• Subscribe to Our Email Newsletter – Visions of Hope
  • Home
  • Contact Us
WE C Hope
  • Link to Facebook
  • Link to Instagram
  • Link to LinkedIn
  • Link to Youtube
  • Link to Mail
  • About WE C Hope
    • Our Mission, Values, and Goals
    • Our History
    • Daisy and Rati
    • Daisy’s Story
    • Rati’s Story
    • Meet Our Team
    • Chapters and Partners
    • Contact Us
  • Find Hope
    • Rb Overview
      • How the Eye Works
      • Rb Biology
      • Unilateral Rb
      • Bilateral Rb
      • Extraocular Rb
      • Trilateral Rb
      • Genetics
      • Signs & Symptoms
      • Referral & Diagnosis
      • Treatments
      • Care After Treatment
      • Prognosis
      • Glossary
    • Know the Glow
      • Fundal (Red Eye) Reflex and Red-Eye Reduction
      • White Eye Reflex
      • Photo Challenge
      • White Eye and Rb
      • White Eye and Adults
      • PhotoRED Technique
      • Next Steps
      • Examining the Fundal / Red Reflex
    • Medical Care
      • Diagnosis and Staging
      • Genetics
      • A Therapeutic Alliance
      • Medical Procedures
      • Treatment
        • Enucleation
        • Focal Therapy
        • Chemotherapy
        • Radiation Therapy
        • Transplant
        • Side Effects
      • Clinical Research
      • Surviving Hospital
      • International Care
      • End of Treatment
      • End of Life Care
    • Child Life
      • More Than Play
      • Procedure Support
      • Pain Management
      • Special Eyes
      • Psychological Support
    • Living With Rb
      • Children
      • Parents
      • Grandparents
      • School Life
      • Eye Care
      • Bereavement
      • Focus on Hope
    • Family and Friends
    • Through Our Eyes
    • Other Organizations
  • Programs
    • Awareness Campaigns
      • Alphabet of Hope
        • 2025-26 Alphabet – #RbChildLife
        • Previous Alphabets of Hope
      • World Rb Week
      • Gold Ribbon Month
      • International Childhood Cancer Day
    • Rati’s Challenge
      • Retinoblastoma in LMICs
      • Kenya National Rb Strategy
      • Early Detection
      • Child Life & Family Support
      • In Memory of Jayne and Bella
    • One Rb World
      • Best Practice Guidelines
      • One Rb World Map
      • Global Research Community
      • One Rb World Conference
    • Supporting Families
      • Retinoblastoma Information
      • Help for Individual Families
      • Social Media Groups
      • Virtual Events
      • USA Family Days
      • Family Focus at One Rb World
  • Events
    • Fundraising Events
    • Rb Family Days & Weekends
    • One Rb World Conference
    • Save The Date
    • Recent Events
  • One Rb World
    • About the Conference
    • View Past Sessions
    • One Rb World 2026
    • One Rb World 2024
    • One Rb World 2021
    • One Rb World 2020
    • One Rb World 2017
  • Give Hope
    • How Your Money Helps
    • My Story
    • Donate
      • Donate Online Now
      • Donate by Post
      • In Kind Gifts
      • Leave a Legacy
    • Fundraise
      • Create a Fundraising Page
      • WE C Hope Merch
      • Hold Your Own Event
      • WE C Hope Events
      • Sporting Challenges
      • Overseas Challenges
      • Corporate Partnerships
    • Volunteer
      • Volunteer Opportunities
  • News & Media
    • WE C Hope Blog
    • Visions of Hope eNews
    • Media Resources
  • Chapters & Partners
    • Canada
    • UK
    • USA
    • Kenya – Partner
  • Donate
  • Click to open the search input field Click to open the search input field Search
  • Menu Menu
You are here: Home1 / WE C Hope Blog
Photo of a child in a ball pool with one red eye and one white eye. Overlaid text reads: "Know the Glow. Take regular flash photos of your child without red eye reduction. If you don't see a red reflex, see an eye doctor!"

Give hope - DONATE NOW!

WE C Hope Blog

A fuzzy, brown teddy bear sits on a table with a blue table cloth. The bear has red and black plaid feet, a cream snout, black eyes, a brown nose, and a black smile. A nasograstric tube and a gastrostomy tube are inserted, and an IV pole and IV fluids are seen to the side. Behind the bear is a teddy bear sized hospital bed and a green curtain.

Play – The Key Ingredient to Pediatric Medical Care

December 1, 2025

Play is the language, university, and business of childhood. Medical play is a key part of child-focused health care, helping young patients learn, reduce fear, and take part in their care. Sophie Goldberg, child life intern and student of Child Life and Pediatric Psychosocial Care, explores what medical play is, and how you can use it to empower your child through their medical experiences.

Read more
https://wechope.org/wp-content/uploads/2022/04/Picture1.png 1113 833 Abby White https://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpg Abby White2025-12-01 08:00:562025-12-01 08:01:35Play – The Key Ingredient to Pediatric Medical Care
Rowan and Harry sit at a table, chatting.

Friendships Through Retinoblastoma

November 24, 2025

A diagnosis of childhood cancer can leave parents feeling adrift and utterly alone. The friends who walk with them through their child’s medical care are often cherished lifelong, and from a central thread in their own healing. Megan Santos reflects on the many friendships formed before, during and after her daughter’s treatment for retinoblastoma.

Read more
https://wechope.org/wp-content/uploads/2018/08/Rowan-and-Harry.jpg 720 960 Abby White https://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpg Abby White2025-11-24 08:00:022025-11-24 08:05:08Friendships Through Retinoblastoma
A woman faces a crying young girl, gazing at her with a concerned expression as the child site with her head in her hands. She is resting one comforting hand against the girl’s head, and the other on her opposite forearm.

Your Child is Not Misbehaving: How Stress Affects Behaviour

November 10, 2025

All children exhibit undesirable behaviour at times, particularly when they are stressed, but deliberate misbehaviour is rare. Paediatric nurse and child life specialist, Cindy Pilchuk, explores how a child’s brain responds to stress and emotional overwhelm, what their stress behaviour may be trying to say, and how parents and caregivers can help children cope better.

Read more
https://wechope.org/wp-content/uploads/2022/02/Mother-Child-Tantrums3.jpg 350 750 Abby White https://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpg Abby White2025-11-10 08:00:422025-11-10 08:04:09Your Child is Not Misbehaving: How Stress Affects Behaviour
A baby has a squint - the right eye is rutned in towards the nose.

18 Commonly Confused Retinoblastoma Terms, What They Mean and Why Getting Them Right Matters.

October 27, 2025

Do you know the difference between lazy eye and squint, or an ocular oncologist and a paediatric oncologist? Do you know when extraocular Rb becomes metastatic, or why trilateral Rb is neither of these? In Part 1 of a mini-series, WE C Hope CEO Abby White explains these and other terms, and why using them correctly is important.

Read more
https://wechope.org/wp-content/uploads/2018/11/Esotropia1.jpg 496 550 Abby White https://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpg Abby White2025-10-27 08:00:422025-10-27 08:04:2018 Commonly Confused Retinoblastoma Terms, What They Mean and Why Getting Them Right Matters.
Young patients put a brannula in the arm of a medical play puppet. They are wearing surgical gloves.

Child Life in Kenya: The Sally Test Child Life Program

October 13, 2025

Children with cancer experience invasive procedures and stressful events throughout their medical care that can impact their ability to cope, inhibit their development and negatively affect their health and well-being throughout life. Child life supports effective healthcare and reduces trauma. Morgan Livingstone CCLS describes how WE C Hope is bringing hope through Child Life to children and their families in Africa.

Read more
https://wechope.org/wp-content/uploads/2021/03/Liz-doing-medical-play-last-day-in-Eldoret-2014-scaled.jpg 2560 1920 Abby White https://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpg Abby White2025-10-13 08:00:342025-10-13 08:04:26Child Life in Kenya: The Sally Test Child Life Program

The Informed Parent: 6 Tips for Staying Up to Date in a Social Media World

September 29, 2025

Google, AI, and social media play an increasingly significant role in the lives of families affected by retinoblastoma, but without careful use, they can complicate a child’s medical care and even put life at risk. Dr. Jesse Berry shares her recommendations for being a safely informed, engaged parent advocate in the modern hyper-connected age.

Read more
https://wechope.org/wp-content/uploads/2018/03/Examining-Ruby-Eyes.jpg 2250 3372 Kristen Small https://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpg Kristen Small2025-09-29 08:00:252025-09-29 08:09:20The Informed Parent: 6 Tips for Staying Up to Date in a Social Media World
Jayne and a child are pictured wearing long yarn wigs of different colours.

Jayne Kamau, My Friend and Colleague

September 15, 2025

On March 10, 2019, our beloved child life specialist Jayne Kamau died aboard Ethiopian Airlines flight ET302 as she returned home from SIOPAfrica in Cairo. WE C Hope Child Life Director, Morgan Livingstone, reflects on more than a decade of mentoring, friendship and working together to advance child life in Kenya. Co-authored with WE C Hope CEO, Abby White.

Read more
https://wechope.org/wp-content/uploads/2019/03/Jayne-with-oncology-patient-wearing-Magic-Yarn-princess-wigs.jpg 1838 1769 Abby White https://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpg Abby White2025-09-15 08:00:492025-09-15 08:01:41Jayne Kamau, My Friend and Colleague
A child's hand grasps a gold ribbon. The child's hand rests in the palm of an adult hand.

Are You Childhood Cancer Aware?

September 1, 2025

Why should we be concerned about childhood cancer awareness when it accounts for only 1-3% of all cancers? Surely its rarity means the impact on society and childhood deaths is low? Not True! Bilateral Rb survivor and WE C Hope CEO, Abby White, explores the realities of childhood cancer, sharing personal experience, and insights from parents and fellow survivors,

Read more
https://wechope.org/wp-content/uploads/2017/08/Gold-Ribbon-Hands.jpg 960 720 Abby White https://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpg Abby White2025-09-01 08:00:352025-09-01 08:06:36Are You Childhood Cancer Aware?
a baby plays with an anaesthetic mask

7 Ways Caregivers Can Support Infant Mental Health during Cancer Care.

August 18, 2025

Infants experience a wide range of emotions, the depths of which are just beginning to be understood. Morgan Livingstone CCLS discusses how the external environment influences infant mental health, and the varied ways parents and medical professionals can help babies cope and thrive through medical interventions.

Read more
https://wechope.org/wp-content/uploads/2018/06/1RBworld2017-After-Mask-Play-Support.jpg 3226 2419 Abby White https://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpg Abby White2025-08-18 08:00:392025-08-18 08:04:267 Ways Caregivers Can Support Infant Mental Health during Cancer Care.
Children’s program volunteer, Bethany, sits crisscross on the floor and holds a green stuffed animal out to two children. Linden kneels and places eye drops in the stuffed animal’s eyes while Myra and Bethany smile and watch.

Our Retinoblastoma Community Shines in the Golden City

August 4, 2025

Childhood eye cancer and its lifelong impacts can overwhelm and isolate – connecting with others who understand is vital for healing. On May 3rd, 2025, 40 young patients, survivors, families and friends gathered to celebrate and support the amazing Rb community in Northern California. Bethany Folks, WE C Hope USA Executive Assistant and Event Volunteer, reflects on a wonderful afternoon with Rb families in the Bay Area.

Read more
https://wechope.org/wp-content/uploads/2025/07/7.-Linden-Myra-do-Eyedrops-with-Bethany.jpg 1600 2400 Abby White https://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpg Abby White2025-08-04 08:00:012025-08-04 18:33:57Our Retinoblastoma Community Shines in the Golden City
Page 3 of 25‹12345›»

Give life and sight to a child with eye cancer today

DONATE

Recent Posts

  • Twenty Years of Rati’s Legacy: The Light and Weight of Carrying Hope
  • Child Life in Retinoblastoma Care
  • Breastfeeding When Your Child Has Retinoblastoma
  • Personal Story Books: Empower Your Child to Celebrate Who They Are
  • Challenging the Global Retinoblastoma Burden on World Population Day

Categories

  • Art For Eyes
  • Awareness
  • Canada
  • Child Life
  • Daisy Bake
  • Fundraising
  • Genetics
  • Hope
  • Kenya
  • Living With Rb
  • Medical Care
  • One Rb World
  • Our Stories
  • Rati’s Challenge
  • Research
  • Resources
  • Retinoblastoma
  • Support
  • Survivorship
  • UK
  • Uncategorized
  • USA
  • WE C Hope

Archives

  • August 2026
  • July 2026
  • June 2026
  • May 2026
  • April 2026
  • March 2026
  • February 2026
  • January 2026
  • December 2025
  • November 2025
  • October 2025
  • September 2025
  • August 2025
  • July 2025
  • June 2025
  • May 2025
  • April 2025
  • March 2025
  • February 2025
  • January 2025
  • December 2024
  • November 2024
  • October 2024
  • September 2024
  • August 2024
  • July 2024
  • June 2024
  • May 2024
  • April 2024
  • March 2024
  • February 2024
  • January 2024
  • December 2023
  • November 2023
  • October 2023
  • September 2023
  • August 2023
  • July 2023
  • June 2023
  • May 2023
  • April 2023
  • March 2023
  • February 2023
  • January 2023
  • December 2022
  • November 2022
  • October 2022
  • September 2022
  • August 2022
  • June 2022
  • May 2022
  • March 2022
  • January 2022
  • December 2021
  • November 2021
  • October 2021
  • September 2021
  • August 2021
  • July 2021
  • June 2021
  • May 2021
  • April 2021
  • March 2021
  • February 2021
  • January 2021
  • December 2020
  • November 2020
  • October 2020
  • September 2020
  • August 2020
  • July 2020
  • June 2020
  • May 2020
  • April 2020
  • March 2020
  • February 2020
  • January 2020
  • December 2019
  • November 2019
  • October 2019
  • September 2019
  • July 2019
  • May 2019
  • April 2019
  • January 2019
  • December 2018
  • November 2018
  • September 2018
  • May 2018
  • February 2018
  • January 2018
  • December 2017
  • October 2017
  • August 2017
  • July 2017
  • June 2017
  • May 2017
  • December 2016
  • November 2016
  • September 2016
  • July 2016
  • March 2016
  • February 2016
  • January 2016
  • October 2015
  • August 2015
  • May 2015
  • March 2015
  • June 2014
  • May 2014
  • April 2014
  • December 2013
  • March 2013
  • February 2013
  • June 2012
  • May 2012
  • March 2012
  • January 2012
  • December 2011
  • October 2011
  • May 2011
Give Hope - Donate Now text in white on a sunny orange gold button background that fades into red, colours reflecting the WE C Hope logo.
Subscribe to Visions of Hope - text in white on a vibran yellow button background that fades into sunny orange gold, colours reflecting the WE C Hope logo.

Retinoblastoma

  • Retinoblastoma Overview
  • Know the Glow
  • Medical Care
  • Child Life Support
  • Living With Retinoblastoma
  • Through Our Eyes

Canada

Special fund at the University Health Network

Who We Are

  • Our Mission, Values, and Goals
  • Our History
  • Daisy and Rati
  • Meet Our Team
  • Contact Us

UK

Registered Charity #: 111-11-33

What We Do

  • One Rb World
  • Rati’s Challenge
  • Awareness Campaigns
  • World Rb Week
  • Supporting Families
  • WE C Hope Blog

USA

501(c)(3) National Non Profit - EIN: 45-4886827

Get Involved

  • Subscribe to Visions of Hope eNews
  • How Your Money Helps
  • Donate Now
  • Fundraise
  • Corporate Partnerships
  • Volunteer

Kenya Partner

Kenya Childhood Cancer Trust
  • FaceBook
  • instagram
  • linkedin
  • youtube
© Copyright 2023 - WE C Hope | Disclaimer | Terms & Conditions | Privacy Policy
Scroll to top Scroll to top Scroll to top
Translate »