Rati smiles broadly

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Inspired by

Daisy and Rati

Mourning Our Kenyan Friends Lost on Flight ET302 on March 10, 2019

Jayne Kamau

Jayne Kamau

Bella Jaboma Achieng

Bella Jaboma Achieng

Dr. Grace Kariuki

Dr. Grace Kariuki

On March 10, 2019, our wonderful Child Life Specialist, Jayne Kamau, and child life advocate Bella Jaboma were killed on board Ethiopian Airlines ET302 as they returned home from the International Society of Paediatric Oncology Africa Congress in Cairo. Travelling with them was Grace Kariuki, a dedicated doctor working with the Kenyan Ministry of Health to advance quality childhood cancer care. Read more, and donate in their memory…

Welcome to World Eye Cancer Hope

Retinoblastoma is an aggressive eye cancer affecting babies and young children.  It kills over 7,000 youngsters each year, and blinds many more.

The most common early sign of childhood eye cancer is a white glow in the pupil of the affected eye.  The cancer is easy to diagnose and when found early, treatment is very effective.

Suffering and death is highest in developing countries, where most affected children live and timely access to specialist cancer care is limited.  In developed countries, survival is above 96%, but most children experience moderate to severe vision loss or complete blindness.  Globally, children, families and survivors experience significant emotional trauma.

Inspired by
Daisy & Rati

In Your Country

WE C Hope for all children with eye cancer, their families and survivors.

Baby with one white pupil and one red pupilIncreasing access to specialist care will bring the promise of life and sight to every child, and improved life-long health to survivors. This is our mission. We:

  • Educate the public and medical community about retinoblastoma to achieve early diagnosis and rapid referral to specialist care
  • Empower medical teams to deliver sustainable high quality evidence-based care for affected children and adult survivors.
  • Enable family support programs that reduce practical and emotional burdens and improve access to essential care

One Retinoblastoma World

One Rb World group photo
A small group works together.

Thank you to all retinoblastoma specialists, researchers, parents and survivors who joined us for three days of collaboration, learning and development at the 4th One Rb World event in Washington D.C.

Find out more about how our community is working together to help build a bright future for all affected by childhood eye cancer across America and around the world, and what happened when we gathered in Washington D.C.

WE C Hope Blog

A group of teenagers enjoy a game of volleyball on a sand court surrounded by trees, under a cloud-dusted blue sky.

When Survivors Grow Up: Family Experiences After Retinoblastoma

Retinoblastoma is highly curable, but lifelong impacts are significant for survivors, siblings, parents and extended family. After a particularly painful personal insight, Rb survivor and WE C Hope CEO Abby White asked families and survivors about their own experiences of life beyond childhood eye cancer care.
Close-up of a baby's face

How Do I Create A Family When I Have An RB1 Mutation?

Individuals who carry an RB1 mutation have a 50% chance of passing the retinoblastoma cancer syndrome on to each child.  Melissa Mills, bilateral retinoblastoma survivor and genetic counsellor, explores the psychological and physical impacts of this experience, and the different routes to creating a family when a prospective parent has an RB1 mutation..

Photographers

A baby has one red pupil and one white pupul - the classic early sign of eye cancer in children.

Know the Glow!

Learn about the most common early sign of childhood eye cancer – a white reflection in the pupil, seen in dim light and flash photos when red-eye reduction is not used. Find out how to take photos to check for signs of serious eye disease in children.

Parents & Survivors

Find Hope

We offer the Retinoblastoma Resource to supplement information provided by your medical team, answer questions and concerns about all aspects of life with Rb, increase understanding and share hope.

About WE C Hope

Meet Daisy and Rati, and learn how the gift of hope from one to the other created light from the darkness cancer brought to their lives.

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Rb Resource

Extensive information about childhood eye cancer, from diagnosis and care to coping with treatment and the lifelong effects of this cancer.

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Our Programs

WE C Hope for all children through awareness, medical care, family support and research to improve evidence based care.

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Give Hope

There are so many ways you can help us bring hope of cure and better quality of life to children with eye cancer, families and survivors.

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