Many wonderful organizations around the world bring help and hope to children affected by cancer, their families and adult survivors.
The following is a selection of resources that we think may be valuable to you. We hope this directory will grow in time to include resources in many countries.
If you know of a good resource not listed within these pages, please email web@wechope.org with the information so we can look into listing it.
Many childhood cancer organizations offer programs specifically for childhood cancer survivors.
Childhood Cancer Survivorship Study (USA/Canada)
Launched in 1994, this collaborative study involving hospitals in the USA and Canada set out to deepen understanding of cancer late effects, increase survival, and minimize harmful health effects in childhood cancer survivors. More than 24,000 survivors were surveyed and followed for long-term health outcomes. Around 5,000 siblings were also recruited as comparison subjects.
Children’s Oncology Group (USA)
Conducts collaborative research to advance care and cure of all children with cancer. Advocates the cause of childhood cancer at national policy-making level. Provides a searchable database of childhood cancer survivorship and late effects clinic programs across the country.
Coalition Against Childhood Cancer Survivorship Toolkit (USA/International)
Provides a comprehensive online library of survivorship resources for childhood cancer survivors, families, and professionals. Sections cover education, insurance and financial health, physical health and late effects, psychosocial wellbeing, transition to adulthood, and healthy living. More than 1,000 curated resources developed with input from experts and experienced advocates.
CAC2 Childhood Cancer Hub (Primarily USA/Canada)
From the Coalition Against Childhood Cancer. The hub includes Better Together, a curated, community-driven resource directory listing organizations that offer survivorship programs, services, and assistance. Resources are primarily within the United States and Canada, with a small number of international organizations listed. Also at the hub, Hope Portal displays non-profit organizations supporting children and teens with cancer and their families during treatment.
National Children’s Cancer Society (USA)
Advocates the cause of children’s cancer through financial assistance, family link up programmes, education and awareness campaigning. Produces “The Mountain You Have Climbed” for teen survivors (free to US residents affected by cancer).
National Coalition for Cancer Survivorship (USA)
A survivor-led organization advocating improvements in access to healthcare for long term survivors of cancer. Provides a free Cancer Survival Toolbox to anyone affected by cancer, in addition to an extensive publications list. Maintains CanSearch, a guide to online cancer resources.
Office of Cancer Survivorship (USA)
Founded in 1996 within the National Cancer Institute, the Office of Cancer Control conducts research and develops evidence-based resources to improve cancer prevention, care, survivorship, and population health.
The Office of Cancer Survivorship (OCS) promotes research on the long-term physical, emotional, social, and financial effects of cancer and its treatment, helping to improve survivors’ health and quality of life. OCS also provides evidence-based information and educational programs to patients, physicians, and the public about cancer survivorship.
