Rati smiles broadly

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Inspired by

Daisy and Rati

Welcome to World Eye Cancer Hope

Retinoblastoma is an aggressive eye cancer affecting babies and young children.  It kills over 7,000 youngsters each year, and blinds many more.

The most common early sign of childhood eye cancer is a white glow in the pupil of the affected eye.  The cancer is easy to diagnose and when found early, treatment is very effective.

Suffering and death is highest in developing countries, where most affected children live and timely access to specialist cancer care is limited.  In developed countries, survival is above 96%, but most children experience moderate to severe vision loss or complete blindness.  Globally, children, families and survivors experience significant emotional trauma.

Inspired by
Daisy & Rati

In Your Country

WE C Hope for all children with eye cancer, their families and survivors.

Baby with one white pupil and one red pupilIncreasing access to specialist care will bring the promise of life and sight to every child, and improved life-long health to survivors. This is our mission. We:

  • Educate the public and medical community about retinoblastoma to achieve early diagnosis and rapid referral to specialist care
  • Empower medical teams to deliver sustainable high quality evidence-based care for affected children and adult survivors.
  • Enable family support programs that reduce practical and emotional burdens and improve access to essential care

Families, Survivors, Specialists: Join an Rb Community Event


7 children co-create a group board game, supported by an adult. One of the children is adding to the board game with a marker

WE C Hope hosts events for our global Rb community, from virtual child life activity sessions and relaxing family days, to major collaboratve meetings that unite us all to share knowledge and move care forward together.

Read about our upcoming events, find programs and event preparation resources, and register. Please join us to connect with others who share your experience and desire that all children, survivors and families have the best care possible.

One Rb World 2021 Will be 100% Virtual on October 1-3!


A pink banner with the words “register now” spans the top of the image. Diamond Head in Honolulu is bathed in light, under a slightly cloudy blue sky. The One Rb World logo includes a yellow flower for Hawaii. Text reads: One Retinoblastoma World | Virtual Conference | October 1-3, 2021

Register Now for One Rb World 2021, 1-3 October. Though 100% virtual due to the ongoing pandemic, we promise a very warm welcome to Rb specialists, researchers, survivors and families, and an engaging program!

Our 2020 virtual program enabled unprecedented global collaboration and networking. One Rb World 2021 Virtual will be an uplifting, immersive 3 days of community and collaboration to advance care for all. Register Now!

Support Kids During Needle Related Procedures


Kenyan Child Life Specialist, Jayne Kamau, distracts a child with a meteor shower toy during a needle procedure.

Only 5% of children have support for immunization needle pain. Seriously ill children experience many needle related procedures, rarely with adequate pain support. But pain and distress can be managed and reduced.

Visit our Needle Related Procedures guide to find supports for children of all ages.  Parents, ask how to manage your child’s pain. Healthcare providers, please give parents options. Learn how to make needles easier and safer for everyone.

WE C Hope Blog

A black father smiles broadly as he and his happy son play toy cars together.

Why Joy is a Superpower and How to Nurture Daily Joy - Even in Tough Times

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As the COVID-19 pandemic continues, people worldwide are grappling with isolation, uncertainty, fear, and grief – for a lost way of life, and for relatives and friends. In these tough times, just like the retinoblastoma journey, nurturing joy is vital to help mind and body release tension and nourish hope. Morgan Livingstone CCLS explains why joy is a superpower, and how we can nurture it in ourselves and others.
Lesley is sitting talking to a family in the hospital playroom. There are no other people in the frame. They are sitting at a round table, dad is holding his young son on his lap The child is wearing a Woody Toy Story character outfit, and laughing. Mum is sitting at the same table, wearing a green top and is laughing. Lesley is wearing a flowery top, is talking to the family and smiling. There are colourful toys on the table.

Childhood Eye Cancer Trust Support Workers: helping UK families and individuals through treatment and beyond

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A retinoblastoma diagnosis is distressing for a family, its effects often lifelong. CHECT Support Workers help families and individuals in the UK, from diagnosis and throughout life. Support Service Manager, Lesley Geen, describes how CHECT Support Workers collaborate with the medical team to care for the whole family, and the different support services offered at each stage of life.
Sandra is pictured with two young children on EUA day. Mila is wearing a lilac tulle dress with a white long-sleeved shirt underneath, and white sandals. She is holding a pink unicorn and white teddy bear. Levi is wearing a white t-shirt and denim shorts, holding as soft lion toy. Sandra is squatting behind them, her arms wrapped around both children. She is wearing dark blue scrubs.

My life as a Retinoblastoma Care Co-ordinator

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From the moment a child is diagnosed with retinoblastoma, even from when their parent first takes them to the doctor, life is a rollercoaster, a whirlwind of information, decisions, and grief. Sandra Staffieri describes her role as Retinoblastoma Care Co-ordinator at the Royal Children’s Hospital, Melbourne, how the role evolved, challenges faced, and the unexpected joys experienced despite it all.
Young patients put a brannula in the arm of a medical play puppet. They are wearing surgical gloves.

Child Life in Kenya: The Sally Test Child Life Program

Children with cancer experience invasive procedures and stressful events throughout their medical care that can impact their ability to cope, inhibit their development and negatively affect their health and well-being throughout life. Child life supports effective healthcare and reduces trauma. Morgan Livingstone CCLS describes how WE C Hope is bringing hope through Child Life to children and their families in Africa.

Photographers

A baby has one red pupil and one white pupul - the classic early sign of eye cancer in children.

Know The Glow!

Learn about the most common early sign of childhood eye cancer – a white reflection in the pupil, seen in dim light and flash photos. Find out how to take photos to check for signs of serious eye disease in children.

Parents & Survivors

Find Hope

We offer the Retinoblastoma Resource to supplement information provided by your medical team, answer questions and concerns about all aspects of life with Rb, increase understanding and share hope.

Family & Friends

How You Can Help

Forget “let me know if I can do anything to help”! Carefully considered and offered support will be truly valued.  We have many suggestions from parents that have brought families relief, joy and hope.

Give Hope

Sun reflects gold on Daisy's hair as she smiles and laughs while clutching a big bunch of daisies.

Help Change Lives!

There are so many ways you can help us bring hope of cure and better quality of life to children with eye cancer, families and survivors.  Donate online now, or become a fundraising angel. Together, WE C Hope!

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