The following articles share highlights and sessions from past One Rb World meetings and SIOP World Congress.
One Retinoblastoma World is community, conversation, and collaboration in action. Families, survivors, and professionals unite to share knowledge and lived experience, shaping lifelong Rb care and support. WE C Hope CEO, Abby White, and WE C Hope USA President, Marissa D. Gonzalez, both Rb survivors, explore why being together in San Antonio this September matters so deeply for all in our community.
Read More: Why Being There Matters: Community, Collaboration, and Care at One Retinoblastoma World 2026
One Rb World 2024 – Honolulu, Hawaii
This three-part article has multiple pages per post.
The shores of Waikiki Beach welcomed 175 guests to the 7th One Rb World conference this month, and more online, as Honolulu played host to this incredible meeting of retinoblastoma patients, survivors, families and medical professionals. Marissa D. Gonzalez, President and founding board member of World Eye Cancer Hope USA, and Conference Event Chair, reflects on the social gathering and Day One of the program in the first installment of this three-part conference review.
This is the first installment of our 3-part One Rb World 2024 Recap.
Day Two brought perspectives from around the world as we explored critical life-saving advancements in global retinoblastoma research and care. Marissa D. Gonzalez, President of World Eye Cancer Hope USA, and Conference Event Chair, shares highlights from discussions on provision and access to care, developments in science and technology, collaborations, joyful child life, and uplifting survivor stories shaping a brighter future for all.
Our Day Two recap is a 2-page article.
Read More – Provision and access to life-saving care for all.
The final day brought more deep insight, powerful calls to action, and heartfelt connection as we charted the future of retinoblastoma care together. We discussed the urgency of early detection and pursuing cure for every child, preventing cancer spread, and the impact of support on patient care. We were reminded how storytelling drives understanding and global solutions, and we closed with a joyful focus on activities that promote resilience in children and throughout life.
Our Day Three recap is a 4-page article.
Though small and far-flung, our global retinoblastoma family stands strong together. Members of WE C Hope USA’s Board of Directors and past One Rb World participants explain how this conference unites us and strengthens ohana. In trial, grief, hope, and triumph, we share and learn from our collective experience, support one another, and strive to care for all.
In the first half of this article, we met Rati and Daisy, two young children with retinoblastoma who inspired the foundation of Daisy’s Eye Cancer Fund in 2004. In part 2, Rb Survivor and Daisy Fund co-founder, Abby White, reflects on what happened after Rati died – our journey to World Eye Cancer Hope (WE C Hope), One Rb World, and advocacy for all children, survivors and families.
When Retinoblastoma Care Co-ordinator Sandra Staffieri left Australia in August 2012 for a conference in Italy and a tour of Rb centres in North America, she had no idea how radically the journey would change her life and care at the Royal Children’s Hospital, Melbourne. Yet as she departed, One Rb World, the key destination on her trip, was not even on her itinerary. 12 years later, the impact of that trip continues…
On 1-3 October, we hosted a hope-filled One Rb World 2021 meeting. Planning and hosting is always an adventure, and the 6th One Rb World was especially so! 2021 Co-Chairs, Dr. Sandra Staffieri PhD, Retinoblastoma Care Co-Ordinator, Royal Children’s Hospital, Melbourne, Australia, and Marissa Gonzalez, Bilateral Rb Survivor and President, World Eye Cancer Hope USA, share behind-the-scenes insight and conference highlights.
In October, a diverse community of survivors, families and medical professionals came together at One Retinoblastoma World for two days of inspiring panels, research and calls to action. WE C Hope USA President Marissa D. Gonzalez shares a recap of the fifth global conference, and her vision for next year’s event in Hawaii.
Washington D.C. hosted the 4th One Rb World meeting on 9 – 11 October, just before the 49th Annual Congress of the International Society of Paediatric Oncology (SIOP). Below, we share reflections from medical professional, parent and survivor participants, and take you on a brief photographic tour of a very memorable three days.
Washington D.C. hosted the 4th One Rb World meeting on October 9 – 11, 2017, including the first US National Family & Survivor Day. WE C Hope USA President, Marissa Gonzalez, reflects on her experience planning and hosting the event, and what the One Rb World community means to her.
The following three blogs gather together themed content from meetings held since 2017.
Retinoblastoma awareness is the vital first step to cure! Early diagnosis leads to less intense treatment and better outcomes for children and their families. Sessions at every One Rb World explore how we can best raise parent, public and medical community awareness of common first signs, and develop effective screening for early detection.
Prompt, appropriate medical care is vital for all children with retinoblastoma. A range of treatments are used depending on extent of the cancer, its risk of spread, and the child’s health and wellbeing. Sessions at every One Rb World explore aspects of medical care, and how we can ensure the best possible outcomes for each child.
Retinoblastoma is a complex cancer with potentially significant and serious lifelong impacts for the survivor and all family members. Sessions at every One Rb World explore the risks and challenges survivors and families encounter beyond childhood eye cancer, and how we can improve comprehensive survivorship care throughout life.
Overcoming Rarity, Life-Long Care, Building Evidence, Family and Survivor – The Most Important Perspective
The land of 100,000 welcomes warmly greeted our global childhood cancer community between 17 – 22 October. Dublin enthusiastically hosted the 3rd One Retinoblastoma World meeting and the 48th Annual Congress of the International Society of Paediatric Oncology (SIOP). We began the week with One Retinoblastoma World, a two-day meeting of highly committed retinoblastoma specialists, parents, survivors and advocates from six continents.
Common Sense Primary Treatment, Retinoblastoma in Developing Countries, Innovations for Global Care, Pathway to Progress.
Dublin hosted the 3rd One Retinoblastoma World meeting on 17 – 18 October, just before the 48th Annual Congress of the International Society of Paediatric Oncology (SIOP). On day 1, we discussed survivorship and life-long care, building evidence and understanding family and survivor experiences to improve care.
WE C Hope co-founder, Abby White, reflects on the world’s most important annual childhood cancer conference in 2016.
Reflections from One Retinoblastoma World
Watch Reflections from the 4th One Rb World conference (2017) in Washington D.C. for a taste of what you can expect at Texas 2026 – bigger, brighter, bolder for the best care possible!
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