A young smiling girl holds a certificate that states "First Day of Pre-School 2018-2019".

How to Support Learning For Children With Vision Loss

Most children with retinoblastoma experience some degree of vision loss that requires accommodations and support to reach their potential in school. Four vision professionals, who have experience of retinoblastoma, review the supports children may need, and what parents can do to help secure them.

A female doctor wearing scrubs and a brightly coloured surgical cap sits at the head of a surgical table on which a baby is lying with a tube inserted in her mouth to control her breathing. In one hand, the doctor holds a device that shines a bright light onto the eye, and in the other, a small probe held over the eye. Cables from both are draped around her neck. Two doctors stand behind her, observing.

EUA Frequency During and After Retinoblastoma Treatment

Parents of children with retinoblastoma ask how often their child’s eyes should be examined under anaesthetic, and if schedules vary depending on type of eye salvage treatment. Abby White, in collaboration with a specialist from one leading US treatment center, helps to answer these important questions.

Marissa smiles as she holds a gold Kendra Scott jewelry box in her left hand and a One Retinoblastoma World 2017 program in her right hand. She is wearing a grey top and the Elisa Gold Triple Strand Necklace in Ivory Mother-of-Pearl. The necklace combines three chains with unique personalities and Kendra Scott’s iconic oval shape to create a layered look. The photo is taken outside, where a Stars and stripes flag is visible in the top right background.

Give Back This September with Kendra Scott

Our first virtual family event was a great success, with added sparkle from Kendra Scott jewelry. Please help us support more families by shopping at KendraScott.com on Sat 12 – Sun 13 September. They’ll donate to WE C Hope 20% of sales made using code GIVEBACK8400. Shine gold this September Childhood Cancer Month.

Eleni stands on a waterside path. A little distance behid her, a fountain shoots a tall jet of water high into the air.

Life After Enucleation: 8 Retinoblastoma Survivors Share Hope

Despite advances in eye saving therapy for retinoblastoma, removing a child’s eye remains the most common treatment worldwide. Rb survivor and WE C Hope CEO, Abby White, shares her perspective of life after enucleation, and experiences from seven fellow survivors, offering hope to parents facing the reality of enucleation.

The gold pin on a compass points to the word "survivorship"

7 Survivorship Tips and Tricks: navigating the adult post-retinoblastoma world

Diagnosis and treatment of eye cancer in early childhood is only the start of a lifelong story for many individuals affected by retinoblastoma. Marissa Gonzalez, Rb survivor and President of World Eye Cancer Hope USA, shares seven tips for being an active participant in your retinoblastoma survivorship journey.

If You Tell Them, They Will Know: raising awareness of retinoblastoma signs can save lives, eyes and sight.

Strabismus (turned eye) and leukocoria (white pupil) are the most common early signs of retinoblastoma.  Sandra Staffieri, Rb Care Co-ordinator at the Royal Children’s Hospital, Melbourne, explores why parent and healthcare provider awareness of these signs is vital to early diagnosis of childhood eye cancer.

A female adult plays patient, cared for by a group of children dressed in medical outfits. She wears an eye patch on her left eye, and the children put bandaids on her arms. One of the children is wearing an anaesthetic mask.

Child Life Programs: Play With Purpose at Retinoblastoma Gatherings

Eye cancer is a potentially overwhelming experience for young children, whether patient or sibling. Child life can radically improve care and life for the entire family, but too many children lack access to this specialist support. Abby White shares how WE C Hope supported Child Life programs are helping to change that.

International Care: Challenges and Opportunities

Families and medical professionals worldwide seek retinoblastoma care at centres offering treatments that are unavailable in their home country. Many families contact WE C Hope for assistance before, during or after such treatment. Abby White explores the challenges they experience and what can be done to help improve outcomes for their children.

Text above reads: "Speak Up" Image of an open book, its pages glowing gold and emitting sparks of light. Text below reads: "Share Your Retinoblastoma Story."

4 Key Ways Sharing Your Story Makes a Difference, and Tips for Telling

Every individual in the retinoblastoma community has a unique story to tell – whether parent, survivor, sibling, professional, extended family member or supporter. Abby White explores the importance of storytelling, and the many ways in which sharing your story can make a difference – to your own life, and to the world.

Close up of a child with leukocoria detected by CRADLE, with results boxes around both eyes and magnified images of both eyes below the main photo.

From CRADLE to Care: Your Photos Can Help Scientists Build an App for Parents to Diagnose Serious Child Eye Disease Early.

A White pupil is the most common early sign of eye cancer in young children, and it’s usually seen first in photos. Do you want to turn your smartphone into a powerful cancer-detector? Mark Billings, WE C Hope USA Director, tells the story behind the CRADLE app and explains how you can help scientists improve it.