A crimson bauble hangs in focus, golden fairy lights reflected in its shiny surface, one glowing particularly white. The tree and lights are blurred in the background.

12 Ways to Have a More Joyful Holiday

This season can be particularly tough when childhood cancer or its long term effects loom large for a family or individual. Retinoblastoma survivor and volunteer CEO, Abby White, shares advice for creating a calmer, more spacious and joyful Holiday, where self-care for all takes priority.

Image: The word “bullying” is positioned in the middle of a white circle, defined by a red outer line. A diagonal red line runs from top right to bottom left of the circle. Other words are seen in pale colours throughout the white circle. These words are:

Bullying After Retinoblastoma: How to Help Kids Respond With Confidence

Children diagnosed with retinoblastoma are especially vulnerable and sensitive to bullying due to treatment effects. Morgan Livingstone CCLS discusses what bullying is and isn’t, how parents can recognize the signs, and help young Rb survivors use stories and develop skills to stand up to bullies with confidence.

A young girl wearing medical gloves, glasses and a stethascope prepares to practive a procedure on a medical play puppet.

6 Ways to Help Older Children and Teens Cope With and Conquer Hospital Anxiety

Many children and teenagers experience anxiety with medical interactions after retinoblastoma diagnosis.  Pediatric registered nurse and child life intern, Michelle Badejo, describes how hospital anxiety can manifest, and explores how parents can help them cope, be active participants in their ongoing care, and raise their quality of life.

A large group photo, showing 40+ people of all ages.

A Day Well Spent – California Family Day

Local in-person support specific to the needs of families and survivors affected by retinoblastoma is much needed but very rare. Lisa Hester, mother of a young Rb survivor, reflects on the second WE C Hope California Family Day, held in August 2019, the seeds of our mission to bring this support to all across America.

Distant view of families and volunteers gathered on a wooden bridge over a serene pond, and around its margins. All the vibrant colours of the people, forest, blue sky and impending golden sunset are reflected in the wishpond’s still waters.

Reflections of Camp Sunshine by Rb Moms

A diagnosis of childhood eye cancer impacts families in so many ways, during the immediate crisis of treatment, and years after “cure”. Knowing you are not alone on the journey is the greatest comfort and strength. Five mothers reflect on the healing power of Camp Sunshine, a retreat that cares for the entire family when cancer strikes.

Five smooth pebbles are stacked in decreasing size on a beach, where lively surf rolls into shore. The high sky is clear blue, with a few clouds above the horizon, which is lightly tinged with a pale peachy glow of sunrise or sunset.

Mindfulness Tips for Retinoblastoma Families and Supporting Teachers

Living with the daily effects of childhood eye cancer can be overwhelming, for all family members. Both the immediate crisis of diagnosis and treatment, and the long-term impacts and risks. Child Life Intern and Student Teacher, Meagan Fuller, highlights some simple mindfulness techniques parents and children can use to ease daily tension.

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Retinoblastoma Survivors’ Perspectives on Long-Term Follow up Care

Many retinoblastoma survivors live with significant long term treatment impacts and second cancer risks. Yet most children, adult survivors and their families struggle to access appropriate ongoing care. Len Burns, a totally blind bilateral Rb survivor and licensed family therapist, highlights the most common survivor concerns, and potential ways to improve long term care and quality of life.

Jayne and a child are pictured wearing long yarn wigs of different colours.

Jayne Kamau, My Friend and Colleague

On March 10, 2019, our beloved child life specialist Jayne Kamau died aboard Ethiopian Airlines flight ET302 as she returned home from SIOPAfrica in Cairo. WE C Hope Child Life Director, Morgan Livingstone, reflects on more than a decade of mentoring, friendship and working together to advance child life in Kenya. Co-authored with WE C Hope CEO, Abby White.

A young boy practices giving eye drops to a medical play puppet.

10 Ways to Support Your Child Through EUA for Retinoblastoma

Examinations Under Anaesthetic (EUA) are an essential part of retinoblastoma diagnosis, treatment, and surveillance follow up care. Combining content from our Child Life Resource, Morgan Livingstone CCLS CIMI MA reviews 10 ways parents can support children of all ages through the experience to benefit everyone’s wellbeing.

This image features two pieces of text, above and below an image of a stick family, ranged in order of height from the tall father through mother and various children to the family dog. Above: “When a child is diagnosed with cancer, the whole family is affected.” A gold ribbon sits behind the word “diagnosed”. Below the family: “Please support a local family in your community who has a child battling for their life. Bold for gold! Childhood cancer awareness and hope.”

Talking About Your Child’s Cancer Diagnosis With Family and Friends

Talking about a child’s cancer with family and friends can be deeply cathartic for parents one day, and utterly exhausting the next. Asking for and receiving help can be a minefield too. Morgan Livingstone CCLS explores why this is so, and offers tips and tools to reduce stress, improve coping and boost effective practical support.