A fennec fox with a small round white face, dark round eyes and nose and very large ears is framed against the orange-brown desert of North Africa. Text above and below the picture reads “Tell me more… I’m all ears.”

The Gift of Listening to Ourselves: how compassionate self-enquiry can reduce stress and help us heal

We all need to be heard, but how often do we truly listen to ourselves? Living or working with retinoblastoma can be emotionally overwhelming. WE C Hope CEO and Rb survivor, Abby White, shares personal experience of some listening techniques that help her cope with daily challenging thoughts and strong emotions such as anger, fear and worry.

A black father smiles broadly as he and his happy son play toy cars together.

Why Joy is a Superpower and How to Nurture Daily Joy – Even in Tough Times

As the COVID-19 pandemic continues, people worldwide are grappling with isolation, uncertainty, fear, and grief – for a lost way of life, and for relatives and friends. In these tough times, just like the retinoblastoma journey, nurturing joy is vital to help mind and body release tension and nourish hope. Morgan Livingstone CCLS explains why joy is a superpower, and how we can nurture it in ourselves and others.

Lesley is sitting talking to a family in the hospital playroom. There are no other people in the frame. They are sitting at a round table, dad is holding his young son on his lap The child is wearing a Woody Toy Story character outfit, and laughing. Mum is sitting at the same table, wearing a green top and is laughing. Lesley is wearing a flowery top, is talking to the family and smiling. There are colourful toys on the table.

Childhood Eye Cancer Trust Support Workers: helping UK families and individuals through treatment and beyond

A retinoblastoma diagnosis is distressing for a family, its effects often lifelong. CHECT Support Workers help families and individuals in the UK, from diagnosis and throughout life. Support Service Manager, Lesley Geen, describes how CHECT Support Workers collaborate with the medical team to care for the whole family, and the different support services offered at each stage of life.

Sandra is pictured with two young children on EUA day. Mila is wearing a lilac tulle dress with a white long-sleeved shirt underneath, and white sandals. She is holding a pink unicorn and white teddy bear. Levi is wearing a white t-shirt and denim shorts, holding as soft lion toy. Sandra is squatting behind them, her arms wrapped around both children. She is wearing dark blue scrubs.

My life as a Retinoblastoma Care Co-ordinator

From the moment a child is diagnosed with retinoblastoma, even from when their parent first takes them to the doctor, life is a rollercoaster, a whirlwind of information, decisions, and grief. Sandra Staffieri describes her role as Retinoblastoma Care Co-ordinator at the Royal Children’s Hospital, Melbourne, how the role evolved, challenges faced, and the unexpected joys experienced despite it all.

Young patients put a brannula in the arm of a medical play puppet. They are wearing surgical gloves.

Child Life in Kenya: The Sally Test Child Life Program

Children with cancer experience invasive procedures and stressful events throughout their medical care that can impact their ability to cope, inhibit their development and negatively affect their health and well-being throughout life. Child life supports effective healthcare and reduces trauma. Morgan Livingstone CCLS describes how WE C Hope is bringing hope through Child Life to children and their families in Africa.

A young teenage boy wearing glasses leans in towards a large computer screen on the desk in front of him. Text on the screen has been blurred for privacy. A smaller screen sits on his right, and an iPad can be seen to his right.

Online Learning Challenges and How to Help Kids with Vision-Loss Thrive

Children with vision loss from retinoblastoma need accommodations and extra support to access online learning and thrive in the virtual school world. Rb survivor and Orientation and Mobility Specialist, Jessica Givens, explores key challenges of online education, and the best ways to help children reach their potential in the virtual classroom.

A cream deconrated stone lays on a bed of grey stones. The word “Breathe” is written across the stone in flowing black script, accented with white dots. The portion of stone below the word is decorated with waves and water droplets in light, mid and dark blue, and mid green. They are all outlined in a series of tiny white dots.

Breathing for Wellness: Why Breath Matters, and 8 Ways to Breathe Out Stress

When we are anxious or angry, we tense up and hold our breath, or breathe fast and shallow, further increasing stress. Slow, deep breathing almost instantly diffuses tension, helping us feel calm, clear-headed and in control. Abby White explores why our bodies react this way, and how we can use our breath to restore calm fast.

Flood: “Once you hear the sentence “your child has cancer” it is a constant flood till the end of treatment. It’s a flood of emotions, flood of information, flood of doubts, but in the middle of the flood you look at your child and you find the strength to keep your head out of water to survive.” Jackie, Mother of a Rb fighter. Image to the right shows a black and white photo taken underwater of a submerged woman wearing a long, white, sleeveless dress. Her face is above the waterline as her feet appear to be paddling and her arms extend to the sides.

Alphabet of Hope: Rewriting the Future of Retinoblastoma Care

After a year of publishing the #FamilyInSight Alphabet of Hope, we bring you the complete collection of 2020 Entries. This is the third #AlphabetOfHope. WE C Hope CEO, Abby White looks back at the alphabet’s genesis, and the insight, wisdom and motivation this literary project brings to the retinoblastoma community.

The words “Thank You” are written in script on a dark red background infused with light, surrounded by glowing red, gold and white love hearts.

Happy Holidays from World Eye Cancer Hope!

2020 has been eventful and challenging for the whole world.  Throughout, WE C Hope has continued to serve, unite and advance our global retinoblastoma community. WE C Hope USA President and retinoblastoma survivor, Marissa Gonzalez, reflects on the year’s highlights with thanks, and shares some plans for the coming year.

Celebrating the Holidays with a Child in Treatment

The end of year Holidays are more important than ever when a child has cancer, but they can also bring extra burdens on top of intensive treatment. Child Life Specialist, Morgan Livingstone, offers advice on how to create a magical Holiday for the whole family when a child is in treatment, with self-care at the heart of thoughtful planning.