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Daisy and Rati

Welcome to World Eye Cancer Hope

Retinoblastoma is an aggressive eye cancer affecting babies and young children.  It kills 7,000 youngsters each year, and blinds many more.

The most common early sign of childhood eye cancer is a white glow in the pupil of the affected eye.  The cancer is easy to diagnose and when treated early, is very curable.

Suffering and death is highest in developing countries, where most affected children live and timely access to specialist cancer care is limited.  In developed countries, cure is above 96%, but most children experience moderate, severe or complete vision loss.  Globally, children, families and survivors experience significant emotional trauma.

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Daisy & Rati

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In Your Country


One Rb World 2024 Was Fabulous – Mahalo Nui Loa to All Who Participated!

A large, lively group of around 60 people gather in front of two trolley buses from E Noa Tours. A rocky mountains rise in the background. The group, diverse in age and background, is smiling, laughing, and posing for the camera. Many are wearing colorful leis, headbands, and sunglasses, adding to the joyful, celebratory vibe.
A cheerful family of four pose at a rugged coastal beauty spot with mountains sweeping down to the ocean in the background, under a partly cloudy sky. They are casually dressed, with two members wearing purple T-shirts featuring a vibrant One Rb World 2024 conference design including palm trees, hibiscus, and waves. The man on the right wears a maroon World Eye Cancer Hope T-shirt and a blue cap. The three adults are wearing sunglasses. They are all making funny faces and hand gestures that perhaps express thinking hard, pensive, playful, and delight. They exude lighthearted fun and clearly enjoy the moment.
Three young women pose together in a cheerful, festive setting. On the left, Destiny is a Hispanic woman wearing glasses, a purple flower in her light brown hair, a purple blouse, white skirt, and orange lei. In the middle, Journey is a young African-American girl wearing a white shirt featuring Stitch, the animated character from Disney’s Lilo & Stitch, with light blue jeans. and a big pink bow in her braided hair, On the right, Leia is a light skinned woman with curly, blonde hair, wearing glasses, a white and pink floral dress with ribbon detailing on the shoulders, and a white and purple lei crown. Destiny and Leia smile broadly with a bright, friendly vibe as they lean down to Journey’s height. Journey smiles gently, clearly enjoying the celebration.
Five panelists sit onstage at a long table draped in a white tablecloth displaying the One Rb World logo, and each has a microphone in front of them. From left to right: Lori Banos is a light skinned woman with blond hair, wearing glasses and a yellow shirt. She listens intently. Timothy Valverde has medium-light skin and short hair, and wears a light blue button-up shirt and conference lanyard. His hands are clasped in focused attention. Somer Stanley has medium-dark skin and short-cropped blond hair, and wears a red top and conference lanyard. She has a thoughtful expression as she addresses the audience. Victoria Danhakl is a medium-light skinned woman with dark shoulder-length hair, wearing a yellow floral long-sleeve top. She appears calm and observant. Mei Leng is a medium-light skinned woman with mid-length red-brown hair, wearing a white blouse and black blazer. She looks poised and absorbed in the discussion. The audience, visible in the foreground, reflects the focused, attention of the panel, whose diversity offers a sense of the unique perspectives they bring to the conversation.
On the left of a large conference room, a speaker stands at a wooden podium, addressing the audience. David is a white man wearing a blue suit. Beside him, fellow panelists sit at a long table draped with a cloth bearing the One Rb World logo. A large screen displays key discussion points on Retinoblastoma Survivorship Care – bullet points are out of focus. The audience is seated at round tables with white tablecloths, attentively listening and watching both the panelists and screen. The room is decorated in dark wood paneling and large murals depicting natural landscapes.

WE C Hope USA was delighted to host the 7th One Retinoblastoma World meeting, October 15-17 in Honolulu, Hawaii and online, right before the 56th World Congress of the International Society of Paediatric Oncology.

Uniting families, survivors, medical professionals and scientists from across the USA and around the wortd, we shared knowledge and lived experience, strengthened our global community, developed collaborations needed to advance acute and lifelong care, and access to care, for all.

Huge thanks to all our incredible speakers and participants, and our wonderful sponsors and partners who helped make this year’s event such an outstanding success.

Read part 1/3 of our conference review!
Read More About This Unique Global Event for Lifelong Rb Care

WE C Hope for All Children with Eye Cancer, Families & Survivors.

Baby with one white pupil and one red pupilIncreasing access to specialist care will bring the promise of life and sight to every child, and improved life-long health to survivors. This is our mission. We:

  • Educate the public and medical community about retinoblastoma to achieve early diagnosis and rapid referral to specialist care
  • Empower medical teams to deliver sustainable high quality evidence-based care for affected children and adult survivors.
  • Enable family support programs that reduce practical and emotional burdens and improve access to essential care

A Glint or a Squint Could Be Your Hint of Eye Cancer!!

A baby boy looks at the camera. his right eye shows a white reflex while his left eye is turned in towards his nose.

Strabismus (turned eye) and leukocoria (white pupil), the most common signs of retinoblastoma, can also occur in healthy eyes.

Being aware of these signs and seeking medical care early saves children’s lives and sight.

Prompt investigation of all signs and symptoms is vital to diagnose childhood eye cancer early. Timely diagnosis provides the best opportunity to save a child’s life and sight.

Find out more about the signs and symptoms.

Buy WE C Hope Merch and More at our TeePublic Store!

A promo card showcasing various merchandise featuring Hawaii-themed designs for the One Retinoblastoma World event. The items displayed include t-shirts, a tank top, hoodie, tote bag, phone case, and mug, in different colours, featuring a tropical scene or tiki mask design. A prominent text box in the centre states: LIMITED EDITION HAWAII DESIGNS AVAILABLE NOW! VISIT OUR TEEPUBLIC STORE. A note a the bottom Credits Rb survivor Sena Graham for the tiki mask design.

Wear your care for our retinoblastoma community with branded apparel, caps, bags, mugs, and much more.  Use our unique link, and a portion of your entire side-wide purchase benefits WE C Hope –  including thousands of unique designs.

Find out how you can help expand our range of designs, and sport your support for awareness, medical care and support for all, for life! Learn more and visit our TeePublic store today.

 

Support Kids During Needle Related Procedures

Kenyan Child Life Specialist, Jayne Kamau, distracts a young patient with a meteor shower toy while a nurse inserts an IV in her hand.

Only 5% of children have support for immunization needle pain.

Seriously ill children experience many needle related procedures, rarely with adequate pain suppor.

Pain and distress can be managed and reduced.  IT DOESN’T HAVE TO HURT.

Parents, ask how to manage your child’s pain. Healthcare providers, please give parents options.

Learn how to make needles easier and safer for everyone.

Visit our Needle Related Procedures guide to find supports for children of all ages.

WE C Hope Blog

Any child can be a princess (or prince) even after their eye is removed.

Why Refuse Eye Removal Surgery?

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1 Comment
People often ask me incredulously “why would parents refuse eye removed surgery if it’s the only way to save their child’s life?” This is a very important question. Understanding the complex answers helps us care for families to ensure children have the best chance of cure.
An overwhelmed mother comforts her child in hospital.

Two Children – Two Very Different Journeys.

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0 Comments
Two children. The same affliction. Drastically different outcomes. Yet each story represents the most common reality for children with retinoblastoma in these respective parts of the world.
Maycie's Very Special Bag

A Special Vision About Special Eyes

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0 Comments
The challenges surrounding eye removal stigma are complex, but our passion to overcome them is stronger. I feel honoured to have a special eye and to be able to use it to help spread the message and save lives.

Photographers

A baby has one red pupil and one white pupul - the classic early sign of eye cancer in children.

Know The Glow!

Learn about the most common early sign of childhood eye cancer – a white reflection in the pupil, seen in dim light and flash photos. Find out how to take photos to check for signs of serious eye disease in children.

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Parents & Survivors

Sera is smiling as she holds up a large model eye in a space filled with greenery. She has medium-toned skin, her braided hair is decorated with small white beads, and she wears a long-sleeved light pink top.

Find Hope

We offer the Retinoblastoma Resource to supplement information provided by your medical team, answer questions and concerns about all aspects of life with Rb, increase understanding and share hope.

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Family & Friends

How You Can Help

Forget “let me know if I can do anything to help”! Carefully considered and offered support will be truly valued.  We have many suggestions from parents that have brought families relief, joy and hope.

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Give Hope

Sun reflects gold on Daisy's hair as she smiles and laughs while clutching a big bunch of daisies.

Help Change Lives!

There are so many ways you can help us bring hope of cure and better quality of life to children with eye cancer, families and survivors.  Donate online now, or become a fundraising angel. Together, WE C Hope!

FIND OUT MORE

We Are Proud to Be a Member of, and Partner With…

Know the Glow logo
International Society of Ocular Oncology logo
International Society of Paediatric Oncology logo

Help us bring hope of life and sight to every child with eye cancer

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