Tag Archive for: well child exams

Headshot of a young child, around 18-months old, with a blue and white pacifier in their mouth. There is the characteristic yellow-white glow in the pupil of their right eye, commonly seen in retinoblastoma and Coats’ disease. Text reads “Early diagnosis is the best cure”

“Have We Spoken Before?” Same Retinoblastoma Diagnosis Story, Different Parents…

Many families tell of delayed pathways to care when their child is diagnosed with eye cancer. Orthoptist and retinoblastoma care coordinator, Sandra Staffieri, and leukocoria awareness advocate, Megan Webber, are frustrated by the repeated stories and their negative patient impacts. They explore why these delays continue, some efforts to overcome the challenges, and where they find hope for the future.