https://wechope.org/wp-content/uploads/2019/05/Alone-on-a-Park-Bench-2.jpg 427 640 Abby https://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpg Abby2019-05-27 09:53:362020-04-27 10:08:34Retinoblastoma Survivors’ Perspectives on Long-Term Follow up Care
Retinoblastoma Survivors’ Perspectives on Long-Term Follow up Care
Many retinoblastoma survivors live with significant long term treatment impacts and second cancer risks. Yet most children, adult survivors and their families struggle to access appropriate ongoing care. Len Burns, a totally blind bilateral Rb survivor and licensed family therapist, highlights the most common survivor concerns, and potential ways to improve long term care and quality of life.