Below is a selection of retinoblastoma specific resources. For a detailed list of organizations providing support for different aspects and stages of cancer care, please visit our Further Resources section. You will find organization lists from financial support, travel and hospital housing to emotional support, sibling care, camps and retreats, and wish granting providers.
Rb Communities on Social Media
We bring life and sight saving opportunities to children worldwide by educating about retinoblastoma; empowering evidence-based care; and enabling effective family support. This group welcomes all in the global retinoblastoma community who wish to join us on this journey, to ensure best possible care for every child, survivor and their family.
You are welcome to join any of the following treatment center specific groups, only if your family has received care there.
For survivors and families who receive/d care in Boston (Mass Eye & Ear Institute, Boston Children’s Hospital, Dana Farber Cancer Center).
For survivors and families who receive/d care at Children’s Hospital Los Angeles
For survivors and families who receive/d care at the Retinoblastoma Center of Houston (MD Anderson Cancer Center, Texas Children’s Cancer Center, Methodist Hospital).
For survivors and families who receive/d care at Memorial Sloan Kettering Cancer Center or New York Presbyterian / Columbia University Medical Center.
For survivors and families who receive/d care in Miami
WE C Hope USA Philadelphia Center
For survivors and families who receive/d care at Wills Eye Institute / CHOP.
Independent of WE C Hope. Established by two mothers whose children receive care at St Jude Children’s Research Hospital in Memphis, USA.
WE C Hope USA Smaller Rb Centers
If you or your child receive/d care at any US hospital other than those listed above, please feel welcome to join this group.
Our Retinoblastoma Family
The following communities are created specifically for mothers, fathers, parents, grandparents, survivors or teenagers.
You must be the mother of an Rb affected child or adult to join.
You must be the father of an Rb affected child or adult to join.
Families of a Child With Retinoblastoma
A global community, established by mothers in Canada and the USA.
You must be a survivor of retinoblastoma, aged over 18 to join this group.
Retinoblastoma Organizations
Provides emotional and practical support to families of children affected by retinoblastoma in Arizona or who receive care in the state.
Childhood Cancer Organizations
For a detailed list of organizations providing support for different aspects and stages of cancer care, please visit our Further Resources section. You will find organization lists from financial support, travel and hospital housing to emotional support, sibling care, camps and retreats, and wish granting providers.
