Support for Survivors of Childhood Cancer
Many wonderful organizations around the world bring help and hope to children affected by cancer, their families and adult survivors.
The following is a selection of resources that we think may be valuable to you. We hope this directory will grow in time to include resources in many countries.
If you know of a good resource not listed within these pages, please email firstname.lastname@example.org with the information so we can look into listing it.
Many childhood cancer organizations offer programs specifically for childhood cancer survivors.
Childhood Cancer Survivorship Study (USA/Canada)
Launched in 1994, this collaborative study involving hospitals in the USA and Canada set out to deepen understanding of cancer late effects, increase survival, and minimize harmful health effects in childhood cancer survivors. More than 24,000 survivors were surveyed and followed for long-term health outcomes. Around 5,000 siblings were also recruited as comparison subjects.
Conducts collaborative research to advance care and cure of all children with cancer. Advocates the cause of childhood cancer at national policy-making level. Provides a searchable database of childhood cancer survivorship and late effects clinic programs across the country.
A survivor-led organization advocating improvements in access to healthcare for long term survivors of cancer. Provides a free Cancer Survival Toolbox to anyone affected by cancer, in addition to an extensive publications list. Maintains CanSearch, a guide to online cancer resources.
Founded in 1996 within the National Cancer Institute, OCS funds research on survivorship issues. OCS is dedicated to developing the infrastructure–such as databases and researcher networks–that supports the follow-up needed to study long-term survivors. OCS also supports programs to educate patients, physicians, and the public about cancer survivorship. Finally, much of the research supported by OCS is aimed at interventions that can lessen the burden of cancer survivors.
Advocates the cause of children’s cancer through financial assistance, family link up programmes, education and awareness campaigning. Produces “The Mountain You Have Climbed” for teen survivors (free to US residents affected by cancer).