We bring our global Rb community together to learn, share, support, and thrive.
Retinoblastoma and its lifelong impacts can be a confusing, overwhelming, isolating experience. Most parents and survivors crave connection, knowledge, and understanding.
Our virtual events offer a vital space for everyone in our global community to meet, learn, and support one another in real time – no matter the distance or time of day around the world.
The Challenge
Retinoblastoma is rare. Families and survivors are scattered across wide geographies, and most never have the opportunity to meet others outside their hospital experience. The sense of isolation can be profound.
Even when connection is possible, many families struggle to access clear, reliable information about this complex cancer – particularly when sensational headlines about “breakthroughs” raise more questions than answers.
Mental health support, education guidance, and survivorship care are often limited or poorly coordinated. Navigation education supports for children with vision loss and early-life trauma from cancer can be especially difficult.
Adult survivors often feel overlooked, despite the lifelong impacts of retinoblastoma – including risk for second cancers, vision challenges, and psychological effects. Many long for connection with others who truly understand their lived experience.
Families and survivors alike need opportunities to share meaningful conversation, find trusted information, and feel less alone in their journey.
Our Solution
Our Virtual Events bring the global retinoblastoma community together through a variety of online gatherings tailored to different needs.
Community Meet-Ups
We host online meet-ups that offer open-hearted conversation, peer support, and shared learning. Some are informal; others feature
- Family Meet-Ups – Open to survivors and family members.
These gatherings create space to share experiences, offer encouragement, and build community across generations and geography. - Parent Meet-Ups – Just for moms, dads, and primary caregivers.
These events focus on the emotional journey of parenting through Rb, with space to ask questions, share struggles and victories, and learn from others who understand. - Survivor Meet-Ups – just for adult survivors of retinoblastoma.
These conversations foster connection, reflection, and empowerment. Many survivors are meeting peers for the first time in their life. Together, they explore identity, long-term care, family planning, advocacy, and more.
Whatever the format, each meetup helps reduce isolation, boost confidence, and build life-changing relationships grounded in shared experience.
Webinars with Medical Experts
When new treatments or research make headlines, our expert-led webinars help families and survivors understand what the news really means. These popular events provide accurate, up-to-date information from doctors, scientists, and other care specialists, empowering the community to make informed decisions and advocate effectively.
Our Child-Focused Webinars directly address the varied experiences and needs of children in treatment, siblings, and young survivors. Sessions are led in collaboration with WE C Hope child life specialist, Morgan Livingstone, helping children to process their experiences and develop effective coping skills. Knowledge and skills also empower parents to understand the child’s perspective, and support them in the best ways possible.
Back-to-School Sessions
Navigating school life during and after childhood eye cancer can be overwhelming. These events help parents understand how sight loss and cancer may affect their child’s learning. They offer practical guidance on accessing educational supports, working with schools, and preparing for the best possible academic experience.
Sessions are led by professionals such as a Teacher of the Visually Impaired (TVI), Certified Child Life Specialist (CCLS), and other advocates experienced in working with families affected by retinoblastoma.
Storytime with Morgan
Begun during the pandemic, these joyful events for children are led by our child life specialist, Morgan Livingstone. Storytime takes children on colourful adventures, often exploring big feelings and healthy coping skills. Every picture book page is described in rich detail so blind and low vision children can fully participate. Storytime nurtures connection, imagination, emotional wellness, and fun.
Virtual events remove barriers of distance and access, creating powerful opportunities to connect, learn, and support one another. Whether parent, survivor, or professional, all are welcome to join us from around the world.
