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Inspired by

Daisy and Rati

Welcome to World Eye Cancer Hope

Retinoblastoma is an aggressive eye cancer affecting babies and young children.  It kills over 7,000 youngsters each year, and blinds many more.

The most common early sign of childhood eye cancer is a white glow in the pupil of the affected eye.  The cancer is easy to diagnose and when found early, treatment is very effective.

Suffering and death is highest in developing countries, where most affected children live and timely access to specialist cancer care is limited.  In developed countries, survival is above 96%, but most children experience moderate to severe vision loss or complete blindness.  Globally, children, families and survivors experience significant emotional trauma.

Inspired by
Daisy & Rati

In Your Country

WE C Hope for all children with eye cancer, their families and survivors.

Baby with one white pupil and one red pupilIncreasing access to specialist care will bring the promise of life and sight to every child, and improved life-long health to survivors. This is our mission. We:

  • Educate the public and medical community about retinoblastoma to achieve early diagnosis and rapid referral to specialist care
  • Empower medical teams to deliver sustainable high quality evidence-based care for affected children and adult survivors.
  • Enable family support programs that reduce practical and emotional burdens and improve access to essential care

Support Kids During Needle Related Procedures


Kenyan Child Life Specialist, Jayne Kamau, distracts a child with a meteor shower toy during a needle procedure.

Only 5% of children have support for immunization needle pain. Seriously ill children experience many needle related procedures, rarely with adequate pain support. But pain and distress can be managed and reduced.

Visit our guide to find appropriate supports for children of all ages.  Parents, ask how to manage your child’s pain. Healthcare providers, please give parents options. Learn how to make needles easier and safer for everyone.

One Retinoblastoma World: We Are Stronger Together


One Rb World group photo

Thank you to all retinoblastoma specialists, researchers, parents and survivors who joined us for three days of collaboration, learning and development at the 4th One Rb World event in Washington D.C.

Find out more about how our community is working together to help build a bright future for all affected by childhood eye cancer across America and around the world, and what happened when we gathered in Washington D.C.

Remembering Jayne, Bella and Grace, Lost on Flight ET302


On March 10, 2019, our wonderful Child Life Specialist, Jayne Kamau, and child life advocate Bella Jaboma were killed on board Ethiopian Airlines flight ET302, with Grace Kariuki, a dedicated doctor working to advance childhood cancer care.

They were all returning home to Kenya from the International Society of Paediatric Oncology Africa Congress in Cairo. Read more about our dear friends and their vital work.

WE C Hope Blog

A crimson bauble hangs in focus, golden fairy lights reflected in its shiny surface, one glowing particularly white. The tree and lights are blurred in the background.

12 Ways to Have a More Joyful Holiday

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This season can be particularly tough when childhood cancer or its long term effects loom large for a family or individual. Retinoblastoma survivor and volunteer CEO, Abby White, shares advice for creating a calmer, more spacious and joyful Holiday, where self-care for all takes priority.
Image: The word “bullying” is positioned in the middle of a white circle, defined by a red outer line. A diagonal red line runs from top right to bottom left of the circle. Other words are seen in pale colours throughout the white circle. These words are:

Bullying After Retinoblastoma: How to Help Kids Respond With Confidence

Children diagnosed with retinoblastoma are especially vulnerable and sensitive to bullying due to treatment effects. Morgan Livingstone CCLS discusses what bullying is and isn’t, how parents can recognize the signs, and help young Rb survivors use stories and develop skills to stand up to bullies with confidence.

Photographers

A baby has one red pupil and one white pupul - the classic early sign of eye cancer in children.

Know the Glow!

Learn about the most common early sign of childhood eye cancer – a white reflection in the pupil, seen in dim light and flash photos when red-eye reduction is not used. Find out how to take photos to check for signs of serious eye disease in children.

Parents & Survivors

Find Hope

We offer the Retinoblastoma Resource to supplement information provided by your medical team, answer questions and concerns about all aspects of life with Rb, increase understanding and share hope.

About WE C Hope

Meet Daisy and Rati, and learn how the gift of hope from one to the other created light from the darkness cancer brought to their lives.

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Rb Resource

Extensive information about childhood eye cancer, from diagnosis and care to coping with treatment and the lifelong effects of this cancer.

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Our Programs

WE C Hope for all children through awareness, medical care, family support and research to improve evidence based care.

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Give Hope

There are so many ways you can help us bring hope of cure and better quality of life to children with eye cancer, families and survivors.

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