Discover the bravery, heartache, love and hope of our heroes around the world.
Children, adult survivors and their families share their experience of retinoblastoma and how it has shaped their lives.
Their trauma, courage, strength, overcoming and loss motivates us to continue fighting for earlier diagnosis, more research and evidence-based care – especially for the children who currently have no hope of cure.
Watch the wonderful RAE of Hope videos – Raising Awareness and Empowerment by shining a light on childhood eye cancer.
The stories below are grouped by diagnosis, to help parents and survivors quickly find those with shared experiences.
From Our Blog
Triplets with Cancer: Surviving and Thriving Through the Unexpected
A retinoblastoma diagnosis is often shocking for parents, and the journey through complex specialist care can be highly stressful. RB1 genetics mean this cancer often affects more than one child in a family. Leslie Low shares her experience of caring for her triplets – all diagnosed with cancer in both eyes, and the things that helped her family cope; physically, psychologically, and practically.
Life After Enucleation: 8 Retinoblastoma Survivors Share Hope
Enucleation, Life and Support: A Parent and Survivor Perspective
July 6, 2020 | When a child has retinoblastoma, removing the affected eye remains the most common treatment worldwide to save life. Support is vital throughout treatment and long after. Lori and Grace Padilla share the perspective of a parent and a young adult survivor, their thoughts on enucleation, and the benefits of in-person support groups.
Father Braille: A Wonderfully Dotty Relationship
The Retinoblastoma Rollercoaster
Friendships Through Retinoblastoma
Life Through Sam’s Eyes – How Our Blind Son Helped Us See
January 27, 2018 | What does it mean to be told your 12 week old baby has a rare eye cancer? Jim Valavanis shares his experience of first-time parenting, nearly five years of childhood cancer treatment, and Life Through Sam’s Eyes – the hope-filled book that emerged from his healing journey.
Visit the Our Stories Category of our blog for more articles featuring personal experiences of retinoblastoma survivors and families.
