One Retinoblastoma World is community, conversation, and collaboration in action. Families, survivors, and professionals unite to share knowledge and lived experience, shaping lifelong Rb care and support. WE C Hope CEO, Abby White, and WE C Hope USA President, Marissa D. Gonzalez, both Rb survivors, explore why being together in San Antonio this September matters so deeply for all in our community.
The final moments of the 7th One Rb World Conference in Honolulu, Hawaii, were dedicated to patients, families, and survivors, showcasing how empowering them can transform their individual experience and collective progress. Marissa D. Gonzalez, President of World Eye Cancer Hope USA, and Conference Event Chair, tells of the inspiring child life programming, and groundbreaking patient engaged-research building bridges of hope and healing for our retinoblastoma community worldwide.
As the 7th One Rb World Conference in Honolulu, Hawaii, reached its final hours, personal insights and global initiatives took center stage. Marissa D. Gonzalez, President of World Eye Cancer Hope USA, and Conference Event Chair, reflects on the collective mission to save lives, including The New York Times Opinion feature, “It Takes a Lifetime to Survive Childhood Cancer,” – and the story behind the article.
Day Three of the 7th One Rb World Conference in Honolulu, Hawaii, continued to inspire with an in-depth exploration of treatment pathways, survivor resilience, and global efforts to save lives. Marissa D. Gonzalez, President of World Eye Cancer Hope USA, and Conference Event Chair, shares highlights from the vital discussions and profound personal stories shaping a hopeful future for all affected by retinoblastoma.
Continuing our review of Day Two at the 7th One Rb World Conference in Honolulu, Hawaii, we explore critical life-saving advancements in global retinoblastoma care. Marissa D. Gonzalez, President of World Eye Cancer Hope USA, and Conference Event Chair, delves deeper into the research developments, technological breakthroughs, collaborations, joyful child life, and uplifting survivor stories shaping a brighter future for all.
The 7th One Retinoblastoma World conference took place in Honolulu, Hawaii over three days in October 2024. Day Two brought perspectives from around the globe as our scientific programming took center stage. Marissa D. Gonzalez, President of World Eye Cancer Hope USA, and Conference Event Chair, shares highlights from discussions on life-saving care and technological advances in the second installment of this three-part conference review.
The Hawaiian word “wiki wiki” means “fast”. The global wiki culture embodies the urgent collaborative action needed for children with possible retinoblastoma, and survivors with second cancer risk. Timely diagnosis is the best cure, but referral delays are common worldwide. WE C Hope CEO Abby White explores common causes, how to avoid them, and speed up referral for optimal care.
Familial retinoblastoma affects more than one person in a family, and individuals with a heritable RB1 gene mutation have increased cancer risk throughout life. Finding cancer early is vital for the best treatment and outcomes. Revisiting blogs from ocular oncologist Alison Skalet M.D. PhD, and WE C Hope CEO / Rb Survivor, Abby White, we explore screening for high-risk individuals at all stages of life.
Many parents and survivors report signs and symptoms of retinoblastoma and related second cancers to primary care providers. Prompt referral is vital for timely diagnosis and optimal treatment. WE C Hope CEO Abby White explores who needs referral and when, and the key elements of an effective referral process – for children with possible eye cancer, and survivors throughout life.
Primary care providers are pivotal in the timely diagnosis of retinoblastoma and related second cancers. They are usually the first contact for parents and survivors concerned about signs and symptoms. WE C Hope CEO Abby White explores their key role, the challenges they face in recognizing signs and securing a swift referral, and the need for education targeting primary care providers.
