Childhood Cancer Support
Many wonderful organizations around the world bring help and hope to children affected by cancer, their families and adult survivors.
The following is a selection of resources that we think may be valuable to you. We hope this directory will grow in time to include resources in many countries.
If you know of a good resource not listed within these pages, please email firstname.lastname@example.org with the information so we can look into listing it.
Alex’s Lemonade Stand (USA)
Funds childhood cancer research. Also provides small grants to defray costs of transport and lodging associated with treatment and follow-up, to families in need who do not qualify for help from the National Children’s Cancer Society.
American Childhood Cancer Organization (US)
Provides advocacy, information and support for families coping with childhood cancer. Includes sibling specific support and BaseCamp in Florida for children with cancer.
Childhood Cancer International
A network of over 160 organizations and support groups in more than 90 countries, led by parents and supporting parents of children with cancer and their families. Find a full list of members on their website. Formerly called the International Confederation of Childhood Cancer Parent Organizations (ICCCPO).
Childhood Brain Tumour foundation (US)
Funds research, provides information and referrals related to education, rehabilitation, and employment discrimination of childhood cancer survivors. Also supports a free second opinion scheme.
Provides emotional and practical support to families, offers financial grants and free holidays. Advocates for early diagnosis, effective care and legislative change to improve outcomes.
Childhood Cancer Parents Alliance (UK)
A network of over 40 organizations and support groups across the country that support parents of children and young people with cancer and their families. Advocates for early diagnosis and improved health care. Find a full list of members on their website.
Provides emotional and practical support, offers small grants and free holidays at its own retreat centres. Provides housing, social workers and play specialists for paediatric oncology centres. Advocates for early diagnosis, effective care and legislative change to improve outcomes.
Funds research to advance treatment and cure of all childhood cancers. Advocates the cause of childhood cancer at national policy-making level. Publishes “Childhood Cancerline”, a magazine detailing new treatments and advances in research.
Children’s Oncology Group (US)
Conducts collaborative research to advance care and cure of all children with cancer. Advocates the cause of childhood cancer at national policy-making level. Provides a free ePub Family Handbook with information about treatment, support, and follow-up care for children and young people with cancer.
Children With Cancer (UK)
Provides emotional and practical support to families across the country. Advocates for earlier diagnosis and improved care, and funds research.
International Society of Paediatric Oncology
Primary global organization dedicated to increasing knowledge about all aspects of childhood cancer. Aims to optimize treatments, quality of life and outcomes for all children with cancer throughout the world. Hosts annual global and regional congresses, facilitates research and sharing of research findings.
Kenya Childhood Cancer Trust (Kenya)
Advocates better outcomes for children and families through awareness and education campaigns and legislative development, supports medical advances in care through equipping of treatment facilities and research funding, provides emotional and practical support to families before, during and after treatment.
Kids Cancer Charity (UK)
Offers practical and emotional support to families of children with cancer. Provides play therapy, financial aid and family retreats.
National Children’s Cancer Society (US)
Advocates the cause of children’s cancer through financial assistance, family link up, education and awareness campaigning. Distributes Nikki’s BearTM and produces two books (free to US persons affected by cancer) entitled “The Mountain You Have Climbed” (for teen survivors) and “Sammie’s New Mask” colouring book (for young friends of children with cancer).
Raises awareness of childhood cancer and funds research, focusing primarily on clinical trials to improve treatment and patient outcomes.
Facilitates twinning programs between well-established childhood cancer centres (primarily in the developed world) and under-resourced centres in developing countries to advance training, treatment and outcomes.