Local in-person support specific to the needs of families and survivors affected by retinoblastoma is much needed but very rare. Lisa Hester, mother of a young Rb survivor, reflects on the second WE C Hope California Family Day, held in August 2019, the seeds of our mission to bring this support to all across America.
A diagnosis of childhood eye cancer impacts families in so many ways, during the immediate crisis of treatment, and years after “cure”. Knowing you are not alone on the journey is the greatest comfort and strength. Five mothers reflect on the healing power of Camp Sunshine, a retreat that cares for the entire family when cancer strikes.
Just 3 paediatric oncologists serve Ghana’s population of 29 million, but this dedicated team leads one of the best childhood cancer programs in West Africa. Dr. Vera Essuman (paediatric ophthalmologist) and Prof. Lorna Renner (paediatric oncologist) discuss retinoblastoma in Ghana and the development of care for children with eye cancer across the country.
On March 10, 2019, our beloved child life specialist Jayne Kamau died aboard Ethiopian Airlines flight ET302 as she returned home from SIOPAfrica in Cairo. WE C Hope Child Life Director, Morgan Livingstone, reflects on more than a decade of mentoring, friendship and working together to advance child life in Kenya. Co-authored with WE C Hope CEO, Abby White.
Today we celebrate Rati, the beautiful, bright, bubbly butterfly who came so briefly into our lives, changed us all so dramatically and inspired the foundation of WE C Hope. Ultimately, expert care came too late and we could not save her life. Rati had plans of her own though. She taught us to see and hear and understand the needs of families like her own, and she challenged us to do something to help change their experience of retinoblastoma.
Child4Child invites the world’s children join in the chorus of a new song created by Disney’s Frozen Composer, Christophe Beck. Performed by some of YouTube’s top singing kids, “We Are One” will be released on International Childhood Cancer Day, February 15, including the voices of children from around the world.
Looking forward to Daisy Fund’s Africa Bush Trek marking Childhood Cancer Month 2014, Abby White recalls her 2005 adventure through Tanzania’s captivating wilderness. An epic experience raising funds that bring hope of life and sight saving care to children with eye cancer and their families.
11 years ago, a new baby girl was born in Botswana. Four short years later, retinoblastoma claimed her life. Her name means love, and today, her legacy continues to build hope for other children around the world.
Recently, a number of people have asked why we promote the childhood cancer gold ribbon and not a ribbon uniquely for retinoblastoma. This is a good question – here are our three key reasons…