-ray
      • CT Scan
      • Echocardiogram
      • EUA
      • Eye Pressure Test
      • General Anaesthetic
      • Hearing Tests
      • Inserting an IV
      • Intrathecal Injection
      • Lumbar Puncture
      • MRI Scan
      • Radionuclide GFR
      • Subcutaneous Injection
      • Taking a Temperature
      • Transfusion
      • Ultrasound of the Eye
      • Vision Testing
      • Vision Testing – Support Your Child
      • Vision Testing – Just For Kids!
    • Treatment
      • Risk of Under-Treatment and Over-Treatment
        • Reduce Risk of Under-Treatment and Over-Treatment
      • Treatment Decision Making Guide
        • Step 1 – Acknowledge Your Thoughts and Feelings
        • Step 2 – Understand Your Decision-Making Style
        • Step 3 – Find Your Expert Team
        • Step 4 – Understand Shared Decision Making and Informed Consent
        • Step 5 – Set an Intention to Make Balanced Decisions
        • Step 6 – Learn About Retinoblastoma
        • Step 7 – Evaluate Your Options
        • Step 8 – Consider Your Values and Goals
        • Step 9 – Manage Disagreement and Conflict
        • Step 10 – Make Your Decision
        • Step 11 – Review Your Decision
        • Step 12 – Support Your Child and Yourself
        • Review the 12 Decision Making Steps
      • Enucleation
        • Making the Decision
        • Eye Removal Surgery
        • Orbital Implants
        • Types of Orbital Implant
        • Side Effects
        • Pathology
        • After Surgery
        • Coping with Other People
        • Artificial Eyes
        • Artificial Eye Care
      • Focal Therapy
        • Laser
        • Cryotherapy
        • Periocular Chemotherapy
        • Intravitreal Chemotherapy
      • Chemotherapy
        • Chemotherapy for Rb
        • Intra-Arterial Chemotherapy
        • Regimens and Protocols
        • During Treatment
        • Central Venous Catheter
        • CVC Care and Risks
        • Blood Test Results
        • When to Call the Doctor
      • Radiation Therapy
        • Radioactive Plaque
        • Coping With Isolation
        • Radiotherapy
        • Radiotherapy Planning
        • Treatment Process
        • EBRT Side Effects
        • Ask the Doctor
      • Transplant
        • Types of Transplant
        • Transplant Process
        • Coping With Transplant
        • Complications
        • Long-term side effects
        • Ask the Doctor
      • Side Effects
        • Low Blood Counts
        • Pneumonia and Chickenpox
        • Protect Your Neutropaenic Child
        • Pets and Infection Risk
        • Fatigue
        • Pain
        • Hair Loss
        • Nausea and Vomiting
        • Taste Changes
        • Oral Care
        • Skin and Nails
        • Diarrhoea
        • Constipation
        • Bed Wetting
        • When to Call the Doctor
      • Occlusion Therapy (Eye Patching)
        • Introduction to Eye Patching
        • Preparing to Patch
        • Support Your Patching Child
        • Eye Patching – Just For Kids!
    • Clinical Research
      • Clinical Research Introduction
      • Clinical Research Phases
      • Protocol Document
      • Monitoring and Safety
      • Rb Clinical Research
      • Informed Consent
      • Ask the Investigator
      • Ethnography Research
      • Patient-Led Research – A New Approach
      • Patient-Led Research – Challenges and Development
    • Surviving Hospital
      • Advocate for Your Child
      • Packing for Hospital
      • Hospital Life
      • Your Child’s Space
      • Record Keeping
      • Recreation
    • International Care
      • Contacting Doctors
      • Finances and Fundraising
      • Travel and Housing
      • Questions to Ask
    • End of Treatment
      • Celebration
      • Follow Up Care
      • Follow Up Schedule
      • Life-Long Follow Up
      • Removing the Central Line
      • A New Normal
      • Relapse
      • Second Primary Cancers
      • Symptoms of Second Primary Cancers
      • Ask the Doctors
    • End of Life Care
      • Changing Treatment Goals
      • Palliative Care
  • Child Life
    • Child Life is More Than Play
      • The Art of Child Life
    • Procedure Support
      • Stay Calm
      • Make a Plan
      • Medical Play
      • Distraction Play
      • Comfort Positions
      • Giving Eye Drops
      • Support for Needle Procedures
      • Anaesthetic Induction
      • Preparing for Surgery
      • Preparing for Enucleation
      • Imaging Scans
      • HandWashing for Kids
      • Reduce Face Touching
    • Pain Management
      • Know the Signs of Pain
      • Manage Pain
      • Mind-Body Strategies
    • Living With a Special Eye
      • Before Enucleation
      • Going to the Ocularist
      • Making an Artificial Eye
      • Handling the Special Eye
      • Keeping the Eye in Place
      • The Young Child Living With a Special Eye
      • The Older Child Living With a Special Eye
      • When There Is No Eye
    • Psychological Support
      • Reduce Your Stress
      • Infant Massage Training
      • Talking With Kids About Vision Loss
      • Talking About Vision Loss – For Kids!
      • Support and Encourage
      • Coping With Difference
      • Worry Eaters Guide
      • Personal Story Books
      • Youth Retinoblastoma Support at Upopolis
      • Camp Sunshine Rb Week
      • Activities for Isolating With Children
      • Post-Traumatic Stress Disorder in Childhood Cancer
  • Living With Retinoblastoma
    • Children
      • Children Learn From You
      • Sibling Responses
      • Support Siblings
      • Communicate
      • Reduce Stress
      • Tantrums
      • Discipline
    • Parents
      • Emotional Responses
      • Manage Anger
      • Depression and PTSD
      • Look After Yourself
      • Relationships
      • Sharing the News
      • Update People
      • Seek and Accept Help
    • Grandparents
      • Genetic Implications
      • How You Can Help
      • Look After Yourself
    • School Life
      • Effects of Treatment
      • Preparing For School
      • School Activities
      • Artificial Eye Care
      • Infection Control
      • Older Children
      • Advice for Teachers
    • Eye Care
      • Prevent Eye Injury
      • First Aid for the Eyes
      • Nutrition for the Eyes
    • Bereavement
      • End Of Life Care
      • Before the Funeral
      • Acts of Remembrance
      • Parental Grief
      • Sibling Grief
      • Carrying the Torch
    • Focus on Hope
      • False Hope
      • Encourage Hope
      • The First Alphabet of Hope
      • Alphabet of Hope 2018
      • Alphabet of Hope 2019 – #LifeBeyondRb
      • Alphabet of Hope 2020 – #FamilyInSight
      • Alphabet of Hope 2021 – #MindAndBody
      • Alphabet of Hope 2022 – #RbCare
      • Alphabet of Hope 2023 – #RbResearch
      • Alphabet of Hope 2024 – #RbEarlyDiagnosis
      • Alphabet of Hope 2025-2026 – #RbChildLife
  • Family and Friends
    • Practical Support
    • Emotional Support
    • Financial Support
    • Giving Gifts
    • Help From Young Friends
    • Words That Help
    • Words That Harm
    • Help During the Holidays
  • Through Our Eyes
    • RAE of Hope
    • Unilateral Rb
      • John (Kenya)
      • Rati (Botswana)
      • Connor (Canada)
      • Ewan (England)
      • Rowan (USA)
      • Bisrat S (Ethiopia)
      • Alexa (Ireland)
      • Linda (Kenya)
      • Lele (China)
      • Katelyn (USA)
      • Jordan (USA)
      • Danielle (Canada)
      • Bright (Cameroon)
    • Bilateral Rb
      • Daisy (UK)
      • Aidan (Canada)
      • Libby and Ella (USA)
      • Angie, Kieran and Cameron (UK)
      • Bisrat E (Ethiopia)
      • Abby (USA)
      • Brady (USA)
      • Sera (Fiji)
      • Katy and Harry (UK)
      • Hope (South Africa)
      • Ross Richard (USA)
      • Bella (Philippines)
      • Peter (Kenya)
      • Jaymee (Australia)
      • Ella Nina (Burundi)
      • Ernest (Kenya)
    • Extraocular Rb
      • Rati (Botswana)
      • Ross Richard (USA)
      • Bella (Philippines)
      • Sera (Fiji)
      • Ella Nina (Burundi)
      • Ernest (Kenya)
      • Bright (Cameroon)
    • Trilateral Rb
      • Libby and Ella (USA)
  • Other Organizations
    • Rb Communities on Social Media
    • Retinoblastoma Organizations
    • Childhood Cancer
    • General Cancer Support
    • Emotional Support
    • Financial Support
    • Transport Providers
    • Hospital Housing
    • Support for Children
    • Support for Siblings
    • Support for Survivors
    • Cancer Camps
    • Wish Granting
    • Disability Support
    • Bereavement Support
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