A global directory connecting families, survivors, and doctors to expert care.
Finding the right care quickly can mean the difference between saving a child’s life, sight—or both. But many doctors and families don’t know where to turn when a child is diagnosed with retinoblastoma.
The One Retinoblastoma World Map is a growing global directory of treatment centres, created to guide families and medical professionals toward the best care available and build stronger international collaboration.
The Challenge
Retinoblastoma is a rare cancer that requires specialized expertise. Yet many children are referred to hospitals that lack experience with this disease – or receive no referral at all.
In Low- and Middle-Income Countries (LMICs), children are often sent home undiagnosed, or referred to facilities without the necessary knowledge, skills, or equipment. Some are told to seek care abroad, even when qualified teams exist locally.
In High-Income Countries (HICs), referrals are typically made to major children’s hospitals or cancer centres. While these are centres of excellence, they may see very few retinoblastoma cases each year—too few to maintain expertise or stay current with the latest treatments.
Families often face devastating decisions without trusted guidance. Some travel long distances at great personal cost to reach well-known centres, when equally capable care may be available closer to home.
This lack of accessible information leads to preventable loss of sight, life, and hope.
Our Solution
We created the One Retinoblastoma World Map – a global, searchable directory of retinoblastoma treatment centres, built with information directly from participating hospitals.
Each centre shares details about its:
- Imaging and treatment resources.
- Multidisciplinary expertise.
- Number of patients treated.
Families, doctors, and specialists can use this tool to identify the most appropriate facility for each child – whether nearby or across borders. For example, they can assess the:
- Capacity for surgical eye removal and prosthetic rehabilitation.
- Experience with vision-saving therapies.
- Ability to treat advanced, extraocular disease.
- Support for post-treatment follow-up and survivor care.
The map also strengthens global connections, helping treatment teams share knowledge and collaborate more effectively.
Impact of the One Rb World Map
This growing resource is helping to close the gap between diagnosis and expert care. The map empowers:
- Families and survivors, who can make informed decisions and avoid unnecessary hardship.
- Medical professionals, who can refer children with more confidence and precision.
- Treatment teams, who can connect, learn from each other, and work together more closely.
As participation grows, the One Rb World Map is building a foundation for better global care, stronger collaboration, and more equitable access to life- and sight-saving treatment for every child.
Explore the directory and help us grow this life-changing resource.
