Rati smiles broadly

Give hope - DONATE NOW!

Inspired by

Daisy and Rati

Welcome to World Eye Cancer Hope

Retinoblastoma is an aggressive eye cancer affecting babies and young children.  It kills over 7,000 youngsters each year, and blinds many more.

The most common early sign of childhood eye cancer is a white glow in the pupil of the affected eye.  The cancer is easy to diagnose and when found early, treatment is very effective.

Suffering and death is highest in developing countries, where most affected children live and timely access to specialist cancer care is limited.  In developed countries, survival is above 96%, but most children experience moderate to severe vision loss or complete blindness.  Globally, children, families and survivors experience significant emotional trauma.

Inspired by
Daisy & Rati

In Your Country

WE C Hope for all children with eye cancer, their families and survivors.

Baby with one white pupil and one red pupilIncreasing access to specialist care will bring the promise of life and sight to every child, and improved life-long health to survivors. This is our mission. We:

  • Educate the public and medical community about retinoblastoma to achieve early diagnosis and rapid referral to specialist care
  • Empower medical teams to deliver sustainable high quality evidence-based care for affected children and adult survivors.
  • Enable family support programs that reduce practical and emotional burdens and improve access to essential care

Support Kids During Needle Related Procedures


Kenyan Child Life Specialist, Jayne Kamau, distracts a child with a meteor shower toy during a needle procedure.

Only 5% of children have support for immunization needle pain. Seriously ill children experience many needle related procedures, rarely with adequate pain support. But pain and distress can be managed and reduced.

Visit our guide to find appropriate supports for children of all ages.  Parents, ask how to manage your child’s pain. Healthcare providers, please give parents options. Learn how to make needles easier and safer for everyone.

One Retinoblastoma World: We Are Stronger Together


One Rb World 2020 Banner. Background shows the Ottawa skyline at sunset. Above the One Rb World logo, text reads: Register Now!, October 3-4, 2020, Ottawa, Canada (struckthrough text) | Virtual Conference. At the bottom of the image, text reads “Hosted By” followed by four logos of World Eye Cancer Hope, the Canadian Rb Society, Canadian Rb Research Advisory Board, and International Rb Consortium.

Join us on October 3-4, 2020 for the 5th One Rb World event, a virtual meeting this year due to COVID19.  Join Rb specialists, parents, and survivors for sessions ranging from treatment and genetics to psychosocial supports and lifelong care.

Find out more about how our community is working together to help build a bright future for all affected by childhood eye cancer, explore the 2020 program and Register for the Virtual meeting to secure your place.

Remembering Jayne, Bella and Grace, Lost on Flight ET302


On March 10, 2019, our wonderful Child Life Specialist, Jayne Kamau, and child life advocate Bella Jaboma were killed on board Ethiopian Airlines flight ET302, with Grace Kariuki, a dedicated doctor working to advance childhood cancer care.

They were all returning home to Kenya from the International Society of Paediatric Oncology Africa Congress in Cairo. Read more about our dear friends and their vital work.

WE C Hope Blog

A boy wearing a hospital gown lies in hospital bed. He is attached to many monitors and tubes, smiling and giving a thumbs up.

10 Things Parents Want You to Know About Retinoblastoma

/
Caring for a child with retinoblastoma and healthy siblings is a complex journey for parents, from before diagnosis, through treatment, and beyond. Rb Mom and WE C Hope USA director, Lori Banos, shares 10 key messages parents have for health care professionals, fellow parents and the wider community.
A woman wearing a harness stands on a ship high above the waves. The setting sun and sail ropes are visible behind her.

10 Things Retinoblastoma Survivors Want You To Know

/
Retinoblastoma is highly curable. But for many survivors, it has lifelong impacts. In 2019, our Alphabet of Hope shared survivor insights of #LifeBeyondRb. Rb Survivor and 2019 alphabet curator, Abby White, highlights 10 important messages from survivors about life beyond treatment and cure of childhood eye cancer.
The gold pin on a compass points to the word "survivorship"

7 Survivorship Tips and Tricks: navigating the adult post-retinoblastoma world

/
Diagnosis and treatment of eye cancer in early childhood is only the start of a lifelong story for many individuals affected by retinoblastoma. Marissa Gonzalez, Rb survivor and President of World Eye Cancer Hope USA, shares seven tips for being an active participant in your retinoblastoma survivorship journey.

If You Tell Them, They Will Know: raising awareness of retinoblastoma signs can save lives, eyes and sight.

/
Strabismus (turned eye) and leukocoria (white pupil) are the most common early signs of retinoblastoma.  Sandra Staffieri, Rb Care Co-ordinator at the Royal Children’s Hospital, Melbourne, explores why parent and healthcare provider awareness of these signs is vital to early diagnosis of childhood eye cancer.

Photographers

A baby has one red pupil and one white pupul - the classic early sign of eye cancer in children.

Know The Glow!

Learn about the most common early sign of childhood eye cancer – a white reflection in the pupil, seen in dim light and flash photos. Find out how to take photos to check for signs of serious eye disease in children.

Parents & Survivors

Find Hope

We offer the Retinoblastoma Resource to supplement information provided by your medical team, answer questions and concerns about all aspects of life with Rb, increase understanding and share hope.

Family & Friends

How You Can Help

Forget “let me know if I can do anything to help”! Carefully considered and offered support will be truly valued.  We have many suggestions from parents that have brought families relief, joy and hope.

Give Hope

Sun reflects gold on Daisy's hair as she smiles and laughs while clutching a big bunch of daisies.

Help Change Lives!

There are so many ways you can help us bring hope of cure and better quality of life to children with eye cancer, families and survivors.  Donate online now, or become a fundraising angel. Together, WE C Hope!

Translate »