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Daisy and Rati

Welcome to World Eye Cancer Hope

Retinoblastoma is an aggressive eye cancer affecting babies and young children.  It kills 7,000 youngsters each year, and blinds many more.

The most common early sign of childhood eye cancer is a white glow in the pupil of the affected eye.  The cancer is easy to diagnose and when treated early, is very curable.

Suffering and death is highest in developing countries, where most affected children live and timely access to specialist cancer care is limited.  In developed countries, cure is above 96%, but most children experience moderate, severe or complete vision loss.  Globally, children, families and survivors experience significant emotional trauma.

Inspired by
Daisy & Rati

In Your Country

Join Us at One Rb World in Hawaii, October 15-17, 2024!

A pink banner with the words “save the date” spans the top of the image. Diamond Head in Honolulu is bathed in light, under a slightly cloudy blue sky. The One Rb World logo includes a pink flower for Hawaii. Text reads: One Retinoblastoma World, Honolulu, Hawaii | October 15-17, 2024

WE C Hope USA is hosting the 7th One Retinoblastoma World meeting, October 15-17 in Honolulu, Hawaii, right before the 56th World Congress of the International Society of Paediatric Oncology.  Please join us!

Uniting parents, survivors, medical professionals and scientists from around the wortd, we share knowledge and experience,  build community, and collaborate to advance acute and lifelong care, and access to care, for all.  Kids have their own One Rb World Child Life program of activities too!

Read more and register for this unique event!

WE C Hope for all children with eye cancer, families & survivors.


Baby with one white pupil and one red pupilIncreasing access to specialist care will bring the promise of life and sight to every child, and improved life-long health to survivors. This is our mission. We:

  • Educate the public and medical community about retinoblastoma to achieve early diagnosis and rapid referral to specialist care
  • Empower medical teams to deliver sustainable high quality evidence-based care for affected children and adult survivors.
  • Enable family support programs that reduce practical and emotional burdens and improve access to essential care

A Glint or a Squint Could Be Your Hint of Eye Cancer!!


A baby boy looks at the camera. his right eye shows a white reflex while his left eye is turned in towards his nose.

Strabismus (turned eye) and leukocoria (white pupil), the most common signs of retinoblastoma, can also occur in healthy eyes.  Being aware of these signs and seeking medical care early saves children’s lives and sight.

Prompt investigation of all signs and symptoms is vital to diagnose childhood eye cancer early. Timely diagnosis provides the best opportunity to save a child’s life and sight.  Find out more about the signs and symptoms.

Buy WE C Hope Merch and More at our TeePublic Store


Nine panels feature eight different items available on World Eye Cancer Hope‘s TeePublic store, including a spiral bound notebook, a black running vest, a white tote bag, a red T-shirt, a mobile phone case, a green T-shirt, a white coffee mug, and a white long sleeve T-shirt with grey sleeves. In the centre panel, text reeds: “World Eye Cancer Hope merchandise now available at TeePublic. Along the bottom, text reeds use our unique link and a percentage of your purchase is donated to WE C Hope.

Wear your care for our retinoblastoma community with branded apparel, caps, bags, mugs, and much more.  Use our unique link, and a portion of your entire side-wide purchase benefits WE C Hope –  including thousands of unique designs.

Find out how you can help expand our range of designs, and sport your support for awareness, medical care and support for all, for life! Learn more and visit our TeePublic store today.

 

Support Kids During Needle Related Procedures


Kenyan Child Life Specialist, Jayne Kamau, distracts a young patient with a meteor shower toy while a nurse inserts an IV in her hand.

Only 5% of children have support for immunization needle pain. Seriously ill children experience many needle related procedures, rarely with adequate pain support. But pain and distress can be managed and reduced.

Visit our Needle Related Procedures guide to find supports for children of all ages.  Parents, ask how to manage your child’s pain. Healthcare providers, please give parents options. Learn how to make needles easier and safer for everyone.

WE C Hope Blog

A wide view of a grassy park with inflatable skee ball, obstacle course, and bounce house alongside giant versions of Connect 4 and Jenga. Next to the games are tables and chairs under white tents and a red picnic shelter. Guests of all ages are mingling throughout.

Fun in the So Cal Sun: 6th Annual Southern California Retinoblastoma Family Day

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Childhood eye cancer and its lifelong impacts can be a lonely, overwhelming experience. Connecting with others who understand is a healing balm for many. On November 4th, nearly 100 young patients, survivors, family and friends gathered to celebrate and support the amazing Rb community in Southern California. Marissa D. Gonzalez, bilateral Rb survivor and WE C Hope USA President, shares highlights from another delightful Family Day.
An illustration of a syringe holding medicine. The syringe casts a long shadow in the shape of a dollar symbol.

Investing in Hope: The Quest to Fund Retinoblastoma Research

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Research funding is vital to improve retinoblastoma early diagnosis, life and sight-saving treatment, family support, survivor care, and cancer prevention. But securing the funds for rare cancer research is very tough, often demoralising for researchers and clinician-scientists. Three retinoblastoma researchers share their experience, and two organizations helping to drive Rb research forward invite you to help.
A group of people representing diverse ethnic backgrounds are sitting or standing around a table scattered with post-it notes. They are deep in conversation, and several are reaching out to move post-it notes into new positions on the table.

United Against Retinoblastoma: The Importance of Global Data and Collaboration

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Understanding how retinoblastoma affects children is critical to improve diagnosis, treatment, support and outcomes for all.  Mattan Arazi, M.D and Ido Didi Fabian, M.D., MPH, world-focused ophthalmologists from Sheba Medical Centre, Israel, explore why global data and collaboration are so important in Rb research, and the knowledge, progress, and hope they are building for families and professional teams worldwide.

Destigmatizing Vision Loss Within the Retinoblastoma Community

Vision loss is a major part of the retinoblastoma experience, but rarely discussed in depth within our community. Sassy Outwater-Wright explores the trauma of vision loss, the experience of living with reduced or no sight, and pathways to living well at every age and stage of sight-loss.

Photographers

A baby has one red pupil and one white pupul - the classic early sign of eye cancer in children.

Know The Glow!

Learn about the most common early sign of childhood eye cancer – a white reflection in the pupil, seen in dim light and flash photos. Find out how to take photos to check for signs of serious eye disease in children.

Parents & Survivors

Sera holds up a model eye.

Find Hope

We offer the Retinoblastoma Resource to supplement information provided by your medical team, answer questions and concerns about all aspects of life with Rb, increase understanding and share hope.

Family & Friends

How You Can Help

Forget “let me know if I can do anything to help”! Carefully considered and offered support will be truly valued.  We have many suggestions from parents that have brought families relief, joy and hope.

Give Hope

Sun reflects gold on Daisy's hair as she smiles and laughs while clutching a big bunch of daisies.

Help Change Lives!

There are so many ways you can help us bring hope of cure and better quality of life to children with eye cancer, families and survivors.  Donate online now, or become a fundraising angel. Together, WE C Hope!

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