Parents and survivors shared their thoughts on the “Through Our Eyes” wall at the One Rb World meeting in Washington D.C., 9-11 October 2017. These powerful insights were gathered anonymously via this website during September 2017, and highlight wide-ranging concerns.
https://wechope.org/wp-content/uploads/2017/10/Through-Our-Eyes-Display.jpg18752500Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2026-02-16 08:00:322026-02-16 08:06:04Through Our Eyes at One Retinoblastoma World 2017
Children with retinoblastoma face frequent, stressful procedures that shape trust, pain perception, and medical experience long after treatment. Calm, coordinated support can change everything. WE C Hope CEO, Abby White, and Child Life Specialist, Morgan Livingstone, introduce One Voice – an approach that unifies coaching, empowers parents, and helps teams deliver safer, kinder care – with practical tools families and clinicians can use today.
https://wechope.org/wp-content/uploads/2019/02/IMG_2111.jpg6831024Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2026-02-02 08:00:492026-05-25 06:16:02One Voice: How Calm Coaching Transforms Children’s Medical Care
One Retinoblastoma World is community, conversation, and collaboration in action. Families, survivors, and professionals unite to share knowledge and lived experience, shaping lifelong Rb care and support. WE C Hope CEO, Abby White, and WE C Hope USA President, Marissa D. Gonzalez, both Rb survivors, explore why being together in San Antonio this September matters so deeply for all in our community.
https://wechope.org/wp-content/uploads/2017/10/RB-child-aunt-Joanna-perkowska-from-Poland-seeks-advice-from-Dr-Kate-Paton.jpg476640Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2026-01-29 19:21:592026-01-29 19:41:58Why Being There Matters: Community, Collaboration, and Care at One Retinoblastoma World 2026
Living with the daily effects of childhood eye cancer can be overwhelming, for all family members. Both the immediate crisis of diagnosis and treatment, and the long-term impacts and risks. Child Life Intern and Student Teacher, Meagan Fuller, highlights some simple mindfulness techniques parents and children can use to ease daily tension.
Routine blood tests and immunizations often cause pain and fear. Retinoblastoma screening, diagnosis, treatment and follow-up care involves countless needle procedures. It doesn’t have to hurt! Parents and professionals can bring comfort and calm to any needle procedure. Rb survivor and WE C Hope founder, Abby White; and Child Life Specialist, Morgan Livingstone, explore practical, evidence-based ways to reduce needle pain and support healthy coping for babies and children.
https://wechope.org/wp-content/uploads/2019/10/Distraction1.jpg306250Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2026-01-05 08:00:362026-01-06 16:36:13It Doesn’t Have to Hurt: How to Make Needle Procedures Kinder for Kids
In September 2025, 140 survivors, patients, family members, friends and medical professionals gathered at Children’s Hospital Los Angeles for the 7th Southern California Rb Family Day, sharing laughter, tears, and powerful solidarity. WE C Hope USA President and Founding Board Member, Marissa D. Gonzalez, reflects on this transformative day filled with love and light, and the hope and healing nurtured in community.
https://wechope.org/wp-content/uploads/2025/12/All-Guests-Wide-Shot.jpg11192100Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2025-12-15 08:00:572025-12-15 01:39:077th SoCal Rb Family Day Grows a Resilient Community Where No One Faces Retinoblastoma Alone
Play is the language, university, and business of childhood. Medical play is a key part of child-focused health care, helping young patients learn, reduce fear, and take part in their care. Sophie Goldberg, child life intern and student of Child Life and Pediatric Psychosocial Care, explores what medical play is, and how you can use it to empower your child through their medical experiences.
https://wechope.org/wp-content/uploads/2022/04/Picture1.png1113833Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2025-12-01 08:00:562025-12-01 08:01:35Play – The Key Ingredient to Pediatric Medical Care
A diagnosis of childhood cancer can leave parents feeling adrift and utterly alone. The friends who walk with them through their child’s medical care are often cherished lifelong, and from a central thread in their own healing. Megan Santos reflects on the many friendships formed before, during and after her daughter’s treatment for retinoblastoma.
All children exhibit undesirable behaviour at times, particularly when they are stressed, but deliberate misbehaviour is rare. Paediatric nurse and child life specialist, Cindy Pilchuk, explores how a child’s brain responds to stress and emotional overwhelm, what their stress behaviour may be trying to say, and how parents and caregivers can help children cope better.
https://wechope.org/wp-content/uploads/2022/02/Mother-Child-Tantrums3.jpg350750Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2025-11-10 08:00:422025-11-10 08:04:09Your Child is Not Misbehaving: How Stress Affects Behaviour
Do you know the difference between lazy eye and squint, or an ocular oncologist and a paediatric oncologist? Do you know when extraocular Rb becomes metastatic, or why trilateral Rb is neither of these? In Part 1 of a mini-series, WE C Hope CEO Abby White explains these and other terms, and why using them correctly is important.
https://wechope.org/wp-content/uploads/2018/11/Esotropia1.jpg496550Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2025-10-27 08:00:422025-10-27 08:04:2018 Commonly Confused Retinoblastoma Terms, What They Mean and Why Getting Them Right Matters.
Through Our Eyes at One Retinoblastoma World 2017
Parents and survivors shared their thoughts on the “Through Our Eyes” wall at the One Rb World meeting in Washington D.C., 9-11 October 2017. These powerful insights were gathered anonymously via this website during September 2017, and highlight wide-ranging concerns.
One Voice: How Calm Coaching Transforms Children’s Medical Care
Children with retinoblastoma face frequent, stressful procedures that shape trust, pain perception, and medical experience long after treatment. Calm, coordinated support can change everything. WE C Hope CEO, Abby White, and Child Life Specialist, Morgan Livingstone, introduce One Voice – an approach that unifies coaching, empowers parents, and helps teams deliver safer, kinder care – with practical tools families and clinicians can use today.
Why Being There Matters: Community, Collaboration, and Care at One Retinoblastoma World 2026
One Retinoblastoma World is community, conversation, and collaboration in action. Families, survivors, and professionals unite to share knowledge and lived experience, shaping lifelong Rb care and support. WE C Hope CEO, Abby White, and WE C Hope USA President, Marissa D. Gonzalez, both Rb survivors, explore why being together in San Antonio this September matters so deeply for all in our community.
Mindfulness Tips for Retinoblastoma Families and Supporting Teachers
Living with the daily effects of childhood eye cancer can be overwhelming, for all family members. Both the immediate crisis of diagnosis and treatment, and the long-term impacts and risks. Child Life Intern and Student Teacher, Meagan Fuller, highlights some simple mindfulness techniques parents and children can use to ease daily tension.
It Doesn’t Have to Hurt: How to Make Needle Procedures Kinder for Kids
Routine blood tests and immunizations often cause pain and fear. Retinoblastoma screening, diagnosis, treatment and follow-up care involves countless needle procedures. It doesn’t have to hurt! Parents and professionals can bring comfort and calm to any needle procedure. Rb survivor and WE C Hope founder, Abby White; and Child Life Specialist, Morgan Livingstone, explore practical, evidence-based ways to reduce needle pain and support healthy coping for babies and children.
7th SoCal Rb Family Day Grows a Resilient Community Where No One Faces Retinoblastoma Alone
In September 2025, 140 survivors, patients, family members, friends and medical professionals gathered at Children’s Hospital Los Angeles for the 7th Southern California Rb Family Day, sharing laughter, tears, and powerful solidarity. WE C Hope USA President and Founding Board Member, Marissa D. Gonzalez, reflects on this transformative day filled with love and light, and the hope and healing nurtured in community.
Play – The Key Ingredient to Pediatric Medical Care
Play is the language, university, and business of childhood. Medical play is a key part of child-focused health care, helping young patients learn, reduce fear, and take part in their care. Sophie Goldberg, child life intern and student of Child Life and Pediatric Psychosocial Care, explores what medical play is, and how you can use it to empower your child through their medical experiences.
Friendships Through Retinoblastoma
A diagnosis of childhood cancer can leave parents feeling adrift and utterly alone. The friends who walk with them through their child’s medical care are often cherished lifelong, and from a central thread in their own healing. Megan Santos reflects on the many friendships formed before, during and after her daughter’s treatment for retinoblastoma.
Your Child is Not Misbehaving: How Stress Affects Behaviour
All children exhibit undesirable behaviour at times, particularly when they are stressed, but deliberate misbehaviour is rare. Paediatric nurse and child life specialist, Cindy Pilchuk, explores how a child’s brain responds to stress and emotional overwhelm, what their stress behaviour may be trying to say, and how parents and caregivers can help children cope better.
18 Commonly Confused Retinoblastoma Terms, What They Mean and Why Getting Them Right Matters.
Do you know the difference between lazy eye and squint, or an ocular oncologist and a paediatric oncologist? Do you know when extraocular Rb becomes metastatic, or why trilateral Rb is neither of these? In Part 1 of a mini-series, WE C Hope CEO Abby White explains these and other terms, and why using them correctly is important.