Below is a selection of retinoblastoma specific resources. For a detailed list of organizations providing support for different aspects and stages of cancer care, please visit our Further Resources section. You will find organization lists from financial support, travel and hospital housing to emotional support, sibling care, camps and retreats, and wish granting providers.
Rb Communities on Social Media
We bring life and sight saving opportunities to children worldwide by educating about retinoblastoma; empowering evidence-based care; and enabling effective family support. This group welcomes all in the global retinoblastoma community who wish to join us on this journey, to ensure best possible care for every child, survivor and their family.
Established and moderated by the UK Childhood Eye Cancer Trust
For UK survivors aged 18 years and over. Established by the UK Childhood Eye Cancer Trust to facilitate communication between its adult survivors network.
Our Retinoblastoma Family
The following communities are created specifically for mothers, fathers, parents, grandparents, survivors or teenagers.
You must be the mother of an Rb affected child or adult to join.
You must be the father of an Rb affected child or adult to join.
Families of a Child With Retinoblastoma
A global community, established by mothers in Canada and the USA.
You must be a survivor of retinoblastoma, aged over 18 to join this group.
Retinoblastoma Organizations
Provides information, emotional and practical support to children, survivors and their families who receive care in the UK. Promotes early diagnosis through awareness campaigns and advocacy. Funds research primarily in the UK.
Childhood Cancer Resources
For a detailed list of organizations providing support for different aspects and stages of cancer care, please visit our Further Resources section. You will find organization lists from financial support, travel and hospital housing to emotional support, sibling care, camps and retreats, and wish granting providers.
