Tag Archive for: Ocular Oncology

A child life specialist distracts a child with an iPad game while he receives a vaccination. A fourth person is seen to the left of frame. All four are wearing face masks.

No Pain = Gain: How to Manage your Child’s Pain During Uncomfortable Experiences

Having medical procedures can be tough for children, especially when many are repeated during a long course of medical care. Though necessary, they do not need to be painful. Maria Sohail, child life intern and Masters Candidate in Child Life and Pediatric Psychosocial Care, explores a range of pain management strategies that can support a child’s mind and body comfort.

A large group of people, diverse in age, ethnicity, and background, gather in a large conference room. Some sit at large round tables while others stand together in the back of the room. They are smiling and some offer hand gestures of strength, victory or peace.

7th SoCal Rb Family Day Grows a Resilient Community Where No One Faces Retinoblastoma Alone

In September 2025, 140 survivors, patients, family members, friends and medical professionals gathered at Children’s Hospital Los Angeles for the 7th Southern California Rb Family Day, sharing laughter, tears, and powerful solidarity. WE C Hope USA President and Founding Board Member, Marissa D. Gonzalez, reflects on this transformative day filled with love and light, and the hope and healing nurtured in community.

A fuzzy, brown teddy bear sits on a table with a blue table cloth. The bear has red and black plaid feet, a cream snout, black eyes, a brown nose, and a black smile. A nasograstric tube and a gastrostomy tube are inserted, and an IV pole and IV fluids are seen to the side. Behind the bear is a teddy bear sized hospital bed and a green curtain.

Play – The Key Ingredient to Pediatric Medical Care

Play is the language, university, and business of childhood. Medical play is a key part of child-focused health care, helping young patients learn, reduce fear, and take part in their care. Sophie Goldberg, child life intern and student of Child Life and Pediatric Psychosocial Care, explores what medical play is, and how you can use it to empower your child through their medical experiences.

Rowan and Harry sit at a table, chatting.

Friendships Through Retinoblastoma

A diagnosis of childhood cancer can leave parents feeling adrift and utterly alone. The friends who walk with them through their child’s medical care are often cherished lifelong, and from a central thread in their own healing. Megan Santos reflects on the many friendships formed before, during and after her daughter’s treatment for retinoblastoma.

A baby has a squint - the right eye is rutned in towards the nose.

18 Commonly Confused Retinoblastoma Terms, What They Mean and Why Getting Them Right Matters.

Do you know the difference between lazy eye and squint, or an ocular oncologist and a paediatric oncologist? Do you know when extraocular Rb becomes metastatic, or why trilateral Rb is neither of these? In Part 1 of a mini-series, WE C Hope CEO Abby White explains these and other terms, and why using them correctly is important.

The Informed Parent: 6 Tips for Staying Up to Date in a Social Media World

Google, AI, and social media play an increasingly significant role in the lives of families affected by retinoblastoma, but without careful use, they can complicate a child’s medical care and even put life at risk. Dr. Jesse Berry shares her recommendations for being a safely informed, engaged parent advocate in the modern hyper-connected age.

Jayne and a child are pictured wearing long yarn wigs of different colours.

Jayne Kamau, My Friend and Colleague

On March 10, 2019, our beloved child life specialist Jayne Kamau died aboard Ethiopian Airlines flight ET302 as she returned home from SIOPAfrica in Cairo. WE C Hope Child Life Director, Morgan Livingstone, reflects on more than a decade of mentoring, friendship and working together to advance child life in Kenya. Co-authored with WE C Hope CEO, Abby White.

a baby plays with an anaesthetic mask

7 Ways Caregivers Can Support Infant Mental Health during Cancer Care.

Infants experience a wide range of emotions, the depths of which are just beginning to be understood. Morgan Livingstone CCLS discusses how the external environment influences infant mental health, and the varied ways parents and medical professionals can help babies cope and thrive through medical interventions.

Children’s program volunteer, Bethany, sits crisscross on the floor and holds a green stuffed animal out to two children. Linden kneels and places eye drops in the stuffed animal’s eyes while Myra and Bethany smile and watch.

Our Retinoblastoma Community Shines in the Golden City

Childhood eye cancer and its lifelong impacts can overwhelm and isolate – connecting with others who understand is vital for healing. On May 3rd, 2025, 40 young patients, survivors, families and friends gathered to celebrate and support the amazing Rb community in Northern California. Bethany Folks, WE C Hope USA Executive Assistant and Event Volunteer, reflects on a wonderful afternoon with Rb families in the Bay Area.

The Retinoblastoma Rollercoaster: A Journey Through the Eyes of Rb Moms

Childhood cancer care is often a long and winding road for the entire family, with many successes and setbacks, triumph, despair, and new hope. WE C Hope Director, Lori Baños, creator and moderator of the Facebook group Rb Moms, reflects on the wild rollercoaster ride when a child is diagnosed with eye cancer. With contributions from group members.