Below is a selection of retinoblastoma specific resources. For a detailed list of organizations providing support for different aspects and stages of cancer care, please visit our Further Resources section. You will find organization lists from financial support, travel and hospital housing to emotional support, sibling care, camps and retreats, and wish granting providers.
Rb Communities on Social Media
We bring life and sight saving opportunities to children worldwide by educating about retinoblastoma; empowering evidence-based care; and enabling effective family support. This group welcomes all in the global retinoblastoma community who wish to join us on this journey, to ensure best possible care for every child, survivor and their family.
For families affected by retinoblastoma and adult survivors who live in Kenya or have received an Rb diagnosis or medical care at any hospital in Kenya. A safe, friendly, elcoming place to meet, share experiences, mutual support and encouragement.
Our Retinoblastoma Family
The following communities are created specifically for mothers, fathers, parents, grandparents, survivors or teenagers.
You must be the mother of an Rb affected child or adult to join.
You must be the father of an Rb affected child or adult to join.
Families of a Child With Retinoblastoma
A global community, established by mothers in Canada and the USA.
You must be a survivor of retinoblastoma, aged over 18 to join this group.
Childhood Cancer Organizations
Provides hands-on support for families through the experience of a child’s cancer diagnosis, treatment and recovery.
For a detailed list of organizations providing support for different aspects and stages of cancer care, please visit our Further Resources section. You will find organization lists from financial support, travel and hospital housing to emotional support, sibling care, camps and retreats, and wish granting providers.
