Childhood eye cancer and its lifelong impacts can overwhelm and isolate – connecting with others who understand is vital for healing. On May 3rd, 2025, 40 young patients, survivors, families and friends gathered to celebrate and support the amazing Rb community in Northern California. Bethany Folks, WE C Hope USA Executive Assistant and Event Volunteer, reflects on a wonderful afternoon with Rb families in the Bay Area.
When retinoblastoma changes everything, connection and understanding are vital. Family Days provide a soothing space for families and survivors to gather, share, and heal together. WE C Hope USA President, Marissa Gonzalez, and our blog curator, Abby White, explore how these special events foster community, joy, and hope across the retinoblastoma journey.
Events that unite our retinoblastoma community are vital for mutual support and collaboration to advance care for children, adult survivors, and families. They all happen thanks to dedicated volunteers. In the second of this 2-part post, we explore the many ways volunteers support our work, benefits to both the individual volunteer and community, and how you can help.
Retinoblastoma is a rare childhood cancer with unique family and lifelong impacts. Events that bring our community together are vital for mutual support and collaboration to advance care. They happen thanks to dedicated volunteers. In part 1 of this 2-part post, we focus on Family Days and the One Rb World conference, planned and hosted entirely by volunteers.
